Sarah
@no1sarah.bsky.social
She/her.
♿️
🏳️🌈🏳️⚧️ ally
In healthier times: Health & social care; homelessness & housing.
Music, music, music. 🎶
Mostly here to connect with
#LongCovid
#MECFS
#ChronicIllness
#Dysautonomia
#hEDS
#MCAS
Kent, UK
♿️
🏳️🌈🏳️⚧️ ally
In healthier times: Health & social care; homelessness & housing.
Music, music, music. 🎶
Mostly here to connect with
#LongCovid
#MECFS
#ChronicIllness
#Dysautonomia
#hEDS
#MCAS
Kent, UK
Reposted by Sarah
The UK’s laziest Councillor?
Reform UK’s Councillor Shaun Knowles in Northumberland has been paid £9340.67 since becoming a councillor.
An FOI has shown he’s sent 2, TWO emails since May!
He’s attended just 1 meeting (in Sept) since elected.
Reform UK wasting tax payer money.
Reform UK’s Councillor Shaun Knowles in Northumberland has been paid £9340.67 since becoming a councillor.
An FOI has shown he’s sent 2, TWO emails since May!
He’s attended just 1 meeting (in Sept) since elected.
Reform UK wasting tax payer money.
December 3, 2025 at 5:32 PM
The UK’s laziest Councillor?
Reform UK’s Councillor Shaun Knowles in Northumberland has been paid £9340.67 since becoming a councillor.
An FOI has shown he’s sent 2, TWO emails since May!
He’s attended just 1 meeting (in Sept) since elected.
Reform UK wasting tax payer money.
Reform UK’s Councillor Shaun Knowles in Northumberland has been paid £9340.67 since becoming a councillor.
An FOI has shown he’s sent 2, TWO emails since May!
He’s attended just 1 meeting (in Sept) since elected.
Reform UK wasting tax payer money.
Reposted by Sarah
Honestly, this idea that it's "cheaters" who make disability accommodations, SSDI, etc etc tougher is nonsense. The number of people gaming the system is always, ALWAYS dwarfed by the people who need accommodations and don't get them.
Why?
Because that's how the system is designed!
Why?
Because that's how the system is designed!
December 3, 2025 at 3:43 PM
Honestly, this idea that it's "cheaters" who make disability accommodations, SSDI, etc etc tougher is nonsense. The number of people gaming the system is always, ALWAYS dwarfed by the people who need accommodations and don't get them.
Why?
Because that's how the system is designed!
Why?
Because that's how the system is designed!
Reposted by Sarah
“The problem with Long COVID is that most of society would rather not see it.”
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
December 1, 2025 at 6:04 PM
“The problem with Long COVID is that most of society would rather not see it.”
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
Reposted by Sarah
It's World AIDS Day today. Today we recognise the life-saving effect access to education, testing and PrEP has had on reducing new HIV transmissions.
💚 @greenparty.org.uk is committed to ending new HIV transmissions by 2030.
💊 Want or need access to PrEP? Find your nearest NHS Sexual Health Clinic.
💚 @greenparty.org.uk is committed to ending new HIV transmissions by 2030.
💊 Want or need access to PrEP? Find your nearest NHS Sexual Health Clinic.
December 1, 2025 at 10:31 AM
It's World AIDS Day today. Today we recognise the life-saving effect access to education, testing and PrEP has had on reducing new HIV transmissions.
💚 @greenparty.org.uk is committed to ending new HIV transmissions by 2030.
💊 Want or need access to PrEP? Find your nearest NHS Sexual Health Clinic.
💚 @greenparty.org.uk is committed to ending new HIV transmissions by 2030.
💊 Want or need access to PrEP? Find your nearest NHS Sexual Health Clinic.
Reposted by Sarah
It was six years ago today that a man in Wuhan, China began feeling ill.
He would become the first known COVID case.
Covid is still with us. It’s still killing and disabling.
Clean the air. Wear a mask. Get your boosters.
Public health is a social justice issue.
He would become the first known COVID case.
Covid is still with us. It’s still killing and disabling.
Clean the air. Wear a mask. Get your boosters.
Public health is a social justice issue.
November 30, 2025 at 11:11 PM
It was six years ago today that a man in Wuhan, China began feeling ill.
He would become the first known COVID case.
Covid is still with us. It’s still killing and disabling.
Clean the air. Wear a mask. Get your boosters.
Public health is a social justice issue.
