ALK Positive Lung Cancer UK
@alkpositiveuk.bsky.social
💙 Supporting, empowering & advocating for those with ALK+ lung cancer in the UK
🧬 Advocacy | Awareness | Trusted resources
🫶 NICE-recognised, improving lives, driving change, and amplifying our community voices
linktr.ee/alkpositivelungcanceruk
🧬 Advocacy | Awareness | Trusted resources
🫶 NICE-recognised, improving lives, driving change, and amplifying our community voices
linktr.ee/alkpositivelungcanceruk
This 🆕 review by Eric K Singhi & Eric S Nadler brings together long term trial data on first line ALK+ #LungCancer drugs & why early treatment choice can influence what comes next.
UK note: alectinib & lorlatinib are available here. Ensartinib is not.
link.springer.com/epdf/10.1007...
#LCSM
UK note: alectinib & lorlatinib are available here. Ensartinib is not.
link.springer.com/epdf/10.1007...
#LCSM
January 28, 2026 at 7:02 PM
This 🆕 review by Eric K Singhi & Eric S Nadler brings together long term trial data on first line ALK+ #LungCancer drugs & why early treatment choice can influence what comes next.
UK note: alectinib & lorlatinib are available here. Ensartinib is not.
link.springer.com/epdf/10.1007...
#LCSM
UK note: alectinib & lorlatinib are available here. Ensartinib is not.
link.springer.com/epdf/10.1007...
#LCSM
Reposted by ALK Positive Lung Cancer UK
First look at our next #GPsTalkCancer episode...
In our upcoming bonus episode with NHS Wales, Dr Elaine Hampton, GP facilitator in cancer services in North Wales, joins Sarah and Rebecca in our brand-new studio to discuss cancer in rural populations.
Out everywhere Tuesday🎧
In our upcoming bonus episode with NHS Wales, Dr Elaine Hampton, GP facilitator in cancer services in North Wales, joins Sarah and Rebecca in our brand-new studio to discuss cancer in rural populations.
Out everywhere Tuesday🎧
January 22, 2026 at 12:56 PM
First look at our next #GPsTalkCancer episode...
In our upcoming bonus episode with NHS Wales, Dr Elaine Hampton, GP facilitator in cancer services in North Wales, joins Sarah and Rebecca in our brand-new studio to discuss cancer in rural populations.
Out everywhere Tuesday🎧
In our upcoming bonus episode with NHS Wales, Dr Elaine Hampton, GP facilitator in cancer services in North Wales, joins Sarah and Rebecca in our brand-new studio to discuss cancer in rural populations.
Out everywhere Tuesday🎧
Reposted by ALK Positive Lung Cancer UK
Last year’s Annual Conference delivered real impact:
✔ Relevant, well-structured education
✔ Clear, effective speakers
✔ Minimal commercial bias
✔ Practice-changing insights
We’re building on that feedback for this year.
Register now and join us: https://ow.ly/chLM50Y3I9m
✔ Relevant, well-structured education
✔ Clear, effective speakers
✔ Minimal commercial bias
✔ Practice-changing insights
We’re building on that feedback for this year.
Register now and join us: https://ow.ly/chLM50Y3I9m
January 28, 2026 at 8:00 AM
Last year’s Annual Conference delivered real impact:
✔ Relevant, well-structured education
✔ Clear, effective speakers
✔ Minimal commercial bias
✔ Practice-changing insights
We’re building on that feedback for this year.
Register now and join us: https://ow.ly/chLM50Y3I9m
✔ Relevant, well-structured education
✔ Clear, effective speakers
✔ Minimal commercial bias
✔ Practice-changing insights
We’re building on that feedback for this year.
Register now and join us: https://ow.ly/chLM50Y3I9m
Announced today by NHS England: AI and robotic tools will be trialled to diagnose #lungcancer faster.
Earlier, more precise biopsies could speed up molecular testing and access to targeted treatment, including for ALK+ lung cancer. #LCSM
www.theguardian.com/society/2026...
Earlier, more precise biopsies could speed up molecular testing and access to targeted treatment, including for ALK+ lung cancer. #LCSM
www.theguardian.com/society/2026...
January 27, 2026 at 2:28 PM
Announced today by NHS England: AI and robotic tools will be trialled to diagnose #lungcancer faster.
Earlier, more precise biopsies could speed up molecular testing and access to targeted treatment, including for ALK+ lung cancer. #LCSM
www.theguardian.com/society/2026...
