@joiep.bsky.social
Writer, Socialist, pro-Palestine, Antifa, Artist and Poet, ND, Person with food intolerances, and disabilities.
As a Brit, who hates everything this world is becoming, I confess I love to see this. What utter chaotic disaster. I bet Farage is eyeing up Downing St, Whitehall, even Buck House right now. I honestly don't care about big old buildings, I do care about spending unnecessary $$$ on new buildings.
Wake up, babe, the least subtle visual metaphor in history just dropped
October 22, 2025 at 2:13 AM
As a Brit, who hates everything this world is becoming, I confess I love to see this. What utter chaotic disaster. I bet Farage is eyeing up Downing St, Whitehall, even Buck House right now. I honestly don't care about big old buildings, I do care about spending unnecessary $$$ on new buildings.
Offending cat and nice cat. And yes that's a mid century vintage floor, there's a lot of work happening here
October 22, 2025 at 2:03 AM
Offending cat and nice cat. And yes that's a mid century vintage floor, there's a lot of work happening here
Unless you're my cat. Then "hisssss" is the only way to communicate this. I discovered after she bit the inside of my wrist rather hard that she doesn't like me growling at her very much. But she hates the 'hiss' the power screwdriver makes because she can see it's not me doing it.
October 22, 2025 at 1:59 AM
Unless you're my cat. Then "hisssss" is the only way to communicate this. I discovered after she bit the inside of my wrist rather hard that she doesn't like me growling at her very much. But she hates the 'hiss' the power screwdriver makes because she can see it's not me doing it.
I've been reading a lot about new treatments, testing, amd research in ME, fibromyalgia, hEDS, and endometriosis lately. And lots about interactions between the different conditions I have. Apparently coeliac is common in people with endometriosis for example. Having a tough flare up of endo atm 🤕
October 22, 2025 at 1:49 AM
I've been reading a lot about new treatments, testing, amd research in ME, fibromyalgia, hEDS, and endometriosis lately. And lots about interactions between the different conditions I have. Apparently coeliac is common in people with endometriosis for example. Having a tough flare up of endo atm 🤕
Aha so my great great grandmother's sister who's workhouse infirmary records mention rheumatism could indeed have had the same condition as me. Fibromyalgia used to come under rheumatism as a catch all. fibrowarrior.co/the-history-...
The History of Fibromyalgia. Its Horrible…! - Fibromyalgia Warrior
You sometimes hear fibromyalgia referred to as a “fad diagnosis” or “new disease,” but the truth is that fibromyalgia is far from new. It has centuries of history, with multiple name changes and disca...
fibrowarrior.co
October 22, 2025 at 1:46 AM
Aha so my great great grandmother's sister who's workhouse infirmary records mention rheumatism could indeed have had the same condition as me. Fibromyalgia used to come under rheumatism as a catch all. fibrowarrior.co/the-history-...
Definitely heading for weirder over here :)
August 16, 2025 at 1:10 PM
Definitely heading for weirder over here :)
Yep feeling that today. Woke up fairly ok, bit achey, but then endometriosis pain out of nowhere and suddenly couldn't do anything. Went to lie down and it went away, but... exhaustion, ended up sleeping, and I'm still exhausted now. So, ugh.
August 14, 2025 at 5:30 PM
Yep feeling that today. Woke up fairly ok, bit achey, but then endometriosis pain out of nowhere and suddenly couldn't do anything. Went to lie down and it went away, but... exhaustion, ended up sleeping, and I'm still exhausted now. So, ugh.
Story of my marriage coming soon...
August 13, 2025 at 11:58 PM
Story of my marriage coming soon...
And people try and ask me why I think I'm disabled? This ⬇️ alone is a full time job let alone having cptsd, fibro, and endometriosis on top. My journey now is about exploring how to REALLY look after myself. I definitely overdid things yesterday, so resting today
August 13, 2025 at 8:05 AM
And people try and ask me why I think I'm disabled? This ⬇️ alone is a full time job let alone having cptsd, fibro, and endometriosis on top. My journey now is about exploring how to REALLY look after myself. I definitely overdid things yesterday, so resting today
An embroidery I bought a couple of years ago, but had to leave behind because of recent events. I took a photo so I can remember this quote:
"If it is inaccessible to the poor it is neither radical nor revolutionary"
"If it is inaccessible to the poor it is neither radical nor revolutionary"
August 10, 2025 at 9:53 PM
An embroidery I bought a couple of years ago, but had to leave behind because of recent events. I took a photo so I can remember this quote:
"If it is inaccessible to the poor it is neither radical nor revolutionary"
"If it is inaccessible to the poor it is neither radical nor revolutionary"
Lol, no indeed. But there is bed and sometimes that is enough. Also, adults are allowed to have soft toys to cuddle
The big problem with being an adult is that there’s no nurse’s office to go to when you just need a little break from it all
August 9, 2025 at 2:40 PM
Lol, no indeed. But there is bed and sometimes that is enough. Also, adults are allowed to have soft toys to cuddle
This comment on this post is perfect right now.
Here's the link to the original post with lots of lovely hobby suggestions in the comments www.facebook.com/share/p/14EA...
Here's the link to the original post with lots of lovely hobby suggestions in the comments www.facebook.com/share/p/14EA...
August 7, 2025 at 1:25 PM
This comment on this post is perfect right now.
Here's the link to the original post with lots of lovely hobby suggestions in the comments www.facebook.com/share/p/14EA...
Here's the link to the original post with lots of lovely hobby suggestions in the comments www.facebook.com/share/p/14EA...
Earlier this year I planted nasturtiums and I've been enjoying watching them grow. In all my darkness I had these beautiful pops of bright cheerful colour. And they're clearly trying to escape like I was so it was like they were showing me the way.
