Ruth
@ruthlobo.bsky.social
I´m an advocate for Long Covid and IACC's patients rights from my bed most of the time
I post in English but also in Spanish and translate between
Let´s make this a better world for all!!!
❤️🧡💛💚🩵💙💜🩷🤍🖤🩶
I post in English but also in Spanish and translate between
Let´s make this a better world for all!!!
❤️🧡💛💚🩵💙💜🩷🤍🖤🩶
Reposted by Ruth
If you are concerned about egg prices, you should also be concerned about what is behind it. In the last 2 months, we are slowly taking the path of scenario 2 below. One
single mutation allows #H5N1 human-to-human transmission. Fewer eggs = a lot of #BirdFlu everywhere = more virus mutating.
single mutation allows #H5N1 human-to-human transmission. Fewer eggs = a lot of #BirdFlu everywhere = more virus mutating.
February 14, 2025 at 4:12 AM
Reposted by Ruth
Interesting.
Not the first virus to show possible long distance wind borne transmission.
#Airborne
#H5N1
www.biorxiv.org/content/10.1...
Not the first virus to show possible long distance wind borne transmission.
#Airborne
#H5N1
www.biorxiv.org/content/10.1...
Genetic data and meteorological conditions: unravelling the windborne transmission of H5N1 high-pathogenicity avian influenza between commercial poultry outbreaks
Understanding the transmission routes of high-pathogenicity avian influenza (HPAI) is crucial for developing effective control measures to prevent its spread. In this context, windborne transmission, ...
www.biorxiv.org
February 14, 2025 at 5:27 AM
Interesting.
Not the first virus to show possible long distance wind borne transmission.
#Airborne
#H5N1
www.biorxiv.org/content/10.1...
Not the first virus to show possible long distance wind borne transmission.
#Airborne
#H5N1
www.biorxiv.org/content/10.1...
💕 Por fin!
▶️ El texto íntegro de la PNL de #CovidPersistente q se aprobó en la Comisión de Sanidad del Congreso del Diputados el pasado 28/11!
🎉 Es la PNL de tod@s los pacientes de #LongCovid!!
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
#CovidIsNotOver
▶️ El texto íntegro de la PNL de #CovidPersistente q se aprobó en la Comisión de Sanidad del Congreso del Diputados el pasado 28/11!
🎉 Es la PNL de tod@s los pacientes de #LongCovid!!
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
#CovidIsNotOver
December 18, 2024 at 6:41 PM
💕 Por fin!
▶️ El texto íntegro de la PNL de #CovidPersistente q se aprobó en la Comisión de Sanidad del Congreso del Diputados el pasado 28/11!
🎉 Es la PNL de tod@s los pacientes de #LongCovid!!
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
#CovidIsNotOver
▶️ El texto íntegro de la PNL de #CovidPersistente q se aprobó en la Comisión de Sanidad del Congreso del Diputados el pasado 28/11!
🎉 Es la PNL de tod@s los pacientes de #LongCovid!!
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
#CovidIsNotOver
Reposted by Ruth
Excellent work here on “that” recent #longcovid study. I often hear that there is a lot of money going into long covid research, but so much is wasted on sham trials pushing the agendas of career psychologists. Long covid is physiological, not psychological, anyone who suffers will tell you.
📭 It's out! Our latest piece taking a deep dive into the latest CLoCK findings and yes there's some controversy 🧐
Is #LongCovid really PMS?! 🤦♀️
📻 Audio available
#longcovidkids #medsky
www.longcovidadvoc.com/post/the-fin...
Is #LongCovid really PMS?! 🤦♀️
📻 Audio available
#longcovidkids #medsky
www.longcovidadvoc.com/post/the-fin...
The Final Countdown for CLoCK, the paediatric study in Long Covid.
Is Long Covid really PMS in teens?
www.longcovidadvoc.com
December 13, 2024 at 12:49 PM
Excellent work here on “that” recent #longcovid study. I often hear that there is a lot of money going into long covid research, but so much is wasted on sham trials pushing the agendas of career psychologists. Long covid is physiological, not psychological, anyone who suffers will tell you.
