Epilepsy Talk!
@epilepsytalk.bsky.social
Welcome to Epilepsy Talk! A place to connect with those who are impacted by epilepsy.
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Epilepsy Talk!
@epilepsytalk.bsky.social
ยท Nov 19
Let's talk! Many people don't know proper seizure first aid, share this post to spread #EpilepsyAwareness!
#epilepsy #seizure #disability
#epilepsy #seizure #disability
Congratulations! You are doing exactly what the epilepsy community needs ๐
March 10, 2025 at 2:36 PM
Congratulations! You are doing exactly what the epilepsy community needs ๐
People who don't know anything about #epilepsy may appear ignorant at first. Let's make it a point to teach before judging ๐
#chronicillness #disability #invisibledisability
#chronicillness #disability #invisibledisability
February 28, 2025 at 6:53 PM
People who don't know anything about #epilepsy may appear ignorant at first. Let's make it a point to teach before judging ๐
#chronicillness #disability #invisibledisability
#chronicillness #disability #invisibledisability
MYTH: People with epilepsy cannot drive.
FACT: Those with controlled epilepsy are perfectly okay to drive! Driving restrictions are usually temporary, only requiring the operator has gone a certain amount of time without seizure activity.
FACT: Those with controlled epilepsy are perfectly okay to drive! Driving restrictions are usually temporary, only requiring the operator has gone a certain amount of time without seizure activity.
February 27, 2025 at 12:51 AM
MYTH: People with epilepsy cannot drive.
FACT: Those with controlled epilepsy are perfectly okay to drive! Driving restrictions are usually temporary, only requiring the operator has gone a certain amount of time without seizure activity.
FACT: Those with controlled epilepsy are perfectly okay to drive! Driving restrictions are usually temporary, only requiring the operator has gone a certain amount of time without seizure activity.
AI can be a revolutionary tool in medicine. Here's an example related to #epilepsy treatment!
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
Hidden Brain Lesions Uncovered by AI, Transforming Epilepsy Treatment
An AI-powered tool called MELD Graph is revolutionizing epilepsy care by detecting subtle brain abnormalities that radiologists often miss. By analyzing global MRI data, the tool improves diagnosis sp...
scitechdaily.com
February 27, 2025 at 12:45 AM
AI can be a revolutionary tool in medicine. Here's an example related to #epilepsy treatment!
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
scitechdaily.com/hidden-brain...
#disability #medsky #neuroskyence #chronicillness #AI
Happy Tuesday! A bit of a social media break was needed, but we're back! Do any of you take social media breaks when things get a little too stressful?
#epilepsy #chronicillness #disability
#epilepsy #chronicillness #disability
February 25, 2025 at 2:18 PM
Happy Tuesday! A bit of a social media break was needed, but we're back! Do any of you take social media breaks when things get a little too stressful?
#epilepsy #chronicillness #disability
#epilepsy #chronicillness #disability
Great question! Let's hear it ๐
What kind of seizure warnings do you get, if any?
#TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness #SeizureWarnings
#TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness #SeizureWarnings
February 18, 2025 at 2:05 AM
Great question! Let's hear it ๐
Happy Valentine's Day to all! Today isn't the only day to express love and gratitude. It's our hope that each day is filled with love and gratitude toward our family, friends, care team, and anyone else who understands WHY we fight to hold it constantly when it's so easy to give up ๐
February 14, 2025 at 4:04 PM
Happy Valentine's Day to all! Today isn't the only day to express love and gratitude. It's our hope that each day is filled with love and gratitude toward our family, friends, care team, and anyone else who understands WHY we fight to hold it constantly when it's so easy to give up ๐
That is a great thought! Though most are able to put emergency info on their phone's lock screen, the watch would be a quick one-stop shop for responders and allow them to go back to their duties sooner ๐
February 11, 2025 at 10:59 PM
That is a great thought! Though most are able to put emergency info on their phone's lock screen, the watch would be a quick one-stop shop for responders and allow them to go back to their duties sooner ๐
Love it! I have a "sport" and "everyday" style. Though I made sure the "everyday" was also waterproof and durable, because I get highly infuriated at taking bracelets on and off! So the only difference really is the sport band doesn't slip ๐
February 11, 2025 at 10:55 PM
Love it! I have a "sport" and "everyday" style. Though I made sure the "everyday" was also waterproof and durable, because I get highly infuriated at taking bracelets on and off! So the only difference really is the sport band doesn't slip ๐
Medical alert jewelry used to be very standard with few choices. Now, there are a huge variety of styles and colors! Who here wears medical alert jewelry? ๐โโ๏ธ
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Custom Medical Alert ID Bracelets | Lauren's Hope
Lauren's Hope has custom medical alert bracelets in trendy & traditional styles you'll love to wear. We have something for everyone!
laurenshope.com
February 11, 2025 at 3:22 AM
Medical alert jewelry used to be very standard with few choices. Now, there are a huge variety of styles and colors! Who here wears medical alert jewelry? ๐โโ๏ธ
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Some favorite shops:
laurenshope.com
www.stickyj.com
www.medicalert.org
Happy International Epilepsy Day! It's great to celebrate with all of you ๐
#epilepsyawareness #epilepsy #disability #chronicillness
#epilepsyawareness #epilepsy #disability #chronicillness
February 11, 2025 at 1:53 AM
Happy International Epilepsy Day! It's great to celebrate with all of you ๐
#epilepsyawareness #epilepsy #disability #chronicillness
#epilepsyawareness #epilepsy #disability #chronicillness
Have you ever heard of "emotional blunting"? Us either! It's not a direct relationship with #epilepsy, we just found it to be interesting in our journey to understand each other better! ๐๐
www.healthline.com/health/menta...
www.healthline.com/health/menta...
