ALK Positive Lung Cancer UK
@alkpositiveuk.bsky.social
💙 Supporting, empowering & advocating for those with ALK+ lung cancer in the UK
🧬 Advocacy | Awareness | Trusted resources
🫶 NICE-recognised, improving lives, driving change, and amplifying our community voices
linktr.ee/alkpositivelungcanceruk
🧬 Advocacy | Awareness | Trusted resources
🫶 NICE-recognised, improving lives, driving change, and amplifying our community voices
linktr.ee/alkpositivelungcanceruk
Looking ahead to ‘26, progress in ALK+ #lungcancer is less about one new drug & more about how care is delivered. Earlier testing, more options when treatment stops working, & more joined up care are all areas to watch. These shifts take time, but point to more personalised & considered care. #LCSM
December 20, 2025 at 9:33 AM
Looking ahead to ‘26, progress in ALK+ #lungcancer is less about one new drug & more about how care is delivered. Earlier testing, more options when treatment stops working, & more joined up care are all areas to watch. These shifts take time, but point to more personalised & considered care. #LCSM
Reposted by ALK Positive Lung Cancer UK
The first PIF webinars for 2026 have been unveiled. The sessions will take place in Health Information Week to launch a new series of PIF TICK-certified resource collections in collaboration with @england.nhs.uk
Join us on 19 January to learn more: pifonline.org.uk/training-eve...
#PIFTICK
Join us on 19 January to learn more: pifonline.org.uk/training-eve...
#PIFTICK
December 15, 2025 at 11:42 AM
The first PIF webinars for 2026 have been unveiled. The sessions will take place in Health Information Week to launch a new series of PIF TICK-certified resource collections in collaboration with @england.nhs.uk
Join us on 19 January to learn more: pifonline.org.uk/training-eve...
#PIFTICK
Join us on 19 January to learn more: pifonline.org.uk/training-eve...
#PIFTICK
Reposted by ALK Positive Lung Cancer UK
Tools fail to identify most AI-generated peer-review reports, say researchers, who warn that the issue is only getting worse.
go.nature.com/3MTmdAR
go.nature.com/3MTmdAR
‘A serious problem’: peer reviews created using AI can avoid detection
Tools fail to identify most AI-generated peer-review reports, say researchers, who warn that the issue is only getting worse.
go.nature.com
December 19, 2025 at 7:00 PM
Tools fail to identify most AI-generated peer-review reports, say researchers, who warn that the issue is only getting worse.
go.nature.com/3MTmdAR
go.nature.com/3MTmdAR
Reposted by ALK Positive Lung Cancer UK
Exciting research! Mobile DNA reactivation has been identified as a previously unrecognized engine of aggressive lung adenocarcinoma by a National Institutes of Health-led international team using whole-genome data from the Sherlock-Lung study. #lungcancer
www.technologynetworks.com/tn/news/mobi...
www.technologynetworks.com/tn/news/mobi...
Mobile DNA Elements Drive Lung Cancer Evolution
New research has identified key factors that drive lung tumor evolution and influence outcomes, describing a previously unknown origin of some aggressive lung cancers.
www.technologynetworks.com
December 19, 2025 at 3:06 PM
Exciting research! Mobile DNA reactivation has been identified as a previously unrecognized engine of aggressive lung adenocarcinoma by a National Institutes of Health-led international team using whole-genome data from the Sherlock-Lung study. #lungcancer
www.technologynetworks.com/tn/news/mobi...
www.technologynetworks.com/tn/news/mobi...
This week marks 7 years of ALK+ UK officially being a charity, supporting people with ALK+ #lungcancer.
ALK+ UK exists: to make sure no one has to face ALK+ alone. It's about sharing knowledge, finding comfort, building friendships, and feeling more confident to take control along the way. #LCSM
ALK+ UK exists: to make sure no one has to face ALK+ alone. It's about sharing knowledge, finding comfort, building friendships, and feeling more confident to take control along the way. #LCSM
December 16, 2025 at 10:35 AM
This week marks 7 years of ALK+ UK officially being a charity, supporting people with ALK+ #lungcancer.