Casi 5 años después, el #CovidPersistente es una realidad, como su nombre indica, persistente y tristemente no va a ningún lado
🔗 elpais.com/sociedad/202...
🔗 elpais.com/sociedad/202...
Cinco años después, nadie sabe cuántas personas tienen covid persistente: “Te ven como una vaga que no quiere trabajar”
La dificultad del diagnóstico, el desconocimiento de muchos profesionales y la falta de marcadores biológicos complican el reconocimiento y atención a la enfermedad
elpais.com
December 13, 2024 at 9:25 AM
Casi 5 años después, el #CovidPersistente es una realidad, como su nombre indica, persistente y tristemente no va a ningún lado
🔗 elpais.com/sociedad/202...
🔗 elpais.com/sociedad/202...
▶️ "Apertura del Dr. Tedros @who.int:
“No podemos hablar de #COVID en pasado
Todavía está entre nosotros, todavía causa enfermedades agudas, #CovidPersistente y todavía mata
El mundo puede querer olvidarse del #COVID19, pr no podemos permitirnos hacerlo”
#LongCovid
🔗 www.who.int/director-gen...
“No podemos hablar de #COVID en pasado
Todavía está entre nosotros, todavía causa enfermedades agudas, #CovidPersistente y todavía mata
El mundo puede querer olvidarse del #COVID19, pr no podemos permitirnos hacerlo”
#LongCovid
🔗 www.who.int/director-gen...
December 11, 2024 at 10:44 AM
▶️ "Apertura del Dr. Tedros @who.int:
“No podemos hablar de #COVID en pasado
Todavía está entre nosotros, todavía causa enfermedades agudas, #CovidPersistente y todavía mata
El mundo puede querer olvidarse del #COVID19, pr no podemos permitirnos hacerlo”
#LongCovid
🔗 www.who.int/director-gen...
“No podemos hablar de #COVID en pasado
Todavía está entre nosotros, todavía causa enfermedades agudas, #CovidPersistente y todavía mata
El mundo puede querer olvidarse del #COVID19, pr no podemos permitirnos hacerlo”
#LongCovid
🔗 www.who.int/director-gen...
Reposted by Ruth
#UniteToFight2024
The talk by Dr. Michael Kacik, specialist in angiology and internal medicine and a general practitioner, on vascular regulation disorder in #LongCovid and #MECFS is now available with 🇬🇧 subtitles: youtu.be/6OYWuWCDfXY
The talk by Dr. Michael Kacik, specialist in angiology and internal medicine and a general practitioner, on vascular regulation disorder in #LongCovid and #MECFS is now available with 🇬🇧 subtitles: youtu.be/6OYWuWCDfXY
Dr. med. Michael Kacik: Vascular regulation disorder in Post COVID disease & MECFS (Day 2, Block 9)
YouTube video by UniteToFight
youtu.be
December 11, 2024 at 10:10 AM
Reposted by Ruth
Interested in #cardiovascular aspects of #LongCovid and #MECFS?
Then please have a look at the attached #UniteToFight2024 conference talks by Prof. Dr. Valentina Puntmann, Prof. Dr. Bernhard Schieffer, Dr. Michael Kacik and Dr. Rae Duncan @sunny-rae1.bsky.social ⬇️
bsky.app/profile/kath...
Then please have a look at the attached #UniteToFight2024 conference talks by Prof. Dr. Valentina Puntmann, Prof. Dr. Bernhard Schieffer, Dr. Michael Kacik and Dr. Rae Duncan @sunny-rae1.bsky.social ⬇️
bsky.app/profile/kath...
