@bec-hanley.bsky.social
Reposted
🎉 Big news!
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
Groundbreaking £50m MRC Centre will overhaul clinical trials for patients | MRC Clinical Trials Unit at UCL
www.mrcctu.ucl.ac.uk
December 18, 2025 at 4:09 PM
🎉 Big news!
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
The MRC Centre for Clinical Research Efficiency (CoRE) is here.
By accelerating the testing of new medicines, the MRC CoRE will help bring better treatments to patients sooner.
🔗 Learn more: www.mrcctu.ucl.ac.uk/news/news-st...
Reposted
We believe the research community has a responsibility to make its findings accessible to those it aims to help.
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
Readable Research - MND, Parkinson's, Dementia & Stroke
Clear, simple summaries of Neuroscience research – read and reviewed by those who live beyond our labs at the University of Sheffield.
t.ly
November 27, 2025 at 9:15 AM
We believe the research community has a responsibility to make its findings accessible to those it aims to help.
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
That's why we're supporting Readable Research, a website that offers lay summaries of scientific papers reviewed by people with lived experience.
📘Start reading: https://t.ly/-Zydr
Reposted
We put lived experience at the heart of our work – and want to empower others to do the same.
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
November 17, 2025 at 9:15 AM
We put lived experience at the heart of our work – and want to empower others to do the same.
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
This new report shares insights from a workshop on advancing patient public involvement in translational research and 10 top priorities for action.
🔗 Read the report: https://t.ly/Z6Oap
Reposted
Free stickers suitable for flag-bearing lampposts. Send a large A4 envelope with a 1st class large stamp to me at Bragg Office, PO Box 6830 Bridport DT6 9BH and I’ll send you a sheet. #ReclaimtheFlag 🏴🏴🏴🇬🇧
October 5, 2025 at 3:57 PM
Free stickers suitable for flag-bearing lampposts. Send a large A4 envelope with a 1st class large stamp to me at Bragg Office, PO Box 6830 Bridport DT6 9BH and I’ll send you a sheet. #ReclaimtheFlag 🏴🏴🏴🇬🇧
Reposted
Earlier this year, Dr. Jane Goodall sat down for an interview for Brad Falchuk’s new Netflix series, Famous Last Words.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
October 5, 2025 at 9:23 PM
Earlier this year, Dr. Jane Goodall sat down for an interview for Brad Falchuk’s new Netflix series, Famous Last Words.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
The premise of the series is to interview people on the condition that the interview not air until the subject has passed away.
Reposted
AI medical tools found to downplay symptoms of women, ethnic minorities
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
AI medical tools found to downplay symptoms of women, ethnic minorities
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
arstechnica.com
September 28, 2025 at 1:15 PM
AI medical tools found to downplay symptoms of women, ethnic minorities
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
Bias-reflecting LLMs lead to inferior medical advice for female, Black, and Asian patients.
None of this should be surprising, considering the terribly flawed data that these tools are based upon. Garbage in, garbage out.
Reposted
Deaths averted by vaccination since the 1970’s
August 30, 2025 at 11:48 AM
Deaths averted by vaccination since the 1970’s
Reposted
📣 Are you conducting research into #Covid19 or #LongCovid?
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
August 23, 2025 at 7:01 PM
📣 Are you conducting research into #Covid19 or #LongCovid?
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
Our Research Involvement Consultancy is here to help!
✅ Recruitment
✅ Study design
✅ Patient & Public Involvement & Engagement
Find more information on our website - link below ⬇️
Reposted
Need to write a Letter of Support but don’t know where to get started?
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
July 24, 2025 at 5:58 PM
Need to write a Letter of Support but don’t know where to get started?
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
Reposted
📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
May 27, 2025 at 8:10 PM
📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
Reposted
How can we ensure that virtual conferences like #PxP25 are rooted in accessibility?
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
An accessibility checklist for virtual conference - by and for patients - PxP
Checklist Developed by: Oluwafemi Ajayi, Rebecca Esparza, Rae Martens, and Shyamsundar Muthuramalingan Illustration by: Candace Ramjohn Blog by: Rebecca Esparza and […]
pxphub.org
July 3, 2025 at 8:11 PM
How can we ensure that virtual conferences like #PxP25 are rooted in accessibility?
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
Some ideas here:
pxphub.org/accessibilit...
#PPI #PatientEngagement #ConsumerInvolvement @coffeeandresearch.bsky.social @dawnrichards.bsky.social
#CRIGTAR25 key learning from Lucida Medical about involving patients in translational research
May 22, 2025 at 11:30 AM
#CRIGTAR25 key learning from Lucida Medical about involving patients in translational research
Reposted
"Every person that joins any trial is a hero."
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
May 21, 2025 at 8:52 AM
"Every person that joins any trial is a hero."
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
Former colleague Matt Sydes, who has dedicated his career to designing, running, analysing, and improving #ClinicalTrials, shares a powerful personal story about his son's involvement in a clinical trial.
@mattsydes.bsky.social
Read the full story 👇
Reposted
People who take part in #ClinicalTrials and other research have a right to know the results of these studies.
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
April 17, 2025 at 11:31 AM
People who take part in #ClinicalTrials and other research have a right to know the results of these studies.
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
Our 8 principles aim to improve the sharing of trial results with participants. They were developed alongside UK clinical research funders.
More details👉 buff.ly/SGrmL7o
Reposted
Hatching at @kneppwilding.bsky.social has started! 🐣
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social
April 12, 2025 at 1:21 PM
Hatching at @kneppwilding.bsky.social has started! 🐣
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social
Scroll back to 11:33:30 on our YouTube live camera to see the first glimpse of the chick.