ALK+ UK exists: to make sure no one has to face ALK+ alone. It's about sharing knowledge, finding comfort, building friendships, and feeling more confident to take control along the way. #LCSM
ALK+ UK exists: to make sure no one has to face ALK+ alone. It's about sharing knowledge, finding comfort, building friendships, and feeling more confident to take control along the way. #LCSM
A UK clinical trial is open for people with untreated advanced ALK+ #lungcancer, evaluating a next-generation ALK inhibitor.
If this could be relevant, speak to your care team or contact the Christie Lung Research Team:
the-christie.LungResearchTeam@nhs.net
#LCSM
If this could be relevant, speak to your care team or contact the Christie Lung Research Team:
the-christie.LungResearchTeam@nhs.net
#LCSM
December 13, 2025 at 10:52 AM
A UK clinical trial is open for people with untreated advanced ALK+ #lungcancer, evaluating a next-generation ALK inhibitor.
If this could be relevant, speak to your care team or contact the Christie Lung Research Team:
the-christie.LungResearchTeam@nhs.net
#LCSM
If this could be relevant, speak to your care team or contact the Christie Lung Research Team:
the-christie.LungResearchTeam@nhs.net
#LCSM
Some ALK+ #lungcancer treatments - esp lorlatinib - can affect mood, thinking & behaviour.
This was discussed in a recent Lung Cancers Today roundtable on recognising neurocognitive changes during ALK inhibitor therapy, & why spotting early matters. #LCSM
www.lungcancerstoday.com/post/caring-...
This was discussed in a recent Lung Cancers Today roundtable on recognising neurocognitive changes during ALK inhibitor therapy, & why spotting early matters. #LCSM
www.lungcancerstoday.com/post/caring-...
December 12, 2025 at 8:42 PM
Some ALK+ #lungcancer treatments - esp lorlatinib - can affect mood, thinking & behaviour.
This was discussed in a recent Lung Cancers Today roundtable on recognising neurocognitive changes during ALK inhibitor therapy, & why spotting early matters. #LCSM
www.lungcancerstoday.com/post/caring-...
This was discussed in a recent Lung Cancers Today roundtable on recognising neurocognitive changes during ALK inhibitor therapy, & why spotting early matters. #LCSM
www.lungcancerstoday.com/post/caring-...
Great to see clear guidance for primary care from @gatewayc.bsky.social
#LungCancer doesn’t always start with a cough - early signs can be vague. Shoulder pain, anaemia or persistent symptoms should prompt a rethink. This is such helpful content for GPs. #LCSM
www.linkedin.com/pulse/lung-c...
#LungCancer doesn’t always start with a cough - early signs can be vague. Shoulder pain, anaemia or persistent symptoms should prompt a rethink. This is such helpful content for GPs. #LCSM
www.linkedin.com/pulse/lung-c...
Lung cancer: A persistent cough isn’t the only warning sign
Key takeaways While a persistent cough is a common symptom, lung cancer may present with vague, non-specific early symptoms. A Pancoast tumour often presents with shoulder pain rather than respiratory...
www.linkedin.com
December 11, 2025 at 10:07 PM
Great to see clear guidance for primary care from @gatewayc.bsky.social
#LungCancer doesn’t always start with a cough - early signs can be vague. Shoulder pain, anaemia or persistent symptoms should prompt a rethink. This is such helpful content for GPs. #LCSM
www.linkedin.com/pulse/lung-c...
#LungCancer doesn’t always start with a cough - early signs can be vague. Shoulder pain, anaemia or persistent symptoms should prompt a rethink. This is such helpful content for GPs. #LCSM
www.linkedin.com/pulse/lung-c...
