Epilepsy Talk!
@epilepsytalk.bsky.social
Welcome to Epilepsy Talk! A place to connect with those who are impacted by epilepsy.
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Epilepsy Talk!
@epilepsytalk.bsky.social
· Nov 19
Let's talk! Many people don't know proper seizure first aid, share this post to spread #EpilepsyAwareness!
#epilepsy #seizure #disability
#epilepsy #seizure #disability
People who don't know anything about #epilepsy may appear ignorant at first. Let's make it a point to teach before judging 💜
#chronicillness #disability #invisibledisability
#chronicillness #disability #invisibledisability
February 28, 2025 at 6:53 PM
People who don't know anything about #epilepsy may appear ignorant at first. Let's make it a point to teach before judging 💜
#chronicillness #disability #invisibledisability
#chronicillness #disability #invisibledisability
AI can be a revolutionary tool in medicine. Here's an example related to #epilepsy treatment!
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
Hidden Brain Lesions Uncovered by AI, Transforming Epilepsy Treatment
An AI-powered tool called MELD Graph is revolutionizing epilepsy care by detecting subtle brain abnormalities that radiologists often miss. By analyzing global MRI data, the tool improves diagnosis sp...
scitechdaily.com
February 27, 2025 at 12:45 AM
AI can be a revolutionary tool in medicine. Here's an example related to #epilepsy treatment!
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
Happy Tuesday! A bit of a social media break was needed, but we're back! Do any of you take social media breaks when things get a little too stressful?
#epilepsy #chronicillness #disability
#epilepsy #chronicillness #disability
February 25, 2025 at 2:18 PM
Happy Tuesday! A bit of a social media break was needed, but we're back! Do any of you take social media breaks when things get a little too stressful?
#epilepsy #chronicillness #disability
#epilepsy #chronicillness #disability
Great question! Let's hear it 😁
What kind of seizure warnings do you get, if any?
#TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness #SeizureWarnings
#TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness #SeizureWarnings
February 18, 2025 at 2:05 AM
Great question! Let's hear it 😁
Happy Valentine's Day to all! Today isn't the only day to express love and gratitude. It's our hope that each day is filled with love and gratitude toward our family, friends, care team, and anyone else who understands WHY we fight to hold it constantly when it's so easy to give up 💜
February 14, 2025 at 4:04 PM
Happy Valentine's Day to all! Today isn't the only day to express love and gratitude. It's our hope that each day is filled with love and gratitude toward our family, friends, care team, and anyone else who understands WHY we fight to hold it constantly when it's so easy to give up 💜
Medical alert jewelry used to be very standard with few choices. Now, there are a huge variety of styles and colors! Who here wears medical alert jewelry? 🙋♀️
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Custom Medical Alert ID Bracelets | Lauren's Hope
Lauren's Hope has custom medical alert bracelets in trendy & traditional styles you'll love to wear. We have something for everyone!
laurenshope.com
February 11, 2025 at 3:22 AM
Medical alert jewelry used to be very standard with few choices. Now, there are a huge variety of styles and colors! Who here wears medical alert jewelry? 🙋♀️
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Happy International Epilepsy Day! It's great to celebrate with all of you 💜
#epilepsyawareness #epilepsy #disability #chronicillness
#epilepsyawareness #epilepsy #disability #chronicillness
February 11, 2025 at 1:53 AM
Happy International Epilepsy Day! It's great to celebrate with all of you 💜
#epilepsyawareness #epilepsy #disability #chronicillness
#epilepsyawareness #epilepsy #disability #chronicillness
Have you ever heard of "emotional blunting"? Us either! It's not a direct relationship with #epilepsy, we just found it to be interesting in our journey to understand each other better! 😁💜
www.healthline.com/health/menta...
www.healthline.com/health/menta...
Emotional Blunting: Causes, Symptoms, Treatment
Emotional blunting describes a person's difficulty feeling emotions. People may experience emotional blunting for many reasons. Learn more about what causes it and how it's treated.
www.healthline.com
February 6, 2025 at 3:24 PM
Have you ever heard of "emotional blunting"? Us either! It's not a direct relationship with #epilepsy, we just found it to be interesting in our journey to understand each other better! 😁💜
www.healthline.com/health/menta...
www.healthline.com/health/menta...
Reposted by Epilepsy Talk!
For many people with epilepsy, a "clock reset" is slang term for a seizure, because the seizure resets the duration of time one has accumulated since the last seizure. -- When was your clock last reset? #EpilepsyAwareness
February 5, 2025 at 2:29 PM
For many people with epilepsy, a "clock reset" is slang term for a seizure, because the seizure resets the duration of time one has accumulated since the last seizure. -- When was your clock last reset? #EpilepsyAwareness
A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account!