Earlier, more precise biopsies could speed up molecular testing and access to targeted treatment, including for ALK+ lung cancer. #LCSM
www.theguardian.com/society/2026...
🙏 to Rene, our NI rep, for representing ALK+ #LungCancer UK at the Northern Ireland Cancer Charities Coalition showcase event at Stormont.
Organised by the NI Cancer Charities Coalition it brings cancer charities together with MLAs to talk about cancer care, support, & where change is needed. #LCSM
Organised by the NI Cancer Charities Coalition it brings cancer charities together with MLAs to talk about cancer care, support, & where change is needed. #LCSM
January 27, 2026 at 9:56 AM
🙏 to Rene, our NI rep, for representing ALK+ #LungCancer UK at the Northern Ireland Cancer Charities Coalition showcase event at Stormont.
Organised by the NI Cancer Charities Coalition it brings cancer charities together with MLAs to talk about cancer care, support, & where change is needed. #LCSM
Organised by the NI Cancer Charities Coalition it brings cancer charities together with MLAs to talk about cancer care, support, & where change is needed. #LCSM
Tumour explants use real tumour tissue grown outside the body. For ALK+ #lungcancer, they help researchers study drug resistance and why immunotherapy often falls short. This could improve how future treatments are developed. #LCSM
www.nature.com/articles/s41...
www.nature.com/articles/s41...
January 26, 2026 at 8:23 PM
Tumour explants use real tumour tissue grown outside the body. For ALK+ #lungcancer, they help researchers study drug resistance and why immunotherapy often falls short. This could improve how future treatments are developed. #LCSM
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted by ALK Positive Lung Cancer UK
Book your free tickets now for our next #MedicineAtTheCrick event on Thursday 12 March, hosted by @andreas-t-schaefer.bsky.social, where researchers and clinicians will explore ‘neurotechnologies’ that help us better understand and decode the brain.
www.eventbrite.co.uk/e/medicine-a...
www.eventbrite.co.uk/e/medicine-a...
Medicine at the Crick| Interfacing the human brain: neurons to networks
Hybrid event taking place virtually and in person, organised by The Francis Crick Institute, London
www.eventbrite.co.uk
January 26, 2026 at 11:33 AM
Book your free tickets now for our next #MedicineAtTheCrick event on Thursday 12 March, hosted by @andreas-t-schaefer.bsky.social, where researchers and clinicians will explore ‘neurotechnologies’ that help us better understand and decode the brain.
www.eventbrite.co.uk/e/medicine-a...
www.eventbrite.co.uk/e/medicine-a...
This week the UK government announced plans for health warnings on wood-burning stoves.
Wood smoke produces PM2.5 air pollution, which is linked to #lungcancer. In the UK, domestic wood burning now contributes more PM2.5 than road traffic (DEFRA). #LCSM
🔗 www.theguardian.com/environment/...
Wood smoke produces PM2.5 air pollution, which is linked to #lungcancer. In the UK, domestic wood burning now contributes more PM2.5 than road traffic (DEFRA). #LCSM
🔗 www.theguardian.com/environment/...
January 23, 2026 at 8:03 AM
This week the UK government announced plans for health warnings on wood-burning stoves.
Wood smoke produces PM2.5 air pollution, which is linked to #lungcancer. In the UK, domestic wood burning now contributes more PM2.5 than road traffic (DEFRA). #LCSM
🔗 www.theguardian.com/environment/...
Wood smoke produces PM2.5 air pollution, which is linked to #lungcancer. In the UK, domestic wood burning now contributes more PM2.5 than road traffic (DEFRA). #LCSM
🔗 www.theguardian.com/environment/...
Reposted by ALK Positive Lung Cancer UK
As the NHS shifts care from hospitals to communities, we explore why research and innovation remain heavily hospital-centred and set out the case for expanding community-based research to improve equity, relevance and outcomes.
Read the full piece. https://bit.ly/49uKFSe
Read the full piece. https://bit.ly/49uKFSe
January 20, 2026 at 10:08 AM
As the NHS shifts care from hospitals to communities, we explore why research and innovation remain heavily hospital-centred and set out the case for expanding community-based research to improve equity, relevance and outcomes.
Read the full piece. https://bit.ly/49uKFSe
Read the full piece. https://bit.ly/49uKFSe
Reposted by ALK Positive Lung Cancer UK
1/3 - We have a wide variety of resources in our new collections of trusted health information resources. There are videos, posters, tools, apps and websites.
