Cindy
@txflygirl.bsky.social
Mama 👩👦 🐈 | Inquisitive 🧐
Neurodiverse ♾️ | LGBTQIA 🌈
Nature Photography 🌅 📷
Book Lover 📚 | Quilter 🧵
Covid Cautious 😷
Disabled by Long Covid 🦠
Former Rocket Scientist & Technology Strategist 🚀
Neurodiverse ♾️ | LGBTQIA 🌈
Nature Photography 🌅 📷
Book Lover 📚 | Quilter 🧵
Covid Cautious 😷
Disabled by Long Covid 🦠
Former Rocket Scientist & Technology Strategist 🚀
Pinned
Cindy
@txflygirl.bsky.social
· Sep 7
Long Covid / ME CFS Thread 👇
I put off getting a Cardiopulmonary exercise test (CPET) for 2 years because of logistics and cost. It was a $3k test out of pocket and required travel to Santa Clara, CA. The other recommended location was Ithaca, NY.
I put off getting a Cardiopulmonary exercise test (CPET) for 2 years because of logistics and cost. It was a $3k test out of pocket and required travel to Santa Clara, CA. The other recommended location was Ithaca, NY.
Reposted by Cindy
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
November 27, 2025 at 10:57 PM
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
November 28, 2025 at 2:25 AM
…GenAI risks contributing to the erasure of systems of understanding that have evolved over centuries, disconnecting future generations from vast bodies of insight and wisdom that were never encoded yet remain essential, human ways of knowing.
What AI doesn’t know: we could be creating a global ‘knowledge collapse’ | Deepak Varuvel Dennison
The long read: As GenAI becomes the primary way to find information, local and traditional wisdom is being lost. And we are only beginning to realise what we’re missing
www.theguardian.com
November 28, 2025 at 2:18 AM
…GenAI risks contributing to the erasure of systems of understanding that have evolved over centuries, disconnecting future generations from vast bodies of insight and wisdom that were never encoded yet remain essential, human ways of knowing.
Reposted by Cindy
Few patients appeal a health insurance denial, but a little-known process that requires insurers and plans to seek an independent opinion can force insurers to pay for what can be lifesaving treatment.
Here’s what experts say you need to know.
Here’s what experts say you need to know.
This Little-Known Appeal Could Force Your Insurer to Pay for Lifesaving Care. Here’s How to File It.
When a health insurer refuses to pay for your treatment, you may have the right to have the denial reviewed — and potentially overturned — by an independent provider. Here are six steps experts sugges...
www.propublica.org
November 28, 2025 at 12:00 AM
Few patients appeal a health insurance denial, but a little-known process that requires insurers and plans to seek an independent opinion can force insurers to pay for what can be lifesaving treatment.
Here’s what experts say you need to know.
Here’s what experts say you need to know.
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
November 27, 2025 at 10:57 PM
Does anyone have a favorite gluten free and sugar free apple pie recipe they love?
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
I’m craving apple pie for the first time since 2020 and am curious if I can pull it off. I can use substitutes for sugar like maple syrup, coconut sugar, and a bit of allulose.
Homemade gluten free waffles with cranberry “sauce” on top. Why, yes I am proud of myself for coming up with this amazing meal that works for my long covid food intolerances.
November 27, 2025 at 3:12 PM
Homemade gluten free waffles with cranberry “sauce” on top. Why, yes I am proud of myself for coming up with this amazing meal that works for my long covid food intolerances.
Reposted by Cindy
I mean I have been enraged about this topic for a while, but I had also never actually figured out how they calculate the poverty line.
I am legitimately speechless.
I am legitimately speechless.
We have a “poverty trap” and it’s driving the destruction of social cohesion.
The “poverty line” is’t 35,000, it’s $150,000, and making more than one, and less than the other is worse than being “poor”.
Which is why the rage.
www.yesigiveafig.com/p/part-1-my-...
The “poverty line” is’t 35,000, it’s $150,000, and making more than one, and less than the other is worse than being “poor”.
Which is why the rage.
www.yesigiveafig.com/p/part-1-my-...
Part 1: My Life Is a Lie
How a Broken Benchmark Quietly Broke America
www.yesigiveafig.com
November 26, 2025 at 7:28 PM
I mean I have been enraged about this topic for a while, but I had also never actually figured out how they calculate the poverty line.
I am legitimately speechless.
I am legitimately speechless.
Given Houston hasn’t learned yet that it is almost December I present you a beautiful red rose.
November 26, 2025 at 10:23 PM
Given Houston hasn’t learned yet that it is almost December I present you a beautiful red rose.
I find it fascinating to see how people treat one when the chips are down. When they think you no longer add value because of unemployment, disability, etc. says so much about them and society. Don’t believe it. It’s not truth. We all have inherent worth and value.
November 26, 2025 at 9:20 PM
I find it fascinating to see how people treat one when the chips are down. When they think you no longer add value because of unemployment, disability, etc. says so much about them and society. Don’t believe it. It’s not truth. We all have inherent worth and value.