He would become the first known COVID case.
Covid is still with us. It’s still killing and disabling.
Clean the air. Wear a mask. Get your boosters.
Public health is a social justice issue.
Reposted by Sarah
A year ago today we welcomed members of CATA (Covid Airborne Transmission Alliance) including @kamgadhok.bsky.social @barryjmjones.bsky.social and @safedavid3.bsky.social
to the wall. They continue to highlight the UK failure to protect healthcare workers from life-changing respiratory diseases.❤️
to the wall. They continue to highlight the UK failure to protect healthcare workers from life-changing respiratory diseases.❤️
November 28, 2025 at 8:59 AM
A year ago today we welcomed members of CATA (Covid Airborne Transmission Alliance) including @kamgadhok.bsky.social @barryjmjones.bsky.social and @safedavid3.bsky.social
to the wall. They continue to highlight the UK failure to protect healthcare workers from life-changing respiratory diseases.❤️
to the wall. They continue to highlight the UK failure to protect healthcare workers from life-changing respiratory diseases.❤️
Reposted by Sarah
I'm a little sick haha
Yeah everyone is sick right now it's crazy
Yeah everyone is sick right now it's crazy
January 10, 2025 at 1:21 AM
I'm a little sick haha
Yeah everyone is sick right now it's crazy
Yeah everyone is sick right now it's crazy
Reposted by Sarah
The policy implications are clear. We need:
✅ Clean Air in schools so kids don't catch #Covid several times a year
✅ To direct JCVI to look again at the costs & benefits of vaccinating kids, including #LongCovid risks
✅ Free vax access
✅ Honest communication of real & serious risks to kids.
✅ Clean Air in schools so kids don't catch #Covid several times a year
✅ To direct JCVI to look again at the costs & benefits of vaccinating kids, including #LongCovid risks
✅ Free vax access
✅ Honest communication of real & serious risks to kids.
New Data Shows COVID-19 Infection Much Worse For Children Than the Vaccine
"The risk following vaccination is substantially lower than the risk following infection".
www.zmescience.com
November 29, 2025 at 8:02 PM
The policy implications are clear. We need:
✅ Clean Air in schools so kids don't catch #Covid several times a year
✅ To direct JCVI to look again at the costs & benefits of vaccinating kids, including #LongCovid risks
✅ Free vax access
✅ Honest communication of real & serious risks to kids.
✅ Clean Air in schools so kids don't catch #Covid several times a year
✅ To direct JCVI to look again at the costs & benefits of vaccinating kids, including #LongCovid risks
✅ Free vax access
✅ Honest communication of real & serious risks to kids.
"The government doesn't have to first find the money before it spends it."
If only this were said more often, so it was more widely understood.
If only this were said more often, so it was more widely understood.
Isn't it refreshing when someone actually does nuance and detail?
H/t @andyverity.bsky.social at the BBC!
H/t @andyverity.bsky.social at the BBC!
November 29, 2025 at 9:55 AM
"The government doesn't have to first find the money before it spends it."
If only this were said more often, so it was more widely understood.
If only this were said more often, so it was more widely understood.
This is a great piece about the distancing of others that happens when you are sick.
When I became sick, other people's behaviour was almost as shocking to me as the illness itself. It's articulated so well here:
thesicktimes.org/2025/11/28/y...
When I became sick, other people's behaviour was almost as shocking to me as the illness itself. It's articulated so well here:
thesicktimes.org/2025/11/28/y...
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
thesicktimes.org
November 28, 2025 at 8:16 PM
This is a great piece about the distancing of others that happens when you are sick.
When I became sick, other people's behaviour was almost as shocking to me as the illness itself. It's articulated so well here:
thesicktimes.org/2025/11/28/y...
When I became sick, other people's behaviour was almost as shocking to me as the illness itself. It's articulated so well here:
thesicktimes.org/2025/11/28/y...
Reposted by Sarah
My hotel in Hong Kong, where people understand airborne transmission of respiratory viruses, has HEPA filters everywhere
November 27, 2025 at 11:30 PM
My hotel in Hong Kong, where people understand airborne transmission of respiratory viruses, has HEPA filters everywhere
Reposted by Sarah
I wrote about systemic medical bias, chocolate medals and Eamonn Holmes
Diagnosed but not believed: Autistic women and the medical gaze
A GP I met for the first time three minutes ago is glancing over my electronic health record, trying to match it with the woman before him…
medium.com
November 27, 2025 at 10:26 AM
I wrote about systemic medical bias, chocolate medals and Eamonn Holmes
Reposted by Sarah
A reminder
"Taking luxury cars out of disability" saves the taxpayer ZERO. Disabled people pay the cost difference themselves.