#UniteToFight2024
The talk by Dr. Valentina Puntmann, consultant cardiologist and senior clinical research investigator, on cardiovascular involvement in #LongCovid and current research to make reliable diagnostic tests broadly available is now available with 🇬🇧 subtitles: youtu.be/P-gwKTY7nFw
The talk by Dr. Valentina Puntmann, consultant cardiologist and senior clinical research investigator, on cardiovascular involvement in #LongCovid and current research to make reliable diagnostic tests broadly available is now available with 🇬🇧 subtitles: youtu.be/P-gwKTY7nFw
Dr. Valentina Puntmann: From PASC Cardiovascular Involvement to Myoflame-19 RCT (Day 1, Block 4)
YouTube video by UniteToFight
youtu.be
December 11, 2024 at 10:10 AM
Interested in #cardiovascular aspects of #LongCovid and #MECFS?
Then please have a look at the attached #UniteToFight2024 conference talks by Prof. Dr. Valentina Puntmann, Prof. Dr. Bernhard Schieffer, Dr. Michael Kacik and Dr. Rae Duncan @sunny-rae1.bsky.social ⬇️
bsky.app/profile/kath...
Then please have a look at the attached #UniteToFight2024 conference talks by Prof. Dr. Valentina Puntmann, Prof. Dr. Bernhard Schieffer, Dr. Michael Kacik and Dr. Rae Duncan @sunny-rae1.bsky.social ⬇️
bsky.app/profile/kath...
▶️ Nuevo estudio q tiene en cuenta las particularidades de las mujeres y q plantea estrategias de rehabilitación ad hoc.
♀️ "Consideraciones para la rehabilitación de mujeres con #CovidPersistente"
#LongCovid
#LongCovidAwareness
#TreatLongCovid
🔗 www.sciencedirect.com/science/arti...
♀️ "Consideraciones para la rehabilitación de mujeres con #CovidPersistente"
#LongCovid
#LongCovidAwareness
#TreatLongCovid
🔗 www.sciencedirect.com/science/arti...
December 11, 2024 at 10:32 AM
▶️ Nuevo estudio q tiene en cuenta las particularidades de las mujeres y q plantea estrategias de rehabilitación ad hoc.
♀️ "Consideraciones para la rehabilitación de mujeres con #CovidPersistente"
#LongCovid
#LongCovidAwareness
#TreatLongCovid
🔗 www.sciencedirect.com/science/arti...
♀️ "Consideraciones para la rehabilitación de mujeres con #CovidPersistente"
#LongCovid
#LongCovidAwareness
#TreatLongCovid
🔗 www.sciencedirect.com/science/arti...
▶️ New study that takes into account the particularities of women and proposes ad hoc rehabilitation strategies.
♀️ "Considerations for the rehabilitation of women with #LongCovid"
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
🔗 www.sciencedirect.com/science/arti...
♀️ "Considerations for the rehabilitation of women with #LongCovid"
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
🔗 www.sciencedirect.com/science/arti...
December 11, 2024 at 10:28 AM
▶️ New study that takes into account the particularities of women and proposes ad hoc rehabilitation strategies.
♀️ "Considerations for the rehabilitation of women with #LongCovid"
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
🔗 www.sciencedirect.com/science/arti...
♀️ "Considerations for the rehabilitation of women with #LongCovid"
#LongCovidAwareness
#TreatLongCovid
#ResearchLongCovid
🔗 www.sciencedirect.com/science/arti...
Reposted by Ruth
Why do we undervalue the lives of disabled people so much?
Why do we expect them to survive on a disability benefit that keeps them below poverty line - especially when being chronically ill drives expenses up?
I spoke to a “friend” about this & was shocked by the response 🧵/1
Why do we expect them to survive on a disability benefit that keeps them below poverty line - especially when being chronically ill drives expenses up?
I spoke to a “friend” about this & was shocked by the response 🧵/1
December 8, 2024 at 3:21 AM
Why do we undervalue the lives of disabled people so much?
Why do we expect them to survive on a disability benefit that keeps them below poverty line - especially when being chronically ill drives expenses up?
I spoke to a “friend” about this & was shocked by the response 🧵/1
Why do we expect them to survive on a disability benefit that keeps them below poverty line - especially when being chronically ill drives expenses up?
I spoke to a “friend” about this & was shocked by the response 🧵/1
▶️ Según los últimos resultados de la encuesta de salud llevada a cabo en 2023 en Escocia, la incidencia de #CovidPersistente a nivel de población general ha subido de un 5% en 2021 a un 8% en 2023 en adultos y de un 1% a un 2% en niños
#LongCovidKids
www.heraldscotland.com/news/2477580...