I'll plant nasturtiums again in my new garden 🧡
I'll plant nasturtiums again in my new garden 🧡
August 7, 2025 at 6:47 AM
Earlier this year I planted nasturtiums and I've been enjoying watching them grow. In all my darkness I had these beautiful pops of bright cheerful colour. And they're clearly trying to escape like I was so it was like they were showing me the way.
I'll plant nasturtiums again in my new garden 🧡
I'll plant nasturtiums again in my new garden 🧡
I used to wonder if all the chaos was because in a-level art I broke a mirror for my friend to use in her self portrait because she was superstitious. But then the chaos continued way past 7 years so maybe it's because I didn't forward the chain letters 😉
August 6, 2025 at 9:43 PM
I used to wonder if all the chaos was because in a-level art I broke a mirror for my friend to use in her self portrait because she was superstitious. But then the chaos continued way past 7 years so maybe it's because I didn't forward the chain letters 😉
Hi, long time no post, lot been going on. I've left my husband and now I'm in a different country. I'm starting a new project soon... less politics, more figuring stuff out and learning how to live here
August 4, 2025 at 2:02 PM
Hi, long time no post, lot been going on. I've left my husband and now I'm in a different country. I'm starting a new project soon... less politics, more figuring stuff out and learning how to live here
Reposted
Summary of the Threat to the United States
June 22, 2025 at 8:36 PM
Summary of the Threat to the United States
Reposted
I want to see non-disabled people shouting about the disability benefit cuts. If you spoke out about trans rights, abortion rights, or migrant rights in recent weeks? Good on you! If you aren’t doing the same for disabled people, ask yourself why.
June 22, 2025 at 8:56 PM
2 weeks and 1 day after breaking/not breaking my arm (various medical people in disagreement about that) I've just pulled a load of weeds out of the front flower bed. Couldn't do the last 3 because they needed 2 hands, but managed the rest. No sling, just balance. I'm getting there.
May 16, 2025 at 1:51 PM
2 weeks and 1 day after breaking/not breaking my arm (various medical people in disagreement about that) I've just pulled a load of weeds out of the front flower bed. Couldn't do the last 3 because they needed 2 hands, but managed the rest. No sling, just balance. I'm getting there.
I remember going into a photography shop and paying £5 for a photographer to take a photo for my passport, walking me through exactly how to position myself and hold my face. Now I do it with my phone and keep getting refused by the government website because my photo isn't good enough.
May 16, 2025 at 10:12 AM
I remember going into a photography shop and paying £5 for a photographer to take a photo for my passport, walking me through exactly how to position myself and hold my face. Now I do it with my phone and keep getting refused by the government website because my photo isn't good enough.
1/3 Visas for care workers. Yes there's a problem, yes something needs to be done. But as we keep seeing Starmer is proposing completely the wrong thing to do about it. The issue is companies bringing workers in on visas when they don't have a licence to operate as a care company yet.
May 13, 2025 at 8:28 AM
1/3 Visas for care workers. Yes there's a problem, yes something needs to be done. But as we keep seeing Starmer is proposing completely the wrong thing to do about it. The issue is companies bringing workers in on visas when they don't have a licence to operate as a care company yet.
I broke my arm 2 weeks ago. It was a nice sunny day, I'd had coffee with a friend, and I was walking home through the park. TLDR I fell in the park and landed on my wrist. The MIU guy ordered xrays of the wrong part of my arm! The fracture was found a week later because I happened to ask a physio...
May 13, 2025 at 8:21 AM
I broke my arm 2 weeks ago. It was a nice sunny day, I'd had coffee with a friend, and I was walking home through the park. TLDR I fell in the park and landed on my wrist. The MIU guy ordered xrays of the wrong part of my arm! The fracture was found a week later because I happened to ask a physio...
Exactly, this is what I was looking for in the speech. Nothing. No recognition that Covid, years of Austerity, and a future with an ever increasing lack of jobs due to AI are the cause of so much mental poor health amongst the young
This image is so real.
March 18, 2025 at 3:11 PM
Exactly, this is what I was looking for in the speech. Nothing. No recognition that Covid, years of Austerity, and a future with an ever increasing lack of jobs due to AI are the cause of so much mental poor health amongst the young
Can anyone remind me which party was in power for 15 years until last summer please? The one that refused to 'relieve [people with lifelong conditins] of the burden of the process of PIP reviews'
March 17, 2025 at 10:12 PM
Can anyone remind me which party was in power for 15 years until last summer please? The one that refused to 'relieve [people with lifelong conditins] of the burden of the process of PIP reviews'
I've just been looking at the NHS 111 Planned Care site for my health board. I was referred to Oral surgery last autumn, 1st appointment is next month. This page says that appointment should have been in 6 weeks. That's not even fudging the statistics. That is outright lies.
March 17, 2025 at 9:56 PM
I've just been looking at the NHS 111 Planned Care site for my health board. I was referred to Oral surgery last autumn, 1st appointment is next month. This page says that appointment should have been in 6 weeks. That's not even fudging the statistics. That is outright lies.
Reposted
Rachel Reeves never mentions long Covid. 3.1 million suffering and I think so many more as no one wants to talk about the Voldemort of sickness! johnsnowproject.org/primers/long...
Long Covid is one of the world’s biggest challenges
A new Science perspective by Ziyad Al-Aly and Eric Topol adds to the calls for governments to take action to meet the challenges posed by Long Covid.
johnsnowproject.org
March 15, 2025 at 12:07 PM
Rachel Reeves never mentions long Covid. 3.1 million suffering and I think so many more as no one wants to talk about the Voldemort of sickness! johnsnowproject.org/primers/long...