It also means they can't get a replacement car guarantee. So if you're disabled, you won't be able to get to work if your car breaks down.
#reeves #budget #disability
"Taking luxury cars out of disability" saves the taxpayer ZERO. Disabled people pay the cost difference themselves.
It also means they can't get a replacement car guarantee. So if you're disabled, you won't be able to get to work if your car breaks down.
#reeves #budget #disability
November 26, 2025 at 4:14 PM
A reminder
"Taking luxury cars out of disability" saves the taxpayer ZERO. Disabled people pay the cost difference themselves.
It also means they can't get a replacement car guarantee. So if you're disabled, you won't be able to get to work if your car breaks down.
#reeves #budget #disability
"Taking luxury cars out of disability" saves the taxpayer ZERO. Disabled people pay the cost difference themselves.
It also means they can't get a replacement car guarantee. So if you're disabled, you won't be able to get to work if your car breaks down.
#reeves #budget #disability
Reposted by Sarah
There's an advert on his website for a 'Depot Supervisor' that pays £12.75 an hour for shift work.
If he wants to reduce welfare spending maybe he should pay staff enough that they don't need in-work benefits.
If he wants to reduce welfare spending maybe he should pay staff enough that they don't need in-work benefits.
‘Madness’ to increase welfare spending in Budget, says AO World boss
‘Madness’ to increase welfare spending in Budget, says AO World boss
‘Madness’ to increase welfare spending in Budget, says AO World boss
www.independent.co.uk
November 25, 2025 at 12:46 PM
There's an advert on his website for a 'Depot Supervisor' that pays £12.75 an hour for shift work.
If he wants to reduce welfare spending maybe he should pay staff enough that they don't need in-work benefits.
If he wants to reduce welfare spending maybe he should pay staff enough that they don't need in-work benefits.
Reposted by Sarah
Sorry, what now? Personally I tend to think this government suggesting scrapping the right to appeal is potentially an even bigger issue with Lammy's reported proposals than the idiotic idea of getting rid of juries. This would be dangerous territory. #r4today
solicitornews.co.uk/lammy-jury-t...
solicitornews.co.uk/lammy-jury-t...
November 26, 2025 at 6:56 AM
Sorry, what now? Personally I tend to think this government suggesting scrapping the right to appeal is potentially an even bigger issue with Lammy's reported proposals than the idiotic idea of getting rid of juries. This would be dangerous territory. #r4today
solicitornews.co.uk/lammy-jury-t...
solicitornews.co.uk/lammy-jury-t...
Reposted by Sarah
I wrote this piece about Trudi Warner and why juries are an important part of our constitution in April last year. I think particularly worth reading today.
goodlawproject.org/high-court-s...
goodlawproject.org/high-court-s...
High Court slaps down ‘fanciful’ prosecution of Trudi Warner | Good Law Project
Judge rules that the solicitor general ‘mischaracterised’ the evidence when he charged Warner with contempt of court for holding up a placard.
goodlawproject.org
November 25, 2025 at 9:57 PM
I wrote this piece about Trudi Warner and why juries are an important part of our constitution in April last year. I think particularly worth reading today.
goodlawproject.org/high-court-s...
goodlawproject.org/high-court-s...
Reposted by Sarah
Debate today with a Labour MP on the economy.
Also with a former advisor to George Osborne.
Very striking how much Labour & the Tories agree on our economic system.
Time for change. Let's make hope normal again. Enjoy! 🙌🏼👇🏼
youtu.be/1onr7pAEFRE?...
Also with a former advisor to George Osborne.
Very striking how much Labour & the Tories agree on our economic system.
Time for change. Let's make hope normal again. Enjoy! 🙌🏼👇🏼
youtu.be/1onr7pAEFRE?...
Is Labour being outflanked by Polanski and Farage? Reeves budget debate
YouTube video by Channel 4 News
youtu.be
November 24, 2025 at 5:38 PM
Debate today with a Labour MP on the economy.
Also with a former advisor to George Osborne.
Very striking how much Labour & the Tories agree on our economic system.
Time for change. Let's make hope normal again. Enjoy! 🙌🏼👇🏼
youtu.be/1onr7pAEFRE?...