#LongCovidKids
www.heraldscotland.com/news/2477580...
The long Covid legacy: Costs to economy, NHS, and the question of recovery
How likely are people to make a full recovery from long Covid - and how do they get there?
www.heraldscotland.com
December 8, 2024 at 9:18 PM
▶️ Según los últimos resultados de la encuesta de salud llevada a cabo en 2023 en Escocia, la incidencia de #CovidPersistente a nivel de población general ha subido de un 5% en 2021 a un 8% en 2023 en adultos y de un 1% a un 2% en niños
#LongCovidKids
www.heraldscotland.com/news/2477580...
#LongCovidKids
www.heraldscotland.com/news/2477580...
▶️ According to the latest results of the health survey carried out in 2023 in Scotland, the incidence of #LongCovid at the general population level has risen from 5% in 2021 to 8% in 2023 in adults and from 1% to 2% in children
#LongCovid #LongCovidKids
www.heraldscotland.com/news/2477580...
#LongCovid #LongCovidKids
www.heraldscotland.com/news/2477580...
The long Covid legacy: Costs to economy, NHS, and the question of recovery
How likely are people to make a full recovery from long Covid - and how do they get there?
www.heraldscotland.com
December 8, 2024 at 9:15 PM
▶️ According to the latest results of the health survey carried out in 2023 in Scotland, the incidence of #LongCovid at the general population level has risen from 5% in 2021 to 8% in 2023 in adults and from 1% to 2% in children
#LongCovid #LongCovidKids
www.heraldscotland.com/news/2477580...
#LongCovid #LongCovidKids
www.heraldscotland.com/news/2477580...
Reposted by Ruth
My mega guide to living with POTS/Dysautonomia is here!
I cover everything I learned the hard way over years of living with this condition. Salt, fluids, compression, medication and all the lifestyle adjustments you can imagine.
I hope it’ll serve as a guide to help patients cope & stay safe:
I cover everything I learned the hard way over years of living with this condition. Salt, fluids, compression, medication and all the lifestyle adjustments you can imagine.
I hope it’ll serve as a guide to help patients cope & stay safe:
Learning to Live Horizontally - Your Guide to All Things POTS
When you have POTS - being upright is a challenge. We deal with fatigue, tachycardia, dizziness, fainting and more. Adapting to living life horizontally can make symptoms more manageable.
www.disabledginger.com
December 6, 2024 at 1:22 AM
My mega guide to living with POTS/Dysautonomia is here!
I cover everything I learned the hard way over years of living with this condition. Salt, fluids, compression, medication and all the lifestyle adjustments you can imagine.
I hope it’ll serve as a guide to help patients cope & stay safe:
I cover everything I learned the hard way over years of living with this condition. Salt, fluids, compression, medication and all the lifestyle adjustments you can imagine.
I hope it’ll serve as a guide to help patients cope & stay safe:
Reposted by Ruth
1 in 10 hospital acquired Covid infections results in death. Isn’t infection prevention control basic best practices? Wouldn’t that just be common sense? HC Admins are destabilizing their hospitals & staffing because they’re also making staff sick. Implementing masking policies is a no brainer.
I want to murder the CEO of this hospital who decided to put these 3 departments together. And told everyone masks are not required anymore.
December 6, 2024 at 1:25 AM
1 in 10 hospital acquired Covid infections results in death. Isn’t infection prevention control basic best practices? Wouldn’t that just be common sense? HC Admins are destabilizing their hospitals & staffing because they’re also making staff sick. Implementing masking policies is a no brainer.
Reposted by Ruth
Reposted by Ruth
Researchers at Columbia University modified a human antibody to better neutralize all tested SARS-CoV-2 variants, including the latest ones.
This prospective study shows promise for new COVID-19 treatments, especially for immunocompromised people.
www.biorxiv.org/content/10.1...