Emotional Blunting: Causes, Symptoms, Treatment
Emotional blunting describes a person's difficulty feeling emotions. People may experience emotional blunting for many reasons. Learn more about what causes it and how it's treated.
www.healthline.com
February 6, 2025 at 3:24 PM
Have you ever heard of "emotional blunting"? Us either! It's not a direct relationship with #epilepsy, we just found it to be interesting in our journey to understand each other better! ๐๐
www.healthline.com/health/menta...
www.healthline.com/health/menta...
Reposted by Epilepsy Talk!
For many people with epilepsy, a "clock reset" is slang term for a seizure, because the seizure resets the duration of time one has accumulated since the last seizure. -- When was your clock last reset? #EpilepsyAwareness
February 5, 2025 at 2:29 PM
For many people with epilepsy, a "clock reset" is slang term for a seizure, because the seizure resets the duration of time one has accumulated since the last seizure. -- When was your clock last reset? #EpilepsyAwareness
I made sure I checked out how to do it before the next post ๐ I really appreciate you bringing that up!
February 4, 2025 at 9:27 PM
I made sure I checked out how to do it before the next post ๐ I really appreciate you bringing that up!
Thank you for pointing that out! This is the first time having such a public profile, feedback is encouraged. Alt text will always be provided now ๐
February 4, 2025 at 5:20 PM
Thank you for pointing that out! This is the first time having such a public profile, feedback is encouraged. Alt text will always be provided now ๐
A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account!
#epilepsy #epilepsyawareness
#epilepsy #epilepsyawareness
February 4, 2025 at 3:17 AM
A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account!
#epilepsy #epilepsyawareness
#epilepsy #epilepsyawareness
Blue Sky is a good place to be right now ๐ Hopefully the steam runs out soon with everything else.
February 1, 2025 at 8:24 PM
Blue Sky is a good place to be right now ๐ Hopefully the steam runs out soon with everything else.
I actually posted this in my Insta story yesterday!
February 1, 2025 at 8:20 PM
I actually posted this in my Insta story yesterday!
Absolutely stay informed. I was told I'm overreacting at Trump throwing the word "epilepsy"out there. His power has always come from fear & hatred. He's silenced trans people, everyone brown is an ICE target, reversed EEO which was heavily influenced by race discrimination. now who is there to hate?
February 1, 2025 at 7:04 PM
Absolutely stay informed. I was told I'm overreacting at Trump throwing the word "epilepsy"out there. His power has always come from fear & hatred. He's silenced trans people, everyone brown is an ICE target, reversed EEO which was heavily influenced by race discrimination. now who is there to hate?
February is Black History Month! DYK: African people are more likely to be diagnosed with epilepsy than those who originate from elsewhere.
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
Black History Month | Raising Epilepsy Awareness & Education
We recognize both the adversity & achievements faced by Black Americans. We raise epilepsy awareness to minimize challenges faced by Black Americans.
www.epilepsy.com
February 1, 2025 at 6:36 PM
February is Black History Month! DYK: African people are more likely to be diagnosed with epilepsy than those who originate from elsewhere.
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
www.epilepsy.com/stories/blac...
#Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence
in a sense, do you even WANT to know? ๐
February 1, 2025 at 6:28 PM
in a sense, do you even WANT to know? ๐
It's hard to admit, but disability benefits/rights have potential to be interfered with in the near future. Let's try our best to keep vigilant on the nuances & plan as best as we can to maintain quality of life ๐ plan for the worst, be delighted when it's not!
#epilepsy #disability #chronicillness
#epilepsy #disability #chronicillness
February 1, 2025 at 6:27 PM
It's hard to admit, but disability benefits/rights have potential to be interfered with in the near future. Let's try our best to keep vigilant on the nuances & plan as best as we can to maintain quality of life ๐ plan for the worst, be delighted when it's not!
#epilepsy #disability #chronicillness
#epilepsy #disability #chronicillness
While we want to be positive, we have to consider this misinformation is going to hurt the way people perceive epilepsy, especially in the workplace, and it's okay to have strong emotions about the unknown.
January 31, 2025 at 6:15 PM
While we want to be positive, we have to consider this misinformation is going to hurt the way people perceive epilepsy, especially in the workplace, and it's okay to have strong emotions about the unknown.
Turning tragedy into disability blaming is NOT how we want to promote #epilepsyawareness, but it's more important now than ever to speak up and tackle misinformation while it's a hot topic!
#epilepsy #disability #DEI
#epilepsy #disability #DEI
January 31, 2025 at 6:06 PM
Turning tragedy into disability blaming is NOT how we want to promote #epilepsyawareness, but it's more important now than ever to speak up and tackle misinformation while it's a hot topic!
#epilepsy #disability #DEI
#epilepsy #disability #DEI