Steve Rose
@stevenmrose.bsky.social
Certified Practising Speech Pathologist | Deafblind Consultant | Traveller
Interests: #Deafblind #TactileLanguage #BlindLowVision #Deaf #ChildDevelopment #SignLanguage #Epilepsy #MotorSpeech #RareDiseases 🦋 #BskySpeechies #SLPeeps 🏳️🌈
Interests: #Deafblind #TactileLanguage #BlindLowVision #Deaf #ChildDevelopment #SignLanguage #Epilepsy #MotorSpeech #RareDiseases 🦋 #BskySpeechies #SLPeeps 🏳️🌈
Pinned
Steve Rose
@stevenmrose.bsky.social
· Dec 3
A starter pack for those looking to connect with the Deafblind Community, champions, allies and researchers go.bsky.app/UZ2XCm
Let me know if you want to be included or if you know others who should be on the list
Deafblind Community Starterpack
Let me know if you want to be included or if you know others who should be on the list
Deafblind Community Starterpack
Reposted by Steve Rose
Reposted by Steve Rose
#Autism in Complex Presentations: A Guide to Assessment and Diagnosis', edited by Christopher Gillberg, Elaine Clark, and Abigail Mance, will be released later this year in three formats: physical, Ebook, and e-learning.
Express your interest now at buff.ly/rSMQ6qp
Express your interest now at buff.ly/rSMQ6qp
Autism in Complex Presentations: A Guide to Assessment and Diagnosis - Expression of Interest Form |
Autism in Complex Presentations: A Guide to Assessment and Diagnosis will be released later this year in three formats: physical, Ebook, and e-learning. Edited by: Christopher Gillberg Senior Professo...
buff.ly
May 16, 2025 at 10:35 AM
#Autism in Complex Presentations: A Guide to Assessment and Diagnosis', edited by Christopher Gillberg, Elaine Clark, and Abigail Mance, will be released later this year in three formats: physical, Ebook, and e-learning.
Express your interest now at buff.ly/rSMQ6qp
Express your interest now at buff.ly/rSMQ6qp
Heads up #UKColleagues Booking is now open for NatSIP Bodily-Tactile Communication and Tactile Signing course 2025 (online and in London)
More info in the link
More info in the link
NatSIP - Bodily‐Tactile Communication and Tactile Signing Training Course - July-September 2025 - Booking now openMOD_DPCALENDAR_UPCOMING_DATE
NatSIP - The National Sensory Impairment Partnership
www.natsip.org.uk
May 20, 2025 at 10:58 AM
Heads up #UKColleagues Booking is now open for NatSIP Bodily-Tactile Communication and Tactile Signing course 2025 (online and in London)
More info in the link
More info in the link
Reposted by Steve Rose
Childhood #apraxia of speech starter pack. Let me know if you want yo be added go.bsky.app/9kVYxQj
May 15, 2025 at 11:12 AM
Childhood #apraxia of speech starter pack. Let me know if you want yo be added go.bsky.app/9kVYxQj
Reposted by Steve Rose
Education is the key and a right. So back to Indonesia with a final small excerpt from the full project interview with Weni.
#letmein #deafblindasia #deafblind #deafblindinternational #DBI
#letmein #deafblindasia #deafblind #deafblindinternational #DBI
April 7, 2025 at 5:44 PM
Education is the key and a right. So back to Indonesia with a final small excerpt from the full project interview with Weni.
#letmein #deafblindasia #deafblind #deafblindinternational #DBI
#letmein #deafblindasia #deafblind #deafblindinternational #DBI
Reposted by Steve Rose
Posting about India: We are delighted to share that Dr. Sini Regi Thomas has received the Sense International India Excellence Award for Best Mentor 2025 (National). Sini is also a member of DbI's newly formed Committee for Diversity, Equity and Inclusion DEICom.
#dbi #deafblindasia #deafblind
#dbi #deafblindasia #deafblind
March 22, 2025 at 9:18 AM
Posting about India: We are delighted to share that Dr. Sini Regi Thomas has received the Sense International India Excellence Award for Best Mentor 2025 (National). Sini is also a member of DbI's newly formed Committee for Diversity, Equity and Inclusion DEICom.