This prospective study shows promise for new COVID-19 treatments, especially for immunocompromised people.
www.biorxiv.org/content/10.1...
www.biorxiv.org
December 6, 2024 at 1:11 PM
Researchers at Columbia University modified a human antibody to better neutralize all tested SARS-CoV-2 variants, including the latest ones.
This prospective study shows promise for new COVID-19 treatments, especially for immunocompromised people.
www.biorxiv.org/content/10.1...
This prospective study shows promise for new COVID-19 treatments, especially for immunocompromised people.
www.biorxiv.org/content/10.1...
Reposted by Ruth
Great week for remote monitoring studies! Proud to get this one out in pre-print as well! In the previous study we pre-printed this week, we used data from the @visible_health app to see if we could predict symptom flares (we could), this study is a
www.researchsquare.com/article/rs-5...
1/
www.researchsquare.com/article/rs-5...
1/
Wearable Technology in the Management of Complex Chronic Illness: Preliminary Survey Results on Self-Reported Outcomes
Chronic illnesses like Long Covid and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve fluctuating symptoms, often worsened by exertion. Home monitoring technologies may support symptom trac...
www.researchsquare.com
December 4, 2024 at 4:22 PM
Great week for remote monitoring studies! Proud to get this one out in pre-print as well! In the previous study we pre-printed this week, we used data from the @visible_health app to see if we could predict symptom flares (we could), this study is a
www.researchsquare.com/article/rs-5...
1/
www.researchsquare.com/article/rs-5...
1/
Reposted by Ruth
"¿Y si todo el mundo hubiera usado mascarilla?"
"Un estudio de modelización basado en casi 250.000 pruebas COVID-19 positivas en el Reino Unido muestra que el uso universal de la mascarilla podría haber reducido notablemente la transmisión"
"Un estudio de modelización basado en casi 250.000 pruebas COVID-19 positivas en el Reino Unido muestra que el uso universal de la mascarilla podría haber reducido notablemente la transmisión"
What if everyone had masked up? Analysis of app data has an answer
Modelling study based on almost 250,000 positive COVID-19 tests in the United Kingdom shows that universal masking could have cut transmission markedly.
buff.ly
December 6, 2024 at 1:00 PM
"¿Y si todo el mundo hubiera usado mascarilla?"
"Un estudio de modelización basado en casi 250.000 pruebas COVID-19 positivas en el Reino Unido muestra que el uso universal de la mascarilla podría haber reducido notablemente la transmisión"
"Un estudio de modelización basado en casi 250.000 pruebas COVID-19 positivas en el Reino Unido muestra que el uso universal de la mascarilla podría haber reducido notablemente la transmisión"
▶️ New analysis from the @zalaly.bsky.social team that analyzes the worrying increase of disabilities in the US
👉🏻 "Could it be due to #LongCovid?
Possibly yes!"
📌 Highlights the increase from tens of thousands to 1 million cognitive disabilities
🔗 www.stlouisfed.org/on-the-econo...
👉🏻 "Could it be due to #LongCovid?
Possibly yes!"
📌 Highlights the increase from tens of thousands to 1 million cognitive disabilities
🔗 www.stlouisfed.org/on-the-econo...
December 6, 2024 at 11:51 AM
▶️ New analysis from the @zalaly.bsky.social team that analyzes the worrying increase of disabilities in the US
👉🏻 "Could it be due to #LongCovid?
Possibly yes!"
📌 Highlights the increase from tens of thousands to 1 million cognitive disabilities
🔗 www.stlouisfed.org/on-the-econo...
👉🏻 "Could it be due to #LongCovid?
Possibly yes!"
📌 Highlights the increase from tens of thousands to 1 million cognitive disabilities
🔗 www.stlouisfed.org/on-the-econo...
▶️ Nuevo análisis del equipo de @zalaly.bsky.social q analiza el preocupante aumento de discapacidades en EEUU
"Podrían ser por #CovidPersistente?
Posiblemente Sí!"
Destaca el aumento de decenas de miles a 1 millón de discapacidades cognitivas
🔗 🇪🇸 www-stlouisfed-org.translate.goog/on-the-econo...
