Tina Katsaros
@tinakatsaros.bsky.social
PhD candidate researching ME/CFS at La Trobe University
📍Melbourne, Australia
📍Melbourne, Australia
Pinned
Please join the social media campaign and support #pwME this Christmas.
#SpendChristmasWithME
#MECFS #LongCovid #LC
@meresearchuk.bsky.social
#SpendChristmasWithME
#MECFS #LongCovid #LC
@meresearchuk.bsky.social
Are there many #pwME still active on here?
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
August 26, 2025 at 11:27 AM
Are there many #pwME still active on here?
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙
Would love to know who's around! 😊
Reposted by Tina Katsaros
#DecodeME A brilliant interview with Chris Ponting by @davetuller1.bsky.social
Chris gave new details, including:
- They got feedback on a draft of the pre-print from independent researchers, to help them test their findings and improve the manuscript.
1/
youtu.be/CGUmcB_YIaA?...
Chris gave new details, including:
- They got feedback on a draft of the pre-print from independent researchers, to help them test their findings and improve the manuscript.
1/
youtu.be/CGUmcB_YIaA?...
Interview with Professor Chris Ponting about the DecodeME results.
YouTube video by David M Tuller
youtu.be
August 10, 2025 at 12:41 PM
#DecodeME A brilliant interview with Chris Ponting by @davetuller1.bsky.social
Chris gave new details, including:
- They got feedback on a draft of the pre-print from independent researchers, to help them test their findings and improve the manuscript.
1/
youtu.be/CGUmcB_YIaA?...
Chris gave new details, including:
- They got feedback on a draft of the pre-print from independent researchers, to help them test their findings and improve the manuscript.
1/
youtu.be/CGUmcB_YIaA?...
Reposted by Tina Katsaros
Nominate now for the 2025 ME/CFS & Long COVID Media Awards! Help honor journalism that correctly depicts these conditions and fights stigma. Open to all mediums, both Australian and international. More info: vist.ly/3y6q7
July 16, 2025 at 10:00 PM
Nominate now for the 2025 ME/CFS & Long COVID Media Awards! Help honor journalism that correctly depicts these conditions and fights stigma. Open to all mediums, both Australian and international. More info: vist.ly/3y6q7
Reposted by Tina Katsaros
It's almost that time of year again! Our Severe ME Artists Project is coming up! Can you believe it will be the 5th one?!?
Deadline to submit is July 24th! Details and submission link: www.meaction.net/2025/07/10/s...
If you need help, email us at sMEartistsproject@meaction.net.
#pwME #SevereME
Deadline to submit is July 24th! Details and submission link: www.meaction.net/2025/07/10/s...
If you need help, email us at sMEartistsproject@meaction.net.
#pwME #SevereME
July 16, 2025 at 10:15 PM
It's almost that time of year again! Our Severe ME Artists Project is coming up! Can you believe it will be the 5th one?!?
Deadline to submit is July 24th! Details and submission link: www.meaction.net/2025/07/10/s...
If you need help, email us at sMEartistsproject@meaction.net.
#pwME #SevereME
Deadline to submit is July 24th! Details and submission link: www.meaction.net/2025/07/10/s...
If you need help, email us at sMEartistsproject@meaction.net.
#pwME #SevereME
Reposted by Tina Katsaros
Great post here from @tinakatsaros.bsky.social on what she learned about research communication and awareness raising through the 3 Minute Thesis and Visualise Your Thesis competitions #3MT #VYT #resdev redalert.blogs.latrobe.edu.au/2025/05/me-a...
ME and VYT: Raising awareness for myalgic encephalomyelitis / chronic fatigue syndrome (Tina Katsaros)
Image supplied by Tina Katsaros Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS): A hard disease to say, and a practically impo...
redalert.blogs.latrobe.edu.au
May 12, 2025 at 2:59 AM
Great post here from @tinakatsaros.bsky.social on what she learned about research communication and awareness raising through the 3 Minute Thesis and Visualise Your Thesis competitions #3MT #VYT #resdev redalert.blogs.latrobe.edu.au/2025/05/me-a...
