Nicole Shambles
@shamblingalong.bsky.social
Occasionally a thought may drip out.
Pinned
Building bridges through coffee and soccer • Minnesota Reformer
Over the past few months, we’ve watched with growing concern as divisive and dangerous rhetoric about immigrants — particularly Somali Minnesotans — has gained traction in headlines and on social medi...
minnesotareformer.com
Love for my Minneapolis neighbors: minnesotareformer.com/2025/12/15/b...
Reposted by Nicole Shambles
HOLIDAY HOPE
This Holiday Season, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID, and other #fatigue-related illnesses. Read more: conta.cc/3XNIbrs
#HOPE #HolidaySeason #Advocacy #Education #Research #nonprofit @sunsopeningband.bsky.social
This Holiday Season, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID, and other #fatigue-related illnesses. Read more: conta.cc/3XNIbrs
#HOPE #HolidaySeason #Advocacy #Education #Research #nonprofit @sunsopeningband.bsky.social
December 17, 2025 at 5:18 PM
HOLIDAY HOPE
This Holiday Season, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID, and other #fatigue-related illnesses. Read more: conta.cc/3XNIbrs
#HOPE #HolidaySeason #Advocacy #Education #Research #nonprofit @sunsopeningband.bsky.social
This Holiday Season, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID, and other #fatigue-related illnesses. Read more: conta.cc/3XNIbrs
#HOPE #HolidaySeason #Advocacy #Education #Research #nonprofit @sunsopeningband.bsky.social
Love for my Minneapolis neighbors: minnesotareformer.com/2025/12/15/b...
Building bridges through coffee and soccer • Minnesota Reformer
Over the past few months, we’ve watched with growing concern as divisive and dangerous rhetoric about immigrants — particularly Somali Minnesotans — has gained traction in headlines and on social medi...
minnesotareformer.com
December 15, 2025 at 7:01 PM
Love for my Minneapolis neighbors: minnesotareformer.com/2025/12/15/b...
Reposted by Nicole Shambles
New Medicaid work requirements will take effect at the end of 2026 - it will FAIL sick people and cut off their care.
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
December 8, 2025 at 6:37 PM
New Medicaid work requirements will take effect at the end of 2026 - it will FAIL sick people and cut off their care.
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
Reposted by Nicole Shambles
Vaxed people less likely to die of anything over 4 years than unvaxxed "we observed a 25% lower standardized incidence of all-cause death in vaccinated individuals compared with unvaccinated ones. A 74% lower risk was observed for hospital mortality due to COVID-19" jamanetwork.com/journals/jam...?
COVID-19 mRNA Vaccination and 4-Year All-Cause Mortality Among Adults in France
This cohort study uses the data from all adults aged 18 to 59 years living in France on November 1, 2021, to evaluate whether there is an association of receipt of an mRNA COVID-19 vaccine with long-t...
jamanetwork.com
December 5, 2025 at 3:05 AM
Vaxed people less likely to die of anything over 4 years than unvaxxed "we observed a 25% lower standardized incidence of all-cause death in vaccinated individuals compared with unvaccinated ones. A 74% lower risk was observed for hospital mortality due to COVID-19" jamanetwork.com/journals/jam...?
Reposted by Nicole Shambles
Anyone here with political aspirations, please take note. We live in an era, policy-wise where there is such a dearth of humanity that if you simply allow basic fundamental baby-brained levels of human decency to guide your policy it’s like 99% certain you’ll be goddamn Superman to the average voter
NEW: Mayor-elect Zohran Mamdani said Thursday he will not continue sweeps of homeless encampments — which city data shows have not yielded any permanent or supportive-housing referrals in more than a year.
www.thecity.nyc/2025/12/04/m...
www.thecity.nyc/2025/12/04/m...
