Oregon RDAC Coalition
@rarediseaseoregon.bsky.social
Social media presence of the patient-led, patient-centered, #CripCoalition working for a Rare Disease Advisory Council in Oregon
Pro-Trans, Pro-BIPOC, Forever.
Links: taplink.cc/rarediseaseoregon
#CripTheVote #DisCo #NEISVoid
#NothingAboutUsWithoutUs
Pro-Trans, Pro-BIPOC, Forever.
Links: taplink.cc/rarediseaseoregon
#CripTheVote #DisCo #NEISVoid
#NothingAboutUsWithoutUs
RDAC Bill (HB 2457) update: Work session scheduled for tomorrow (the 20th) @ 3:00pm.
A "work session" generally means the committee will discuss one or more pieces of proposed legislation, but won't adopt changes during the session.
1/
#ORLeg #ORPol #DisabilityJustice #RareDisease #CripTheVote
A "work session" generally means the committee will discuss one or more pieces of proposed legislation, but won't adopt changes during the session.
1/
#ORLeg #ORPol #DisabilityJustice #RareDisease #CripTheVote
February 20, 2025 at 6:23 AM
RDAC Bill (HB 2457) update: Work session scheduled for tomorrow (the 20th) @ 3:00pm.
A "work session" generally means the committee will discuss one or more pieces of proposed legislation, but won't adopt changes during the session.
1/
#ORLeg #ORPol #DisabilityJustice #RareDisease #CripTheVote
A "work session" generally means the committee will discuss one or more pieces of proposed legislation, but won't adopt changes during the session.
1/
#ORLeg #ORPol #DisabilityJustice #RareDisease #CripTheVote
#ORPol #ORLeg: A Thread of 2025 bills affecting Housing, Eviction, & #TenantRights in Oregon
Please scroll through. You can use legiscan.com to track bills you want to testify for/against.
In this🧵: A few bills that would affect evictions, &/or housing opportunities. Most will harm tenants.
1/9
Please scroll through. You can use legiscan.com to track bills you want to testify for/against.
In this🧵: A few bills that would affect evictions, &/or housing opportunities. Most will harm tenants.
1/9
LegiScan | Bringing People To The Process
LegiScan national legislative monitoring, reporting and API data services. Tracking legislation in all 50 states, DC Council and US Congress. Free public service and professional support accounts.
legiscan.com
February 18, 2025 at 8:15 AM
#ORPol #ORLeg: A Thread of 2025 bills affecting Housing, Eviction, & #TenantRights in Oregon
Please scroll through. You can use legiscan.com to track bills you want to testify for/against.
In this🧵: A few bills that would affect evictions, &/or housing opportunities. Most will harm tenants.
1/9
Please scroll through. You can use legiscan.com to track bills you want to testify for/against.
In this🧵: A few bills that would affect evictions, &/or housing opportunities. Most will harm tenants.
1/9
#Oregon,
This hearing was today, but you can submit written testimony for 48 hours following the posted start time for hearings. Please take a moment to support HB2967 (bans rental application fees) and check out some of the other proposed bills that will affect tenants in OR. #ORLeg #CriptheVote
This hearing was today, but you can submit written testimony for 48 hours following the posted start time for hearings. Please take a moment to support HB2967 (bans rental application fees) and check out some of the other proposed bills that will affect tenants in OR. #ORLeg #CriptheVote
February 18, 2025 at 6:21 AM
#Oregon,
This hearing was today, but you can submit written testimony for 48 hours following the posted start time for hearings. Please take a moment to support HB2967 (bans rental application fees) and check out some of the other proposed bills that will affect tenants in OR. #ORLeg #CriptheVote
This hearing was today, but you can submit written testimony for 48 hours following the posted start time for hearings. Please take a moment to support HB2967 (bans rental application fees) and check out some of the other proposed bills that will affect tenants in OR. #ORLeg #CriptheVote
Disabled people have been warning about this since 2020. We've now got tons of scientific articles about post-covid illness/disability and the relationship between repeat covid infections and other health conditions. I hope you'll take a minute to follow some PWD and ask your friends to wear masks.
So it's not just me? Is this one of the worst seasons we've had with non-COVID respiratory illnesses in recent memory? I see people getting sick constantly, like once a month every single month. My son's high school has been just full of sick kids since early November, kids are missing LOTS of days
February 14, 2025 at 6:05 AM
Disabled people have been warning about this since 2020. We've now got tons of scientific articles about post-covid illness/disability and the relationship between repeat covid infections and other health conditions. I hope you'll take a minute to follow some PWD and ask your friends to wear masks.