"Podrían ser por #CovidPersistente?
Posiblemente Sí!"
Destaca el aumento de decenas de miles a 1 millón de discapacidades cognitivas
🔗 🇪🇸 www-stlouisfed-org.translate.goog/on-the-econo...
December 6, 2024 at 11:47 AM
▶️ Nuevo análisis del equipo de @zalaly.bsky.social q analiza el preocupante aumento de discapacidades en EEUU
"Podrían ser por #CovidPersistente?
Posiblemente Sí!"
Destaca el aumento de decenas de miles a 1 millón de discapacidades cognitivas
🔗 🇪🇸 www-stlouisfed-org.translate.goog/on-the-econo...
"Podrían ser por #CovidPersistente?
Posiblemente Sí!"
Destaca el aumento de decenas de miles a 1 millón de discapacidades cognitivas
🔗 🇪🇸 www-stlouisfed-org.translate.goog/on-the-econo...
▶️ New preprint from @putrinolab.bsky.social team in which they study the possibility of predicting the development of #Crash in patients with #LongCovid and #EMCFS
👉🏻 They do so by taking into account HRV, HR and RR (heart rate and variability and respiratory rate)
👉🏻 The predictive model depends...
👉🏻 They do so by taking into account HRV, HR and RR (heart rate and variability and respiratory rate)
👉🏻 The predictive model depends...
So excited to finally see this study out in pre-print! This study is the largest of its kind to date: Using data from 4,244 people with #LongCOVID, #MECFS and other complex chronic illnesses, we took hundreds of thousands of data points across hundreds of
www.researchsquare.com/article/rs-5...
1/
www.researchsquare.com/article/rs-5...
1/
Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations in people with complex chronic illness
Background: Complex chronic conditions like Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve energy limitations and changes in heart rate variability (HRV) and resting heart r...
www.researchsquare.com
December 3, 2024 at 11:29 PM
▶️ New preprint from @putrinolab.bsky.social team in which they study the possibility of predicting the development of #Crash in patients with #LongCovid and #EMCFS
👉🏻 They do so by taking into account HRV, HR and RR (heart rate and variability and respiratory rate)
👉🏻 The predictive model depends...
👉🏻 They do so by taking into account HRV, HR and RR (heart rate and variability and respiratory rate)
👉🏻 The predictive model depends...
▶️ Nuevo preprint del equipo de @PutrinoLab en el q se estudia la posibilidad de predecir el desarrollo de #Crash en pacientes #CovidPersistente y #EMSFC
Lo hacen teniendo en cuenta HRV, HR y RR (Frec y variabilidad cardiaca y Frec respiratoria)
🇪🇸 threadreaderapp-com.translate.goog/thread/18636...
Lo hacen teniendo en cuenta HRV, HR y RR (Frec y variabilidad cardiaca y Frec respiratoria)
🇪🇸 threadreaderapp-com.translate.goog/thread/18636...
December 3, 2024 at 11:19 PM
▶️ Nuevo preprint del equipo de @PutrinoLab en el q se estudia la posibilidad de predecir el desarrollo de #Crash en pacientes #CovidPersistente y #EMSFC
Lo hacen teniendo en cuenta HRV, HR y RR (Frec y variabilidad cardiaca y Frec respiratoria)
🇪🇸 threadreaderapp-com.translate.goog/thread/18636...
Lo hacen teniendo en cuenta HRV, HR y RR (Frec y variabilidad cardiaca y Frec respiratoria)
🇪🇸 threadreaderapp-com.translate.goog/thread/18636...
Reposted by Ruth
It’s @joplatt.bsky.social, MP for Leigh & Atherton! Jo is a @teamlabouruk.bsky.social champion in parliament for #pwME & #pwLC + new chair of the APPG on ME.
Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
December 2, 2024 at 12:00 PM
It’s @joplatt.bsky.social, MP for Leigh & Atherton! Jo is a @teamlabouruk.bsky.social champion in parliament for #pwME & #pwLC + new chair of the APPG on ME.
Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”