Reposted by Tina Katsaros
If you are on campus in Bundoora @latrobeuni.bsky.social on Wednesday 2nd of April come and help research 😉👍
🚨Roll up your sleeves for ME/CFS, COVID, Long COVID Research
Blood sample – NO fasting please
and/or Stool sample (on site or at home, $20 reimbursement)
Wednesday 2nd April, 8am-6pm
@latrobeuni.bsky.social
Bundoora, HS1-101
register graslab.com.au/covid-19-stu... for Blood draw day
Blood sample – NO fasting please
and/or Stool sample (on site or at home, $20 reimbursement)
Wednesday 2nd April, 8am-6pm
@latrobeuni.bsky.social
Bundoora, HS1-101
register graslab.com.au/covid-19-stu... for Blood draw day
April 1, 2025 at 7:31 AM
If you are on campus in Bundoora @latrobeuni.bsky.social on Wednesday 2nd of April come and help research 😉👍
Reposted by Tina Katsaros
March 15, 2025 at 2:56 PM
Reposted by Tina Katsaros
Today is Long Covid Awareness Day! And I want to support my LC friends. 1/9
#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
#LongCovid
#MECFS
#pwME
#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
#LongCovid
#MECFS
#pwME
March 15, 2025 at 1:09 PM
Today is Long Covid Awareness Day! And I want to support my LC friends. 1/9
#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
#LongCovid
#MECFS
#pwME
#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
#LongCovid
#MECFS
#pwME
Reposted by Tina Katsaros
Happy #IWD2025 to all the wonderful women in STEM, and to our male colleagues that support us 👩🔬
Diversity is so important in science and I'm very lucky to be part of a group that celebrates this!
@helbiglab.bsky.social @irumii.bsky.social @jacintaagius.bsky.social @timetogoz.bsky.social
Diversity is so important in science and I'm very lucky to be part of a group that celebrates this!
@helbiglab.bsky.social @irumii.bsky.social @jacintaagius.bsky.social @timetogoz.bsky.social
March 7, 2025 at 8:00 AM
Happy #IWD2025 to all the wonderful women in STEM, and to our male colleagues that support us 👩🔬
Diversity is so important in science and I'm very lucky to be part of a group that celebrates this!
@helbiglab.bsky.social @irumii.bsky.social @jacintaagius.bsky.social @timetogoz.bsky.social
Diversity is so important in science and I'm very lucky to be part of a group that celebrates this!
@helbiglab.bsky.social @irumii.bsky.social @jacintaagius.bsky.social @timetogoz.bsky.social
February 26, 2025 at 8:08 AM
Reposted by Tina Katsaros
⚠️Attention #pwME
Scoping survey for Australian Clinical Practice Guidelines for ME/CFS
consultations.nhmrc.gov.au/clinical-pra...
Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able!
#MyalgicEncephalomyelitis
#MECFS
**Please repost**
Scoping survey for Australian Clinical Practice Guidelines for ME/CFS
consultations.nhmrc.gov.au/clinical-pra...
Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able!
#MyalgicEncephalomyelitis
#MECFS
**Please repost**
https://consultations.nhmrc.gov.au/clinical-pract…
February 23, 2025 at 8:19 AM
⚠️Attention #pwME
Scoping survey for Australian Clinical Practice Guidelines for ME/CFS
consultations.nhmrc.gov.au/clinical-pra...
Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able!
#MyalgicEncephalomyelitis
#MECFS
**Please repost**
Scoping survey for Australian Clinical Practice Guidelines for ME/CFS
consultations.nhmrc.gov.au/clinical-pra...
Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able!
#MyalgicEncephalomyelitis
#MECFS
**Please repost**
Reposted by Tina Katsaros
Yesterday I managed to go to our living room and I photographed our Christmas tree, which is a tradition of mine.
Why is that significant to me? Well, as I’m 99% bedbound by #MECFS, the last time I visited that room was in April. So that happens only a handful of times in a year. 1/3
#photography
Why is that significant to me? Well, as I’m 99% bedbound by #MECFS, the last time I visited that room was in April. So that happens only a handful of times in a year. 1/3
#photography
December 28, 2024 at 8:36 AM
Yesterday I managed to go to our living room and I photographed our Christmas tree, which is a tradition of mine.
