Not Many Spoons
@tironbeard.bsky.social
Dad. Husband. ME/CFS. Interested in history, politics, books, gaming, food. Quiet but here.
Banner: Picture of a mountain covered with green trees and a cloudy blue sky.
Profile: Winter landscape with a tree and snowy mountains in the background.
Banner: Picture of a mountain covered with green trees and a cloudy blue sky.
Profile: Winter landscape with a tree and snowy mountains in the background.
Reposted by Not Many Spoons
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 5:57 AM
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Reposted by Not Many Spoons
November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving.
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
November 1, 2025 at 4:16 PM
November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving.
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc
Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg
#Caregiver #PwME #MECFS
Reposted by Not Many Spoons
Great work from Rachel Fairbank on the winding story of metformin for #LongCOVID at @thesicktimes.org.
Quotes from @jencurtinmd.bsky.social, Rachel Hall Clifford, @chromatowski.bsky.social, Carolyn Bramante, Ed Mills, Melissa Mazur & myself.
thesicktimes.org/2025/10/28/m...
#MedSky
Quotes from @jencurtinmd.bsky.social, Rachel Hall Clifford, @chromatowski.bsky.social, Carolyn Bramante, Ed Mills, Melissa Mazur & myself.
thesicktimes.org/2025/10/28/m...
#MedSky
Metformin has been shown to reduce the risk of Long COVID. Why isn’t it more widely used? - The Sick Times
Recent studies add evidence to a prior phase 3 clinical trial, suggesting that taking the diabetes drug during acute COVID-19 reduces the risk of long-term symptoms.
thesicktimes.org
October 28, 2025 at 6:16 PM
Great work from Rachel Fairbank on the winding story of metformin for #LongCOVID at @thesicktimes.org.
Quotes from @jencurtinmd.bsky.social, Rachel Hall Clifford, @chromatowski.bsky.social, Carolyn Bramante, Ed Mills, Melissa Mazur & myself.
thesicktimes.org/2025/10/28/m...
#MedSky
Quotes from @jencurtinmd.bsky.social, Rachel Hall Clifford, @chromatowski.bsky.social, Carolyn Bramante, Ed Mills, Melissa Mazur & myself.
thesicktimes.org/2025/10/28/m...
#MedSky
Reposted by Not Many Spoons
The destruction of the East Wing is a reminder that America has violated the only check-and-balance that actually ends up mattering: www.doomsdayscenario.co/p/the-only-c...
The only check-and-balance that actually matters
www.doomsdayscenario.co
October 22, 2025 at 2:51 PM
The destruction of the East Wing is a reminder that America has violated the only check-and-balance that actually ends up mattering: www.doomsdayscenario.co/p/the-only-c...
Really appreciate this perspective. "When leaders gut research or restrict vaccines, they’re not only abandoning long haulers — they’re putting the entire society at risk."
I’m one of 20 million+ people in the U.S. living with #LongCOVID.
This fight isn’t just personal—it’s part of a long struggle for health justice in a nation that’s never been healthy for all.
My new @Truthout piece:
👉 truthout.org/articles/i-a...
#DisabilityJustice #HealthEquity #PublicHealth
This fight isn’t just personal—it’s part of a long struggle for health justice in a nation that’s never been healthy for all.
My new @Truthout piece:
👉 truthout.org/articles/i-a...
#DisabilityJustice #HealthEquity #PublicHealth
I Am One of 20 Million in US With Long COVID. RFK Pulled the Rug From Under Us.
RFK Jr. has shut down the Office of Long COVID Research and Practice, gutted funding, and derailed trials and studies.
truthout.org
October 22, 2025 at 12:56 PM
Really appreciate this perspective. "When leaders gut research or restrict vaccines, they’re not only abandoning long haulers — they’re putting the entire society at risk."
Reposted by Not Many Spoons
Disability is one of the only minority groups you can join at any time.
Everyone thinks they will be the exception.
It won’t happen to them. They will “try harder” and overcome.
They think we’re failing.
It is not a moral failing and very few people will be the exception.
Everyone thinks they will be the exception.
It won’t happen to them. They will “try harder” and overcome.
They think we’re failing.
It is not a moral failing and very few people will be the exception.
October 15, 2025 at 9:02 AM
Disability is one of the only minority groups you can join at any time.