Each collection has been curated in partnership with @england.nhs.uk and you can see them here: piftick.org.uk/collections/
Each collection has been curated in partnership with @england.nhs.uk and you can see them here: piftick.org.uk/collections/
January 21, 2026 at 10:24 AM
1/3 - We have a wide variety of resources in our new collections of trusted health information resources. There are videos, posters, tools, apps and websites.
Each collection has been curated in partnership with @england.nhs.uk and you can see them here: piftick.org.uk/collections/
Each collection has been curated in partnership with @england.nhs.uk and you can see them here: piftick.org.uk/collections/
Interesting discussion from @lungcancerstoday.bsky.social on early-stage ALK+ #lungcancer including practicalities of newer adjuvant treatment day to day - not just the trial results. Worth a read or watch.
www.lungcancerstoday.com/post/patient... #LCSM
www.lungcancerstoday.com/post/patient... #LCSM
January 21, 2026 at 5:57 PM
Interesting discussion from @lungcancerstoday.bsky.social on early-stage ALK+ #lungcancer including practicalities of newer adjuvant treatment day to day - not just the trial results. Worth a read or watch.
www.lungcancerstoday.com/post/patient... #LCSM
www.lungcancerstoday.com/post/patient... #LCSM
A new early-phase #lungcancer study has opened at UCLH as part of a global BioNTech trial, testing a new combination of two investigational drugs in advanced disease.
Not for ALK+, but this kind of early combination work is vital and helps move the field forward.
www.uclh.nhs.uk/news/new-com...
Not for ALK+, but this kind of early combination work is vital and helps move the field forward.
www.uclh.nhs.uk/news/new-com...
January 20, 2026 at 9:28 PM
A new early-phase #lungcancer study has opened at UCLH as part of a global BioNTech trial, testing a new combination of two investigational drugs in advanced disease.
Not for ALK+, but this kind of early combination work is vital and helps move the field forward.
www.uclh.nhs.uk/news/new-com...
Not for ALK+, but this kind of early combination work is vital and helps move the field forward.
www.uclh.nhs.uk/news/new-com...
Longer follow-up in ALK+ #lungcancer
🆕 analysis suggests lorlatinib delays progression longer than alectinib when used first-line, including in people with brain mets.
Not a direct comparison trial. Side effects were higher, but stopping trtmt was similar.
🔗 becarispublishing.com/doi/10.57264...
🆕 analysis suggests lorlatinib delays progression longer than alectinib when used first-line, including in people with brain mets.
Not a direct comparison trial. Side effects were higher, but stopping trtmt was similar.
🔗 becarispublishing.com/doi/10.57264...
January 20, 2026 at 7:55 AM
Longer follow-up in ALK+ #lungcancer
🆕 analysis suggests lorlatinib delays progression longer than alectinib when used first-line, including in people with brain mets.
Not a direct comparison trial. Side effects were higher, but stopping trtmt was similar.
🔗 becarispublishing.com/doi/10.57264...
🆕 analysis suggests lorlatinib delays progression longer than alectinib when used first-line, including in people with brain mets.
Not a direct comparison trial. Side effects were higher, but stopping trtmt was similar.
🔗 becarispublishing.com/doi/10.57264...
Reposted by ALK Positive Lung Cancer UK
Jim Pantelas is a #lungcancer patient advocate. I’ve been so lucky to know him. May he continue to work his advocacy magic www.nytimes.com/2026/01/14/w... #cancer #lcsm #nostigma
For Lung Cancer Patients, Shame Is a Deadly Side Effect
www.nytimes.com
January 14, 2026 at 6:00 PM
Jim Pantelas is a #lungcancer patient advocate. I’ve been so lucky to know him. May he continue to work his advocacy magic www.nytimes.com/2026/01/14/w... #cancer #lcsm #nostigma
Reposted by ALK Positive Lung Cancer UK
Read more about sustainability initiatives at our Annual Conference and your options for sustainable travel on our website #sustainabilityinability" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">https://www.btog.org/24th-btog-annual-conference-2026/#sustainability
January 18, 2026 at 4:25 PM
Read more about sustainability initiatives at our Annual Conference and your options for sustainable travel on our website #sustainabilityinability" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">https://www.btog.org/24th-btog-annual-conference-2026/#sustainability
Jess’s Rule posters are going up in GP surgeries.
The rule asks doctors to stop & rethink when someone returns 3 times with unresolved or worsening symptoms, & to refer if needed.