Also with a former advisor to George Osborne.
Very striking how much Labour & the Tories agree on our economic system.
Time for change. Let's make hope normal again. Enjoy! 🙌🏼👇🏼
youtu.be/1onr7pAEFRE?...
Reposted by Sarah
"Fuck people who try to reshape the folklore and folk culture of Britain into a bullshit narrative that suits their racist ideology!"
November 24, 2025 at 7:32 AM
"Fuck people who try to reshape the folklore and folk culture of Britain into a bullshit narrative that suits their racist ideology!"
Reposted by Sarah
I suppose the only other factor is that more exertion doesn't expand what you're capable of, the way it does for healthy people. Try to push at that 'border' at which PEM occurs, and you get PEM, period.
November 21, 2025 at 9:29 PM
I suppose the only other factor is that more exertion doesn't expand what you're capable of, the way it does for healthy people. Try to push at that 'border' at which PEM occurs, and you get PEM, period.
Reposted by Sarah
Sometimes I forget that normies don’t understand the “possible permanent decline” part. Yes, getting sick after basic tasks is terrible enough. But we want to LIVE. If we could assuredly recover we’d do ALL THE THINGS, get sick, recover & repeat. That alone would be life-changing. #MECFS #LongCovid
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
November 21, 2025 at 4:31 PM
Sometimes I forget that normies don’t understand the “possible permanent decline” part. Yes, getting sick after basic tasks is terrible enough. But we want to LIVE. If we could assuredly recover we’d do ALL THE THINGS, get sick, recover & repeat. That alone would be life-changing. #MECFS #LongCovid
Reposted by Sarah
PEM is not a single symptom; it's a pathological state in which response to exertion is shock-like: drops in BP, drops in oxygenation, drops in HR, drops in temp, transient drops in cognitive ability.
And doing exercise more, or harder, or more often does not alter the nature of the response.
And doing exercise more, or harder, or more often does not alter the nature of the response.
November 21, 2025 at 3:56 PM
PEM is not a single symptom; it's a pathological state in which response to exertion is shock-like: drops in BP, drops in oxygenation, drops in HR, drops in temp, transient drops in cognitive ability.
And doing exercise more, or harder, or more often does not alter the nature of the response.
And doing exercise more, or harder, or more often does not alter the nature of the response.
Reposted by Sarah
Deadline: 12 December. If everyone who lost a job or knows someone who lost a job in the #NHS to #LongCovid responded, maybe the NHS could rethink exposing its workers to #Covid with no PPE. Roughly 1 in 3 people losing jobs as a result of having Long Covid are health or social care workers.
The #NHSProductivityCommission Call for Evidence is a chance for you to share your ideas about how productivity could be improved across hospital care, primary care, community care and mental health.
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
More information and guidance for responding ⬇️
https://bit.ly/4oHG9UY
November 21, 2025 at 12:55 PM
Deadline: 12 December. If everyone who lost a job or knows someone who lost a job in the #NHS to #LongCovid responded, maybe the NHS could rethink exposing its workers to #Covid with no PPE. Roughly 1 in 3 people losing jobs as a result of having Long Covid are health or social care workers.
Reposted by Sarah
“Under the new guidance, places such as hospital wards, gyms and leisure centres will reportedly be able to question transgender women over whether they should be using single-sex services based on how they look, their behaviour or concerns raised by others.”
Gender policing harms us all.
Gender policing harms us all.
Transgender guidance dubbed ‘misogynist’s charter’
Places such as hospital wards, gyms and leisure centres will reportedly be able to question transgender women over whether they should be using single-sex services based on how they look, their behavi...
www.independent.co.uk
November 21, 2025 at 7:40 AM
“Under the new guidance, places such as hospital wards, gyms and leisure centres will reportedly be able to question transgender women over whether they should be using single-sex services based on how they look, their behaviour or concerns raised by others.”
Gender policing harms us all.
Gender policing harms us all.
Reposted by Sarah
Reading about today's UK #CovidInquiry report and it's bringing out of me a range of emotions.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.
November 20, 2025 at 6:54 PM
Reading about today's UK #CovidInquiry report and it's bringing out of me a range of emotions.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.
In particular ANGER that Covid and #LongCovid are still being past-tensed.
I feel abandoned in my new-found disability.
Shame on all who have deliberately undermined this pandemic, vaccination and more.