Everyone thinks they will be the exception.
It won’t happen to them. They will “try harder” and overcome.
They think we’re failing.
It is not a moral failing and very few people will be the exception.
Everyone thinks they will be the exception.
It won’t happen to them. They will “try harder” and overcome.
They think we’re failing.
It is not a moral failing and very few people will be the exception.
Reposted by Not Many Spoons
People continue to call COVID advocates’ pleas for masking “unreasonable”.
Yet people who’ve already been disabled by COVID have no choice but to live with the “unreasonable” burdens of constant COVID safety.
My latest:
substack.com/home/post/p-...
Yet people who’ve already been disabled by COVID have no choice but to live with the “unreasonable” burdens of constant COVID safety.
My latest:
substack.com/home/post/p-...
Beyond all reason
Long COVID patients are constantly harangued about our requests for COVID safety. Yet what we're asking for is far less than what we're called on to do to survive.
substack.com
October 15, 2025 at 5:10 PM
People continue to call COVID advocates’ pleas for masking “unreasonable”.
Yet people who’ve already been disabled by COVID have no choice but to live with the “unreasonable” burdens of constant COVID safety.
My latest:
substack.com/home/post/p-...
Yet people who’ve already been disabled by COVID have no choice but to live with the “unreasonable” burdens of constant COVID safety.
My latest:
substack.com/home/post/p-...
Reposted by Not Many Spoons
my latest investigation for @consumerreports.org is based on months of reporting and 60+ lab tests of leading protein supplements
we found that most protein powders and shakes have more lead in one serving than our experts say is safe to have in a day (🧵)
www.consumerreports.org/lead/protein...
we found that most protein powders and shakes have more lead in one serving than our experts say is safe to have in a day (🧵)
www.consumerreports.org/lead/protein...
Protein Powders and Shakes Contain High Levels of Lead - Consumer Reports
CR tests of 23 popular protein powders and shakes found that most contain high levels of lead.
www.consumerreports.org
October 14, 2025 at 4:37 PM
my latest investigation for @consumerreports.org is based on months of reporting and 60+ lab tests of leading protein supplements
we found that most protein powders and shakes have more lead in one serving than our experts say is safe to have in a day (🧵)
www.consumerreports.org/lead/protein...
we found that most protein powders and shakes have more lead in one serving than our experts say is safe to have in a day (🧵)
www.consumerreports.org/lead/protein...
Reposted by Not Many Spoons
Reposted by Not Many Spoons
Multiple threads on the timeline today that all boil down to adults saying with their whole-ass chests "I JUST WANT TO BE ABLE TO HAVE FUN ALL THE TIME AND NOT DEAL WITH THE LESS FUN PARTS OF REALITY"
And like yeah, I get it, we all get it.
But also, my Frodos, it has indeed happened in our time.
And like yeah, I get it, we all get it.
But also, my Frodos, it has indeed happened in our time.
October 14, 2025 at 8:51 PM
Multiple threads on the timeline today that all boil down to adults saying with their whole-ass chests "I JUST WANT TO BE ABLE TO HAVE FUN ALL THE TIME AND NOT DEAL WITH THE LESS FUN PARTS OF REALITY"
And like yeah, I get it, we all get it.
But also, my Frodos, it has indeed happened in our time.
And like yeah, I get it, we all get it.
But also, my Frodos, it has indeed happened in our time.
Reposted by Not Many Spoons
Dear liberals,
If you identify as a leftist who believes in intersectional justice & fighting fascism, please wear a mask in public. It’s one small act of solidarity with the millions living with long Covid - and a reminder that caring for others includes protecting their health
If you identify as a leftist who believes in intersectional justice & fighting fascism, please wear a mask in public. It’s one small act of solidarity with the millions living with long Covid - and a reminder that caring for others includes protecting their health
October 13, 2025 at 3:52 PM
Dear liberals,
If you identify as a leftist who believes in intersectional justice & fighting fascism, please wear a mask in public. It’s one small act of solidarity with the millions living with long Covid - and a reminder that caring for others includes protecting their health
If you identify as a leftist who believes in intersectional justice & fighting fascism, please wear a mask in public. It’s one small act of solidarity with the millions living with long Covid - and a reminder that caring for others includes protecting their health
Reposted by Not Many Spoons
“Doing what you can to avoid spreading it to other people” is masking , until we have clean air - and in the meantime , you all need to be advocating for clean air, which none of you are showing the urgency around when you fail to mask.
