EssJay PURPLE PURPOSE
@purplepurpose.bsky.social
Advocating progress on #PancreasCancer, #BRCA, support for carers. Partner survived #PDAC 8+ yrs at MSKCC. Law (JD); science, & the sea. #StandUpForScience #PancreaticCancer
Pinned
The principle of Gothic architecture is infinity made imaginable.
- Samuel Taylor Coleridge
- Samuel Taylor Coleridge
RIP Mark Greenberg, who died of Pancreas Cancer (Acinar type) yesterday, on World Pancreatic Cancer Day. NYC/Miami based musician/actor, he was doing & feeling well, said he had just “completed” chemo, & was positive & forward looking.
Via pancan.org Symptoms & risk factors ⬇️
Via pancan.org Symptoms & risk factors ⬇️
November 21, 2025 at 4:47 PM
RIP Mark Greenberg, who died of Pancreas Cancer (Acinar type) yesterday, on World Pancreatic Cancer Day. NYC/Miami based musician/actor, he was doing & feeling well, said he had just “completed” chemo, & was positive & forward looking.
Via pancan.org Symptoms & risk factors ⬇️
Via pancan.org Symptoms & risk factors ⬇️
Reposted by EssJay PURPLE PURPOSE
#HelloPancreas! 💜 It's World Pancreatic Cancer Day—a day to spread awareness about #PancreaticCancer risks & symptoms.
United, progress is possible! Learn more at Lustgarten.org/PCAM
#WPCD #PCAM
United, progress is possible! Learn more at Lustgarten.org/PCAM
#WPCD #PCAM
November 20, 2025 at 1:36 PM
#HelloPancreas! 💜 It's World Pancreatic Cancer Day—a day to spread awareness about #PancreaticCancer risks & symptoms.
United, progress is possible! Learn more at Lustgarten.org/PCAM
#WPCD #PCAM
United, progress is possible! Learn more at Lustgarten.org/PCAM
#WPCD #PCAM
🟣 November is Pancreas Cancer Awareness Month 🟣
…...and today is World #PancreaticCancer Day!
Remembering those who lost their lives 2 pancreatic cancer since #WPCD 2024, & remembering J. Investment in science is crucial for a deeper understanding of PDAC & more treatments. Thank you scientists!
…...and today is World #PancreaticCancer Day!
Remembering those who lost their lives 2 pancreatic cancer since #WPCD 2024, & remembering J. Investment in science is crucial for a deeper understanding of PDAC & more treatments. Thank you scientists!
November 20, 2025 at 1:12 PM
🟣 November is Pancreas Cancer Awareness Month 🟣
…...and today is World #PancreaticCancer Day!
Remembering those who lost their lives 2 pancreatic cancer since #WPCD 2024, & remembering J. Investment in science is crucial for a deeper understanding of PDAC & more treatments. Thank you scientists!
…...and today is World #PancreaticCancer Day!
Remembering those who lost their lives 2 pancreatic cancer since #WPCD 2024, & remembering J. Investment in science is crucial for a deeper understanding of PDAC & more treatments. Thank you scientists!
🟣 November is Pancreas Cancer Awareness Month 🟣
Symptoms of #PancreaticCancer can be vague. J was tired & depressed for about 6 mos; then had pain in his upper belly. Original diagnosis was gastritis. We persisted & he was eventually diagnosed with #PDAC, staged at 2B. Trust your instincts!
Symptoms of #PancreaticCancer can be vague. J was tired & depressed for about 6 mos; then had pain in his upper belly. Original diagnosis was gastritis. We persisted & he was eventually diagnosed with #PDAC, staged at 2B. Trust your instincts!
November 19, 2025 at 1:46 PM
🟣 November is Pancreas Cancer Awareness Month 🟣
Symptoms of #PancreaticCancer can be vague. J was tired & depressed for about 6 mos; then had pain in his upper belly. Original diagnosis was gastritis. We persisted & he was eventually diagnosed with #PDAC, staged at 2B. Trust your instincts!
Symptoms of #PancreaticCancer can be vague. J was tired & depressed for about 6 mos; then had pain in his upper belly. Original diagnosis was gastritis. We persisted & he was eventually diagnosed with #PDAC, staged at 2B. Trust your instincts!
Reposted by EssJay PURPLE PURPOSE
@murray.senate.gov @cantwell.senate.gov please demand that @jenna-m-norton.bsky.social is reinstated! Bethesda Declaration signers were promised they'd not be targeted!