Mamdani Vows to Sweep Out Crackdowns on Homeless Camps
City numbers show that sweeps started under Mayor Eric Adams have not delivered on referrals for housing in more than a year.
www.thecity.nyc
December 5, 2025 at 1:37 AM
Anyone here with political aspirations, please take note. We live in an era, policy-wise where there is such a dearth of humanity that if you simply allow basic fundamental baby-brained levels of human decency to guide your policy it’s like 99% certain you’ll be goddamn Superman to the average voter
Reposted by Nicole Shambles
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 23, 2025 at 6:23 PM
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by Nicole Shambles
We must reach out to help fight the health disparities found in these communities. As part of #TeachMETreatME initiative, a Midwest Tribal ECHO focused on ME/CFS & Long COVID. Thanks to the Native American Community Clinic in Minneapolis for collaborating with #MEAction MN!
ow.ly/CXAQ50Xt6Kk
ow.ly/CXAQ50Xt6Kk
Midwest Tribal ECHO 2024: Session 14
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
ow.ly
November 17, 2025 at 11:28 PM
We must reach out to help fight the health disparities found in these communities. As part of #TeachMETreatME initiative, a Midwest Tribal ECHO focused on ME/CFS & Long COVID. Thanks to the Native American Community Clinic in Minneapolis for collaborating with #MEAction MN!
ow.ly/CXAQ50Xt6Kk
ow.ly/CXAQ50Xt6Kk
Reposted by Nicole Shambles
As a community-centered & disability-led organization, #MEAction’s strength lies in the choices we make that shape programs long before launch. It is these decisions that allow us to continue to serve you as a light for this community.
Learn more:
www.meaction.net/post/inside-...
Learn more:
www.meaction.net/post/inside-...
November 19, 2025 at 5:09 PM
As a community-centered & disability-led organization, #MEAction’s strength lies in the choices we make that shape programs long before launch. It is these decisions that allow us to continue to serve you as a light for this community.
Learn more:
www.meaction.net/post/inside-...
Learn more:
www.meaction.net/post/inside-...
Reposted by Nicole Shambles
Alice Wong helped me accept my disabilities.
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
Thank You Alice Wong
Alice Wong has passed away and the disability community has lost a leader. I lost a mentor and a friend. The Disabled Ginger wouldn't exist without Alice and everything she taught me.
www.disabledginger.com
November 16, 2025 at 12:16 AM
Alice Wong helped me accept my disabilities.
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
Reposted by Nicole Shambles
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
November 15, 2025 at 6:09 AM
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
Reposted by Nicole Shambles
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
November 6, 2025 at 8:29 AM
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
Reposted by Nicole Shambles
here are my recommendations for mayor, city council, park board, and BET for tuesday! and this was a good excuse to share some photos from covering campaigns this year
taylordahlin.com/f/2025-minne...
taylordahlin.com/f/2025-minne...
2025 Minneapolis Election Recommendations
Here are my recommendations for the municipal election in Minneapolis coming up on November 4, 2025, and some photos I've taken this year.
taylordahlin.com
November 2, 2025 at 5:35 PM
here are my recommendations for mayor, city council, park board, and BET for tuesday! and this was a good excuse to share some photos from covering campaigns this year
taylordahlin.com/f/2025-minne...
taylordahlin.com/f/2025-minne...
Reposted by Nicole Shambles
NPR wants to write about what makes travel difficult for people who use wheelchairs--with hotels. Tell us your stories. www.npr.org/2025/09/11/g...
Are hotel rooms accessible for people who use wheelchairs? NPR wants to hear from you
Hotels have accessible rooms for wheelchair users. If you or someone you know has experienced problems with those rooms, we'd like to hear about it.
www.npr.org
September 11, 2025 at 9:09 PM
NPR wants to write about what makes travel difficult for people who use wheelchairs--with hotels. Tell us your stories. www.npr.org/2025/09/11/g...
Reposted by Nicole Shambles
Join our Blue State Vaccine Alliance, Minnesota! Sure, the rest of us have Pacific coastlines, but you have like, several lakes, so you test out of coastline.
September 9, 2025 at 2:09 AM
Join our Blue State Vaccine Alliance, Minnesota! Sure, the rest of us have Pacific coastlines, but you have like, several lakes, so you test out of coastline.
Reposted by Nicole Shambles
#MEAction: 'Our pilot program offers free support applying for in-home help for Minnesotans with Long COVID, ME/CFS, and energy limiting illness'
'We’re excited to announce the official launch of the Minnesota Home Help Navigation Program, a new pilot program created..'
mailchi.mp/meaction/off...
'We’re excited to announce the official launch of the Minnesota Home Help Navigation Program, a new pilot program created..'
mailchi.mp/meaction/off...
Official Launch of #MEAction’s Minnesota Home Help Navigation
mailchi.mp
September 3, 2025 at 4:06 PM
#MEAction: 'Our pilot program offers free support applying for in-home help for Minnesotans with Long COVID, ME/CFS, and energy limiting illness'
'We’re excited to announce the official launch of the Minnesota Home Help Navigation Program, a new pilot program created..'
mailchi.mp/meaction/off...
