Alisa
@ibc-advocate.bsky.social
Inflammatory breast cancer #IBC survivor and patient advocate. #thinkibc Loves: science | running | cats | books | chocolate
Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together.
November 14, 2025 at 5:30 PM
Honored to be a presenter at IBC Community Connect Conference - it’s wonderful to be in the presence of so many brilliant, dedicated people. #IBCCC2025 Thank you @ibcradiation.bsky.social for bringing everyone together.
Reposted by Alisa
💬 Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd
ja.ma/46VhjuI
ja.ma/46VhjuI
September 25, 2025 at 4:15 PM
💬 Viewpoint: Medical education should shift from pattern recognition to critical thinking and pathophysiological reasoning to reduce diagnostic errors and adapt to #AI advancements. #MedEd
ja.ma/46VhjuI
ja.ma/46VhjuI
Looking forward to reading this one.
You've heard me talk about it.
You've seen me write about it.
And now it's your chance to pre-order my forthcoming book Coverage Denied!
Combining survey & administrative data with extensive interviews, my book highlights the harms caused by coverage barriers. Hope you'll read it!
cup.org/4nfM2IM
You've seen me write about it.
And now it's your chance to pre-order my forthcoming book Coverage Denied!
Combining survey & administrative data with extensive interviews, my book highlights the harms caused by coverage barriers. Hope you'll read it!
cup.org/4nfM2IM
Coming 2026!
@mirandayaver.bsky.social's Coverage Denied: How Health Insurers Drive Inequality in the United States is a sobering account of the ways in which coverage denials damage patient health and exacerbate inequalities.
Pre-order now! 🗺️ 🩺📊
https://cup.org/4nfM2IM
@mirandayaver.bsky.social's Coverage Denied: How Health Insurers Drive Inequality in the United States is a sobering account of the ways in which coverage denials damage patient health and exacerbate inequalities.
Pre-order now! 🗺️ 🩺📊
https://cup.org/4nfM2IM
September 25, 2025 at 6:13 PM
Looking forward to reading this one.
Important, evidence-based information about birth control pills.
Birth control pills change your hormone levels, which both lower and increase your risk for developing different types of cancer.
Read what our Dr. Roni Wilke has to say: spr.ly/63323Akwg1 #OncSky #EndCancer
Read what our Dr. Roni Wilke has to say: spr.ly/63323Akwg1 #OncSky #EndCancer
The pill and cancer: Is there a link?
Most birth control pills contain human-made versions of the female sex hormones estrogen and progesterone. So, are they putting you at risk for cancer?
spr.ly
September 22, 2025 at 9:10 PM
Important, evidence-based information about birth control pills.
Reposted by Alisa
Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways
oncodaily.com/oncolibrary/...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #EpigeneticModifiers #CancerTherapy
oncodaily.com/oncolibrary/...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #EpigeneticModifiers #CancerTherapy
Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways - OncoDaily
Epigenetic Modifiers are Drugs that alter gene expression by modifying DNA or histones without changing the sequence and reprogramming cancer
oncodaily.com
September 22, 2025 at 7:48 PM
Epigenetic Modifiers in Cancer Therapy: Unlocking New Treatment Pathways
oncodaily.com/oncolibrary/...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #EpigeneticModifiers #CancerTherapy
oncodaily.com/oncolibrary/...
#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #EpigeneticModifiers #CancerTherapy
Reposted by Alisa
Our inflammatory breast cancer program is raising money to help patients manage out of pocket costs on trials and to find new targets. Every dollar goes to the research. Please help if you can! mdanderson.donordrive.com/participants...
I'm supporting The University of Texas MD Anderson Cancer Center!
The University of Texas MD Anderson Cancer Center, the global leader in cancer care. Novel discoveries at MD Anderson pave the way for new cancer therapies, making a difference in the outcomes of pati...
mdanderson.donordrive.com
August 31, 2025 at 12:24 PM
Our inflammatory breast cancer program is raising money to help patients manage out of pocket costs on trials and to find new targets. Every dollar goes to the research. Please help if you can! mdanderson.donordrive.com/participants...
