Penny
@theoldlostroad.bsky.social
Severe #MECFS for a very long time. Loves nature poetry children hope.
Hates arrogance dishonesty injustice.
Hates arrogance dishonesty injustice.
Pinned
Penny
@theoldlostroad.bsky.social
· Nov 12
Currently very unwell, restricted and overwhelmed. Hoping to continue to advocate for #MECFS learn and engage. Still finding my way on here. I’m curious about many things.
Reposted by Penny
Our client, supported by #JusticeforME, is crowdfunding for legal advice with the aim of ensuring that specialist health services needed by everyone living with ME/cfs are made available – find out more here: www.crowdjustice.com/case/justice... #MyalgicEncephalomyelitis @swastrosarah.bsky.social
September 1, 2025 at 11:17 AM
Our client, supported by #JusticeforME, is crowdfunding for legal advice with the aim of ensuring that specialist health services needed by everyone living with ME/cfs are made available – find out more here: www.crowdjustice.com/case/justice... #MyalgicEncephalomyelitis @swastrosarah.bsky.social
Reposted by Penny
A BBC podcast titled "Access All: Disability News & Mental Health" asks if the DNA of people with ME is different.
They interview Prof Chris Ponting @cgatist.bsky.social & participant Laura Boyles about the DecodeME study. Starts at 22.12 minutes
www.bbc.com/audio/play/p...
#MEcfs #PwME #CFS
They interview Prof Chris Ponting @cgatist.bsky.social & participant Laura Boyles about the DecodeME study. Starts at 22.12 minutes
www.bbc.com/audio/play/p...
#MEcfs #PwME #CFS
BBC Audio | Access All: Disability News and Mental Health | Is the DNA of people with ME different?
And high heels make some disabled people walk better
www.bbc.com
August 31, 2025 at 12:21 PM
A BBC podcast titled "Access All: Disability News & Mental Health" asks if the DNA of people with ME is different.
They interview Prof Chris Ponting @cgatist.bsky.social & participant Laura Boyles about the DecodeME study. Starts at 22.12 minutes
www.bbc.com/audio/play/p...
#MEcfs #PwME #CFS
They interview Prof Chris Ponting @cgatist.bsky.social & participant Laura Boyles about the DecodeME study. Starts at 22.12 minutes
www.bbc.com/audio/play/p...
#MEcfs #PwME #CFS
Reposted by Penny
🧵
"ME/CFS: The mysterious illness trapping people in their bodies"
Journalist Zoe Madden-Smith from Re: News @1newsnz.nzcow.com in New Zealand looks into the controversy about ME/CFS in a short but informative documentary
youtu.be/DsOAq6cs564
#ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
"ME/CFS: The mysterious illness trapping people in their bodies"
Journalist Zoe Madden-Smith from Re: News @1newsnz.nzcow.com in New Zealand looks into the controversy about ME/CFS in a short but informative documentary
youtu.be/DsOAq6cs564
#ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
August 29, 2025 at 2:29 PM
🧵
"ME/CFS: The mysterious illness trapping people in their bodies"
Journalist Zoe Madden-Smith from Re: News @1newsnz.nzcow.com in New Zealand looks into the controversy about ME/CFS in a short but informative documentary
youtu.be/DsOAq6cs564
#ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
"ME/CFS: The mysterious illness trapping people in their bodies"
Journalist Zoe Madden-Smith from Re: News @1newsnz.nzcow.com in New Zealand looks into the controversy about ME/CFS in a short but informative documentary
youtu.be/DsOAq6cs564
#ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Reposted by Penny
2. We’ve also discovered that there was a very high representation of suspected domestic abusers among those rioting against asylum seekers last year. A small number of truly horrible men are responsible for all kinds of misery. www.theguardian.com/society/2025...