#Oregon #ORLeg🧵
Let me draw your attention to another local bill! If passed, HB 2967 will impact EVERYONE who rents or hopes to rent in Oregon & increase housing equity by banning application fees.
What does that mean? A landlord can't charge for background checks or to "process your application."
Let me draw your attention to another local bill! If passed, HB 2967 will impact EVERYONE who rents or hopes to rent in Oregon & increase housing equity by banning application fees.
What does that mean? A landlord can't charge for background checks or to "process your application."
February 14, 2025 at 3:30 AM
Reposted by Oregon RDAC Coalition
Disabled people have been sounding the alarm about fascism for five years now. Pandemics lead to fascism. They excuse the deaths of the most vulnerable first. How do you not become vulnerable like us? Wear a mask! If you become disabled from Covid, they’ll excuse your death too.
February 13, 2025 at 6:56 PM
Disabled people have been sounding the alarm about fascism for five years now. Pandemics lead to fascism. They excuse the deaths of the most vulnerable first. How do you not become vulnerable like us? Wear a mask! If you become disabled from Covid, they’ll excuse your death too.
Response to attacks on marginalized residents' rights.
Midwest West Coast
Midwest West Coast
February 13, 2025 at 7:42 AM
Response to attacks on marginalized residents' rights.
Midwest West Coast
Midwest West Coast
Alt-text for the political cartoon posted by Whitehouse (who voted against his constituents' interests): Two people in front of a fenced off white building. A banner flying from the roof says, "We are stealing everything!" One person asks the other, "Why can't democrats have such clear messaging?"
February 11, 2025 at 8:58 AM
Alt-text for the political cartoon posted by Whitehouse (who voted against his constituents' interests): Two people in front of a fenced off white building. A banner flying from the roof says, "We are stealing everything!" One person asks the other, "Why can't democrats have such clear messaging?"
FYI, anyone can check politicians' voting history, bill sponsorships, financial ties, and known positions with Legiscan
For example, here you can view the bill sponsors for HB 2457 and navigate to Sponsorships, Donors (FollowtheMoney), and Positions (VoteSmart)
#USPol
legiscan.com/OR/sponsors/...
For example, here you can view the bill sponsors for HB 2457 and navigate to Sponsorships, Donors (FollowtheMoney), and Positions (VoteSmart)
#USPol
legiscan.com/OR/sponsors/...
LegiScan | Bringing People To The Process
LegiScan national legislative monitoring, reporting and API data services. Tracking legislation in all 50 states, DC Council and US Congress. Free public service and professional support accounts.
Legiscan.com
February 10, 2025 at 7:33 AM
FYI, anyone can check politicians' voting history, bill sponsorships, financial ties, and known positions with Legiscan
For example, here you can view the bill sponsors for HB 2457 and navigate to Sponsorships, Donors (FollowtheMoney), and Positions (VoteSmart)
#USPol
legiscan.com/OR/sponsors/...
For example, here you can view the bill sponsors for HB 2457 and navigate to Sponsorships, Donors (FollowtheMoney), and Positions (VoteSmart)
#USPol
legiscan.com/OR/sponsors/...
The rep discussed in this thread is also sponsoring an anti-transgender "biological sex" sports and bathroom bill this year and actually wants to secede from Oregon to join Idaho.
It won't pass, but no civil rights movement needs "help" from someone like that.
#ORPol #CripTheVote #ProtectTransKids
It won't pass, but no civil rights movement needs "help" from someone like that.
#ORPol #CripTheVote #ProtectTransKids
February 10, 2025 at 7:19 AM
The rep discussed in this thread is also sponsoring an anti-transgender "biological sex" sports and bathroom bill this year and actually wants to secede from Oregon to join Idaho.
It won't pass, but no civil rights movement needs "help" from someone like that.
#ORPol #CripTheVote #ProtectTransKids
It won't pass, but no civil rights movement needs "help" from someone like that.
#ORPol #CripTheVote #ProtectTransKids
So, you and your colleagues have stopped trying to obstruct the confirmation of people who want to loot and disenfranchise your constituents, and now you're lowering the bar to "answers?"