Reposted by Alisa
'In this review we discuss recent technological advancements and how their application to T cells has the potential to steer the next generation of cellular therapy. We highlight emerging applications and current technological limitations that future tool development aims to overcome.'
CRISPR tools for T cells: targeting the genome, epigenome, and transcriptome
T cell therapy has curative potential for many cancers. Despite impressive clinical
efficacy in hematological malignancies, current T cell therapy still faces challenges
related to sustaining response...
www.cell.com
September 2, 2025 at 1:22 AM
'In this review we discuss recent technological advancements and how their application to T cells has the potential to steer the next generation of cellular therapy. We highlight emerging applications and current technological limitations that future tool development aims to overcome.'
Done. Nobody who is metastatic should have to wait months for disability benefits they’ve paid into or years to be eligible for Medicare coverage.
Take action during the congressional recess and ask your US representative to cosponsor the Metastatic Breast Cancer Access to Care Act. Nbcc.info/TakeAction
August 24, 2025 at 7:22 PM
Done. Nobody who is metastatic should have to wait months for disability benefits they’ve paid into or years to be eligible for Medicare coverage.
Reposted by Alisa
When it feels like you’re drowning in intake forms, visit notes, bills and patient education documents, it can be hard to know where to start with organization.
MD Anderson leadership practitioner Janice Simon shares expert tips: spr.ly/63328fxWTe #OncSky #EndCancer
MD Anderson leadership practitioner Janice Simon shares expert tips: spr.ly/63328fxWTe #OncSky #EndCancer
6 tips for getting organized during cancer treatment
From file management to maximizing MyChart, these expert-backed tips can help patients and caregivers get organized during cancer treatment.
spr.ly
August 24, 2025 at 5:00 PM
When it feels like you’re drowning in intake forms, visit notes, bills and patient education documents, it can be hard to know where to start with organization.
MD Anderson leadership practitioner Janice Simon shares expert tips: spr.ly/63328fxWTe #OncSky #EndCancer
MD Anderson leadership practitioner Janice Simon shares expert tips: spr.ly/63328fxWTe #OncSky #EndCancer
Reposted by Alisa
"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/ #cancer, #MS, ulcerative colitis, #longCovid or anothr autoimmune or chronic illness, the emotional reverberations — marked ..." 1/2 #CanSky #IDSky
The trauma of illness can last long after the body has healed
“The body can heal while the self remains disconnected”: a psychologist on the overlooked trauma of illness.
www.statnews.com
August 22, 2025 at 5:17 PM
"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/ #cancer, #MS, ulcerative colitis, #longCovid or anothr autoimmune or chronic illness, the emotional reverberations — marked ..." 1/2 #CanSky #IDSky
Reposted by Alisa
You’re welcome. I just wanted to alert other women - and the men who love them - as many friends had no idea that purple breasts could indicate IBC or even that inflammatory breast cancer is out there as a different and dangerous form.
August 19, 2025 at 8:24 PM
You’re welcome. I just wanted to alert other women - and the men who love them - as many friends had no idea that purple breasts could indicate IBC or even that inflammatory breast cancer is out there as a different and dangerous form.
An IBC-specific biomarker would be huge. Thanks to all scientists and clinicians who do life-saving work focused on inflammatory breast cancer. #thinkIBC
High-throughput assay confirmation of a T-cell receptor pre-mRNA fragment as a blood-based inflammatory breast cancer biomarker https://www.medrxiv.org/content/10.1101/2025.08.19.25333925v1
August 23, 2025 at 8:08 PM
An IBC-specific biomarker would be huge. Thanks to all scientists and clinicians who do life-saving work focused on inflammatory breast cancer. #thinkIBC
Reposted by Alisa
“The shooting was “just the perfect, terrible metaphor for what public health has endured these past six months — and the past six years,” said Katelyn Jetelina, a public health expert who has worked closely with the C.D.C.”