Many in our community say it took multiple GP visits before their #lungcancer symptoms were taken seriously. #LCSM
The rule asks doctors to stop & rethink when someone returns 3 times with unresolved or worsening symptoms, & to refer if needed.
Many in our community say it took multiple GP visits before their #lungcancer symptoms were taken seriously. #LCSM
January 17, 2026 at 9:33 PM
Jess’s Rule posters are going up in GP surgeries.
The rule asks doctors to stop & rethink when someone returns 3 times with unresolved or worsening symptoms, & to refer if needed.
Many in our community say it took multiple GP visits before their #lungcancer symptoms were taken seriously. #LCSM
The rule asks doctors to stop & rethink when someone returns 3 times with unresolved or worsening symptoms, & to refer if needed.
Many in our community say it took multiple GP visits before their #lungcancer symptoms were taken seriously. #LCSM
The financial toll of living with #lungcancer is real & heavy.
In our ALK+ UK community, > 1/2 said they face serious financial strain.*
Lost income. Higher living costs. Travel. Treatment expenses - on top of the physical & emotional load of lung cancer.
* UK ALK+ data from LuCE 8th Report
#LCSM
In our ALK+ UK community, > 1/2 said they face serious financial strain.*
Lost income. Higher living costs. Travel. Treatment expenses - on top of the physical & emotional load of lung cancer.
* UK ALK+ data from LuCE 8th Report
#LCSM
January 17, 2026 at 9:29 AM
The financial toll of living with #lungcancer is real & heavy.
In our ALK+ UK community, > 1/2 said they face serious financial strain.*
Lost income. Higher living costs. Travel. Treatment expenses - on top of the physical & emotional load of lung cancer.
* UK ALK+ data from LuCE 8th Report
#LCSM
In our ALK+ UK community, > 1/2 said they face serious financial strain.*
Lost income. Higher living costs. Travel. Treatment expenses - on top of the physical & emotional load of lung cancer.
* UK ALK+ data from LuCE 8th Report
#LCSM
Reposted by ALK Positive Lung Cancer UK
'While progress is happening, it is slow going and the government’s ambition to cut hospital waiting times is hanging in the balance at best.’
Siva Anandaciva responds to news that the government has cut NHS waiting lists faster in areas of highest joblessness.
https://bit.ly/45W9bt1
Siva Anandaciva responds to news that the government has cut NHS waiting lists faster in areas of highest joblessness.
https://bit.ly/45W9bt1
January 15, 2026 at 11:30 AM
'While progress is happening, it is slow going and the government’s ambition to cut hospital waiting times is hanging in the balance at best.’
Siva Anandaciva responds to news that the government has cut NHS waiting lists faster in areas of highest joblessness.
https://bit.ly/45W9bt1
Siva Anandaciva responds to news that the government has cut NHS waiting lists faster in areas of highest joblessness.
https://bit.ly/45W9bt1
Reposted by ALK Positive Lung Cancer UK
Precision medicine is advancing, but implementation is the real test.
Join the FT3 Town Hall on Jan 22 to explore how collaboration can turn local progress into lasting impact.
precisionmedicine.synapseconnect.org/events/ft3-t...
@nbrooke12.bsky.social
Join the FT3 Town Hall on Jan 22 to explore how collaboration can turn local progress into lasting impact.
precisionmedicine.synapseconnect.org/events/ft3-t...
@nbrooke12.bsky.social
January 16, 2026 at 1:23 PM
Precision medicine is advancing, but implementation is the real test.
Join the FT3 Town Hall on Jan 22 to explore how collaboration can turn local progress into lasting impact.
precisionmedicine.synapseconnect.org/events/ft3-t...
@nbrooke12.bsky.social
Join the FT3 Town Hall on Jan 22 to explore how collaboration can turn local progress into lasting impact.
precisionmedicine.synapseconnect.org/events/ft3-t...
@nbrooke12.bsky.social
Reposted by ALK Positive Lung Cancer UK
Read the facts.👇 It's this simple the research gap is costing lives. Contact your MP today and help us #CloseTheResearchGap.
January 16, 2026 at 5:50 PM
Read the facts.👇 It's this simple the research gap is costing lives. Contact your MP today and help us #CloseTheResearchGap.
We are taking part in the Genomics Education Event, hosted by the Greater Manchester Cancer Academy.
For #lungcancer, genomic testing identifies targetable changes like ALK & makes targeted trtmt poss. When testing is delayed or incomplete, people miss out on the right trtmt at the right time.