#dbi #deafblindasia #deafblind
#dbi #deafblindasia #deafblind
Reposted by Steve Rose
The #measles vaccine has saved an estimated 5 lives every second since 2000.
👉Prevent measles by getting vaccinated with two doses of the measles vaccine.
👉Prevent measles by getting vaccinated with two doses of the measles vaccine.
March 18, 2025 at 7:21 AM
The #measles vaccine has saved an estimated 5 lives every second since 2000.
👉Prevent measles by getting vaccinated with two doses of the measles vaccine.
👉Prevent measles by getting vaccinated with two doses of the measles vaccine.
Reposted by Steve Rose
March 18, 2025 at 6:55 AM
Reposted by Steve Rose
Perspective: I am
deafblind due to Usher Syndrome, not measles. This is a genetic quirk and my parents could not have foreseen it .
While I live a great life despite having Ushers, I would not wish it on anyone.
There is no way I could live with knowing I created AVOIDABLE deafblindness .
deafblind due to Usher Syndrome, not measles. This is a genetic quirk and my parents could not have foreseen it .
While I live a great life despite having Ushers, I would not wish it on anyone.
There is no way I could live with knowing I created AVOIDABLE deafblindness .
Listening to an older woman on the radio this morning who was born deaf blind because her mother caught rubella during pregnancy. The MMR vaccine has saved countless parents and children from so much distress and harm.
March 16, 2025 at 3:50 PM
Perspective: I am
deafblind due to Usher Syndrome, not measles. This is a genetic quirk and my parents could not have foreseen it .
While I live a great life despite having Ushers, I would not wish it on anyone.
There is no way I could live with knowing I created AVOIDABLE deafblindness .
deafblind due to Usher Syndrome, not measles. This is a genetic quirk and my parents could not have foreseen it .
While I live a great life despite having Ushers, I would not wish it on anyone.
There is no way I could live with knowing I created AVOIDABLE deafblindness .
Reposted by Steve Rose
What a great idea to make presentations more accessible with situationally drawn infographics. And what a pleasant meeting with the President and Executive Director of the World Federation of the Deaf, Dr Joseph J. Murray and Pamela Molina.
#DBI #deafblind #ZeroCon25 #WFD
zerocon25.zeroproject.org
#DBI #deafblind #ZeroCon25 #WFD
zerocon25.zeroproject.org
March 6, 2025 at 5:12 PM
What a great idea to make presentations more accessible with situationally drawn infographics. And what a pleasant meeting with the President and Executive Director of the World Federation of the Deaf, Dr Joseph J. Murray and Pamela Molina.
#DBI #deafblind #ZeroCon25 #WFD
zerocon25.zeroproject.org
#DBI #deafblind #ZeroCon25 #WFD
zerocon25.zeroproject.org
Reposted by Steve Rose
It was much more than a conference. Read more about it and find the conference resolution on our website.
#dbi #deafblindasia #deafblind #conference
www.deafblindinternational.org/1st-dbi-regi...
#dbi #deafblindasia #deafblind #conference
www.deafblindinternational.org/1st-dbi-regi...
1st DbI Regional Conference in Asia Concludes as a Milestone – Deafblind International DbI
Deafblind International DbI is THE point of connection in deafblindness worldwide
www.deafblindinternational.org
March 4, 2025 at 2:59 AM
It was much more than a conference. Read more about it and find the conference resolution on our website.
#dbi #deafblindasia #deafblind #conference
www.deafblindinternational.org/1st-dbi-regi...
#dbi #deafblindasia #deafblind #conference
www.deafblindinternational.org/1st-dbi-regi...
Reposted by Steve Rose
In Nepal, DbI honours the outstanding commitments of Graciela Ferioli with the Lifetime Achievement Award, and of Namita Jacob and Sunil Abbas with Distinguished Service Awards. Very happy congratulations! #deafblindasia #dbi #deafblind #conference
March 3, 2025 at 2:19 AM
In Nepal, DbI honours the outstanding commitments of Graciela Ferioli with the Lifetime Achievement Award, and of Namita Jacob and Sunil Abbas with Distinguished Service Awards. Very happy congratulations! #deafblindasia #dbi #deafblind #conference
Reposted by Steve Rose
Good evening from Kathmandu, Nepal! We are getting closer to the very first DbI regional conference in Asia! And with that, our primary focus of communication will slowly shift to ‘Deafblindness in Asia’. Stay tuned!
