Leonie Potgieter
@despicablemebsky.bsky.social
Fur mamma to Sammy & Twinx
#pwME #PoTS
Supports Invest In ME Research
#pwME #PoTS
Supports Invest In ME Research
Reposted by Leonie Potgieter
Do you know someone who could Walk for ME?
Find out more:
www.facebook.com/WalkforMEUK/
www.walkforme.co.uk
Instagram @walk_for_me_
X @Walk_4_ME
BlueSky @walk4me.bsky.social
Huge thanks to Ian Peters via @despicablemebsky.bsky.social ky.bsky.social for the video!
Find out more:
www.facebook.com/WalkforMEUK/
www.walkforme.co.uk
Instagram @walk_for_me_
X @Walk_4_ME
BlueSky @walk4me.bsky.social
Huge thanks to Ian Peters via @despicablemebsky.bsky.social ky.bsky.social for the video!
February 17, 2025 at 2:45 PM
Do you know someone who could Walk for ME?
Find out more:
www.facebook.com/WalkforMEUK/
www.walkforme.co.uk
Instagram @walk_for_me_
X @Walk_4_ME
BlueSky @walk4me.bsky.social
Huge thanks to Ian Peters via @despicablemebsky.bsky.social ky.bsky.social for the video!
Find out more:
www.facebook.com/WalkforMEUK/
www.walkforme.co.uk
Instagram @walk_for_me_
X @Walk_4_ME
BlueSky @walk4me.bsky.social
Huge thanks to Ian Peters via @despicablemebsky.bsky.social ky.bsky.social for the video!
Reposted by Leonie Potgieter
Please watch.
Karen Gordon is not the only person with very severe ME in the UK at the moment.
But there are no specialist centres in the UK that can treat people so severely affected.
Karen's family have set up a petition here: www.change.org/p/save-karen...
Karen Gordon is not the only person with very severe ME in the UK at the moment.
But there are no specialist centres in the UK that can treat people so severely affected.
Karen's family have set up a petition here: www.change.org/p/save-karen...
December 10, 2024 at 9:17 PM
Please watch.
Karen Gordon is not the only person with very severe ME in the UK at the moment.
But there are no specialist centres in the UK that can treat people so severely affected.
Karen's family have set up a petition here: www.change.org/p/save-karen...
Karen Gordon is not the only person with very severe ME in the UK at the moment.
But there are no specialist centres in the UK that can treat people so severely affected.
Karen's family have set up a petition here: www.change.org/p/save-karen...
Reposted by Leonie Potgieter
SKY News segment on #MECFS (20 mins), Includes interview with Heather Gordon, whose daughter Karen has effectively been trapped in hospital for a year with severe ME. Also features Chris Ponting and Anna Gregorowski from BACME.
youtu.be/FX6Fk9-WSmo?...
youtu.be/FX6Fk9-WSmo?...
SKY News Karen Gordon
YouTube video by Broken Battery
youtu.be
December 9, 2024 at 9:49 PM
SKY News segment on #MECFS (20 mins), Includes interview with Heather Gordon, whose daughter Karen has effectively been trapped in hospital for a year with severe ME. Also features Chris Ponting and Anna Gregorowski from BACME.
youtu.be/FX6Fk9-WSmo?...
youtu.be/FX6Fk9-WSmo?...
Reposted by Leonie Potgieter
Clip from SKY News segment on #MECFS
'We were told by many people that the current treatment they're receiving is harmful.'
The lead researcher on the Decode ME Study, Professor Chris Ponting, outlines the responses he has received from ME patients on their care.
'We were told by many people that the current treatment they're receiving is harmful.'
The lead researcher on the Decode ME Study, Professor Chris Ponting, outlines the responses he has received from ME patients on their care.
December 10, 2024 at 7:51 PM
Clip from SKY News segment on #MECFS
'We were told by many people that the current treatment they're receiving is harmful.'
The lead researcher on the Decode ME Study, Professor Chris Ponting, outlines the responses he has received from ME patients on their care.
'We were told by many people that the current treatment they're receiving is harmful.'
The lead researcher on the Decode ME Study, Professor Chris Ponting, outlines the responses he has received from ME patients on their care.
Reposted by Leonie Potgieter
Five firms in plastic pollution alliance ‘made 1,000 times more plastic than they cleaned up’
Five firms in plastic pollution alliance ‘made 1,000 times more plastic than they cleaned up’
Exclusive: Five oil and chemical companies which promised to divert plastic from environment produced 132m tonnes of it, analysis finds
* Bali recycling scheme swamped with garbage
Oil and chemical companies who created a high-profile alliance to…
dlvr.it
November 20, 2024 at 10:03 AM
Five firms in plastic pollution alliance ‘made 1,000 times more plastic than they cleaned up’
Reposted by Leonie Potgieter
A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️
theconversation.com/ignored-blam...
theconversation.com/ignored-blam...
Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical ‘scandal’
The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.
theconversation.com
October 21, 2024 at 9:45 AM
A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️
theconversation.com/ignored-blam...
theconversation.com/ignored-blam...
Reposted by Leonie Potgieter
@georgemonbiot.bsky.social described this as one of the most disturbing he has ever covered. It’s about #ME and how the views of a weird sect affected science, medicine and the media with a devastating effect on patients.
It continues to erase the reality of our lives. #medicine #media #pwME
It continues to erase the reality of our lives. #medicine #media #pwME
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot
Chronic fatigue syndrome is as physiological as a broken leg. We must learn all we can from this tragic case, says Guardian columnist George Monbiot
www.theguardian.com
November 18, 2024 at 9:28 AM
@georgemonbiot.bsky.social described this as one of the most disturbing he has ever covered. It’s about #ME and how the views of a weird sect affected science, medicine and the media with a devastating effect on patients.