Some of my friends can’t call me. For some people it goes directly to voice mail and says the vm box hasn’t been set up yet. Which is a lie.
I have rebooted the phone.
I have toggled airplane mode on and off. As well as Bluetooth.
I have deleted the contacts and typed them back in fresh.
I have rebooted the phone.
I have toggled airplane mode on and off. As well as Bluetooth.
I have deleted the contacts and typed them back in fresh.
November 25, 2025 at 4:12 PM
Some of my friends can’t call me. For some people it goes directly to voice mail and says the vm box hasn’t been set up yet. Which is a lie.
I have rebooted the phone.
I have toggled airplane mode on and off. As well as Bluetooth.
I have deleted the contacts and typed them back in fresh.
I have rebooted the phone.
I have toggled airplane mode on and off. As well as Bluetooth.
I have deleted the contacts and typed them back in fresh.
Reposted by Cindy
Men are doing the absolute most right now to make sure they stay lonely.
It's easy to miss because this piece doesn's mention the word trans or transgender at all, but anyone who understands how the professional transphobia class messages, this is the klaxon call of transphobia.
November 25, 2025 at 2:13 PM
Men are doing the absolute most right now to make sure they stay lonely.
Reposted by Cindy
The EPA has approved a new pesticide that contains PFAS, or 'forever chemicals', to be used on vegetables like lettuce, broccoli and potatoes.
November 24, 2025 at 4:36 PM
The EPA has approved a new pesticide that contains PFAS, or 'forever chemicals', to be used on vegetables like lettuce, broccoli and potatoes.
Reposted by Cindy
PFAS have been linked to several kinds of cancer, birth defects, damage to the liver and immune system, and other health problems. The EPA plans to relax rules requiring companies to report PFAS products and weaken drinking water standards for the chemicals.
www.bostonglobe.com/2025/11/22/n...
www.bostonglobe.com/2025/11/22/n...
EPA just approved new ‘forever chemical’ pesticides for use on food - The Boston Globe
The agency approved two new pesticides that will be used on vegetables such as romaine lettuce, broccoli, and potatoes.
www.bostonglobe.com
November 23, 2025 at 12:49 PM
PFAS have been linked to several kinds of cancer, birth defects, damage to the liver and immune system, and other health problems. The EPA plans to relax rules requiring companies to report PFAS products and weaken drinking water standards for the chemicals.
www.bostonglobe.com/2025/11/22/n...
www.bostonglobe.com/2025/11/22/n...
Isn’t it fascinating that this comes out right after I have an eye doctor appointment where my eye doctor is keeping an eye on blood profusion with my eyes.
#LongCovid
#LongCovid
Direct link to the research mentioned in the post above:
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas (Nov 21, 2025)
journals.plos.org/plosone/arti...
[ FREE PDF available ]
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas (Nov 21, 2025)
journals.plos.org/plosone/arti...
[ FREE PDF available ]
Fatigue in Post-COVID-Condition is accompanied by hypoperfusion of right-occipital areas
Background and purpose A proportion of individuals recovering from COVID-19 continue to experience persistent symptoms, including fatigue and cognitive difficulties — a syndrome commonly referred to a...
journals.plos.org
November 24, 2025 at 10:19 PM
Isn’t it fascinating that this comes out right after I have an eye doctor appointment where my eye doctor is keeping an eye on blood profusion with my eyes.
#LongCovid
#LongCovid
Learn more about what Amatica is doing to help long covid patients not just find answers in the bloodwork - but also wanting to work with doctors and drug companies to align drugs that might help us!
www.youtube.com/watch?v=cfjO...
www.youtube.com/watch?v=cfjO...
31 Marker & RNA Sequencing Tests for M.E. & LC with Amatica's Nick Boyd-Gibbins & Jack Hadfield
YouTube video by Renegade Research
www.youtube.com
November 24, 2025 at 5:45 PM
Learn more about what Amatica is doing to help long covid patients not just find answers in the bloodwork - but also wanting to work with doctors and drug companies to align drugs that might help us!
www.youtube.com/watch?v=cfjO...
www.youtube.com/watch?v=cfjO...
Let’s just take a moment to absorb that Long Covid affects 36% globally! Why? Because society said it didn’t matter if anyone gets covid - doesn’t care if people are still dying or get a life long illness that has no cure.
Wear a fucking mask and avoid being sick the rest of your shortened life!
Wear a fucking mask and avoid being sick the rest of your shortened life!
Economic burden of long COVID: macroeconomic, cost-of-illness and microeconomic impacts
Published: 21 November 2025
Long COVID affects an estimated 36% globally, creating a huge economic burden: about $1 trillion a year worldwide, roughly $9,000 per US patient and $170 billion in lost US earnings.
Published: 21 November 2025
Long COVID affects an estimated 36% globally, creating a huge economic burden: about $1 trillion a year worldwide, roughly $9,000 per US patient and $170 billion in lost US earnings.
