Diana Burgui
@burguid.bsky.social
Social Worker, Regional Specialist Memory Clinic. Dementia, older people, mental health and above all good practice in healthcare. Based in Dublin, Ireland. But always a Spaniard.
www.dementia.ie
www.dementia.ie
Pinned
Diana Burgui
@burguid.bsky.social
· Nov 23
Have you heard about DSiDC?
Dementia Services information and Development Centre, based in Dublin, Ireland.
We are a public centre, we offer information, education and research on dementia.
Check out our (free!) e-learning.
dementia.ie/education/e-...
Dementia Services information and Development Centre, based in Dublin, Ireland.
We are a public centre, we offer information, education and research on dementia.
Check out our (free!) e-learning.
dementia.ie/education/e-...
Reposted by Diana Burgui
🚀 The Rare Dementia Support Centre opens in autumn 2025, launching a new era in post-diagnostic care for:
🔹 PCA
🔹 PPA
🔹 FTD
🔹 LBD
🔹 Familial Dementias
Can´t wait to help make this place thrive. Watch this space for updates 👀 @uclbrainscience.bsky.social @ucl.ac.uk
#RDSC: bit.ly/4hKYVrb
🔹 PCA
🔹 PPA
🔹 FTD
🔹 LBD
🔹 Familial Dementias
Can´t wait to help make this place thrive. Watch this space for updates 👀 @uclbrainscience.bsky.social @ucl.ac.uk
#RDSC: bit.ly/4hKYVrb
Rare Dementia Support Centre Appeal - The National Brain Appeal
Help us fund the world's first Rare Dementia Support Centre. The centre will exemplify how best to support those living with a rare form of dementia.
bit.ly
February 6, 2025 at 2:47 PM
🚀 The Rare Dementia Support Centre opens in autumn 2025, launching a new era in post-diagnostic care for:
🔹 PCA
🔹 PPA
🔹 FTD
🔹 LBD
🔹 Familial Dementias
Can´t wait to help make this place thrive. Watch this space for updates 👀 @uclbrainscience.bsky.social @ucl.ac.uk
#RDSC: bit.ly/4hKYVrb
🔹 PCA
🔹 PPA
🔹 FTD
🔹 LBD
🔹 Familial Dementias
Can´t wait to help make this place thrive. Watch this space for updates 👀 @uclbrainscience.bsky.social @ucl.ac.uk
#RDSC: bit.ly/4hKYVrb
Reposted by Diana Burgui
Subtle changes in the brain happen around 20 years before a clinical motor diagnosis in people with Huntington’s disease. The new findings from a study led by Prof Sarah Tabrizi @uclqsion.bsky.social @uclbrainscience.bsky.social will guide future prevention trials www.ucl.ac.uk/news/2025/ja...
Brain changes in Huntington’s disease decades before diagnosis will guide future prevention trials
Subtle changes in the brain, detectable through advanced imaging, blood and spinal fluid analysis, happen approximately twenty years before a clinical motor diagnosis in people with Huntington’s disea...
www.ucl.ac.uk
January 17, 2025 at 12:16 PM
Subtle changes in the brain happen around 20 years before a clinical motor diagnosis in people with Huntington’s disease. The new findings from a study led by Prof Sarah Tabrizi @uclqsion.bsky.social @uclbrainscience.bsky.social will guide future prevention trials www.ucl.ac.uk/news/2025/ja...
Reposted by Diana Burgui
Excited to announce the call for abstracts and registrations for the 35th Alzheimer Europe Conference #35AEC in Bologna (Italy) from 6 to 8 October under the banner “Connecting science and communities: The future of #dementia care”.
www.alzheimer-europe.org/.../call-abs....
www.alzheimer-europe.org/.../call-abs....
January 16, 2025 at 10:24 AM
Excited to announce the call for abstracts and registrations for the 35th Alzheimer Europe Conference #35AEC in Bologna (Italy) from 6 to 8 October under the banner “Connecting science and communities: The future of #dementia care”.
www.alzheimer-europe.org/.../call-abs....
www.alzheimer-europe.org/.../call-abs....