'We’re excited to announce the official launch of the Minnesota Home Help Navigation Program, a new pilot program created..'
mailchi.mp/meaction/off...
Reposted by Nicole Shambles
BJGPLife: What does the fallout from the ‘Salt Path’ saga tell us about our society’s ideas about chronic illness and exercise?
bjgplife.com/what-do...
#GeneralPractice #PrimaryCare #FamilyMedicine
bjgplife.com/what-do...
#GeneralPractice #PrimaryCare #FamilyMedicine
August 12, 2025 at 6:21 AM
BJGPLife: What does the fallout from the ‘Salt Path’ saga tell us about our society’s ideas about chronic illness and exercise?
bjgplife.com/what-do...
#GeneralPractice #PrimaryCare #FamilyMedicine
bjgplife.com/what-do...
#GeneralPractice #PrimaryCare #FamilyMedicine
Reposted by Nicole Shambles
The first paper that uses the Pacing Narrative Study data is now published!
@grachstephanie.bsky.social is building a case for vocal differences to detect #PEM. She found many discussed such issues during a crash.
Find the paper here: 🧪
www.mdpi.com/2077-0383/14...
#MECFS
@grachstephanie.bsky.social is building a case for vocal differences to detect #PEM. She found many discussed such issues during a crash.
Find the paper here: 🧪
www.mdpi.com/2077-0383/14...
#MECFS
www.mdpi.com
July 8, 2025 at 2:49 PM
The first paper that uses the Pacing Narrative Study data is now published!
@grachstephanie.bsky.social is building a case for vocal differences to detect #PEM. She found many discussed such issues during a crash.
Find the paper here: 🧪
www.mdpi.com/2077-0383/14...
#MECFS
@grachstephanie.bsky.social is building a case for vocal differences to detect #PEM. She found many discussed such issues during a crash.
Find the paper here: 🧪
www.mdpi.com/2077-0383/14...
#MECFS
Reposted by Nicole Shambles
We’re proud to support Pediatric Long COVID Awareness Week with @longcovidfam.bsky.social.
Millions of children are still living with the lasting effects of COVID. They deserve care, recognition, and action. Learn more: longcovidfamilies.org/awarenessweek
#PediatricLongCOVID
Millions of children are still living with the lasting effects of COVID. They deserve care, recognition, and action. Learn more: longcovidfamilies.org/awarenessweek
#PediatricLongCOVID
Home - Long Covid Families
Supporting families and raising awareness by providing comprehensive support to families navigating the challenges of pediatric Long Covid.
longcovidfamilies.org
July 22, 2025 at 6:16 PM
We’re proud to support Pediatric Long COVID Awareness Week with @longcovidfam.bsky.social.
Millions of children are still living with the lasting effects of COVID. They deserve care, recognition, and action. Learn more: longcovidfamilies.org/awarenessweek
#PediatricLongCOVID
Millions of children are still living with the lasting effects of COVID. They deserve care, recognition, and action. Learn more: longcovidfamilies.org/awarenessweek
#PediatricLongCOVID
Reposted by Nicole Shambles
We talked to public health expert Dr. Michael Osterholm about funding cuts, misinformation, and what keeps him going in challenging times.
The University of Minnesota’s Dr. Michael Osterholm on Why Public Health and Vaccines Matter
“The cuts that have been made in personnel, in resources, research, public service … all of those have been dramatic and drastic.”
twincitiesgeek.com
June 28, 2025 at 7:11 PM
We talked to public health expert Dr. Michael Osterholm about funding cuts, misinformation, and what keeps him going in challenging times.
Reposted by Nicole Shambles
So many signed copies of THE LIES OF LOCKE LAMORA by that @scottlynch78.bsky.social at the Roseville MN Barnes & Noble, and some signed Elizabeth Bear books too!
July 6, 2025 at 6:07 PM
So many signed copies of THE LIES OF LOCKE LAMORA by that @scottlynch78.bsky.social at the Roseville MN Barnes & Noble, and some signed Elizabeth Bear books too!
Reposted by Nicole Shambles
#DisabilityAwarenessMonth
I’m going to donate any royalties from sales of my book this month to @meactnet.bsky.social, who make my #disabled life a bit easier to bear.