Gunman in Deadly C.D.C. Shooting Fixated on Covid Vaccine, Officials Say
www.nytimes.com
August 9, 2025 at 7:48 PM
“The shooting was “just the perfect, terrible metaphor for what public health has endured these past six months — and the past six years,” said Katelyn Jetelina, a public health expert who has worked closely with the C.D.C.”
Reposted by Alisa
For more than a century, NIH-sponsored research has played a critical role in improving the nation’s health. This vital work must continue.
Slashing NIH funding imperils the foundation of medical research
For more than a century, NIH-sponsored research has played a critical role in improving the nation’s health. This vital work must continue.
spr.ly
August 4, 2025 at 9:10 PM
For more than a century, NIH-sponsored research has played a critical role in improving the nation’s health. This vital work must continue.
Reposted by Alisa
This comes up a lot when I talk with other epidemiologists. The detention centers are perfect launchpads for disease outbreaks.
Republicans won’t care because they don’t see the migrants as human. But they should remember that infectious disease won’t stop at the walls of the detention center.
Republicans won’t care because they don’t see the migrants as human. But they should remember that infectious disease won’t stop at the walls of the detention center.
Seven suspected tuberculosis cases at Tacoma ICE processing facility
The KING 5 Investigators discovered seven suspected cases of TB at the Northwest ICE Processing Center, confirmed by the Washington State Department of Health.
www.king5.com
August 2, 2025 at 2:34 PM
This comes up a lot when I talk with other epidemiologists. The detention centers are perfect launchpads for disease outbreaks.
Republicans won’t care because they don’t see the migrants as human. But they should remember that infectious disease won’t stop at the walls of the detention center.
Republicans won’t care because they don’t see the migrants as human. But they should remember that infectious disease won’t stop at the walls of the detention center.
Thanks to you and to everyone on the committee for your hard work. A lot of work remains - educating doctors about IBC; getting more IBC-specific research - but this is a great start, especially for getting much-needed data. #thinkibc
Amazing news in IBC! The @susangkomen.bsky.social IBC Collaborative has secured ICD codes for IBC- they go into effect in October!! #oncsky #cansky #bcsm Amazing work by many but especially @ibcresearch1.bsky.social for galvanizing this group!
July 31, 2025 at 9:33 PM
Thanks to you and to everyone on the committee for your hard work. A lot of work remains - educating doctors about IBC; getting more IBC-specific research - but this is a great start, especially for getting much-needed data. #thinkibc
Reposted by Alisa
Filipa Lynce, MD, FASCO, received the Advanced Clinical Research Award in Breast Cancer Research from Conquer Cancer, the @ascocancer.bsky.social Foundation. Lynce's work will focus on deciphering mechanisms of response to novel therapies in HER2 expressing stage III Inflammatory Breast Cancer.
July 24, 2025 at 2:30 PM
Filipa Lynce, MD, FASCO, received the Advanced Clinical Research Award in Breast Cancer Research from Conquer Cancer, the @ascocancer.bsky.social Foundation. Lynce's work will focus on deciphering mechanisms of response to novel therapies in HER2 expressing stage III Inflammatory Breast Cancer.
Reposted by Alisa
When Ethan's family needed a miracle, Medicaid allowed them to "choose life" for him.
This Sat, July 26, let's stand up for the millions of families in America, like Ethan's, who deserve compassion and care, not cruelty!
📌 Find an event near you: www.mobilize.us/familiesfirs...
#FamiliesFirst
This Sat, July 26, let's stand up for the millions of families in America, like Ethan's, who deserve compassion and care, not cruelty!
📌 Find an event near you: www.mobilize.us/familiesfirs...
#FamiliesFirst
July 24, 2025 at 7:32 PM
When Ethan's family needed a miracle, Medicaid allowed them to "choose life" for him.
This Sat, July 26, let's stand up for the millions of families in America, like Ethan's, who deserve compassion and care, not cruelty!
📌 Find an event near you: www.mobilize.us/familiesfirs...
#FamiliesFirst
This Sat, July 26, let's stand up for the millions of families in America, like Ethan's, who deserve compassion and care, not cruelty!
📌 Find an event near you: www.mobilize.us/familiesfirs...