Why is that significant to me? Well, as I’m 99% bedbound by #MECFS, the last time I visited that room was in April. So that happens only a handful of times in a year. 1/3
#photography
Why is that significant to me? Well, as I’m 99% bedbound by #MECFS, the last time I visited that room was in April. So that happens only a handful of times in a year. 1/3
#photography
Reposted by Tina Katsaros
3/
some of the scientists, researchers, clinicians & advocates involved with ME, Long Covid, & similar to submit nice comments were @danielmissailidis.bsky.social @physiosforme.bsky.social @aryback.bsky.social @buonsenso.bsky.social @tinakatsaros.bsky.social @exceedhergrasp1.bsky.social
some of the scientists, researchers, clinicians & advocates involved with ME, Long Covid, & similar to submit nice comments were @danielmissailidis.bsky.social @physiosforme.bsky.social @aryback.bsky.social @buonsenso.bsky.social @tinakatsaros.bsky.social @exceedhergrasp1.bsky.social
January 5, 2025 at 8:39 PM
3/
some of the scientists, researchers, clinicians & advocates involved with ME, Long Covid, & similar to submit nice comments were @danielmissailidis.bsky.social @physiosforme.bsky.social @aryback.bsky.social @buonsenso.bsky.social @tinakatsaros.bsky.social @exceedhergrasp1.bsky.social
some of the scientists, researchers, clinicians & advocates involved with ME, Long Covid, & similar to submit nice comments were @danielmissailidis.bsky.social @physiosforme.bsky.social @aryback.bsky.social @buonsenso.bsky.social @tinakatsaros.bsky.social @exceedhergrasp1.bsky.social
Reposted by Tina Katsaros
Mum just dropped by with my presents, so I have something to open in the morning.
Sending lots of love to everyone who can’t have the Christmas you’d like to have, owing to illness.
It’s a hard time of year to face it all. Wishing you much coziness 🎄❄️🌟
#pwME #MECFS #Chronicillness
Sending lots of love to everyone who can’t have the Christmas you’d like to have, owing to illness.
It’s a hard time of year to face it all. Wishing you much coziness 🎄❄️🌟
#pwME #MECFS #Chronicillness
December 24, 2024 at 5:00 PM
Mum just dropped by with my presents, so I have something to open in the morning.
Sending lots of love to everyone who can’t have the Christmas you’d like to have, owing to illness.
It’s a hard time of year to face it all. Wishing you much coziness 🎄❄️🌟
#pwME #MECFS #Chronicillness
Sending lots of love to everyone who can’t have the Christmas you’d like to have, owing to illness.
It’s a hard time of year to face it all. Wishing you much coziness 🎄❄️🌟
#pwME #MECFS #Chronicillness
Reposted by Tina Katsaros
I have now shared one Christmas themed album every day until it’s Christmas. So today I want to share one more as the final one. Today’s album is:
Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Varasteleva joulupukki
Leevi and the leavings · Album · 1990 · 10 songs
open.spotify.com
December 24, 2024 at 2:44 PM
I have now shared one Christmas themed album every day until it’s Christmas. So today I want to share one more as the final one. Today’s album is:
Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Reposted by Tina Katsaros
Hans has fallen.
Happy Holidays.
Happy Holidays.
December 24, 2024 at 3:19 PM
Hans has fallen.
Happy Holidays.
Happy Holidays.
Reposted by Tina Katsaros
As a severe #MECFS patient I don’t dress up often, as I’m always just in bed. But I’ve tried to do that if there’s a special occasion, like today! It sure feels nice to put on some proper clothes. So this is my outfit for today’s ”festivities”.
1/3
#SpendChristmasWithME #pwME
1/3
#SpendChristmasWithME #pwME
December 24, 2024 at 3:23 PM
As a severe #MECFS patient I don’t dress up often, as I’m always just in bed. But I’ve tried to do that if there’s a special occasion, like today! It sure feels nice to put on some proper clothes. So this is my outfit for today’s ”festivities”.
1/3
#SpendChristmasWithME #pwME
1/3
#SpendChristmasWithME #pwME
Reposted by Tina Katsaros
Sending solidarity to everyone with a limiting illness. It's so hard if this week is quiet,& if it isn't. Being left out. Saying no when you'd love to say yes. Being asked to make an effort because it's Christmas when you've already overdone it. Good luck all!