NIH program officer @jenna-m-norton.bsky.social has been placed on admin leave, sources say.
Norton has been outspoken about the Trump administration's dismantling of science, and she signed the Bethesda Declaration.
Bhattacharya has said that "science is dead without free speech".
Norton has been outspoken about the Trump administration's dismantling of science, and she signed the Bethesda Declaration.
Bhattacharya has said that "science is dead without free speech".
November 13, 2025 at 10:11 PM
@murray.senate.gov @cantwell.senate.gov please demand that @jenna-m-norton.bsky.social is reinstated! Bethesda Declaration signers were promised they'd not be targeted!
Via pancan.org
Jaclyn was 35 years at the time of her stage IV pancreas cancer diagnosis. Currently taking a targeted therapy for people with a rare alteration in their tumor called NRG1 fusion-positive, she points to her story as proof that research does change lives. ⬇️
pancan.org/stories/surv...
Jaclyn was 35 years at the time of her stage IV pancreas cancer diagnosis. Currently taking a targeted therapy for people with a rare alteration in their tumor called NRG1 fusion-positive, she points to her story as proof that research does change lives. ⬇️
pancan.org/stories/surv...
Survivor Advocates for Research, More Treatment Options
As someone currently on the one FDA-approved targeted therapy recently made available to people with a rare alteration in their tumor called NRG1 fusion-positive, Jaclyn Hayes points to her story as p...
pancan.org
November 14, 2025 at 11:17 PM
Via pancan.org
Jaclyn was 35 years at the time of her stage IV pancreas cancer diagnosis. Currently taking a targeted therapy for people with a rare alteration in their tumor called NRG1 fusion-positive, she points to her story as proof that research does change lives. ⬇️
pancan.org/stories/surv...
Jaclyn was 35 years at the time of her stage IV pancreas cancer diagnosis. Currently taking a targeted therapy for people with a rare alteration in their tumor called NRG1 fusion-positive, she points to her story as proof that research does change lives. ⬇️
pancan.org/stories/surv...
Via lustgarten.org
I well remember when J had somatic & germline testing for his Pancreas Cancer. We were told there were plenty of pipeline treatments for his BRCA defect, but KRAS remained elusive. This was not so very long ago. Pancreatic Cancer Progress! ⬇️
lustgarten.org/from-undrugg...
I well remember when J had somatic & germline testing for his Pancreas Cancer. We were told there were plenty of pipeline treatments for his BRCA defect, but KRAS remained elusive. This was not so very long ago. Pancreatic Cancer Progress! ⬇️
lustgarten.org/from-undrugg...
From Undruggable to Unstoppable: The State of KRAS Drug Development in Pancreatic Cancer
WHAT KRAS MEANS AND WHY IT MATTERS KRAS is what scientists call an oncogene – a gene that, when mutated, can promote uncontrolled cell growth and lead to cancer. In […]
lustgarten.org
November 14, 2025 at 2:13 PM
Via lustgarten.org
I well remember when J had somatic & germline testing for his Pancreas Cancer. We were told there were plenty of pipeline treatments for his BRCA defect, but KRAS remained elusive. This was not so very long ago. Pancreatic Cancer Progress! ⬇️
lustgarten.org/from-undrugg...
I well remember when J had somatic & germline testing for his Pancreas Cancer. We were told there were plenty of pipeline treatments for his BRCA defect, but KRAS remained elusive. This was not so very long ago. Pancreatic Cancer Progress! ⬇️
lustgarten.org/from-undrugg...
If I hear a reference to golden ballrooms & Gatsby parties ONE MORE TIME I’ll scream. We KNOW he’s gross & malignant! It’s his flagrant breaking of laws, snatching food from citizens, gutting health & science, exploding boats, seizing & incarcerating people without due process that we need 2 discuss
November 13, 2025 at 10:06 PM
If I hear a reference to golden ballrooms & Gatsby parties ONE MORE TIME I’ll scream. We KNOW he’s gross & malignant! It’s his flagrant breaking of laws, snatching food from citizens, gutting health & science, exploding boats, seizing & incarcerating people without due process that we need 2 discuss
Reposted by EssJay PURPLE PURPOSE
Primary all of these buffoons.
November 10, 2025 at 5:49 PM
Primary all of these buffoons.
Dems had all the momentum and they blew it. And since they’re terrible at messaging, they will gain nothing in exchange for giving in. #Disgusted
This is a bad deal, and the old way of doing things is clearly not working.
We need new leaders in the Senate.
We need new leaders in the Senate.
November 10, 2025 at 4:11 PM
Dems had all the momentum and they blew it. And since they’re terrible at messaging, they will gain nothing in exchange for giving in. #Disgusted
Across the US, oncologists are discovering that one of their greatest challenges isn’t just fighting tumors but navigating a lucrative global wellness universe that has captured the imagination of patients. Much of the advice is inaccurate, even harmful.
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
Cancer Misinformation: When Influencers Co-Opt Care
Experts explore the messy intersection between evidence-based cancer care and an enticing wellness industry dominated by social media influencers who often spread cancer misinformation.
www.medscape.com
November 10, 2025 at 3:41 PM
Across the US, oncologists are discovering that one of their greatest challenges isn’t just fighting tumors but navigating a lucrative global wellness universe that has captured the imagination of patients. Much of the advice is inaccurate, even harmful.
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
(I submit that “Pavlovian” is or should be a Spelling Bee word)
November 10, 2025 at 1:48 PM
(I submit that “Pavlovian” is or should be a Spelling Bee word)
This is sobering. Surely we can find a way to do better for cancer patients.
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
Chemotherapy Drug Shortages Become Cancer-Care Reality
Shortages to backbone chemotherapy drugs are negatively affecting patient care, and more shortages are likely without policy solutions, experts say.
www.medscape.com
November 5, 2025 at 1:58 PM
This is sobering. Surely we can find a way to do better for cancer patients.
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
🟣 November is Pancreas Cancer Awareness Month 🟣
At pancan.org, your gift can go twice as far, thanks to a $100,000 challenge gift. Every dollar helps raise awareness, fuel research and support patients & families.
pancan.org?form=FUNWNRT...
At pancan.org, your gift can go twice as far, thanks to a $100,000 challenge gift. Every dollar helps raise awareness, fuel research and support patients & families.
pancan.org?form=FUNWNRT...
Pancreatic Cancer Action Network – Research, Patient Support, Resources
We're the national organization providing support, resources, volunteer opportunities and hope for people fighting pancreatic cancer.
pancan.org
November 5, 2025 at 1:48 PM
🟣 November is Pancreas Cancer Awareness Month 🟣
At pancan.org, your gift can go twice as far, thanks to a $100,000 challenge gift. Every dollar helps raise awareness, fuel research and support patients & families.
pancan.org?form=FUNWNRT...
At pancan.org, your gift can go twice as far, thanks to a $100,000 challenge gift. Every dollar helps raise awareness, fuel research and support patients & families.
pancan.org?form=FUNWNRT...
🟣 November is Pancreas Cancer Awareness Month 🟣
Poppy lost both her father and young husband to pancreas cancer. Read her story of love, loss, and the leap she’s taking in memory of two men she loved, via pancreaticcanceraction.org
pancreaticcanceraction.org/case-studies...
Poppy lost both her father and young husband to pancreas cancer. Read her story of love, loss, and the leap she’s taking in memory of two men she loved, via pancreaticcanceraction.org
pancreaticcanceraction.org/case-studies...
Poppy Bruford's story
Poppy’s Story of love, loss, and leaping this Pancreatic Cancer Awareness Month. She shares her moving story of losing her dad and her husband, Rob Roots, to pancreatic cancer.
pancreaticcanceraction.org
November 4, 2025 at 12:52 PM
🟣 November is Pancreas Cancer Awareness Month 🟣
Poppy lost both her father and young husband to pancreas cancer. Read her story of love, loss, and the leap she’s taking in memory of two men she loved, via pancreaticcanceraction.org
pancreaticcanceraction.org/case-studies...
Poppy lost both her father and young husband to pancreas cancer. Read her story of love, loss, and the leap she’s taking in memory of two men she loved, via pancreaticcanceraction.org
pancreaticcanceraction.org/case-studies...
🟣 November means Pancreas Cancer Awareness! 🟣
Via Pancan.org Research Roundtable Webinar: Advancements in Earlier Detection of Pancreatic Cancer.
20 November 11 am PT / 2 pm ET. Register here ⬇️
pancan.org/facing-pancr...
Via Pancan.org Research Roundtable Webinar: Advancements in Earlier Detection of Pancreatic Cancer.
20 November 11 am PT / 2 pm ET. Register here ⬇️
pancan.org/facing-pancr...
Research Roundtable: Advancements in Earlier Detection of Pancreatic Cancer - Thursday, 11/20
Join PanCAN on World Pancreatic Cancer Day, November 20, at 11 a.m. PT / 2 p.m. ET, for a free webinar featuring top scientists and leaders in the field talking about the latest advances in testing an...
pancan.org
November 3, 2025 at 4:18 PM
🟣 November means Pancreas Cancer Awareness! 🟣
Via Pancan.org Research Roundtable Webinar: Advancements in Earlier Detection of Pancreatic Cancer.
20 November 11 am PT / 2 pm ET. Register here ⬇️
pancan.org/facing-pancr...
Via Pancan.org Research Roundtable Webinar: Advancements in Earlier Detection of Pancreatic Cancer.
20 November 11 am PT / 2 pm ET. Register here ⬇️
pancan.org/facing-pancr...
🟣November is Pancreas Cancer Awareness Month🟣
PDAC is the 3rd leading cause of cancer death in the US & is projected to be 2nd by 2030. Survival improved from 4% in 1998 to 13% in 2025, thru efforts like those of Lustgarten.org, the largest private funder of pancreas research.
lustgarten.org/pcam/
PDAC is the 3rd leading cause of cancer death in the US & is projected to be 2nd by 2030. Survival improved from 4% in 1998 to 13% in 2025, thru efforts like those of Lustgarten.org, the largest private funder of pancreas research.
lustgarten.org/pcam/
Pancreatic Cancer Awareness Month
Learn about Pancreatic Cancer and support research breakthroughs during Pancreatic Cancer Awareness Month with Lustgarten Foundation.
lustgarten.org
November 1, 2025 at 1:55 PM
🟣November is Pancreas Cancer Awareness Month🟣
PDAC is the 3rd leading cause of cancer death in the US & is projected to be 2nd by 2030. Survival improved from 4% in 1998 to 13% in 2025, thru efforts like those of Lustgarten.org, the largest private funder of pancreas research.
lustgarten.org/pcam/
PDAC is the 3rd leading cause of cancer death in the US & is projected to be 2nd by 2030. Survival improved from 4% in 1998 to 13% in 2025, thru efforts like those of Lustgarten.org, the largest private funder of pancreas research.
lustgarten.org/pcam/
Reposted by EssJay PURPLE PURPOSE
I might make this my ring tone.
"I DON'T NEED YOU TO FUCKING REWRITE WHAT I'VE JUST WRITTEN!"
October 28, 2025 at 8:00 PM
I might make this my ring tone.
Via Lustgarten.org
Pancreatic cancer is often diagnosed late — but what if we could catch it earlier, when it’s still curable? A Live-streamed symposium Nov 19 “Unlocking Early Detection.” Register here! ⬇️
events.zoom.us/ev/Aok47nnHF...
Pancreatic cancer is often diagnosed late — but what if we could catch it earlier, when it’s still curable? A Live-streamed symposium Nov 19 “Unlocking Early Detection.” Register here! ⬇️
events.zoom.us/ev/Aok47nnHF...
Unlocking Early Detection: From Precancerous Clues to AI-Driven Discovery
events.zoom.us
October 30, 2025 at 6:06 PM
Via Lustgarten.org
Pancreatic cancer is often diagnosed late — but what if we could catch it earlier, when it’s still curable? A Live-streamed symposium Nov 19 “Unlocking Early Detection.” Register here! ⬇️
events.zoom.us/ev/Aok47nnHF...
Pancreatic cancer is often diagnosed late — but what if we could catch it earlier, when it’s still curable? A Live-streamed symposium Nov 19 “Unlocking Early Detection.” Register here! ⬇️
events.zoom.us/ev/Aok47nnHF...
Via foodbanknyc.org
The work of veteran Darryl will inspire you. Maybe it will make you cry. How do we manage our anger & outrage that millions of our fellow citizens are hungry, many of them the working poor? Volunteer, donate, pitch in. It’s the least we can do.
www.foodbanknyc.org/news-and-sto...
The work of veteran Darryl will inspire you. Maybe it will make you cry. How do we manage our anger & outrage that millions of our fellow citizens are hungry, many of them the working poor? Volunteer, donate, pitch in. It’s the least we can do.
www.foodbanknyc.org/news-and-sto...
"No Veteran Forgotten" - Food Bank For NYC
See how Darryl keeps serving his fellow vets at Food Bank For NYC's member agency in East Harlem — and how you can help fuel his mission.
www.foodbanknyc.org
October 28, 2025 at 8:54 PM
Via foodbanknyc.org
The work of veteran Darryl will inspire you. Maybe it will make you cry. How do we manage our anger & outrage that millions of our fellow citizens are hungry, many of them the working poor? Volunteer, donate, pitch in. It’s the least we can do.
www.foodbanknyc.org/news-and-sto...
The work of veteran Darryl will inspire you. Maybe it will make you cry. How do we manage our anger & outrage that millions of our fellow citizens are hungry, many of them the working poor? Volunteer, donate, pitch in. It’s the least we can do.
www.foodbanknyc.org/news-and-sto...
NYPL.org has more than just books! Lectures, recitals, field trips, & classes in everything from tech, citizenship, music, history, writing, sciences, ESL, ASL, smart aging, design, art history, crafts, painting, sculpture. Your donation is doubled thru Hallowe'en ⬇️
secure.nypl.org/site/Donatio...
secure.nypl.org/site/Donatio...
Donate to the Library during the Double Match
All donations will be matched.
secure.nypl.org
October 28, 2025 at 3:56 PM
NYPL.org has more than just books! Lectures, recitals, field trips, & classes in everything from tech, citizenship, music, history, writing, sciences, ESL, ASL, smart aging, design, art history, crafts, painting, sculpture. Your donation is doubled thru Hallowe'en ⬇️
secure.nypl.org/site/Donatio...
secure.nypl.org/site/Donatio...
J had a lot of fun singing — and this was the last song we sang together — in hospice — 2 days before he died. I recorded him on my phone (my eyes only) and rarely go there, but I’m feeling some deep nostalgia this evening.
Two versions, Beach Boys + Beach Boys with Corrs
youtu.be/NADx3-qRxek
Two versions, Beach Boys + Beach Boys with Corrs
youtu.be/NADx3-qRxek
The Beach Boys - God Only Knows (Official Music Video)
YouTube video by TheBeachBoysVEVO
youtu.be
October 28, 2025 at 12:00 AM
J had a lot of fun singing — and this was the last song we sang together — in hospice — 2 days before he died. I recorded him on my phone (my eyes only) and rarely go there, but I’m feeling some deep nostalgia this evening.
Two versions, Beach Boys + Beach Boys with Corrs
youtu.be/NADx3-qRxek
Two versions, Beach Boys + Beach Boys with Corrs
youtu.be/NADx3-qRxek
WHERE DID THE MONEY GO?!
The admin halted money — with OMB declining to activate funds meant for agencies, & with DOGE or agencies cancelling work that had already been contracted. As a result, $ was blocked for emergency food & shelter, public health research, etc⬇️
www.nytimes.com/2025/10/11/u...
The admin halted money — with OMB declining to activate funds meant for agencies, & with DOGE or agencies cancelling work that had already been contracted. As a result, $ was blocked for emergency food & shelter, public health research, etc⬇️
www.nytimes.com/2025/10/11/u...
Not Even Congress Knows How Much Money DOGE Cut
www.nytimes.com
October 27, 2025 at 1:04 PM
WHERE DID THE MONEY GO?!
The admin halted money — with OMB declining to activate funds meant for agencies, & with DOGE or agencies cancelling work that had already been contracted. As a result, $ was blocked for emergency food & shelter, public health research, etc⬇️
www.nytimes.com/2025/10/11/u...
The admin halted money — with OMB declining to activate funds meant for agencies, & with DOGE or agencies cancelling work that had already been contracted. As a result, $ was blocked for emergency food & shelter, public health research, etc⬇️
www.nytimes.com/2025/10/11/u...
Coming up: November is Pancreas Cancer Awareness Month!
Via pancan.org
Biomarker testing leads ro a new treatment option for a young mother with pancreatic cancer. Read her amazing story of hope and resilience here ⬇️
pancan.org/stories/surv...
Via pancan.org
Biomarker testing leads ro a new treatment option for a young mother with pancreatic cancer. Read her amazing story of hope and resilience here ⬇️
pancan.org/stories/surv...
Survivor Advocates for Research, More Treatment Options
As someone currently on the one FDA-approved targeted therapy recently made available to people with a rare alteration in their tumor called NRG1 fusion-positive, Jaclyn Hayes points to her story as p...
pancan.org
October 25, 2025 at 1:17 PM
Coming up: November is Pancreas Cancer Awareness Month!
Via pancan.org
Biomarker testing leads ro a new treatment option for a young mother with pancreatic cancer. Read her amazing story of hope and resilience here ⬇️
pancan.org/stories/surv...
Via pancan.org
Biomarker testing leads ro a new treatment option for a young mother with pancreatic cancer. Read her amazing story of hope and resilience here ⬇️
pancan.org/stories/surv...