@kneppwildlandfdn.bsky.social
Reposted
BRC Public Involvement in Research Competition winner 24 receives the trophy 🏆 at the Annual Event. @sarindiary.bsky.social’s exceptional work addresses inequality in maternal mortality among Black women.
@profhelenward.bsky.social @imperialmed.bsky.social
imperialbrc.nihr.ac.uk/2024/12/10/w...
@profhelenward.bsky.social @imperialmed.bsky.social
imperialbrc.nihr.ac.uk/2024/12/10/w...
March 26, 2025 at 8:15 PM
BRC Public Involvement in Research Competition winner 24 receives the trophy 🏆 at the Annual Event. @sarindiary.bsky.social’s exceptional work addresses inequality in maternal mortality among Black women.
@profhelenward.bsky.social @imperialmed.bsky.social
imperialbrc.nihr.ac.uk/2024/12/10/w...
@profhelenward.bsky.social @imperialmed.bsky.social
imperialbrc.nihr.ac.uk/2024/12/10/w...
Reposted
Blown away by @sarindiary.bsky.social & Carole presenting prize winning co-production work on priority setting for Black & Global majority women in maternity services at the @imperialbrc.bsky.social celebration. @imperialperc.bsky.social @profhelenward.bsky.social @sophie-day.bsky.social
March 25, 2025 at 7:31 PM
Blown away by @sarindiary.bsky.social & Carole presenting prize winning co-production work on priority setting for Black & Global majority women in maternity services at the @imperialbrc.bsky.social celebration. @imperialperc.bsky.social @profhelenward.bsky.social @sophie-day.bsky.social
Reposted
We are delighted to celebrate Storrington and Knepp joining the European Stork Villages Network at the UK's first ever White Stork & Nature Revival Festival!
Come along to this family friendly event hosted by Storrington and Sullington Parish Council to celebrate all things nature.
buff.ly/mRzMP1t
Come along to this family friendly event hosted by Storrington and Sullington Parish Council to celebrate all things nature.
buff.ly/mRzMP1t
March 19, 2025 at 3:26 PM
We are delighted to celebrate Storrington and Knepp joining the European Stork Villages Network at the UK's first ever White Stork & Nature Revival Festival!
Come along to this family friendly event hosted by Storrington and Sullington Parish Council to celebrate all things nature.
buff.ly/mRzMP1t
Come along to this family friendly event hosted by Storrington and Sullington Parish Council to celebrate all things nature.
buff.ly/mRzMP1t
Reposted
Retina International stands with @eurordis.bsky.social and @eupatientsforum.bsky.social. Weakening patient representation in CHMP & PRAC is a step backwards for patient-centred healthcare. EU Member States must uphold meaningful patient involvement. Full statement: www.eurordis.org/epf-eurordis...
Patient organisations warn against EU rollback on patient involvement in medicines regulation - EURORDIS
EURORDIS and the European Patients' Forum issue a joint statement.
www.eurordis.org
March 13, 2025 at 12:45 PM
Retina International stands with @eurordis.bsky.social and @eupatientsforum.bsky.social. Weakening patient representation in CHMP & PRAC is a step backwards for patient-centred healthcare. EU Member States must uphold meaningful patient involvement. Full statement: www.eurordis.org/epf-eurordis...
Reposted
#ClinicalTrials involve collecting lots of data from participants. But some of this data might be collected and stored in healthcare systems too.
On the Trial Talk podcast, we explore the opportunities and challenges of using healthcare systems data in clinical trials.
Listen now👉 buff.ly/XruZusq
On the Trial Talk podcast, we explore the opportunities and challenges of using healthcare systems data in clinical trials.
Listen now👉 buff.ly/XruZusq
March 7, 2025 at 2:35 PM
#ClinicalTrials involve collecting lots of data from participants. But some of this data might be collected and stored in healthcare systems too.
On the Trial Talk podcast, we explore the opportunities and challenges of using healthcare systems data in clinical trials.
Listen now👉 buff.ly/XruZusq
On the Trial Talk podcast, we explore the opportunities and challenges of using healthcare systems data in clinical trials.
Listen now👉 buff.ly/XruZusq
Reposted
El Capitan displays a massive American flag upside down—the traditional signal of distress or extreme emergency.
February 23, 2025 at 6:01 PM
El Capitan displays a massive American flag upside down—the traditional signal of distress or extreme emergency.
Reposted
A big moment: the web cam on one of our white storks nests is live again, for the first time this year!
Ania (GB5B) and Bartek (GB18) are back on their nest.
Enjoy! 🪶
@whitestorkproject.bsky.social @kneppwildlandfdn.bsky.social
Link: whitestorkproject.org/live-cam-feed/
Ania (GB5B) and Bartek (GB18) are back on their nest.
Enjoy! 🪶
@whitestorkproject.bsky.social @kneppwildlandfdn.bsky.social
Link: whitestorkproject.org/live-cam-feed/
Live Cam Feed
Here is a live camera feed on one of our stork's nests at Knepp Estate!
whitestorkproject.org
February 5, 2025 at 1:12 PM
A big moment: the web cam on one of our white storks nests is live again, for the first time this year!
Ania (GB5B) and Bartek (GB18) are back on their nest.
Enjoy! 🪶
@whitestorkproject.bsky.social @kneppwildlandfdn.bsky.social
Link: whitestorkproject.org/live-cam-feed/
Ania (GB5B) and Bartek (GB18) are back on their nest.
Enjoy! 🪶
@whitestorkproject.bsky.social @kneppwildlandfdn.bsky.social
Link: whitestorkproject.org/live-cam-feed/