#deafblindasia #dbi #deafblindinternational #deafblind
#deafblindasia #dbi #deafblindinternational #deafblind
February 25, 2025 at 3:37 PM
Good evening from Kathmandu, Nepal! We are getting closer to the very first DbI regional conference in Asia! And with that, our primary focus of communication will slowly shift to ‘Deafblindness in Asia’. Stay tuned!
#deafblindasia #dbi #deafblindinternational #deafblind
#deafblindasia #dbi #deafblindinternational #deafblind
Reposted by Steve Rose
The WFDB and DbI presidia have just published a new statement calling for immediate respect of the right to education for all children with deafblindness.
#dbi #wfdb #letmein #deafblind
www.deafblindinternational.org/social-justi...
#dbi #wfdb #letmein #deafblind
www.deafblindinternational.org/social-justi...
Social Justice & The Right to Education – Deafblind International DbI
Deafblind International DbI is THE point of connection in deafblindness worldwide
www.deafblindinternational.org
February 22, 2025 at 8:59 AM
The WFDB and DbI presidia have just published a new statement calling for immediate respect of the right to education for all children with deafblindness.
#dbi #wfdb #letmein #deafblind
www.deafblindinternational.org/social-justi...
#dbi #wfdb #letmein #deafblind
www.deafblindinternational.org/social-justi...
Reposted by Steve Rose
Thrilled to see this monumental work in @thelancet.bsky.social! A single subretinal injection led to staggering improvements in nearly blind children, while behavioural and EEG data from our lab reveal a dramatic boost in function and cortex activity. A major leap for vision restoration! t.ly/fvdQy
Gene therapy in children with AIPL1-associated severe retinal dystrophy: an open-label, first-in-human interventional study
Our findings indicate that young children with AIPL1-related retinal dystrophy benefited
substantially from subretinal administration of rAAV8.hRKp.AIPL1, with improved visual
acuity and functional vi...
t.ly
February 21, 2025 at 11:25 AM
Thrilled to see this monumental work in @thelancet.bsky.social! A single subretinal injection led to staggering improvements in nearly blind children, while behavioural and EEG data from our lab reveal a dramatic boost in function and cortex activity. A major leap for vision restoration! t.ly/fvdQy
Reposted by Steve Rose
On #InternationalMotherLanguageDay, I'm highlighting the 227 sign languages listed in Glottolog 5.1: glottolog.org/resource/lan...
I'd also like to point out that many deaf children do not have access to their national/local deaf community sign language: this is a linguistic human rights emergency.
I'd also like to point out that many deaf children do not have access to their national/local deaf community sign language: this is a linguistic human rights emergency.
Glottolog 5.1 -
Sign Language
glottolog.org
February 21, 2025 at 9:17 AM
On #InternationalMotherLanguageDay, I'm highlighting the 227 sign languages listed in Glottolog 5.1: glottolog.org/resource/lan...
I'd also like to point out that many deaf children do not have access to their national/local deaf community sign language: this is a linguistic human rights emergency.
I'd also like to point out that many deaf children do not have access to their national/local deaf community sign language: this is a linguistic human rights emergency.
Reposted by Steve Rose
But have you cited it?
February 14, 2025 at 12:34 PM
But have you cited it?