#epilepsy #epilepsyawareness
#epilepsy #epilepsyawareness
February 4, 2025 at 3:17 AM
A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account!
#epilepsy #epilepsyawareness
#epilepsy #epilepsyawareness
February is Black History Month! DYK: African people are more likely to be diagnosed with epilepsy than those who originate from elsewhere.
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
Black History Month | Raising Epilepsy Awareness & Education
We recognize both the adversity & achievements faced by Black Americans. We raise epilepsy awareness to minimize challenges faced by Black Americans.
www.epilepsy.com
February 1, 2025 at 6:36 PM
February is Black History Month! DYK: African people are more likely to be diagnosed with epilepsy than those who originate from elsewhere.
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
It's hard to admit, but disability benefits/rights have potential to be interfered with in the near future. Let's try our best to keep vigilant on the nuances & plan as best as we can to maintain quality of life 💜 plan for the worst, be delighted when it's not!
#epilepsy #disability #chronicillness
#epilepsy #disability #chronicillness
February 1, 2025 at 6:27 PM
It's hard to admit, but disability benefits/rights have potential to be interfered with in the near future. Let's try our best to keep vigilant on the nuances & plan as best as we can to maintain quality of life 💜 plan for the worst, be delighted when it's not!
#epilepsy #disability #chronicillness
#epilepsy #disability #chronicillness
Turning tragedy into disability blaming is NOT how we want to promote #epilepsyawareness, but it's more important now than ever to speak up and tackle misinformation while it's a hot topic!
#epilepsy #disability #DEI
#epilepsy #disability #DEI
January 31, 2025 at 6:06 PM
Turning tragedy into disability blaming is NOT how we want to promote #epilepsyawareness, but it's more important now than ever to speak up and tackle misinformation while it's a hot topic!
#epilepsy #disability #DEI
#epilepsy #disability #DEI
Reposted by Epilepsy Talk!
New Year's is all about change. Happy Lunar New Year! May this year's changes bring good health and fortune to all, especially those in the #epilepsy community. #EpilepsyAwareness
January 29, 2025 at 2:33 PM
New Year's is all about change. Happy Lunar New Year! May this year's changes bring good health and fortune to all, especially those in the #epilepsy community. #EpilepsyAwareness
For us Americans, the ADA regulates accessibility features such as curb ramps or automatic doors. If you are somewhere and notice they are not compliant with ADA, you are able to report a violation right on ada.gov. Don't comply to a business who can't comply with our rights.
January 28, 2025 at 1:21 AM
For us Americans, the ADA regulates accessibility features such as curb ramps or automatic doors. If you are somewhere and notice they are not compliant with ADA, you are able to report a violation right on ada.gov. Don't comply to a business who can't comply with our rights.
DYK: There's nothing wrong with needing to take an allergy pill (antihistamine), but taking a version with decongestant (Claritin D, Zyrtec D) has potential to impact one's seizure threshold. Always consult your doctors!
#epilepsy #seizure #neuroskyence #medsky #disability #chronicillness
#epilepsy #seizure #neuroskyence #medsky #disability #chronicillness
January 28, 2025 at 1:10 AM
DYK: There's nothing wrong with needing to take an allergy pill (antihistamine), but taking a version with decongestant (Claritin D, Zyrtec D) has potential to impact one's seizure threshold. Always consult your doctors!
#epilepsy #seizure #neuroskyence #medsky #disability #chronicillness
#epilepsy #seizure #neuroskyence #medsky #disability #chronicillness
Reposted by Epilepsy Talk!
If you're doing the best you can, we applaud your effort no matter the outcome. #EpilepsyAwareness
January 24, 2025 at 2:26 PM
If you're doing the best you can, we applaud your effort no matter the outcome. #EpilepsyAwareness
We're not alone: Read about Vinay Jani's experience with having epilepsy in India!
www.newswise.com/articles/hel...
#epilepsy #disability #chronicillness #medsky #neuroskyence #epilepsyawareness #invisibledisability
www.newswise.com/articles/hel...
#epilepsy #disability #chronicillness #medsky #neuroskyence #epilepsyawareness #invisibledisability
Hello, My Name Is Epilepsy: How Terminology Influences Stigma and Understanding of Epilepsy Around the World | Newswise
In many languages, terms for epilepsy have derogatory or stigmatizing meanings. In some countries, neurologists are trying to change these terms to reflect our understanding of epilepsy as a brain dis...
www.newswise.com
January 21, 2025 at 11:29 PM
We're not alone: Read about Vinay Jani's experience with having epilepsy in India!
www.newswise.com/articles/hel...