Reposted by Diana Burgui
What sad news - Dr. Eleanor Maguire
#neuropsychology #cognition #memory #neuroscience
www.online-tribute.com/EleanorMaguire
#neuropsychology #cognition #memory #neuroscience
www.online-tribute.com/EleanorMaguire
Eleanor Maguire | 1970 - 2025 | Online-Tribute.com
Learning and memory are so fundamental to us, so enmeshed throughout cognition, that ‘solving’ memory, unpacking its neural mechanisms and being able to conceptualise it fully will, I believe, res…
www.online-tribute.com
January 6, 2025 at 8:44 PM
What sad news - Dr. Eleanor Maguire
#neuropsychology #cognition #memory #neuroscience
www.online-tribute.com/EleanorMaguire
#neuropsychology #cognition #memory #neuroscience
www.online-tribute.com/EleanorMaguire
Reposted by Diana Burgui
KNOW YOUR RISK: GENETICS AND DEMENTIA
🔬 Mutations in APP (chromosome 21), PSEN1 (chromosome 14), or PSEN2 (chromosome 1) give offspring a 50% chance of inheriting Alzheimer’s if a parent is a carrier. If inherited, the risk of developing early-onset Alzheimer’s (before age 65) is extremely high.
🔬 Mutations in APP (chromosome 21), PSEN1 (chromosome 14), or PSEN2 (chromosome 1) give offspring a 50% chance of inheriting Alzheimer’s if a parent is a carrier. If inherited, the risk of developing early-onset Alzheimer’s (before age 65) is extremely high.
January 3, 2025 at 2:35 PM
KNOW YOUR RISK: GENETICS AND DEMENTIA
🔬 Mutations in APP (chromosome 21), PSEN1 (chromosome 14), or PSEN2 (chromosome 1) give offspring a 50% chance of inheriting Alzheimer’s if a parent is a carrier. If inherited, the risk of developing early-onset Alzheimer’s (before age 65) is extremely high.
🔬 Mutations in APP (chromosome 21), PSEN1 (chromosome 14), or PSEN2 (chromosome 1) give offspring a 50% chance of inheriting Alzheimer’s if a parent is a carrier. If inherited, the risk of developing early-onset Alzheimer’s (before age 65) is extremely high.
Reposted by Diana Burgui
"... talking about death won't make it happen. But not talking about it robs us of choices and moments that will not come again."
Compassionate words from @drkathrynmannix.bsky.social
Unfortunately, wisdom that can be overlooked in healthcare all too often.
Compassionate words from @drkathrynmannix.bsky.social
Unfortunately, wisdom that can be overlooked in healthcare all too often.
December 27, 2024 at 3:30 PM
"... talking about death won't make it happen. But not talking about it robs us of choices and moments that will not come again."
Compassionate words from @drkathrynmannix.bsky.social
Unfortunately, wisdom that can be overlooked in healthcare all too often.
Compassionate words from @drkathrynmannix.bsky.social
Unfortunately, wisdom that can be overlooked in healthcare all too often.
Seanad elections in Ireland; I know who I would vote for if I could. NUI graduates, your turn.
December 18, 2024 at 7:19 PM
Seanad elections in Ireland; I know who I would vote for if I could. NUI graduates, your turn.
Reposted by Diana Burgui
Fantastic resource - 15 booklets with practical advice for those caring for a loved one with #dementia, from continence and dressing to emotions and finances. Worth sharing!
@nihr.bsky.social funded research led by Worcester University
caringhelp.on.worc.ac.uk
@nihr.bsky.social funded research led by Worcester University
caringhelp.on.worc.ac.uk
Caring Help
caringhelp.on.worc.ac.uk
December 17, 2024 at 1:16 PM
Fantastic resource - 15 booklets with practical advice for those caring for a loved one with #dementia, from continence and dressing to emotions and finances. Worth sharing!
@nihr.bsky.social funded research led by Worcester University
caringhelp.on.worc.ac.uk
@nihr.bsky.social funded research led by Worcester University
caringhelp.on.worc.ac.uk
Reposted by Diana Burgui
V interesting study in @bmj.com
USA Taxi drivers & ambulance drivers are less likely to die of Alzheimer's disease than people of other professions
Links made to Eleanor Maguire's famous discovery that the posterior hippocampus of London taxi drivers was larger than controls.
My thoughts in🧵
USA Taxi drivers & ambulance drivers are less likely to die of Alzheimer's disease than people of other professions
Links made to Eleanor Maguire's famous discovery that the posterior hippocampus of London taxi drivers was larger than controls.
My thoughts in🧵
Alzheimer’s disease deaths lowest among taxi and ambulance drivers. #BMJ
"Findings raise possibility that frequent spatial processing tasks might offer some protection against Alzheimer’s disease"
Fulltext:
press.psprings.co.uk/bmj/december....