#SpendChristmasWithME
#MECFS #LongCovid
#SpendChristmasWithME
#MECFS #LongCovid
December 24, 2024 at 4:33 PM
Sending solidarity to everyone with a limiting illness. It's so hard if this week is quiet,& if it isn't. Being left out. Saying no when you'd love to say yes. Being asked to make an effort because it's Christmas when you've already overdone it. Good luck all!
#SpendChristmasWithME
#MECFS #LongCovid
#SpendChristmasWithME
#MECFS #LongCovid
Sending my love this Xmas to everyone with #MECFS and #LongCovid, especially those spending the day alone at home or in bed ❤️
I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼
#SpendChristmasWithME
I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼
#SpendChristmasWithME
December 25, 2024 at 1:45 AM
Sending my love this Xmas to everyone with #MECFS and #LongCovid, especially those spending the day alone at home or in bed ❤️
I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼
#SpendChristmasWithME
I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼
#SpendChristmasWithME
Day #5 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- The Nightmare Before Christmas 💀🎄
- Home Alone 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas Eve together from home 🫶🏼
#MECFS #LongCovid
Today's movie recommendations:
- The Nightmare Before Christmas 💀🎄
- Home Alone 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas Eve together from home 🫶🏼
#MECFS #LongCovid
December 23, 2024 at 11:27 PM
Day #5 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- The Nightmare Before Christmas 💀🎄
- Home Alone 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas Eve together from home 🫶🏼
#MECFS #LongCovid
Today's movie recommendations:
- The Nightmare Before Christmas 💀🎄
- Home Alone 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas Eve together from home 🫶🏼
#MECFS #LongCovid
The Holiday 🏠
Been a few years since I last saw this one. Forgot how much I liked it.
Snack of choice is Christmas Tree Cookies from Aldi. 🎄
Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend.
#SpendChristmasWithME
Been a few years since I last saw this one. Forgot how much I liked it.
Snack of choice is Christmas Tree Cookies from Aldi. 🎄
Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend.
#SpendChristmasWithME
December 23, 2024 at 2:04 PM
The Holiday 🏠
Been a few years since I last saw this one. Forgot how much I liked it.
Snack of choice is Christmas Tree Cookies from Aldi. 🎄
Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend.
#SpendChristmasWithME
Been a few years since I last saw this one. Forgot how much I liked it.
Snack of choice is Christmas Tree Cookies from Aldi. 🎄
Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend.
#SpendChristmasWithME
Reposted by Tina Katsaros
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:
Various Artists - Stax Christmas (2023) (funk, soul)
1/3
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Various Artists - Stax Christmas (2023) (funk, soul)
1/3
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Stax Christmas
Various Artists · Compilation · 2023 · 12 songs
open.spotify.com
December 23, 2024 at 12:25 PM
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:
Various Artists - Stax Christmas (2023) (funk, soul)
1/3
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Various Artists - Stax Christmas (2023) (funk, soul)
1/3
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
"If you look for it, I've got a sneaky feeling you'll find that love actually is all around".
Love actually ❤️
Watching from my bed tonight.
#SpendChristmasWithME
Love actually ❤️
Watching from my bed tonight.
#SpendChristmasWithME
December 23, 2024 at 1:30 PM
"If you look for it, I've got a sneaky feeling you'll find that love actually is all around".
Love actually ❤️
Watching from my bed tonight.
#SpendChristmasWithME
Love actually ❤️
Watching from my bed tonight.
#SpendChristmasWithME
Day #4 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- Love Actually ❤️
- The Holiday 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
Today's movie recommendations:
- Love Actually ❤️
- The Holiday 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
December 22, 2024 at 10:25 PM
Day #4 of #SpendChristmasWithME 🎄
Today's movie recommendations:
- Love Actually ❤️
- The Holiday 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
Today's movie recommendations:
- Love Actually ❤️
- The Holiday 🏠
Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!
Let's spend Xmas together from home 🫶🏼
#MECFS #LongCovid
Reposted by Tina Katsaros
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:
Jimmy Smith - Christmas Cookin’ (1964) (jazz)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Jimmy Smith - Christmas Cookin’ (1964) (jazz)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Christmas Cookin'
Jimmy Smith · Album · 1964 · 10 songs
open.spotify.com
December 22, 2024 at 12:57 PM
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:
Jimmy Smith - Christmas Cookin’ (1964) (jazz)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Jimmy Smith - Christmas Cookin’ (1964) (jazz)
1/4
#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid