Oregon RDAC Coalition
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rarediseaseoregon.bsky.social
Oregon RDAC Coalition
@rarediseaseoregon.bsky.social
42 followers 0 following 84 posts
Social media presence of the patient-led, patient-centered, #CripCoalition working for a Rare Disease Advisory Council in Oregon

Pro-Trans, Pro-BIPOC, Forever.

Links: taplink.cc/rarediseaseoregon

#CripTheVote #DisCo #NEISVoid

#NothingAboutUsWithoutUs
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rarediseaseoregon.bsky.social
Response to attacks on marginalized residents' rights.
Midwest West Coast
Bluesky post by Governor JB Pritzker of Illinois, dated February 6th, 2025 at 9:53AM: "On the day after the election, I made a promise to the people of Illinois: when it comes to threats to our freedom, health, or security, if you come for my people, you come through me." Screenshot showing that Oregon governor Tina Kotek has no Bluesky posts. Additional context: After the 2024 election, Governor Kotek made a statement about looking forward to working with the incoming administration.
February 13, 2025 at 7:42 AM
rarediseaseoregon.bsky.social
So, you and your colleagues have stopped trying to obstruct the confirmation of people who want to loot and disenfranchise your constituents, and now you're lowering the bar to "answers?"

If broke #disabled people could do more in 1977, so can you.

#PWD - 25 days
Democratic senators - overnight(?)
Black text on a white background: "The 504 Sit-in was a disability rights protest that began on April 5, 1977. People with disabilities and the disability community occupied federal buildings in the United States in order to push the issuance of long-delayed regulations regarding Section 504 of the Rehabilitation Act of 1973. Prior to the 1990 enactment of the Americans with Disabilities Act, the Rehabilitation Act was the most important disability rights legislation in the United States." "The more successful sit-in occurred in San Francisco, planned by Judith Heumann, Kitty Cone, and Mary Jane Owen, lasted until May 4, 1977, a total of 25 days, with more than 150 people refusing to leave. It is the longest sit-in at a federal building to date. Close to 120 disability activists and protesters occupied the HEW building."
February 10, 2025 at 6:59 AM
rarediseaseoregon.bsky.social
#CripTheVote
White text on a black background. Text lists the principles of Disability Justice, by SinsInvalid: "10 Principles of Disability Justice INTERSECTIONALITY “We do not live single issue lives” –Audre Lorde. Ableism, coupled with white supremacy, supported by capitalism, underscored by heteropatriarchy, has rendered the vast majority of the world “invalid.” LEADERSHIP OF THOSE MOST IMPACTED “We are led by those who most know these systems.” –Aurora Levins Morales ANTI-CAPITALIST POLITIC In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds. COMMITMENT TO CROSS-MOVEMENT ORGANIZING Shifting how social justice movements understand disability and contextualize ableism, disability justice lends itself to politics of alliance. RECOGNIZING WHOLENESS People have inherent worth outside of commodity relations and capitalist notions of productivity. Each person is full of history and life experience. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. Our embodied experiences guide us toward ongoing justice and liberation. COMMITMENT TO CROSS-DISABILITY SOLIDARITY We honor the insights and participation of all of our community members, knowing that isolation undermines collective liberation. INTERDEPENDENCE We meet each others’ needs as we build toward liberation, knowing that state solutions inevitably extend into further control over lives. COLLECTIVE ACCESS As brown, black and queer-bodied disabled people we bring flexibility and creative nuance that go beyond able-bodied/minded normativity, to be in community with each other. COLLECTIVE LIBERATION No body or mind can be left behind – only moving together can we accomplish the revolution we require."
February 2, 2025 at 2:51 AM
rarediseaseoregon.bsky.social
You can learn more about our project at the links in our bio.

In the meantime, here is our fresh update and CTA

#ORPol #ORLeg #NEISVoid #CripTheVote #DisCo #DisabilityJustice #NothingAboutUsWithoutUs
Flyer for the Oregon Rare Disease Advisory Council Cripple Coalition's August 2024 Update and Calls to Action. Three white-outlined, black boxes, with white text, on a light and dark grey zebra patterned background. The bottom box is shaped like the state of Oregon. Text in the top box: "AUGUST 2024 UPDATE. The coalition has found a new bill sponsor and will be submitting for the 2025 session" Text in the middle box: "Calls to Action" Text in the bottom box: "1 - Disabled Oregonians: Please provide feedback on our draft bill; help us accurately represent your needs! 2 - Disabled Oregonians & Allies: Please join our coalition! 3 - Disabled Oregonians & Allies: Please share w/your communities!"
August 9, 2024 at 9:28 AM