"Findings raise possibility that frequent spatial processing tasks might offer some protection against Alzheimer’s disease"
Fulltext:
press.psprings.co.uk/bmj/december....
December 17, 2024 at 9:45 AM
V interesting study in @bmj.com
USA Taxi drivers & ambulance drivers are less likely to die of Alzheimer's disease than people of other professions
Links made to Eleanor Maguire's famous discovery that the posterior hippocampus of London taxi drivers was larger than controls.
My thoughts in🧵
USA Taxi drivers & ambulance drivers are less likely to die of Alzheimer's disease than people of other professions
Links made to Eleanor Maguire's famous discovery that the posterior hippocampus of London taxi drivers was larger than controls.
My thoughts in🧵
Reposted by Diana Burgui
Can we get 50 reposts?
Our Mission: (1) to communicate dementia risk lowering findings to the public and (2) to support researchers.
Our posts will be of interest to anyone who wants good brain and body health, and would like to live a long and healthy life.
Follow us today!
Our Mission: (1) to communicate dementia risk lowering findings to the public and (2) to support researchers.
Our posts will be of interest to anyone who wants good brain and body health, and would like to live a long and healthy life.
Follow us today!
December 13, 2024 at 3:46 AM
Can we get 50 reposts?
Our Mission: (1) to communicate dementia risk lowering findings to the public and (2) to support researchers.
Our posts will be of interest to anyone who wants good brain and body health, and would like to live a long and healthy life.
Follow us today!
Our Mission: (1) to communicate dementia risk lowering findings to the public and (2) to support researchers.
Our posts will be of interest to anyone who wants good brain and body health, and would like to live a long and healthy life.
Follow us today!
Reposted by Diana Burgui
A host of singers join Stocktons Wing for this years Tradfest
December 10, 2024 at 10:57 PM
A host of singers join Stocktons Wing for this years Tradfest
Reposted by Diana Burgui
American #Geriatrics Society position statement: Making #medical treatment decisions for unrepresented older adults
Exceptionally challenging and increasingly common issue
#Care #Aging #Ageing #Medsky
agsjournals.onlinelibrary.wiley.com/doi/full/10....
Exceptionally challenging and increasingly common issue
#Care #Aging #Ageing #Medsky
agsjournals.onlinelibrary.wiley.com/doi/full/10....
American Geriatrics Society position statement: Making medical treatment decisions for unrepresented older adults
This paper is an official position statement of the American Geriatrics Society (AGS) and updates the 2017 AGS position statement, Making Medical Treatment Decisions for Unbefriended Older Adults. In...
agsjournals.onlinelibrary.wiley.com
December 1, 2024 at 7:42 PM
American #Geriatrics Society position statement: Making #medical treatment decisions for unrepresented older adults
Exceptionally challenging and increasingly common issue
#Care #Aging #Ageing #Medsky
agsjournals.onlinelibrary.wiley.com/doi/full/10....
Exceptionally challenging and increasingly common issue
#Care #Aging #Ageing #Medsky
agsjournals.onlinelibrary.wiley.com/doi/full/10....
Improving how we communicate diagnoses of dementia.
Microlearning. Easy and accessible.
Curious? Click!
app.7taps.com/m/AN9PVhjgLohV
Microlearning. Easy and accessible.
Curious? Click!
app.7taps.com/m/AN9PVhjgLohV
Raising the Game: improving how we communicate diagnoses of dementia
app.7taps.com
November 29, 2024 at 5:18 PM
Improving how we communicate diagnoses of dementia.
Microlearning. Easy and accessible.
Curious? Click!
app.7taps.com/m/AN9PVhjgLohV
Microlearning. Easy and accessible.
Curious? Click!
app.7taps.com/m/AN9PVhjgLohV
Reposted by Diana Burgui
This is a really thought provoking piece from Dr Rónán Collins about our hospitals and the lack of care for our elderly and vulnerable. It really brought back to me the fear I experienced every time my dad was hospitalised and how traumatic it was for him.
www.irishexaminer.com/opinion/comm...
www.irishexaminer.com/opinion/comm...
Hospital care should have been the issue of Election 2024
Imagine a never-ending economy class flight with no entertainment and you have a close picture of many of our hospitals. These are not the places of care or sanctuary they should be, writes Professor ...
www.irishexaminer.com
November 29, 2024 at 8:00 AM
This is a really thought provoking piece from Dr Rónán Collins about our hospitals and the lack of care for our elderly and vulnerable. It really brought back to me the fear I experienced every time my dad was hospitalised and how traumatic it was for him.
www.irishexaminer.com/opinion/comm...
www.irishexaminer.com/opinion/comm...