#FamiliesFirst
Exactly
Your scars don’t need to inspire anyone. They’re not symbols. They’re lived experience.
Some days you hide them. Some days you own them. Both are valid.
You’re not defined by what cancer changed only by how fiercely you kept going. #BodyAfterCancer #YouBeatCancerNowWhat #oncsky #cansky
Some days you hide them. Some days you own them. Both are valid.
You’re not defined by what cancer changed only by how fiercely you kept going. #BodyAfterCancer #YouBeatCancerNowWhat #oncsky #cansky
July 21, 2025 at 12:07 AM
Exactly
Important read.
“Embarrassment and shame, guilt. ‘I did this to myself. Who do I have to blame?’” Health-related shame can be a burden on cancer patients and interfere with care. Learn more in the latest issue of Cancer Today. buff.ly/FAiK8uz
The Shadow of Shame | Cancer Today
Feelings of shame about one’s cancer can hinder treatment and recovery. Overcoming shame is possible but requires work and support.
www.cancertodaymag.org
July 15, 2025 at 7:38 PM
Important read.
Reposted by Alisa
Data suggests another summer of illness could be in the offing as people get more out of date with vaccination.
A new summer COVID wave may be on its way
The data suggests another summer of illness could be in the offing as people get more out of date with vaccination.
spr.ly
July 15, 2025 at 7:00 PM
Data suggests another summer of illness could be in the offing as people get more out of date with vaccination.
Deadly
"After years of accelerating progress that has reduced #cancer deaths by a third since the 1990s, the #NCI has terminated funds nationwide 4 research to fight the disease, expand care & train new oncs. 'We use the words drone attack now regularly,' said ..." 1/2 #CanSky #OncoSky #CancerBS
World’s premier cancer institute faces crippling cuts and chaos | CNN
The Trump administration’s broadsides against scientific research have caused unprecedented upheaval at the National Cancer Institute, the storied federal government research hub that has spearheaded ...
www.cnn.com
July 8, 2025 at 5:57 PM
Deadly
Key alternatives for those who have had hormone-positive breast cancer.
"Estrogen therapy is the oldest FDA–approved vasomotor symptom tx & has the most robust evidence of efficacy, given an avg 75% reduction in symptom frequency relative to placebo. Women w/an intact uterus must take progestogen w/estrogen to prevent endometrial ..." 1/2 #CanSky #menopause #CancerBS
Nonhormonal Treatment of Menopausal Vasomotor Symptoms
This work discusses nonhormonal treatment of menopausal vasomotor symptoms.
jamanetwork.com
July 8, 2025 at 5:54 PM
Key alternatives for those who have had hormone-positive breast cancer.
Reposted by Alisa
Dendritic copolymer-drug conjugates dramatically improved triple-negative breast cancer treatment, achieving 95% tumor suppression with reduced side effects.
by Liu G, Wang B (...) Luo K et 4 al. in Acta Biomater #MedSky
👉 get more here
📖 read the article:
by Liu G, Wang B (...) Luo K et 4 al. in Acta Biomater #MedSky
👉 get more here
📖 read the article:
Redox-responsive dendritic copolymer-drug conjugates enhance therapeutic mitophagy through coordinated microtubule destabilization for synergistic triple-negative breast cancer therapy
Application of microtubule-targeting agents (MTAs) for triple-negative breast cancer (TNBC) is hampered by their limited efficacy and strong systemic …
www.sciencedirect.com
July 1, 2025 at 2:34 AM
Important research on IBC that can also benefit understanding other types of aggressive #breastcancer
Excited to share our latest pre-print “Soluble E-cadherin Drives Brain Metastasis in Inflammatory Breast Cancer” led by the outstanding Xiaoding Hu, an instructor in my lab. #Breastcancer #Brainmetastasis #IBC #Ecadherin #ReactiveAstrocytes #CXCR2
👉 biorxiv.org/content/10.110…
👉 biorxiv.org/content/10.110…
June 29, 2025 at 6:56 AM
Important research on IBC that can also benefit understanding other types of aggressive #breastcancer