40%+ of Covid cases are asymp and Covid disables people
40%+ of Covid cases are asymp and Covid disables people
October 14, 2025 at 3:17 PM
“Doing what you can to avoid spreading it to other people” is masking , until we have clean air - and in the meantime , you all need to be advocating for clean air, which none of you are showing the urgency around when you fail to mask.
40%+ of Covid cases are asymp and Covid disables people
40%+ of Covid cases are asymp and Covid disables people
Reposted by Not Many Spoons
"Sometimes things are hard or unfair but reality and science don't care"
one million times this
I am genuinely sorry this is how the universe works but it is indeed how the universe works, and the sooner more people get hip to this the healthier and happier we collectively all will be.
one million times this
I am genuinely sorry this is how the universe works but it is indeed how the universe works, and the sooner more people get hip to this the healthier and happier we collectively all will be.
The framing “it’s unreasonable to ask me to mask” reminds me of climate change discussions - “it’s unreasonable to ask for net zero” etc - bc ppl think of the politics as more “real” than the science. Sometimes things are hard or unfair but reality and science don’t care
October 14, 2025 at 6:36 PM
"Sometimes things are hard or unfair but reality and science don't care"
one million times this
I am genuinely sorry this is how the universe works but it is indeed how the universe works, and the sooner more people get hip to this the healthier and happier we collectively all will be.
one million times this
I am genuinely sorry this is how the universe works but it is indeed how the universe works, and the sooner more people get hip to this the healthier and happier we collectively all will be.
Reposted by Not Many Spoons
@joho.bsky.social is a practicing clinician at NYU & a public health hero. In his previous book he documented the unhinged campaign in the early years of COVID to tell us SARSCOV2 was no big deal, we should let people get infected. Now these maniacs are in charge. Read about it here in his new book.
The sequel to We Want Them Infected is done!
COVID killed 1.2 million Americans while vaccines saved millions.
Yet, disinformation superspreaders were empowered, where they are taking a wrecking ball to science & medicine.
How did that happen?🧵
sciencebasedmedicine.org/everyone-els...
COVID killed 1.2 million Americans while vaccines saved millions.
Yet, disinformation superspreaders were empowered, where they are taking a wrecking ball to science & medicine.
How did that happen?🧵
sciencebasedmedicine.org/everyone-els...
Everyone Else is Lying to You: My Book is Done!
The pandemic’s biggest disinformation superspreaders are now in charge. How did this happen?
sciencebasedmedicine.org
October 4, 2025 at 6:32 PM
@joho.bsky.social is a practicing clinician at NYU & a public health hero. In his previous book he documented the unhinged campaign in the early years of COVID to tell us SARSCOV2 was no big deal, we should let people get infected. Now these maniacs are in charge. Read about it here in his new book.
Insightful. “Disabled people, and people with Long COVID, have been calling ourselves canaries in the coal mine for a reason. We may have been harmed first and worst, but we are warning you that COVID is dangerous because our bodies are made of flesh and blood - hearts and brains- just like yours.”
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
When Will the Lion Concern Himself
Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days
www.thegauntlet.news
October 6, 2025 at 12:42 PM
Insightful. “Disabled people, and people with Long COVID, have been calling ourselves canaries in the coal mine for a reason. We may have been harmed first and worst, but we are warning you that COVID is dangerous because our bodies are made of flesh and blood - hearts and brains- just like yours.”
Reposted by Not Many Spoons
Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS.
Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪
Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪
Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.
October 1, 2025 at 5:16 PM
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Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.
October 1, 2025 at 4:23 PM
Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.
Reposted by Not Many Spoons
Reposted by Not Many Spoons
Yesterday, history happened at the UN: For the first time hundreds of orgs signed a global pledge declaring that healthy indoor air is a human right.
Healthy indoor air is a key tool for preventing pandemics, building climate resilience, and increasing health equity. We need it everywhere!
Healthy indoor air is a key tool for preventing pandemics, building climate resilience, and increasing health equity. We need it everywhere!