It continues to erase the reality of our lives. #medicine #media #pwME
It continues to erase the reality of our lives. #medicine #media #pwME
Reposted by Leonie Potgieter
What gets to me most is that the UK government enabled foreign states to loot our essential infrastructure, milking it for profit and leaving it in ruins. Those states must think we're insane.
The Chinese government would never let us walk in and seize its assets. But we've let it do just that.
The Chinese government would never let us walk in and seize its assets. But we've let it do just that.
How privatisation works (and Thames Water is just the latest example).
1. A government takes a national asset built up with taxpayers' money and the work of public servants over many years, and hands it, for a fraction of its value, to a private company.
2. In doing so, it creates a monopoly.
🧵
1. A government takes a national asset built up with taxpayers' money and the work of public servants over many years, and hands it, for a fraction of its value, to a private company.
2. In doing so, it creates a monopoly.
🧵
November 19, 2024 at 10:22 AM
What gets to me most is that the UK government enabled foreign states to loot our essential infrastructure, milking it for profit and leaving it in ruins. Those states must think we're insane.
The Chinese government would never let us walk in and seize its assets. But we've let it do just that.
The Chinese government would never let us walk in and seize its assets. But we've let it do just that.
Reposted by Leonie Potgieter
I can’t recommend the #ThereForME’s weekly substack posts highly enough.Informative, upbeat and honest. These 3 women have done more for #ME in 4months than I would have thought possible. A truly democratic setup too. Do sign on for free.
#ME #LongCovid 👇
#ME #LongCovid 👇
Our wonderful @oonaghcousins.bsky.social took the reins for today’s #ThereForME update.
Feat. news from across the continent, plus some very poignant reflections on her story and how it is told.
open.substack.com/pub/therefor...
Feat. news from across the continent, plus some very poignant reflections on her story and how it is told.
open.substack.com/pub/therefor...
Campaign Update #11: #ThereForME across the continent
From #ThereForME HQ, to Rome and Switzerland
open.substack.com
November 19, 2024 at 10:27 AM
I can’t recommend the #ThereForME’s weekly substack posts highly enough.Informative, upbeat and honest. These 3 women have done more for #ME in 4months than I would have thought possible. A truly democratic setup too. Do sign on for free.
#ME #LongCovid 👇
#ME #LongCovid 👇
Reposted by Leonie Potgieter
Please follow Mike! He is an incredible Human who has run over 9000 miles to raise money for @investinmeresearch.bsky.social over ten years raising over £50k to help #pwme #myalgicE 💙
Thanks for following if you don't know me.
I've just passed the 10 year anniversary of when I began running marathons for ME research.
I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet
🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
I've just passed the 10 year anniversary of when I began running marathons for ME research.
I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet
🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
November 18, 2024 at 1:07 PM
Please follow Mike! He is an incredible Human who has run over 9000 miles to raise money for @investinmeresearch.bsky.social over ten years raising over £50k to help #pwme #myalgicE 💙
Reposted by Leonie Potgieter
With some help from @owasow.bsky.social, I've figured out how to use Sky Follower Bridge to find the people I follow on Twitter over on B l u e S k y. It's pretty easy. I've updated the tips I send folks when they get their code with info on how to do it, and I thought I'd share here too.
October 7, 2023 at 4:08 PM
With some help from @owasow.bsky.social, I've figured out how to use Sky Follower Bridge to find the people I follow on Twitter over on B l u e S k y. It's pretty easy. I've updated the tips I send folks when they get their code with info on how to do it, and I thought I'd share here too.
Reposted by Leonie Potgieter
#DecodeME needs more UK participants with an ME/#CFS diagnosis, incl. those diagnosed following Covid infection, & reminds people who have been sent a spit kit to return them. Final date for submitting the questionnaire is 15th November at 5pm
www.decodeme.org.uk/portal/
#MEcfs #MyalgicE #PwME
www.decodeme.org.uk/portal/
#MEcfs #MyalgicE #PwME
October 9, 2023 at 2:04 PM
#DecodeME needs more UK participants with an ME/#CFS diagnosis, incl. those diagnosed following Covid infection, & reminds people who have been sent a spit kit to return them. Final date for submitting the questionnaire is 15th November at 5pm
www.decodeme.org.uk/portal/
#MEcfs #MyalgicE #PwME
www.decodeme.org.uk/portal/
#MEcfs #MyalgicE #PwME
Reposted by Leonie Potgieter
Feeds that may interest the ♿️ community include:
#Disability Feed
bsky.app/profile/did:...
#ChronicIllness
bsky.app/profile/did:...
#MECFS
bsky.app/profile/did:...
LongCovid
bsky.app/profile/did:...
Covid Cautious
bsky.app/profile/did:...
Disability Justice
bsky.app/profile/did:...
#Disability Feed
bsky.app/profile/did:...
#ChronicIllness
bsky.app/profile/did:...
#MECFS
bsky.app/profile/did:...
LongCovid
bsky.app/profile/did:...
Covid Cautious
bsky.app/profile/did:...
Disability Justice
bsky.app/profile/did:...
October 2, 2023 at 4:52 AM
Feeds that may interest the ♿️ community include:
#Disability Feed
bsky.app/profile/did:...
#ChronicIllness
bsky.app/profile/did:...
#MECFS
bsky.app/profile/did:...
LongCovid
bsky.app/profile/did:...
Covid Cautious
bsky.app/profile/did:...
Disability Justice
bsky.app/profile/did:...
#Disability Feed
bsky.app/profile/did:...
#ChronicIllness
bsky.app/profile/did:...
#MECFS
bsky.app/profile/did:...
LongCovid
bsky.app/profile/did:...
Covid Cautious
bsky.app/profile/did:...
Disability Justice
bsky.app/profile/did:...