Please buy a book or two so I can donate more than $0.30.
Don’t have a linktree, so I Will link various purchase options below.
I’m going to donate any royalties from sales of my book this month to @meactnet.bsky.social, who make my #disabled life a bit easier to bear.
Please buy a book or two so I can donate more than $0.30.
Don’t have a linktree, so I Will link various purchase options below.
Who would like to buy my book today?
$0.99 in ebook
$3.46 in audio
$4.99 in paperback
29 micropoems about family, motherhood, and chronic illness
#BookSky
www.amazon.com/Lift-Mask-co...
$0.99 in ebook
$3.46 in audio
$4.99 in paperback
29 micropoems about family, motherhood, and chronic illness
#BookSky
www.amazon.com/Lift-Mask-co...
Lift the Mask: a short collection of poetry and lyrical prose
Lift the Mask: a short collection of poetry and lyrical prose - Kindle edition by Houlihan, Kristin. Download it once and read it on your Kindle device, PC, phones or tablets. Use features like bookmarks, note taking and highlighting while reading Lift the Mask: a short collection of poetry and lyrical prose.
www.amazon.com
July 1, 2025 at 11:21 PM
#DisabilityAwarenessMonth
I’m going to donate any royalties from sales of my book this month to @meactnet.bsky.social, who make my #disabled life a bit easier to bear.
Please buy a book or two so I can donate more than $0.30.
Don’t have a linktree, so I Will link various purchase options below.
I’m going to donate any royalties from sales of my book this month to @meactnet.bsky.social, who make my #disabled life a bit easier to bear.
Please buy a book or two so I can donate more than $0.30.
Don’t have a linktree, so I Will link various purchase options below.
Reposted by Nicole Shambles
If you are a scientist or a member of the public invested in scientific research, take a look at the Bethesda declaration and consider signing it and sharing it with others. 🧪
www.standupforscience.net/bethesda-dec...
www.standupforscience.net/bethesda-dec...
Bethesda Declaration — STAND UP FOR SCIENCE
Support NIH Staff Now!
www.standupforscience.net
June 15, 2025 at 1:01 PM
If you are a scientist or a member of the public invested in scientific research, take a look at the Bethesda declaration and consider signing it and sharing it with others. 🧪
www.standupforscience.net/bethesda-dec...
www.standupforscience.net/bethesda-dec...
Reposted by Nicole Shambles
Your reminder that #MEAction has a ✨protest guide✨ for people with energy-limiting illnesses like #MECFS:
#DisabilitySky #NEISvoid
www.meactions.org/_files/ugd/b...
#DisabilitySky #NEISvoid
www.meactions.org/_files/ugd/b...
www.meactions.org
June 13, 2025 at 3:00 AM
Your reminder that #MEAction has a ✨protest guide✨ for people with energy-limiting illnesses like #MECFS:
#DisabilitySky #NEISvoid
www.meactions.org/_files/ugd/b...
#DisabilitySky #NEISvoid
www.meactions.org/_files/ugd/b...
Reposted by Nicole Shambles
#MEAction Minnesota rallied last month to save its Long COVID program - the first in the country - after the MN House proposed cutting all of its funding.
Yesterday, MN legislature passed a budget that cut $70 million across agencies but did NOT cut a dime from the Long COVID program!
Yesterday, MN legislature passed a budget that cut $70 million across agencies but did NOT cut a dime from the Long COVID program!
June 11, 2025 at 10:37 PM
#MEAction Minnesota rallied last month to save its Long COVID program - the first in the country - after the MN House proposed cutting all of its funding.
Yesterday, MN legislature passed a budget that cut $70 million across agencies but did NOT cut a dime from the Long COVID program!
Yesterday, MN legislature passed a budget that cut $70 million across agencies but did NOT cut a dime from the Long COVID program!
Reposted by Nicole Shambles
The Sick Times: 'Minnesota’s unique Long COVID program retains funding following advocacy'
'Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.'
thesicktimes.org/2025/06/11/m...
'Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.'
thesicktimes.org/2025/06/11/m...
Minnesota’s unique Long COVID program retains funding following advocacy - The Sick Times
Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.
thesicktimes.org
June 11, 2025 at 6:14 PM
The Sick Times: 'Minnesota’s unique Long COVID program retains funding following advocacy'
'Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.'
thesicktimes.org/2025/06/11/m...
'Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.'
thesicktimes.org/2025/06/11/m...