If broke #disabled people could do more in 1977, so can you.
#PWD - 25 days
Democratic senators - overnight(?)
If broke #disabled people could do more in 1977, so can you.
#PWD - 25 days
Democratic senators - overnight(?)
February 10, 2025 at 6:59 AM
Statement on House Concurrent Resolution 4 (establishing "Ehlers-Danlos Awareness Month" in #Oregon)
OR HRC4 is a performative proposal put forth by a transphobic, anti-choice bigot. "Raising awareness" without action does nothing for the thousands of Oregonians who live with #EDS or other #CTD
1/
OR HRC4 is a performative proposal put forth by a transphobic, anti-choice bigot. "Raising awareness" without action does nothing for the thousands of Oregonians who live with #EDS or other #CTD
1/
February 8, 2025 at 1:22 AM
Thanks for finally doing something.
It's a start, but these shifts must continue until there's no danger to the American people, including our #transgender, #BIPOC, #unhoused, #disabled, and #undocumented siblings.
We need to see that our representatives are willing to do your jobs, which means
It's a start, but these shifts must continue until there's no danger to the American people, including our #transgender, #BIPOC, #unhoused, #disabled, and #undocumented siblings.
We need to see that our representatives are willing to do your jobs, which means
I’ve got the morning shift. This guy is dangerous and unfit to serve and I’m about to explain why. Tune in: www.senate.gov/legislative/...
February 7, 2025 at 2:58 AM
Thanks for finally doing something.
It's a start, but these shifts must continue until there's no danger to the American people, including our #transgender, #BIPOC, #unhoused, #disabled, and #undocumented siblings.
We need to see that our representatives are willing to do your jobs, which means
It's a start, but these shifts must continue until there's no danger to the American people, including our #transgender, #BIPOC, #unhoused, #disabled, and #undocumented siblings.
We need to see that our representatives are willing to do your jobs, which means
Reposted by Oregon RDAC Coalition
The #Oregon #Medicaid budget hearing is tomorrow! Please sign up to testify, if you can. If you can't, please submit written testimony. Details (including a sample letter) in this thread:
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
February 4, 2025 at 8:31 PM
The #Oregon #Medicaid budget hearing is tomorrow! Please sign up to testify, if you can. If you can't, please submit written testimony. Details (including a sample letter) in this thread:
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
Reposted by Oregon RDAC Coalition
Are you a healthcare worker that is still masking? Is it a struggle in your workplace (i.e. does your employer oppose covid precautions)? I want to hear from you for a story I'm writing! DM or email drmegkrausch@gmail.com
#journorequest
#journorequest
January 29, 2025 at 4:10 PM
Are you a healthcare worker that is still masking? Is it a struggle in your workplace (i.e. does your employer oppose covid precautions)? I want to hear from you for a story I'm writing! DM or email drmegkrausch@gmail.com
#journorequest
#journorequest
Matthew Cortland is very good at what they do! Their patreon has a free tier & frequently posts spoon-friendlier calls to action.
#ORLeg #Medicaid hearings start tomorrow but regardless of local outcomes, it is imperative that we also do everything possible to protect Medicaid at the national level
#ORLeg #Medicaid hearings start tomorrow but regardless of local outcomes, it is imperative that we also do everything possible to protect Medicaid at the national level
I don't have fancy branding for this Congressional Medicaid Advocacy Webinar, but what I do have are a very particular set of skills I've acquired and I want to teach you how to advocate for Medicaid with the legislative staff of a Member of Congress or U.S. Senator
2/10 at 4PM ET: Congressional Medicaid Advocacy Webinar | Matthew Cortland
Get more from Matthew Cortland on Patreon
www.patreon.com
February 4, 2025 at 10:05 PM
Reposted by Oregon RDAC Coalition
My staff is hearing reports from Head Start programs in Oregon that they're still locked out of federal funds. My office is doing everything it can to get more info and get funds flowing before providers have to start closing their doors.
February 4, 2025 at 8:43 PM
My staff is hearing reports from Head Start programs in Oregon that they're still locked out of federal funds. My office is doing everything it can to get more info and get funds flowing before providers have to start closing their doors.