For #lungcancer, genomic testing identifies targetable changes like ALK & makes targeted trtmt poss. When testing is delayed or incomplete, people miss out on the right trtmt at the right time.
January 16, 2026 at 8:57 AM
We are taking part in the Genomics Education Event, hosted by the Greater Manchester Cancer Academy.
For #lungcancer, genomic testing identifies targetable changes like ALK & makes targeted trtmt poss. When testing is delayed or incomplete, people miss out on the right trtmt at the right time.
For #lungcancer, genomic testing identifies targetable changes like ALK & makes targeted trtmt poss. When testing is delayed or incomplete, people miss out on the right trtmt at the right time.
This week is #LessSurvivableCancersAwarenessWeek.
Researchers have highlighted that stigma around #lungcancer may contribute to lower research investment, despite the scale of the disease. These attitudes can influence public support, research priorities and the pace of progress. #LCSM
Researchers have highlighted that stigma around #lungcancer may contribute to lower research investment, despite the scale of the disease. These attitudes can influence public support, research priorities and the pace of progress. #LCSM
January 14, 2026 at 8:37 PM
This week is #LessSurvivableCancersAwarenessWeek.
Researchers have highlighted that stigma around #lungcancer may contribute to lower research investment, despite the scale of the disease. These attitudes can influence public support, research priorities and the pace of progress. #LCSM
Researchers have highlighted that stigma around #lungcancer may contribute to lower research investment, despite the scale of the disease. These attitudes can influence public support, research priorities and the pace of progress. #LCSM
Reposted by ALK Positive Lung Cancer UK
🧪 Diagnostics Symposium: Diagnostic Challenges
Incidental findings, radiology dilemmas and managing synchronous lesions — a must-attend for MDTs.
#BTOG26
🔗 https://www.btog.org/24th-btog-annual-conference-2026/
#LCSM
Incidental findings, radiology dilemmas and managing synchronous lesions — a must-attend for MDTs.
#BTOG26
🔗 https://www.btog.org/24th-btog-annual-conference-2026/
#LCSM
January 14, 2026 at 8:00 AM
🧪 Diagnostics Symposium: Diagnostic Challenges
Incidental findings, radiology dilemmas and managing synchronous lesions — a must-attend for MDTs.
#BTOG26
🔗 https://www.btog.org/24th-btog-annual-conference-2026/
#LCSM
Incidental findings, radiology dilemmas and managing synchronous lesions — a must-attend for MDTs.
#BTOG26
🔗 https://www.btog.org/24th-btog-annual-conference-2026/
#LCSM
Reposted by ALK Positive Lung Cancer UK
Physical activity reduces the risk of long-term conditions such as heart disease, diabetes and cancer, and supports good mental health.
So why does the 10 Year Health Plan pay such limited attention to it? https://bit.ly/4pvW60D
So why does the 10 Year Health Plan pay such limited attention to it? https://bit.ly/4pvW60D
Can We Really Be ‘Fit For The Future’ Without Physical Activity? | The King's Fund
The government’s 10 Year Health Plan promises a shift from sickness to prevention but overlooks the role of physical activity, says GP registrar Bonar McGuire.
bit.ly
January 14, 2026 at 3:51 PM
Physical activity reduces the risk of long-term conditions such as heart disease, diabetes and cancer, and supports good mental health.
So why does the 10 Year Health Plan pay such limited attention to it? https://bit.ly/4pvW60D
So why does the 10 Year Health Plan pay such limited attention to it? https://bit.ly/4pvW60D
As a member of the Wales Cancer Alliance, ALK+ UK supports the call for a long-term, strategic approach to cancer care in Wales.
Those with rare #lungcancer don’t fit neatly into short-term plans. Care often relies on specialist expertise, repeat testing & access to treatments over many yrs. #LCSM
Those with rare #lungcancer don’t fit neatly into short-term plans. Care often relies on specialist expertise, repeat testing & access to treatments over many yrs. #LCSM
January 14, 2026 at 7:34 AM
As a member of the Wales Cancer Alliance, ALK+ UK supports the call for a long-term, strategic approach to cancer care in Wales.
Those with rare #lungcancer don’t fit neatly into short-term plans. Care often relies on specialist expertise, repeat testing & access to treatments over many yrs. #LCSM
Those with rare #lungcancer don’t fit neatly into short-term plans. Care often relies on specialist expertise, repeat testing & access to treatments over many yrs. #LCSM