#epilepsy #disability #chronicillness #medsky #neuroskyence #epilepsyawareness #invisibledisability
www.newswise.com/articles/hel...
#epilepsy #disability #chronicillness #medsky #neuroskyence #epilepsyawareness #invisibledisability
Just noticed we passed 200 followers! Thank you all for your interest in epilepsy and our page 💜
January 20, 2025 at 4:06 PM
Just noticed we passed 200 followers! Thank you all for your interest in epilepsy and our page 💜
Typically we associate MLK Jr's legacy with race equality, but Civil Rights include disability rights.
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward." - Martin Luther King Jr.
#disability #mlk #epilepsy
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward." - Martin Luther King Jr.
#disability #mlk #epilepsy
January 20, 2025 at 4:05 PM
Typically we associate MLK Jr's legacy with race equality, but Civil Rights include disability rights.
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward." - Martin Luther King Jr.
#disability #mlk #epilepsy
"If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward." - Martin Luther King Jr.
#disability #mlk #epilepsy
Reposted by Epilepsy Talk!
🌟🎙️ Exciting News: it’s our first podcast 🎙️📹 episode where our usual host takes the guest seat 😯😁!
Paediatric neurologist & scientist Julia Jacobs 🤩, one of our former star guests, steps in to turn the tables and explore Torie’s thoughts on being involved in #epilepsyresearch!
Links in post below 👇!
Paediatric neurologist & scientist Julia Jacobs 🤩, one of our former star guests, steps in to turn the tables and explore Torie’s thoughts on being involved in #epilepsyresearch!
Links in post below 👇!
January 17, 2025 at 7:33 PM
🌟🎙️ Exciting News: it’s our first podcast 🎙️📹 episode where our usual host takes the guest seat 😯😁!
Paediatric neurologist & scientist Julia Jacobs 🤩, one of our former star guests, steps in to turn the tables and explore Torie’s thoughts on being involved in #epilepsyresearch!
Links in post below 👇!
Paediatric neurologist & scientist Julia Jacobs 🤩, one of our former star guests, steps in to turn the tables and explore Torie’s thoughts on being involved in #epilepsyresearch!
Links in post below 👇!
Reposted by Epilepsy Talk!
This is my daughter, Alice Hale. This picture was taken while Alice belonged to Odyssey, an #LGBTQ+ support group for teenagers in Spokane, WA, while they were compiling members' photos & COMING OUT stories. Unfortunately, the project wasn't completed.
A professional photographer donated his time.
A professional photographer donated his time.
January 1, 2025 at 7:26 PM
This is my daughter, Alice Hale. This picture was taken while Alice belonged to Odyssey, an #LGBTQ+ support group for teenagers in Spokane, WA, while they were compiling members' photos & COMING OUT stories. Unfortunately, the project wasn't completed.
A professional photographer donated his time.
A professional photographer donated his time.
Reposted by Epilepsy Talk!
Ever wondered how much you know about Epilepsy? Do you know what a seizure is? Check out our fun and easy way to explain all this and more with our super-neuron duo Zippy & Zappy.
#epilepsy #education #neuroscience #brainfacts
#epilepsy #education #neuroscience #brainfacts
Epilepsy 101
Get ready for a fun and interactive epilepsy education experience with our dynamic duo, Zippy and Zappy, the super-neurons! With Zippy and Zappy guiding the way, you’ll learn everything you need to know to understand and manage epilepsy.
knowledge2empowercanada.thinkific.com
January 14, 2025 at 8:45 PM
Ever wondered how much you know about Epilepsy? Do you know what a seizure is? Check out our fun and easy way to explain all this and more with our super-neuron duo Zippy & Zappy.
#epilepsy #education #neuroscience #brainfacts
#epilepsy #education #neuroscience #brainfacts
Here's a reminder to always have an extra dose of medicine on you in case of emergency, such as evacuations. Sometimes the last thing to think about in a case of an emergency is the most important!
#Epilepsy #ChronicIllness #medsky #disability #invisibledisability
#Epilepsy #ChronicIllness #medsky #disability #invisibledisability
January 13, 2025 at 11:51 PM
Here's a reminder to always have an extra dose of medicine on you in case of emergency, such as evacuations. Sometimes the last thing to think about in a case of an emergency is the most important!
#Epilepsy #ChronicIllness #medsky #disability #invisibledisability
#Epilepsy #ChronicIllness #medsky #disability #invisibledisability