Reposted by Steve Rose
Treat someone special (you) this Valentine's Day. Regular eye tests are crucial for detecting early signs of age-related macular degeneration (AMD). So this AMD Awareness Month, make yourself your number one priority. ❤️
February 14, 2025 at 2:36 PM
Treat someone special (you) this Valentine's Day. Regular eye tests are crucial for detecting early signs of age-related macular degeneration (AMD). So this AMD Awareness Month, make yourself your number one priority. ❤️
Reposted by Steve Rose
🆓🔓
Moore J Boyle J & Namasivayam AK (2024). #Neurodiversity-Affirming Motor Speech Intervention for Autistic Individuals with Co-Existing Childhood #Apraxia of Speech: A Tutorial. IJARD www.doi.org/10.29011/2642-3227.100068 www.gavinpublishers.com/assets/artic... #autism #CAS #PML 🦋 #bskySPEECHIES
Moore J Boyle J & Namasivayam AK (2024). #Neurodiversity-Affirming Motor Speech Intervention for Autistic Individuals with Co-Existing Childhood #Apraxia of Speech: A Tutorial. IJARD www.doi.org/10.29011/2642-3227.100068 www.gavinpublishers.com/assets/artic... #autism #CAS #PML 🦋 #bskySPEECHIES
www.gavinpublishers.com
January 31, 2025 at 11:07 PM
🆓🔓
Moore J Boyle J & Namasivayam AK (2024). #Neurodiversity-Affirming Motor Speech Intervention for Autistic Individuals with Co-Existing Childhood #Apraxia of Speech: A Tutorial. IJARD www.doi.org/10.29011/2642-3227.100068 www.gavinpublishers.com/assets/artic... #autism #CAS #PML 🦋 #bskySPEECHIES
Moore J Boyle J & Namasivayam AK (2024). #Neurodiversity-Affirming Motor Speech Intervention for Autistic Individuals with Co-Existing Childhood #Apraxia of Speech: A Tutorial. IJARD www.doi.org/10.29011/2642-3227.100068 www.gavinpublishers.com/assets/artic... #autism #CAS #PML 🦋 #bskySPEECHIES
Reposted by Steve Rose
Not one but two paediatric videofluoroscopy courses at GOSH this year. Please do take a look! 👇🏻👀#blueskyspeechies
January 30, 2025 at 10:19 PM
Not one but two paediatric videofluoroscopy courses at GOSH this year. Please do take a look! 👇🏻👀#blueskyspeechies
Heads up @dbiconnect.bsky.social
A starter pack for those looking to connect with the Deafblind Community, champions, allies and researchers go.bsky.app/UZ2XCm
Let me know if you want to be included or if you know others who should be on the list
Deafblind Community Starterpack
Let me know if you want to be included or if you know others who should be on the list
Deafblind Community Starterpack
January 30, 2025 at 9:10 PM
Heads up @dbiconnect.bsky.social
Save the Date! 2. International CHARGE-Syndrome Awareness Day.
8. August 2025 #CHARGESyndromeAwarenessDay #CHARGEAwarenessDay #CHARGESyndrome #CHARGESyndromeWorldwide
8. August 2025 #CHARGESyndromeAwarenessDay #CHARGEAwarenessDay #CHARGESyndrome #CHARGESyndromeWorldwide
January 29, 2025 at 6:59 AM
Save the Date! 2. International CHARGE-Syndrome Awareness Day.
8. August 2025 #CHARGESyndromeAwarenessDay #CHARGEAwarenessDay #CHARGESyndrome #CHARGESyndromeWorldwide
8. August 2025 #CHARGESyndromeAwarenessDay #CHARGEAwarenessDay #CHARGESyndrome #CHARGESyndromeWorldwide
Reposted by Steve Rose
Open access paper showing evidence that typical bilingual language development follows a trajectory similar to monolingual development. Nice to see longitudinal data from a larger cohort (n = 604). #SLPeeps
January 28, 2025 at 7:46 AM
Open access paper showing evidence that typical bilingual language development follows a trajectory similar to monolingual development. Nice to see longitudinal data from a larger cohort (n = 604). #SLPeeps
Reposted by Steve Rose
Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order.
No explanations, no reviews, just covers (WITH ALT TEXT).
#BookSky 💙📚
#Books
#BookChallenge
1/20
No explanations, no reviews, just covers (WITH ALT TEXT).
#BookSky 💙📚
#Books
#BookChallenge
1/20
December 31, 2024 at 1:12 AM
Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order.
No explanations, no reviews, just covers (WITH ALT TEXT).
#BookSky 💙📚
#Books
#BookChallenge
1/20
No explanations, no reviews, just covers (WITH ALT TEXT).
#BookSky 💙📚
#Books
#BookChallenge
1/20