November 22, 2025 at 3:42 AM
Let’s just take a moment to absorb that Long Covid affects 36% globally! Why? Because society said it didn’t matter if anyone gets covid - doesn’t care if people are still dying or get a life long illness that has no cure.
Wear a fucking mask and avoid being sick the rest of your shortened life!
Wear a fucking mask and avoid being sick the rest of your shortened life!
I’ve done blood work with @amaticahealth.bsky.social and got my full results back this morning. No matter how many doctors gaslit me I finally have bloodwork that shows I have long covid / me CFS issues.
Thanks @jackamatica.bsky.social and team for making a difference!
#LongCovid #MECFS
Thanks @jackamatica.bsky.social and team for making a difference!
#LongCovid #MECFS
November 21, 2025 at 5:20 PM
I’ve done blood work with @amaticahealth.bsky.social and got my full results back this morning. No matter how many doctors gaslit me I finally have bloodwork that shows I have long covid / me CFS issues.
Thanks @jackamatica.bsky.social and team for making a difference!
#LongCovid #MECFS
Thanks @jackamatica.bsky.social and team for making a difference!
#LongCovid #MECFS
Had Dr appt this morning. Atypical presentation of kidney issues but initial analysis is something is wrong in my body so doing a CT scan next. But can’t get in for that for over a week. So I wait. And hurt.
November 21, 2025 at 5:17 PM
Had Dr appt this morning. Atypical presentation of kidney issues but initial analysis is something is wrong in my body so doing a CT scan next. But can’t get in for that for over a week. So I wait. And hurt.
Reposted by Cindy
Relying on ChatGPT to teach you about a topic leaves you with shallower knowledge than Googling and reading about it, according to new research that compared what more than 10,000 people knew after using one method or the other.
Shared by @gizmodo.com: buff.ly/yAAHtHq
Shared by @gizmodo.com: buff.ly/yAAHtHq
November 21, 2025 at 11:48 AM
Relying on ChatGPT to teach you about a topic leaves you with shallower knowledge than Googling and reading about it, according to new research that compared what more than 10,000 people knew after using one method or the other.
Shared by @gizmodo.com: buff.ly/yAAHtHq
Shared by @gizmodo.com: buff.ly/yAAHtHq
Reposted by Cindy
It's taken a full year for BA.3.2* to just get this far, but the 8 new sequences out of Germany makes me wonder if it has finally reached a turning point where it could move toward dominance over BA.2.86*.
Up to maybe 10% in Germany. We'll have to continue to monitor this one.
Up to maybe 10% in Germany. We'll have to continue to monitor this one.
November 21, 2025 at 12:02 AM
It's taken a full year for BA.3.2* to just get this far, but the 8 new sequences out of Germany makes me wonder if it has finally reached a turning point where it could move toward dominance over BA.2.86*.
Up to maybe 10% in Germany. We'll have to continue to monitor this one.
Up to maybe 10% in Germany. We'll have to continue to monitor this one.
Reposted by Cindy
Joint Statement from Goodlander, Slotkin, Kelly, Crow, Deluzio, and Houlahan
November 20, 2025 at 6:20 PM
Joint Statement from Goodlander, Slotkin, Kelly, Crow, Deluzio, and Houlahan
Ugh. I have to go to urgent care. I have had some kidney pain here and there the past 2 weeks and today I woke up and my hips don’t work. It may be inflammation due to a kidney infection. The virtual doctor said GO TO AN URGENT CARE for testing. So off I go.
November 20, 2025 at 8:08 PM
Ugh. I have to go to urgent care. I have had some kidney pain here and there the past 2 weeks and today I woke up and my hips don’t work. It may be inflammation due to a kidney infection. The virtual doctor said GO TO AN URGENT CARE for testing. So off I go.
Reposted by Cindy
To everyone saying that people in our military already know not to follow unlawful orders, how do you explain almost 100 civilians murdered on fishing boats in the Caribbean so far?
November 20, 2025 at 5:42 PM
To everyone saying that people in our military already know not to follow unlawful orders, how do you explain almost 100 civilians murdered on fishing boats in the Caribbean so far?
WTF? How much more prof is needed that the US is now a fascist country?
Now that’s a lede.
Story by @taracopp.bsky.social and @michelleboorstein.bsky.social.
Read here: www.washingtonpost.com/national-sec...
Story by @taracopp.bsky.social and @michelleboorstein.bsky.social.
Read here: www.washingtonpost.com/national-sec...
November 20, 2025 at 7:09 PM
WTF? How much more prof is needed that the US is now a fascist country?
Want to speak my love language? Wear a mask to protect my life.
This morning I had 2 doctor appointments. Reminded both ahead of time to wear masks.
This morning I had 2 doctor appointments. Reminded both ahead of time to wear masks.
November 20, 2025 at 6:55 PM
Want to speak my love language? Wear a mask to protect my life.
This morning I had 2 doctor appointments. Reminded both ahead of time to wear masks.
This morning I had 2 doctor appointments. Reminded both ahead of time to wear masks.