Two in five arrested for last summer’s UK riots had been reported for domestic abuse
Police data indicates overlaps between public violent disorder and domestic violence and abuse
www.theguardian.com
August 29, 2025 at 5:12 PM
2. We’ve also discovered that there was a very high representation of suspected domestic abusers among those rioting against asylum seekers last year. A small number of truly horrible men are responsible for all kinds of misery. www.theguardian.com/society/2025...
Reposted by Penny
Link to donate for LEGAL ACTION : #pwME - Currently at £4754 11:15 31/08/2025
crowdjustice.com/case/justice...
#Justice #JusticeForME
#MyalgicEncephalomyelitis
PLEASE SHARE IF YOU CARE!
(If you haven’t already)
Thank you 💙
crowdjustice.com/case/justice...
#Justice #JusticeForME
#MyalgicEncephalomyelitis
PLEASE SHARE IF YOU CARE!
(If you haven’t already)
Thank you 💙
August 31, 2025 at 10:47 AM
Link to donate for LEGAL ACTION : #pwME - Currently at £4754 11:15 31/08/2025
crowdjustice.com/case/justice...
#Justice #JusticeForME
#MyalgicEncephalomyelitis
PLEASE SHARE IF YOU CARE!
(If you haven’t already)
Thank you 💙
crowdjustice.com/case/justice...
#Justice #JusticeForME
#MyalgicEncephalomyelitis
PLEASE SHARE IF YOU CARE!
(If you haven’t already)
Thank you 💙
Reposted by Penny
⏳Final week to sign up to the Green Party.
🗳️ Vote for Bold Leadership on August 1st.
🗳️ Vote for Bold Leadership on August 1st.
July 23, 2025 at 6:46 AM
⏳Final week to sign up to the Green Party.
🗳️ Vote for Bold Leadership on August 1st.
🗳️ Vote for Bold Leadership on August 1st.
Reposted by Penny
July 24, 2025 at 11:27 AM
Reposted by Penny
June 30 + 10… and with still no sign of the ME Delivery Plan, last Thursday I again asked the Leader of the House, @LucyMPowell, if she could help bring an end to the delay which is so disrespectful for #pwME. I’m grateful for her acknowledgement and commitment to follow up. 👍🏾
July 15, 2025 at 2:26 PM
June 30 + 10… and with still no sign of the ME Delivery Plan, last Thursday I again asked the Leader of the House, @LucyMPowell, if she could help bring an end to the delay which is so disrespectful for #pwME. I’m grateful for her acknowledgement and commitment to follow up. 👍🏾
Reposted by Penny
Today we’ve got a visibility themed update, in honour of our @oonaghcousins.bsky.social new job.
Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog.
Link in next post 👇
Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog.
Link in next post 👇
July 15, 2025 at 8:36 AM
Today we’ve got a visibility themed update, in honour of our @oonaghcousins.bsky.social new job.
Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog.
Link in next post 👇
Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog.
Link in next post 👇
Reposted by Penny
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
March 12, 2025 at 9:04 AM
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Reposted by Penny
Another petty counterproductive move from Starmer. Punishing MPs who stood against a widely unpopular policy won’t endear him to the public or improve discipline in the party. It just makes him look like he hasn’t learnt a thing - morally or practically - from the disability cuts. Because he hasn’t.
July 16, 2025 at 4:14 PM
Another petty counterproductive move from Starmer. Punishing MPs who stood against a widely unpopular policy won’t endear him to the public or improve discipline in the party. It just makes him look like he hasn’t learnt a thing - morally or practically - from the disability cuts. Because he hasn’t.
Reposted by Penny
Carers need more help, govt will be told as @resfoundation shows how little they get bit.ly/3GF0cDl Before being forced to change, the govt planned to take carers allowance away from 50,000 through changes to PIP. They are paid a pittance for £184bn worth of care
Ministers urged to overhaul and raise carer’s allowance
Resolution Foundation says unpaid carers on low incomes pay ‘very heavy price’ for looking after loved ones
bit.ly
July 17, 2025 at 6:47 AM
Carers need more help, govt will be told as @resfoundation shows how little they get bit.ly/3GF0cDl Before being forced to change, the govt planned to take carers allowance away from 50,000 through changes to PIP. They are paid a pittance for £184bn worth of care
Reposted by Penny
More than three-quarters of children’s doctors say poverty-related illness has increased over the last two years, as they warned of an “unbearable level” of hardship among kids.