Reposted by ALK Positive Lung Cancer UK
It's been a year of remarkable science. Here are some highlights, picked by our News & Views team
go.nature.com/4iVgmaj
go.nature.com/4iVgmaj
Asteroids, antibiotics and ants: a year of remarkable science
Highlights from News & Views published in 2025.
go.nature.com
December 11, 2025 at 4:50 PM
It's been a year of remarkable science. Here are some highlights, picked by our News & Views team
go.nature.com/4iVgmaj
go.nature.com/4iVgmaj
Reposted by ALK Positive Lung Cancer UK
Remember, healing is not linear 🩵
What’s one small win you’ve had recently, despite the ups and downs?
What’s one small win you’ve had recently, despite the ups and downs?
December 10, 2025 at 9:49 AM
Remember, healing is not linear 🩵
What’s one small win you’ve had recently, despite the ups and downs?
What’s one small win you’ve had recently, despite the ups and downs?
73% of people with rare conditions like ALK+ #lungcancer say they spend a lot of time explaining their medical needs to new teams.
CamRARE’s new study shows the Rare Patient Passport can help. There’s now an ALK+ version available. www.camraredisease.org/patient-pass... #LCSM
CamRARE’s new study shows the Rare Patient Passport can help. There’s now an ALK+ version available. www.camraredisease.org/patient-pass... #LCSM
December 10, 2025 at 6:28 PM
73% of people with rare conditions like ALK+ #lungcancer say they spend a lot of time explaining their medical needs to new teams.
CamRARE’s new study shows the Rare Patient Passport can help. There’s now an ALK+ version available. www.camraredisease.org/patient-pass... #LCSM
CamRARE’s new study shows the Rare Patient Passport can help. There’s now an ALK+ version available. www.camraredisease.org/patient-pass... #LCSM
New UK data shows more trials are starting, but fewer people are getting into them - the lowest level since 2017/18. For people with #lungcancer, where treatments like ALK+ TKIs come through commercial trials, this gap is concerning. #LCSM
(Source: ABPI)
abpi.app.box.com/s/fp1m5l74ol...
(Source: ABPI)
abpi.app.box.com/s/fp1m5l74ol...
December 10, 2025 at 11:20 AM
New UK data shows more trials are starting, but fewer people are getting into them - the lowest level since 2017/18. For people with #lungcancer, where treatments like ALK+ TKIs come through commercial trials, this gap is concerning. #LCSM
(Source: ABPI)
abpi.app.box.com/s/fp1m5l74ol...
(Source: ABPI)
abpi.app.box.com/s/fp1m5l74ol...
Our week-long Christmas Appeal has finished & we reached our £10K target 🎉
🙏 to everyone who donated, to the anonymous donor & the Hospital Saturday Fund for the match funding, & to Big Give for hosting the appeal.
And a big thank you to our charity manager Becs for pulling it all together 💙 #LCSM
🙏 to everyone who donated, to the anonymous donor & the Hospital Saturday Fund for the match funding, & to Big Give for hosting the appeal.
And a big thank you to our charity manager Becs for pulling it all together 💙 #LCSM
December 9, 2025 at 3:51 PM
Our week-long Christmas Appeal has finished & we reached our £10K target 🎉
🙏 to everyone who donated, to the anonymous donor & the Hospital Saturday Fund for the match funding, & to Big Give for hosting the appeal.
And a big thank you to our charity manager Becs for pulling it all together 💙 #LCSM
🙏 to everyone who donated, to the anonymous donor & the Hospital Saturday Fund for the match funding, & to Big Give for hosting the appeal.
And a big thank you to our charity manager Becs for pulling it all together 💙 #LCSM
ICPC has launched a global survey on how people understand and use the word “cure” in cancer.
It’s a complex term in #lungcancer, where experiences vary widely across stages and outcomes. ICPC is gathering views worldwide.
Survey: www.surveymonkey.com/r/Cure_Survey #LCSM
It’s a complex term in #lungcancer, where experiences vary widely across stages and outcomes. ICPC is gathering views worldwide.