The #Oregon #Medicaid budget hearing is tomorrow! Please sign up to testify, if you can. If you can't, please submit written testimony. Details (including a sample letter) in this thread:
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
February 4, 2025 at 8:31 PM
The #Oregon #Medicaid budget hearing is tomorrow! Please sign up to testify, if you can. If you can't, please submit written testimony. Details (including a sample letter) in this thread:
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
#CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs
Unfortunately, I don't expect to notice differences in access (for most of my care), because we've been experiencing an ongoing shortage of local specialists, combined with deliberate discriminatory institutional barriers, for years.
For example, the largest local hospital system has been allowed
For example, the largest local hospital system has been allowed
Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.
February 4, 2025 at 6:45 AM
Unfortunately, I don't expect to notice differences in access (for most of my care), because we've been experiencing an ongoing shortage of local specialists, combined with deliberate discriminatory institutional barriers, for years.
For example, the largest local hospital system has been allowed
For example, the largest local hospital system has been allowed
Reposted by Oregon RDAC Coalition
Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.
February 2, 2025 at 11:47 PM
Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.
#Oregon #Medicaid (Also known as Oregon Health Plan or #OHP)
-Pays rents
-Buys groceries
-Provides air conditioners during heat waves
-Covers all reproductive healthcare
-Covers all gender-affirming care
-Covers mental health services
-Exempts members from all medical bills and prescription costs
-Pays rents
-Buys groceries
-Provides air conditioners during heat waves
-Covers all reproductive healthcare
-Covers all gender-affirming care
-Covers mental health services
-Exempts members from all medical bills and prescription costs
February 4, 2025 at 4:00 AM
Reposted by Oregon RDAC Coalition
The Oregon Legislature is hearing testimony this week regarding the Medicaid Budget for 2025.
Please submit testimony by Feb 5th at 1pm
Sharing a personal story about how Medicaid has helped and we need expansion of coverage.
Link to HB5025 olis.oregonlegislature.gov/.../Overview...
Please submit testimony by Feb 5th at 1pm
Sharing a personal story about how Medicaid has helped and we need expansion of coverage.
Link to HB5025 olis.oregonlegislature.gov/.../Overview...
olis.oregonlegislature.gov
February 4, 2025 at 2:49 AM
The Oregon Legislature is hearing testimony this week regarding the Medicaid Budget for 2025.
Please submit testimony by Feb 5th at 1pm
Sharing a personal story about how Medicaid has helped and we need expansion of coverage.
Link to HB5025 olis.oregonlegislature.gov/.../Overview...
Please submit testimony by Feb 5th at 1pm
Sharing a personal story about how Medicaid has helped and we need expansion of coverage.
Link to HB5025 olis.oregonlegislature.gov/.../Overview...
Reposted by Oregon RDAC Coalition
Please take 30 min to watch this video to understand what's at risk with Medicaid right now. We need people to speak out beyond social media. Use your spoons to take action- reach out if you need help
thearc.org/resource/cal...
thearc.org/resource/cal...
Watch the Webinar: Medicaid Advocacy in 2025
Learn about the growing concern of potential cuts to Medicaid and what you can do to help protect it.
thearc.org
February 4, 2025 at 2:50 AM
Please take 30 min to watch this video to understand what's at risk with Medicaid right now. We need people to speak out beyond social media. Use your spoons to take action- reach out if you need help
thearc.org/resource/cal...
thearc.org/resource/cal...
Hello #Oregon!
If you are, have ever been, or might ever be impoverished and/or #disabled (hint: the longer you live, the more likely it becomes), or consider yourself an #ally to poor and/or disabled people, we have another opportunity for you to help improve #access to care!
Please read on: (🧵)
If you are, have ever been, or might ever be impoverished and/or #disabled (hint: the longer you live, the more likely it becomes), or consider yourself an #ally to poor and/or disabled people, we have another opportunity for you to help improve #access to care!
Please read on: (🧵)
February 4, 2025 at 3:02 AM
#PDX - in case you haven't heard, New Seasons labor is on #strike after management fired their #union treasurer.
Don't be a scab. Don't cross the picket line.
kboo.org/media/125427...
Don't be a scab. Don't cross the picket line.
kboo.org/media/125427...
Portland New Seasons workers strike after their coworker was fired
By John Giacoppe
kboo.org
February 3, 2025 at 1:39 AM
#PDX - in case you haven't heard, New Seasons labor is on #strike after management fired their #union treasurer.
Don't be a scab. Don't cross the picket line.
kboo.org/media/125427...
Don't be a scab. Don't cross the picket line.
kboo.org/media/125427...