Reposted by Diana Burgui
A reminder after celebrating Thanksgiving dinner: many individuals with dementia are placed on thickened liquid diets that impacts quality of life with no good evidence that it benefits them. #medsky
jamanetwork.com/journals/jam...
jamanetwork.com/journals/jam...
Thinning Evidence for Thickened Liquid Diets in Dementia and Dysphagia
A little less than a decade ago, our local hospice and palliative care team decided to attempt what we called a “thickened liquid challenge.” This simple challenge was intended not as a mere one-off t...
jamanetwork.com
November 29, 2024 at 12:45 AM
A reminder after celebrating Thanksgiving dinner: many individuals with dementia are placed on thickened liquid diets that impacts quality of life with no good evidence that it benefits them. #medsky
jamanetwork.com/journals/jam...
jamanetwork.com/journals/jam...
November 28, 2024 at 5:41 PM
Reposted by Diana Burgui
🚨 Delighted to announce that our article "Cognitive Rehabilitation for Posterior Cortical Atrophy" is out 🚨: https://pn.bmj.com/content/early/2024/11/07/pn-2024-004259.full
Immensely grateful to my co-authors for their expertise & passion & @PracticalNeuro for supporting its...
Immensely grateful to my co-authors for their expertise & passion & @PracticalNeuro for supporting its...
November 23, 2024 at 5:21 AM
🚨 Delighted to announce that our article "Cognitive Rehabilitation for Posterior Cortical Atrophy" is out 🚨: https://pn.bmj.com/content/early/2024/11/07/pn-2024-004259.full
Immensely grateful to my co-authors for their expertise & passion & @PracticalNeuro for supporting its...
Immensely grateful to my co-authors for their expertise & passion & @PracticalNeuro for supporting its...
Reposted by Diana Burgui
Visual imagery deficits in posterior cortical atrophy www.tandfonline.com/doi/full/10.... Not only impairments in visuospatial processing and visual object recognition, but also in mental imagery.
Visual imagery deficits in posterior cortical atrophy
Visual imagery has a close overlapping relationship with visual perception. Posterior cortical atrophy (PCA) is a neurodegenerative syndrome marked by early impairments in visuospatial processing a...
www.tandfonline.com
May 5, 2024 at 7:20 AM
Visual imagery deficits in posterior cortical atrophy www.tandfonline.com/doi/full/10.... Not only impairments in visuospatial processing and visual object recognition, but also in mental imagery.
Reposted by Diana Burgui
Several Bizarre Visual Symptoms Shown to Be a Strong Predictor For Alzheimer's
www.sciencealert.com/several-biza...
Posterior cortical atrophy involves strange, troubling issues with vision and spatial awareness – including difficulty judging distances, seeing movement and recognizing objects
www.sciencealert.com/several-biza...
Posterior cortical atrophy involves strange, troubling issues with vision and spatial awareness – including difficulty judging distances, seeing movement and recognizing objects
Several Bizarre Visual Symptoms Shown to Be a Strong Predictor For Alzheimer's
And we need to catch them earlier.
www.sciencealert.com
February 3, 2024 at 7:17 PM
Several Bizarre Visual Symptoms Shown to Be a Strong Predictor For Alzheimer's
www.sciencealert.com/several-biza...
Posterior cortical atrophy involves strange, troubling issues with vision and spatial awareness – including difficulty judging distances, seeing movement and recognizing objects
www.sciencealert.com/several-biza...
Posterior cortical atrophy involves strange, troubling issues with vision and spatial awareness – including difficulty judging distances, seeing movement and recognizing objects
More from DSiDC - take a look at our information booklets.
dementia.ie/information/...
Free to download, hardcopy orders via www.healthpromotion.ie
dementia.ie/information/...
Free to download, hardcopy orders via www.healthpromotion.ie
November 23, 2024 at 7:27 AM
More from DSiDC - take a look at our information booklets.
dementia.ie/information/...
Free to download, hardcopy orders via www.healthpromotion.ie
dementia.ie/information/...
Free to download, hardcopy orders via www.healthpromotion.ie
Have you heard about DSiDC?
Dementia Services information and Development Centre, based in Dublin, Ireland.
We are a public centre, we offer information, education and research on dementia.
Check out our (free!) e-learning.
dementia.ie/education/e-...
Dementia Services information and Development Centre, based in Dublin, Ireland.
We are a public centre, we offer information, education and research on dementia.
Check out our (free!) e-learning.
dementia.ie/education/e-...
November 23, 2024 at 7:04 AM
Have you heard about DSiDC?
Dementia Services information and Development Centre, based in Dublin, Ireland.
We are a public centre, we offer information, education and research on dementia.
Check out our (free!) e-learning.
dementia.ie/education/e-...
Dementia Services information and Development Centre, based in Dublin, Ireland.
We are a public centre, we offer information, education and research on dementia.
Check out our (free!) e-learning.
dementia.ie/education/e-...
Reposted by Diana Burgui
"If you’re a health-care worker who sees a patient in a mask, put one on for them. Don’t make them ask. Don’t psychologize them. Don’t betray the trust they’ve shown you. They’ve put their lives in your hands. Don’t take that for granted, it’s not an easy thing for many of us to do"
A plea to maskless health-care workers from vulnerable patients - Healthy Debate
Health-care workers have a responsibility to protect their vulnerable patients. Our lives are in your hands.
healthydebate.ca
November 18, 2024 at 4:35 AM
"If you’re a health-care worker who sees a patient in a mask, put one on for them. Don’t make them ask. Don’t psychologize them. Don’t betray the trust they’ve shown you. They’ve put their lives in your hands. Don’t take that for granted, it’s not an easy thing for many of us to do"
Reposted by Diana Burgui
Call for Papers ‼️
Ethics & equity in implementing novel biomarkers for Alzheimer’s Disease and Related Dementias (ADRD)
Submission deadline: Wednesday, 1/1/2025
alz-journals.onlinelibrary.wiley.com/hub/journal/...
#EndAlz
Ethics & equity in implementing novel biomarkers for Alzheimer’s Disease and Related Dementias (ADRD)
Submission deadline: Wednesday, 1/1/2025
alz-journals.onlinelibrary.wiley.com/hub/journal/...
#EndAlz
Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring Call for Papers: Ethics and Equity in implementing novel biomarkers for Alzheimer’s disease and Related Dementias (ADRD)
Guest Editors: Drs. Fred Ketchum and Annalise Rahman-FilipiakSenior Associate Editor: Dr. Amy Kind
alz-journals.onlinelibrary.wiley.com
November 18, 2024 at 3:22 PM
Call for Papers ‼️
Ethics & equity in implementing novel biomarkers for Alzheimer’s Disease and Related Dementias (ADRD)
Submission deadline: Wednesday, 1/1/2025
alz-journals.onlinelibrary.wiley.com/hub/journal/...
#EndAlz
Ethics & equity in implementing novel biomarkers for Alzheimer’s Disease and Related Dementias (ADRD)
Submission deadline: Wednesday, 1/1/2025
alz-journals.onlinelibrary.wiley.com/hub/journal/...
#EndAlz
Reposted by Diana Burgui
With endless debates about monoclonal antibodies and BBMs, it's easy to overlook the importance of holistic, person-centred, integrated care that focuses on a person's functional ability rather than just cognition. Great piece from Laure Rouch and Bruno Vellas at INSERM
doi.org/10.14283/jpa...
doi.org/10.14283/jpa...
ICOPE Healthy Longevity Integrative Preventive Care, Alzheimer’s Disease Prevention and Early Diagnosis - The Journal of Prevention of Alzheimer's Disease
The Journal of Prevention of Alzheimer's Disease -
doi.org
November 19, 2024 at 11:04 AM
With endless debates about monoclonal antibodies and BBMs, it's easy to overlook the importance of holistic, person-centred, integrated care that focuses on a person's functional ability rather than just cognition. Great piece from Laure Rouch and Bruno Vellas at INSERM
doi.org/10.14283/jpa...
doi.org/10.14283/jpa...
Great article on Alzheimer's disease and sex differences!
For anyone interested, I wrote this piece recently:
www.thetransmitter.org/sex-differen...
#Alzheimers #womensbrainhealth
www.thetransmitter.org/sex-differen...
#Alzheimers #womensbrainhealth
Brains, biases and amyloid beta: Why the female brain deserves a closer look in Alzheimer’s research
New results suggest the disease progresses differently in women, but we need more basic science to unpack the mechanisms involved.
www.thetransmitter.org
November 17, 2024 at 3:21 PM
Great article on Alzheimer's disease and sex differences!