Children's doctors slam 'unbearable' poverty - as students make breakfast plea
www.mirror.co.uk
July 17, 2025 at 7:08 AM
More than three-quarters of children’s doctors say poverty-related illness has increased over the last two years, as they warned of an “unbearable level” of hardship among kids.
Reposted by Penny
⚠️ Irrationality and Authoritarianism:
George Monbiot rightly said:
> "Irrationality is a defining feature of authoritarianism. Those accustomed to irrational thinking not only commit brutality, but also begin to justify it as rational.
"
George Monbiot rightly said:
> "Irrationality is a defining feature of authoritarianism. Those accustomed to irrational thinking not only commit brutality, but also begin to justify it as rational.
"
1. Yesterday, 86 people were arrested in the UK under the Terrorism Act 2000 for holding signs saying "I oppose genocide. I support Palestine Action."
They are the opposite of terrorists. They were protesting *against* terrorism. 🧵
They are the opposite of terrorists. They were protesting *against* terrorism. 🧵
July 13, 2025 at 9:02 AM
⚠️ Irrationality and Authoritarianism:
George Monbiot rightly said:
> "Irrationality is a defining feature of authoritarianism. Those accustomed to irrational thinking not only commit brutality, but also begin to justify it as rational.
"
George Monbiot rightly said:
> "Irrationality is a defining feature of authoritarianism. Those accustomed to irrational thinking not only commit brutality, but also begin to justify it as rational.
"
Reposted by Penny
Speak out for Disabled people?
Keir Starmer will suspend you.
Labour once again showing where their values lie.
Join.greenparty.org.uk
Keir Starmer will suspend you.
Labour once again showing where their values lie.
Join.greenparty.org.uk
Join the Green Party
Join the Green Party from just £6 a year. Become a member today - join the only party with the policies needed to tackle the climate crisis.
Join.greenparty.org.uk
July 16, 2025 at 2:20 PM
Speak out for Disabled people?
Keir Starmer will suspend you.
Labour once again showing where their values lie.
Join.greenparty.org.uk
Keir Starmer will suspend you.
Labour once again showing where their values lie.
Join.greenparty.org.uk
Reposted by Penny
Starmer suspends Labour MPs for challenging disability benefit cuts.
Others targeted with petty sanctions.
These people ought to be celebrated for forcing Starmer to develop better policies.
Silencing of critics results in poorer policies.
Others targeted with petty sanctions.
These people ought to be celebrated for forcing Starmer to develop better policies.
Silencing of critics results in poorer policies.
Keir Starmer suspends Labour MPs for breaching party discipline
Neil Duncan-Jordan, Brian Leishman, Chris Hinchliff and Rachael Maskell all voted against welfare reforms.
www.bbc.co.uk
July 16, 2025 at 4:41 PM
Starmer suspends Labour MPs for challenging disability benefit cuts.
Others targeted with petty sanctions.
These people ought to be celebrated for forcing Starmer to develop better policies.
Silencing of critics results in poorer policies.
Others targeted with petty sanctions.
These people ought to be celebrated for forcing Starmer to develop better policies.
Silencing of critics results in poorer policies.
Reposted by Penny
I've read many condemnations of Keir Starmer, but none as damning as this.
July 15, 2025 at 10:02 AM
I've read many condemnations of Keir Starmer, but none as damning as this.
Reposted by Penny
I've received a number of enquiries about the decision to remove me as a trade envoy.
I particularly want to thank the UK-Ghanaian diaspora for all their support in the role, which, like their jollof, is unmatched.
My statement on the issue 👇🏾
I particularly want to thank the UK-Ghanaian diaspora for all their support in the role, which, like their jollof, is unmatched.
