Jen DressForME
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
Reposted by Jen DressForME
Inaccessibility, failure to accommodate and exclusion of disabled people are not an “inconvenience.”
They are hostile acts that impose segregation, isolation, discrimination and trauma upon disabled people.
They are hostile acts that impose segregation, isolation, discrimination and trauma upon disabled people.
November 15, 2023 at 8:49 PM
Inaccessibility, failure to accommodate and exclusion of disabled people are not an “inconvenience.”
They are hostile acts that impose segregation, isolation, discrimination and trauma upon disabled people.
They are hostile acts that impose segregation, isolation, discrimination and trauma upon disabled people.
Reposted by Jen DressForME
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
October 7, 2023 at 4:03 PM
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Reposted by Jen DressForME
Inadequate medical training and the lack of a biomarker put pressure on #MECFS patients to describe how they feel (mostly to be disbelieved anyway). I don't recall my mum, for example, having to rack her brains to describe what having cancer was like before receiving chemo.
October 22, 2023 at 11:48 AM
Inadequate medical training and the lack of a biomarker put pressure on #MECFS patients to describe how they feel (mostly to be disbelieved anyway). I don't recall my mum, for example, having to rack her brains to describe what having cancer was like before receiving chemo.
Reposted by Jen DressForME
This is so real. I’ve reported on this over the years in many forms. Coral reef scientists. Conservationists caring for endlings. Public health workers in the pandemic. Journalists covering all the above. The people bearing witness are not okay.
One unexpected thing in my qualitative study w natural scientists (one-hour interviews) is how deeply, deeply sad the climate scientists are. They say things like "you have enough information from us, why won't anyone act?" -- the psychological distress these people are enduring is very great.
October 22, 2023 at 4:18 AM
This is so real. I’ve reported on this over the years in many forms. Coral reef scientists. Conservationists caring for endlings. Public health workers in the pandemic. Journalists covering all the above. The people bearing witness are not okay.
Reposted by Jen DressForME
I love taking photographs in art galleries. Always fascinating to watch people interact with art.
Took these while travelling during the summer
#photography 📷 #art #galleries
Took these while travelling during the summer
#photography 📷 #art #galleries
October 21, 2023 at 12:36 PM
I love taking photographs in art galleries. Always fascinating to watch people interact with art.
Took these while travelling during the summer
#photography 📷 #art #galleries
Took these while travelling during the summer
#photography 📷 #art #galleries
Reposted by Jen DressForME
So many folks are sick again so I share this with love: you must rest. Rest won’t guarantee you don’t get long covid but it’s a huge mitigator. Even if you have an accute mild case. Even if you don’t feel it at all. Send this to your boss. Make your partner clean or use disposable dishes etc.
Why You Should Rest—a Lot—If You Have COVID-19
It could help prevent Long COVID
time.com
September 9, 2023 at 6:32 PM
So many folks are sick again so I share this with love: you must rest. Rest won’t guarantee you don’t get long covid but it’s a huge mitigator. Even if you have an accute mild case. Even if you don’t feel it at all. Send this to your boss. Make your partner clean or use disposable dishes etc.
@ravihvj.bsky.social Ravi! So cool to see you here too! 🥳😍😃
October 19, 2023 at 6:33 PM
@ravihvj.bsky.social Ravi! So cool to see you here too! 🥳😍😃
Reposted by Jen DressForME
An opinion I feel should be universal at this point: All indoor public spaces (but especially schools, workplaces, and medical facilities) should be subject to air quality regulations and continuous monitoring and CO2 and particulate concentration numbers should be accessibly displayed.
October 19, 2023 at 5:40 PM
An opinion I feel should be universal at this point: All indoor public spaces (but especially schools, workplaces, and medical facilities) should be subject to air quality regulations and continuous monitoring and CO2 and particulate concentration numbers should be accessibly displayed.
Reposted by Jen DressForME
Remember: The people giving you weird looks won't be there to help feed you or take your trash out when you're too sick to get out of bed.
Maybe decide not to give a fuck about what anyone thinks, who doesn't have skin in the game of your well-being.
Maybe decide not to give a fuck about what anyone thinks, who doesn't have skin in the game of your well-being.
It's never going to make sense to me that people are chill with risking their lives to avoid weird looks from people at Walmart instead of just wearing a face mask
October 2, 2023 at 3:42 PM
Remember: The people giving you weird looks won't be there to help feed you or take your trash out when you're too sick to get out of bed.
Maybe decide not to give a fuck about what anyone thinks, who doesn't have skin in the game of your well-being.
Maybe decide not to give a fuck about what anyone thinks, who doesn't have skin in the game of your well-being.
Reposted by Jen DressForME
Woohoo! @exceedhergrasp1.bsky.social has arrived here! A key follow for anyone interested in #mecfs, with her finger on the pulse of scientific, clinical and advocacy issues.
October 3, 2023 at 5:47 PM
Woohoo! @exceedhergrasp1.bsky.social has arrived here! A key follow for anyone interested in #mecfs, with her finger on the pulse of scientific, clinical and advocacy issues.
Reposted by Jen DressForME
A wave and a shoutout to the MECFS, LongCovid and chronic illness community. Nice to see lots of familiar faces on here.
Thanks to the absolute gem that is @julierehmeyer.bsky.social too, as always.
Look forward to discussion on here. :)
#MECFS #LongCovid #pwME #MillionsMissing #ChronicIllness
Thanks to the absolute gem that is @julierehmeyer.bsky.social too, as always.
Look forward to discussion on here. :)
#MECFS #LongCovid #pwME #MillionsMissing #ChronicIllness
September 30, 2023 at 12:14 AM
A wave and a shoutout to the MECFS, LongCovid and chronic illness community. Nice to see lots of familiar faces on here.
Thanks to the absolute gem that is @julierehmeyer.bsky.social too, as always.
Look forward to discussion on here. :)
#MECFS #LongCovid #pwME #MillionsMissing #ChronicIllness
Thanks to the absolute gem that is @julierehmeyer.bsky.social too, as always.
Look forward to discussion on here. :)
#MECFS #LongCovid #pwME #MillionsMissing #ChronicIllness
Reposted by Jen DressForME
Let me know, guys, about prominent folks in the chronic illness community who I haven’t found or thought to shout out here. I’m sure I’m missing people. Any key #longcovid folks here? #POTS? #EDS? #MCAS?
October 2, 2023 at 7:17 PM
Let me know, guys, about prominent folks in the chronic illness community who I haven’t found or thought to shout out here. I’m sure I’m missing people. Any key #longcovid folks here? #POTS? #EDS? #MCAS?
@eleanoralbaugh.bsky.social Yay Eleanor! Welcome to Blue Sky! :)
October 3, 2023 at 2:39 PM
@eleanoralbaugh.bsky.social Yay Eleanor! Welcome to Blue Sky! :)