September 24, 2025 at 10:53 PM
Yesterday, history happened at the UN: For the first time hundreds of orgs signed a global pledge declaring that healthy indoor air is a human right.
Healthy indoor air is a key tool for preventing pandemics, building climate resilience, and increasing health equity. We need it everywhere!
Healthy indoor air is a key tool for preventing pandemics, building climate resilience, and increasing health equity. We need it everywhere!
Reposted by Not Many Spoons
Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.
September 26, 2025 at 9:42 AM
Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.
Reposted by Not Many Spoons
We have wonderful events to add to your Fall calendar.
Register: www.meaction.net/event-list
Oct 1 3 pm ET: Q&A with Author Brian Buckbee
Oct 9 3 pm ET: Grief is Love by Marisa Renee Lee
Oct 21 3 pm ET: Dealing with Grief & Chronic Illness: A Workshop with Marisa Renee Lee
#pwME #MECFS
Register: www.meaction.net/event-list
Oct 1 3 pm ET: Q&A with Author Brian Buckbee
Oct 9 3 pm ET: Grief is Love by Marisa Renee Lee
Oct 21 3 pm ET: Dealing with Grief & Chronic Illness: A Workshop with Marisa Renee Lee
#pwME #MECFS
September 25, 2025 at 4:05 PM
We have wonderful events to add to your Fall calendar.
Register: www.meaction.net/event-list
Oct 1 3 pm ET: Q&A with Author Brian Buckbee
Oct 9 3 pm ET: Grief is Love by Marisa Renee Lee
Oct 21 3 pm ET: Dealing with Grief & Chronic Illness: A Workshop with Marisa Renee Lee
#pwME #MECFS
Register: www.meaction.net/event-list
Oct 1 3 pm ET: Q&A with Author Brian Buckbee
Oct 9 3 pm ET: Grief is Love by Marisa Renee Lee
Oct 21 3 pm ET: Dealing with Grief & Chronic Illness: A Workshop with Marisa Renee Lee
#pwME #MECFS
Reposted by Not Many Spoons
Our current admin hates disabled people 🌈
www.afge.org/article/cdc-...
www.afge.org/article/cdc-...
CDC Removes Disability as Reasonable Accommodation for Remote Work, Backtracks After Union Pressure
Leadership at the Centers for Disease Control and Prevention had said employees with disabilities would no longer be approved for telework or remote work as a reasonable accommodation – a stunning vio...
www.afge.org
September 24, 2025 at 12:55 PM
Our current admin hates disabled people 🌈
www.afge.org/article/cdc-...
www.afge.org/article/cdc-...
Reposted by Not Many Spoons
Here's a Youtube link of Violet Affleck's full speech about COVID and clean air at the United Nations:
Violet Affleck's Fiery UN Speech On COVID and Clean Air
YouTube video by Lucky Tran
youtu.be
September 24, 2025 at 8:23 PM
Here's a Youtube link of Violet Affleck's full speech about COVID and clean air at the United Nations:
Reposted by Not Many Spoons
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
September 23, 2025 at 9:53 PM
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Reposted by Not Many Spoons
Today’s autism announcement was just as bad as we feared
Trump blamed Tylenol & vaccines for autism
They encouraged women to just “tough out” their pain
They praised people who don’t “need” meds or vaccines
These are eugenicist talking points & they’re devastating to the disability community:
Trump blamed Tylenol & vaccines for autism
They encouraged women to just “tough out” their pain
They praised people who don’t “need” meds or vaccines
These are eugenicist talking points & they’re devastating to the disability community:
Trump's Big Autism Announcement and What It Means for the Disability Community
The MAHA team came out swinging today against vaccines, Tylenol and more. Their big autism announcement was riddled with eugenicist language designed to blame and punish people for their disabilities.
www.disabledginger.com
September 23, 2025 at 12:09 AM
Today’s autism announcement was just as bad as we feared
Trump blamed Tylenol & vaccines for autism
They encouraged women to just “tough out” their pain
They praised people who don’t “need” meds or vaccines
These are eugenicist talking points & they’re devastating to the disability community:
Trump blamed Tylenol & vaccines for autism
They encouraged women to just “tough out” their pain
They praised people who don’t “need” meds or vaccines
These are eugenicist talking points & they’re devastating to the disability community: