burgermind
@burgermind.bsky.social
ME since 2021
#PwME #mecfs #longcovid #fibro #pots #severeME
I live on a lovely little island ( #OrcasIsland #PNW )
pfp: my black cat sleeping with forelegs stretched out
#PwME #mecfs #longcovid #fibro #pots #severeME
I live on a lovely little island ( #OrcasIsland #PNW )
pfp: my black cat sleeping with forelegs stretched out
Reposted by burgermind
MSNBC made it perfectly clear that when Trump said they were a threat to democracy they immediately obeyed and fired six people of color.
February 25, 2025 at 3:06 PM
MSNBC made it perfectly clear that when Trump said they were a threat to democracy they immediately obeyed and fired six people of color.
Reposted by burgermind
New from China:
Proteomics Reveals That Vitamin D Deficiency Leads to Immunoglobulin Abnormalities and Immune Dysregulation in Patients with Post-COVID-19 Condition
pubs.acs.org/doi/abs/10.1...
Image is from latest Science for ME weekly update
#LongCovid #PASC
Proteomics Reveals That Vitamin D Deficiency Leads to Immunoglobulin Abnormalities and Immune Dysregulation in Patients with Post-COVID-19 Condition
pubs.acs.org/doi/abs/10.1...
Image is from latest Science for ME weekly update
#LongCovid #PASC
February 25, 2025 at 3:36 AM
New from China:
Proteomics Reveals That Vitamin D Deficiency Leads to Immunoglobulin Abnormalities and Immune Dysregulation in Patients with Post-COVID-19 Condition
pubs.acs.org/doi/abs/10.1...
Image is from latest Science for ME weekly update
#LongCovid #PASC
Proteomics Reveals That Vitamin D Deficiency Leads to Immunoglobulin Abnormalities and Immune Dysregulation in Patients with Post-COVID-19 Condition
pubs.acs.org/doi/abs/10.1...
Image is from latest Science for ME weekly update
#LongCovid #PASC
Reposted by burgermind
For @motherjones.com, I reported on how looming Medicaid cuts could deprive millions of disabled people of health insurance. www.motherjones.com/politics/202...
Trump's Medicaid cuts would leave millions without health care
The human cost will be brutal—unless a few Republicans develop spines.
www.motherjones.com
February 24, 2025 at 6:17 PM
For @motherjones.com, I reported on how looming Medicaid cuts could deprive millions of disabled people of health insurance. www.motherjones.com/politics/202...
Reposted by burgermind
Studies show that funding from the National Institutes of Health (NIH) contributed to 354 of 356 drugs (99.4%) approved by the FDA from 2010 to 2019. Recklessly slashing NIH funding will mean that patients will be waiting much longer for life-saving treatments.
February 24, 2025 at 7:21 PM
Studies show that funding from the National Institutes of Health (NIH) contributed to 354 of 356 drugs (99.4%) approved by the FDA from 2010 to 2019. Recklessly slashing NIH funding will mean that patients will be waiting much longer for life-saving treatments.
Reposted by burgermind
PLEASE: Watch what happened in Coeur d'Alene Idaho today. This is fascism. Unmarked cops. 1A violations. RESIST.
February 24, 2025 at 3:26 AM
PLEASE: Watch what happened in Coeur d'Alene Idaho today. This is fascism. Unmarked cops. 1A violations. RESIST.
Reposted by burgermind
The Times: “How a promising triathlete was left bedridden by cruel disease”
James Walton was aiming for the world championships when he was suddenly struck down by chronic fatigue syndrome. He is now calling for more research into ME
www.thetimes.com/world/irelan...
James Walton was aiming for the world championships when he was suddenly struck down by chronic fatigue syndrome. He is now calling for more research into ME
www.thetimes.com/world/irelan...