Survey: www.surveymonkey.com/r/Cure_Survey #LCSM
December 9, 2025 at 9:07 AM
ICPC has launched a global survey on how people understand and use the word “cure” in cancer.
It’s a complex term in #lungcancer, where experiences vary widely across stages and outcomes. ICPC is gathering views worldwide.
Survey: www.surveymonkey.com/r/Cure_Survey #LCSM
It’s a complex term in #lungcancer, where experiences vary widely across stages and outcomes. ICPC is gathering views worldwide.
Survey: www.surveymonkey.com/r/Cure_Survey #LCSM
What gives me hope is what’s coming next - @prof-ali-g.bsky.social, #lungcancer oncologist, talks through the developments he’s watching in ALK+ 🆕 tablets, 🆕 classes of drugs like ADCs, & approaches that use the immune system in more targeted ways. Could open up more options in the yrs ahead. #LCSM
December 7, 2025 at 9:33 AM
What gives me hope is what’s coming next - @prof-ali-g.bsky.social, #lungcancer oncologist, talks through the developments he’s watching in ALK+ 🆕 tablets, 🆕 classes of drugs like ADCs, & approaches that use the immune system in more targeted ways. Could open up more options in the yrs ahead. #LCSM
Reposted by ALK Positive Lung Cancer UK
What does jewellery made by bacteria look like?
Every year, students from the MA Biodesign course at Central Saint Martins, @researchual.bsky.social collaborate with the Making Lab and other teams from the Crick to explore the intersection between art and science.
www.youtube.com/watch?v=fFPB...
Every year, students from the MA Biodesign course at Central Saint Martins, @researchual.bsky.social collaborate with the Making Lab and other teams from the Crick to explore the intersection between art and science.
www.youtube.com/watch?v=fFPB...
When Art Meets Science
YouTube video by The Francis Crick Institute
www.youtube.com
December 5, 2025 at 2:53 PM
What does jewellery made by bacteria look like?
Every year, students from the MA Biodesign course at Central Saint Martins, @researchual.bsky.social collaborate with the Making Lab and other teams from the Crick to explore the intersection between art and science.
www.youtube.com/watch?v=fFPB...
Every year, students from the MA Biodesign course at Central Saint Martins, @researchual.bsky.social collaborate with the Making Lab and other teams from the Crick to explore the intersection between art and science.
www.youtube.com/watch?v=fFPB...
#LungCancer survival stats online are often years out of date. More people with stage 4 are now living longer, some having surgery after a good response and a few reaching NED. Outcomes are shifting in a better direction. 💙 #LCSM
Source: SEER data reflects outcomes from years earlier.
Source: SEER data reflects outcomes from years earlier.
December 6, 2025 at 9:56 AM
#LungCancer survival stats online are often years out of date. More people with stage 4 are now living longer, some having surgery after a good response and a few reaching NED. Outcomes are shifting in a better direction. 💙 #LCSM
Source: SEER data reflects outcomes from years earlier.
Source: SEER data reflects outcomes from years earlier.
Reposted by ALK Positive Lung Cancer UK
Reposted by ALK Positive Lung Cancer UK
Reposted by ALK Positive Lung Cancer UK
Tell us about your progress on health literacy.
We want to hear from health information producers to find out how the sector is embedding health and digital literacy into services.
Let us know your views by 5 December: lnkd.in/eupCvfHi
#HealthLiteracy
#DigitalLiteracy
We want to hear from health information producers to find out how the sector is embedding health and digital literacy into services.
Let us know your views by 5 December: lnkd.in/eupCvfHi
#HealthLiteracy
#DigitalLiteracy
December 3, 2025 at 11:27 AM
Tell us about your progress on health literacy.
We want to hear from health information producers to find out how the sector is embedding health and digital literacy into services.
Let us know your views by 5 December: lnkd.in/eupCvfHi
#HealthLiteracy
#DigitalLiteracy
We want to hear from health information producers to find out how the sector is embedding health and digital literacy into services.