My statement on the issue 👇🏾
July 16, 2025 at 8:54 PM
I've received a number of enquiries about the decision to remove me as a trade envoy.
I particularly want to thank the UK-Ghanaian diaspora for all their support in the role, which, like their jollof, is unmatched.
My statement on the issue 👇🏾
I particularly want to thank the UK-Ghanaian diaspora for all their support in the role, which, like their jollof, is unmatched.
My statement on the issue 👇🏾
Reposted by Penny
I want to take this opportunity to thank everyone who has sent their solidarity in light of yesterday’s news of having the Labour whip temporarily suspended.
Your support is incredible and it is the honour of my life to serve as the MP for Alloa & Grangemouth ❤️✊
Your support is incredible and it is the honour of my life to serve as the MP for Alloa & Grangemouth ❤️✊
July 17, 2025 at 7:07 AM
I want to take this opportunity to thank everyone who has sent their solidarity in light of yesterday’s news of having the Labour whip temporarily suspended.
Your support is incredible and it is the honour of my life to serve as the MP for Alloa & Grangemouth ❤️✊
Your support is incredible and it is the honour of my life to serve as the MP for Alloa & Grangemouth ❤️✊
Reposted by Penny
how many days since he announced he was going to listen more to mps?
July 16, 2025 at 10:42 PM
how many days since he announced he was going to listen more to mps?
Reposted by Penny
🚨 A statement:
Over the past year James O’Brien & others have made claims about my departure from LBC. I’m restricted in what I can share with you but hope the statement below will draw a line under the matter. My focus is on moving forward. I am grateful for your continued support, Sangita
Over the past year James O’Brien & others have made claims about my departure from LBC. I’m restricted in what I can share with you but hope the statement below will draw a line under the matter. My focus is on moving forward. I am grateful for your continued support, Sangita
May 28, 2025 at 10:02 AM
🚨 A statement:
Over the past year James O’Brien & others have made claims about my departure from LBC. I’m restricted in what I can share with you but hope the statement below will draw a line under the matter. My focus is on moving forward. I am grateful for your continued support, Sangita
Over the past year James O’Brien & others have made claims about my departure from LBC. I’m restricted in what I can share with you but hope the statement below will draw a line under the matter. My focus is on moving forward. I am grateful for your continued support, Sangita
Reposted by Penny
Closure of Columbia's ME/CFS Research Center will slow understanding of this terrible disease & progress towards effective therapies. This decision disproportionately affects women & some of the most vulnerable in society. It would've been a privilege to work alongside Ian Lipkin.
#pwME #ME #CFS
#pwME #ME #CFS
March 22, 2025 at 9:54 AM
Reposted by Penny
Trump administration has terminated funding for the Center for Solutions for ME/CFS at Columbia University—one of the nation’s leading research centers for ME/CFS, led by Dr. Ian Lipkin.
#MEAction plans to fight back!
#MEAction plans to fight back!
March 20, 2025 at 6:46 PM
Trump administration has terminated funding for the Center for Solutions for ME/CFS at Columbia University—one of the nation’s leading research centers for ME/CFS, led by Dr. Ian Lipkin.
#MEAction plans to fight back!
#MEAction plans to fight back!
Reposted by Penny
Saskia Boelsums is a Dutch visual artist who turns landscape photography into pure visual poetry. Her images evoke the softness and depth of impressionist paintings, though they are captured with a camera. With a refined aesthetic and masterful digital editing, Boelsums creates ✒️
March 28, 2025 at 8:11 PM
Saskia Boelsums is a Dutch visual artist who turns landscape photography into pure visual poetry. Her images evoke the softness and depth of impressionist paintings, though they are captured with a camera. With a refined aesthetic and masterful digital editing, Boelsums creates ✒️
Reposted by Penny
Does anybody else think that Rachel Reeves needs psychiatric help?
March 24, 2025 at 1:18 PM
Does anybody else think that Rachel Reeves needs psychiatric help?