How a promising triathlete was left bedridden by cruel disease
James Walton was aiming for the world championships when he was suddenly struck down by chronic fatigue syndrome. He is now calling for more research into ME
www.thetimes.com
February 23, 2025 at 2:46 PM
The Times: “How a promising triathlete was left bedridden by cruel disease”
James Walton was aiming for the world championships when he was suddenly struck down by chronic fatigue syndrome. He is now calling for more research into ME
www.thetimes.com/world/irelan...
James Walton was aiming for the world championships when he was suddenly struck down by chronic fatigue syndrome. He is now calling for more research into ME
www.thetimes.com/world/irelan...
Reposted by burgermind
not hearing this in anything but phil elverum voice
January 29, 2025 at 7:13 AM
not hearing this in anything but phil elverum voice
Reposted by burgermind
A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM)
Please share widely - all info on our website here
www.physiosforme.com/athletessurvey
Please share widely - all info on our website here
www.physiosforme.com/athletessurvey
ME in Athletes Survey | Physiosforme
www.physiosforme.com
February 23, 2025 at 6:02 PM
A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM)
Please share widely - all info on our website here
www.physiosforme.com/athletessurvey
Please share widely - all info on our website here
www.physiosforme.com/athletessurvey
Reposted by burgermind
Petition asking PM to revoke Elon Musk's Canadian citizenship garners support #GoCanadaGo #LetsDoThis #Canada #cdnpoli
Link here: sign the parliamentary petition www.ourcommons.ca/petitions/en...
www.ctvnews.ca/canada/artic...
Link here: sign the parliamentary petition www.ourcommons.ca/petitions/en...
www.ctvnews.ca/canada/artic...
Petition asking PM to revoke Elon Musk's Canadian citizenship garners support
Thousands of people have electronically signed a parliamentary petition calling for revocation of Elon Musk’s Canadian citizenship over his role in the Trump administration, which is pointedly threate...
www.ctvnews.ca
February 23, 2025 at 2:03 PM
Petition asking PM to revoke Elon Musk's Canadian citizenship garners support #GoCanadaGo #LetsDoThis #Canada #cdnpoli
Link here: sign the parliamentary petition www.ourcommons.ca/petitions/en...
www.ctvnews.ca/canada/artic...
Link here: sign the parliamentary petition www.ourcommons.ca/petitions/en...
www.ctvnews.ca/canada/artic...
Reposted by burgermind
Brilliant protest. Yosemite National Park workers hung an upside-down American flag — traditionally a symbol of distress or a national threat — thousands of feet off the ground on the side of El Capitan.
February 23, 2025 at 5:57 AM
Brilliant protest. Yosemite National Park workers hung an upside-down American flag — traditionally a symbol of distress or a national threat — thousands of feet off the ground on the side of El Capitan.
Reposted by burgermind
Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:
Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome
Also shows all the range of ME/#CFS
symptoms
#MECFS
1/
Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome
Also shows all the range of ME/#CFS
symptoms
#MECFS
1/
February 22, 2025 at 11:38 PM
Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:
Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome
Also shows all the range of ME/#CFS
symptoms
#MECFS
1/
Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome
Also shows all the range of ME/#CFS
symptoms
#MECFS
1/
Reposted by burgermind
Major Long-COVID Muscle Study Affirms ME/CFS Findings … and Sparks Dissent #longCOVID #MECFS www.healthrising.org/blog/2025/02...
Major Long-COVID Muscle Study Affirms ME/CFS Findings ... and Sparks Dissent - Health Rising
A long COVID exercise study finds dramatic muscle abnormalities and sparks some dissent.
www.healthrising.org
February 22, 2025 at 5:06 PM
Major Long-COVID Muscle Study Affirms ME/CFS Findings … and Sparks Dissent #longCOVID #MECFS www.healthrising.org/blog/2025/02...
Reposted by burgermind
If people were really just dying from chronic diseases then how come they weren’t dying from their chronic diseases until after March, 2020?