Let us know your views by 5 December: lnkd.in/eupCvfHi
#HealthLiteracy
#DigitalLiteracy
#Lungcancer needs more awareness and better support, and our Big Give week helps us push that forward.
From now until midday 9 December, any donation made through our Big Give link donate.biggive.org/campaign/a05... will be doubled (up to £5,000).
£10 ➡️ £20. £25 ➡️ £50. £50 ➡️ £100. #LCAM
From now until midday 9 December, any donation made through our Big Give link donate.biggive.org/campaign/a05... will be doubled (up to £5,000).
£10 ➡️ £20. £25 ➡️ £50. £50 ➡️ £100. #LCAM
December 3, 2025 at 9:31 AM
#Lungcancer needs more awareness and better support, and our Big Give week helps us push that forward.
From now until midday 9 December, any donation made through our Big Give link donate.biggive.org/campaign/a05... will be doubled (up to £5,000).
£10 ➡️ £20. £25 ➡️ £50. £50 ➡️ £100. #LCAM
From now until midday 9 December, any donation made through our Big Give link donate.biggive.org/campaign/a05... will be doubled (up to £5,000).
£10 ➡️ £20. £25 ➡️ £50. £50 ➡️ £100. #LCAM
NICE will raise its cost-effectiveness threshold in April 2026 from £20–£30k to £25–£35k. This is a significant shift - for #lungcancer, esp ALK+, newer targeted treatments are often expensive. A higher threshold could make future drugs easier to approve & reach the people who need them. #LCSM
December 1, 2025 at 7:04 PM
NICE will raise its cost-effectiveness threshold in April 2026 from £20–£30k to £25–£35k. This is a significant shift - for #lungcancer, esp ALK+, newer targeted treatments are often expensive. A higher threshold could make future drugs easier to approve & reach the people who need them. #LCSM
A recent TKI update highlights why newer ALK+ #LungCancer drugs are used first: stronger CNS protection + better resistance coverage.
Also recognises while lorlatinib is effective, the neuro side-effects can be tough. Trtmnt choices need to balance both.
www.onclive.com/view/newer-g...
#LCSM
Also recognises while lorlatinib is effective, the neuro side-effects can be tough. Trtmnt choices need to balance both.
www.onclive.com/view/newer-g...
#LCSM
November 30, 2025 at 10:40 PM
A recent TKI update highlights why newer ALK+ #LungCancer drugs are used first: stronger CNS protection + better resistance coverage.
Also recognises while lorlatinib is effective, the neuro side-effects can be tough. Trtmnt choices need to balance both.
www.onclive.com/view/newer-g...
#LCSM
Also recognises while lorlatinib is effective, the neuro side-effects can be tough. Trtmnt choices need to balance both.
www.onclive.com/view/newer-g...
#LCSM
Reposted by ALK Positive Lung Cancer UK
Social media can be a great way to find health information, but there are risks when using and sharing content.
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
November 27, 2025 at 1:25 PM
Social media can be a great way to find health information, but there are risks when using and sharing content.
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
Reposted by ALK Positive Lung Cancer UK
This #LungCancer Awareness Month we wanted to focus on self-care - everyday things that help us get through the tough days.
We didn’t expect how many of our volunteers would talk about their pets!
So, we’re taking a moment for the furry supporters who make the hard days a bit lighter. #LCSM
We didn’t expect how many of our volunteers would talk about their pets!
So, we’re taking a moment for the furry supporters who make the hard days a bit lighter. #LCSM
November 30, 2025 at 5:15 PM
This #LungCancer Awareness Month we wanted to focus on self-care - everyday things that help us get through the tough days.
We didn’t expect how many of our volunteers would talk about their pets!
So, we’re taking a moment for the furry supporters who make the hard days a bit lighter. #LCSM
We didn’t expect how many of our volunteers would talk about their pets!
So, we’re taking a moment for the furry supporters who make the hard days a bit lighter. #LCSM