February 22, 2025 at 6:33 PM
If people were really just dying from chronic diseases then how come they weren’t dying from their chronic diseases until after March, 2020?
Reposted by burgermind
It may not be cool or hip in some circles, but we legitimately do need a massive amount of people to run for office.
Flood the school boards, councils, county seats, state legislatures, Congress, etc.
Big changes at the top happen when the ground shifts at the bottom. And that can start now.
Flood the school boards, councils, county seats, state legislatures, Congress, etc.
Big changes at the top happen when the ground shifts at the bottom. And that can start now.
February 22, 2025 at 8:07 PM
It may not be cool or hip in some circles, but we legitimately do need a massive amount of people to run for office.
Flood the school boards, councils, county seats, state legislatures, Congress, etc.
Big changes at the top happen when the ground shifts at the bottom. And that can start now.
Flood the school boards, councils, county seats, state legislatures, Congress, etc.
Big changes at the top happen when the ground shifts at the bottom. And that can start now.
Reposted by burgermind
The House could vote next week on drastic cuts to Medicaid that would gut critical programs that protect the civil rights and dignity of millions of Americans — including people with disabilities.
Contact your member of Congress: No cuts to Medicaid.
Contact your member of Congress: No cuts to Medicaid.
Congress: Save Medicaid Now
Politicians are attempting to pass devastating cuts to Medicaid right now and we must act fast. Send a message telling your member of Congress to fight back now.
action.aclu.org
February 22, 2025 at 7:41 PM
The House could vote next week on drastic cuts to Medicaid that would gut critical programs that protect the civil rights and dignity of millions of Americans — including people with disabilities.
Contact your member of Congress: No cuts to Medicaid.
Contact your member of Congress: No cuts to Medicaid.
Reposted by burgermind
VICE: 'COVID Killed So Many Americans That Social Security Shot Up $205 Billion'
'The study also bleakly hints that people dealing with long COVID are likely going to have to drop out of the workforce eventually...'
www.vice.com/en/article/c...
'The study also bleakly hints that people dealing with long COVID are likely going to have to drop out of the workforce eventually...'
www.vice.com/en/article/c...
COVID Killed So Many Americans That Social Security Shot Up $205 Billion
COVID killed so many Americans that the Social Security fund increased since there aren’t as many people around to receive it.
www.vice.com
February 22, 2025 at 4:20 PM
VICE: 'COVID Killed So Many Americans That Social Security Shot Up $205 Billion'
'The study also bleakly hints that people dealing with long COVID are likely going to have to drop out of the workforce eventually...'
www.vice.com/en/article/c...
'The study also bleakly hints that people dealing with long COVID are likely going to have to drop out of the workforce eventually...'
www.vice.com/en/article/c...
Reposted by burgermind
Medicaid is the main source of funding for aging and disability care, including home and community-based care. Medicaid is critical to the well-being of many in our community. Check out this Protecting Medicaid Toolkit organized by energy levels. docs.google.com/document/d/1...
#pwME #Medicaid
#pwME #Medicaid
February 21, 2025 at 5:26 PM
Medicaid is the main source of funding for aging and disability care, including home and community-based care. Medicaid is critical to the well-being of many in our community. Check out this Protecting Medicaid Toolkit organized by energy levels. docs.google.com/document/d/1...
#pwME #Medicaid
#pwME #Medicaid
Reposted by burgermind
Medicaid coverage for virtual visits ends April 1st.
As someone who cares for children that live up to 8 hours away, this is DEVASTATING.
Children, adults, elderly will all suffer.
CALL YOUR REPRESENTATIVES
The 5 calls app makes it easy!
As someone who cares for children that live up to 8 hours away, this is DEVASTATING.
Children, adults, elderly will all suffer.
CALL YOUR REPRESENTATIVES
The 5 calls app makes it easy!
February 21, 2025 at 2:42 PM
Medicaid coverage for virtual visits ends April 1st.
As someone who cares for children that live up to 8 hours away, this is DEVASTATING.
Children, adults, elderly will all suffer.
CALL YOUR REPRESENTATIVES
The 5 calls app makes it easy!
As someone who cares for children that live up to 8 hours away, this is DEVASTATING.
Children, adults, elderly will all suffer.
CALL YOUR REPRESENTATIVES
The 5 calls app makes it easy!
Reposted by burgermind
🚨Executive order terminating the Advisory Committee on #longcovid
👉Orwellian doublethink is upon us as disability discrimination & sidelining is portrayed as economic & bureaucratic savings
👉Yarvin's neoreaction RAGE - 'retire all government employees' continues
www.whitehouse.gov/presidential...
👉Orwellian doublethink is upon us as disability discrimination & sidelining is portrayed as economic & bureaucratic savings
👉Yarvin's neoreaction RAGE - 'retire all government employees' continues
www.whitehouse.gov/presidential...
February 20, 2025 at 9:32 AM
🚨Executive order terminating the Advisory Committee on #longcovid
👉Orwellian doublethink is upon us as disability discrimination & sidelining is portrayed as economic & bureaucratic savings
👉Yarvin's neoreaction RAGE - 'retire all government employees' continues
www.whitehouse.gov/presidential...
👉Orwellian doublethink is upon us as disability discrimination & sidelining is portrayed as economic & bureaucratic savings
👉Yarvin's neoreaction RAGE - 'retire all government employees' continues
www.whitehouse.gov/presidential...
Reposted by burgermind
Nature: 'Revealed: NIH research grants still frozen despite lawsuits challenging Trump order'
'The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.'
'The NIH did not respond to Nature’s queries..'
www.nature.com/articles/d41...
'The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.'
'The NIH did not respond to Nature’s queries..'
www.nature.com/articles/d41...
Revealed: NIH research grants still frozen despite lawsuits challenging Trump order
The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.
www.nature.com
February 20, 2025 at 8:23 PM
Nature: 'Revealed: NIH research grants still frozen despite lawsuits challenging Trump order'
'The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.'
'The NIH did not respond to Nature’s queries..'
www.nature.com/articles/d41...
'The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.'
'The NIH did not respond to Nature’s queries..'
www.nature.com/articles/d41...
Reposted by burgermind
In his senate hearings, RFK Jr said he was committed to the issue of Long Covid
Yet here we are…”Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID”
What is he committed to doing? Wellness farms. “Reparenting”. Its open season on chronic illness
Yet here we are…”Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID”
What is he committed to doing? Wellness farms. “Reparenting”. Its open season on chronic illness
Commencing the Reduction of the Federal Bureaucracy
By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1.
www.whitehouse.gov
February 20, 2025 at 8:33 PM
In his senate hearings, RFK Jr said he was committed to the issue of Long Covid
Yet here we are…”Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID”
What is he committed to doing? Wellness farms. “Reparenting”. Its open season on chronic illness
Yet here we are…”Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID”
What is he committed to doing? Wellness farms. “Reparenting”. Its open season on chronic illness
Reposted by burgermind
#MEAction’s Town Hall is February 25th at 2pm PST/5pm EST. Speakers include #MEAction staff members, volunteers, and Omar Wasow (MEAction board), Kehsi Iman Wilson (MEAction Board & NDS), AJ Link (New Disabled South), and Rabbi Elliot Kukla.
RSVP: ow.ly/NNYn50V3OZR
RSVP: ow.ly/NNYn50V3OZR
February 20, 2025 at 8:37 PM
#MEAction’s Town Hall is February 25th at 2pm PST/5pm EST. Speakers include #MEAction staff members, volunteers, and Omar Wasow (MEAction board), Kehsi Iman Wilson (MEAction Board & NDS), AJ Link (New Disabled South), and Rabbi Elliot Kukla.
RSVP: ow.ly/NNYn50V3OZR
RSVP: ow.ly/NNYn50V3OZR