Katie As
@katieas.bsky.social
🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
Reposted by Katie As
New 'Resist' design available on Redbubble.
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
November 3, 2025 at 2:45 PM
New 'Resist' design available on Redbubble.
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
Resist with the tenacity of bindweed!
Available on most merch including wall art, stickers and t-shirts.
Sale on at the moment!
www.redbubble.com/i/t-shirt/Re...
#DisabledArtist #GiftIdeas #Illustration #Resist #Wildflowers
I've made a brief summary of the content of restricted (nhs/academic email holders) 3rd module "Managing Severe ME/ CFS" e-learning. It's rough and ready, I did it for a friend who needed the info to be confident to ask her CHC provider to do it. DM me on X or FB, or comment if it would be useful.
November 1, 2025 at 5:23 PM
I've made a brief summary of the content of restricted (nhs/academic email holders) 3rd module "Managing Severe ME/ CFS" e-learning. It's rough and ready, I did it for a friend who needed the info to be confident to ask her CHC provider to do it. DM me on X or FB, or comment if it would be useful.
Reposted by Katie As
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts
Ministers have dumped plans for a major white paper containing a swathe of further cuts and reforms to disability benefits, following months of activism by disabled people and allies that forced th…
www.disabilitynewsservice.com
October 30, 2025 at 5:50 PM
DWP’s plans ‘in tatters’ as McFadden scraps white paper on further disability cuts
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
#DWP
@gmcdp.bsky.social @inclusionlondon.bsky.social @disrightsuk.bsky.social @dis-ppl-protest.bsky.social
www.disabilitynewsservice.com/dwps-plans-i...
Reposted by Katie As
How do we love what we can't save — a planet, or a body?
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
Two Systems in Collapse
What illness can teach us about responding to climate change
jrehmeyer.substack.com
October 30, 2025 at 3:47 PM
How do we love what we can't save — a planet, or a body?
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
Reposted by Katie As
Reading between the #UKCovidInquiry lines, is Whitty saying that although *he* thinks Long Covid is a problem, "scientific consensus" does not, so he is not allowed to offer his "personal view" to the public?
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
October 20, 2025 at 2:53 PM
Reading between the #UKCovidInquiry lines, is Whitty saying that although *he* thinks Long Covid is a problem, "scientific consensus" does not, so he is not allowed to offer his "personal view" to the public?
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
Or has he changed his mind since he wrote that "short note"?
🤔🤔🤔
To pwME- has anyone made a summary of the key good points made in the severe e-learning module? I have a copy of it, just don’t want to duplicate work already done. Thanks.
October 24, 2025 at 8:46 PM
To pwME- has anyone made a summary of the key good points made in the severe e-learning module? I have a copy of it, just don’t want to duplicate work already done. Thanks.
Reposted by Katie As
UK: "Over 14,000 people in England & Wales died with COVID after catching the virus in hospital"
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
October 15, 2025 at 12:09 AM
UK: "Over 14,000 people in England & Wales died with COVID after catching the virus in hospital"
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Reposted by Katie As
1/
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
UK: "Over 14,000 people in England & Wales died with COVID after catching the virus in hospital"
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
Published: 6 Mar 2023
FOI data from the NHS (Mar 2020 – Aug 2022) shows:
14,047 patients died after catching COVID inside hospitals in England & Wales — and 69,337 more were infected after admission.
October 16, 2025 at 12:52 PM
1/
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
This data covers the period March 2020 – August 2022. In 2025, #NosocomialInfections of #COVID should not still be a concern for patients. But, shamefully, they still are -
I still want to know this. @georgemonbiot.bsky.social or does anyone else know? I feel like it would be useful to know.
George, have you seen anything about why the SMC was set up? Was it literally as a front to “disappear” ME, or was that just happy timing in a wider set of (presumably financial) interests?
October 15, 2025 at 10:51 AM
I still want to know this. @georgemonbiot.bsky.social or does anyone else know? I feel like it would be useful to know.
Reposted by Katie As
Dr Nigel Speight writes that ME families are still encountering charges of FII (Fabricated and Induced Illness) formerly called Munchhausen Syndrome by Proxy. In the UK he believes the current paediatric guidelines regarding FII need to be changed.
tinyurl.com/44c4zykd
tinyurl.com/44c4zykd
Current problems facing ME families in the UK
The commonest recurring problems ME families are encountering in the UK at present stem from current paediatric guidelines regarding FII. (Fabricated and Induced Illness) This was formerly called M…
tinyurl.com
October 15, 2025 at 10:20 AM
Dr Nigel Speight writes that ME families are still encountering charges of FII (Fabricated and Induced Illness) formerly called Munchhausen Syndrome by Proxy. In the UK he believes the current paediatric guidelines regarding FII need to be changed.
tinyurl.com/44c4zykd
tinyurl.com/44c4zykd
Reposted by Katie As
#neisvoid #me/cfs #longcovid folks, can anyone point to research on exercise post covid? I know 'six weeks rest' is the anecdotal suggestion, but are there any actual papers on this?
October 15, 2025 at 9:43 AM
#neisvoid #me/cfs #longcovid folks, can anyone point to research on exercise post covid? I know 'six weeks rest' is the anecdotal suggestion, but are there any actual papers on this?
Reposted by Katie As
Reposted by Katie As
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Reposted by Katie As
A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
1/
1/
September 27, 2025 at 11:30 AM
A few days out from #UNGA80, I wanted to reflect on the session we took part in and the media responses since. Mount Sinai was one of the 150 organizations that signed the global pledge to advocate for healthy indoor air. The event itself featured four panels of speakers who
1/
1/
Reposted by Katie As
We are pleased to confirm that @sammiemc.bsky.social Founder & CEO, LCK, will give evidence to the UK COVID Inquiry on the morning of Wednesday 1st October.
covid19.public-inquiry.uk/hearings/chi...
covid19.public-inquiry.uk/hearings/chi...
Children and Young People (Module 8) - Public Hearings - UK Covid-19 Inquiry
The independent public inquiry to examine the Covid-19 pandemic in the UK
covid19.public-inquiry.uk
September 25, 2025 at 6:50 PM
We are pleased to confirm that @sammiemc.bsky.social Founder & CEO, LCK, will give evidence to the UK COVID Inquiry on the morning of Wednesday 1st October.
covid19.public-inquiry.uk/hearings/chi...
covid19.public-inquiry.uk/hearings/chi...
Reposted by Katie As
A legal challenge to force the UK government to fund specialist health services for ME/CFS has 20 hours to go. This seems like a good thing to support, for those who can afford to.
www.crowdjustice.com/case/justice...
www.crowdjustice.com/case/justice...
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
September 27, 2025 at 9:19 PM
A legal challenge to force the UK government to fund specialist health services for ME/CFS has 20 hours to go. This seems like a good thing to support, for those who can afford to.
www.crowdjustice.com/case/justice...
www.crowdjustice.com/case/justice...
Reposted by Katie As
🧵 (long!) justice4me.uk update: sent to donors yesterday: "Having taken legal advice, thanks to your donations, we have instructed our lawyers to proceed with a letter before claim to the Department of Health and Social Care (DHSC). This does not mean there will be a claim (an application to
1/10
1/10
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
justice4me.uk
September 27, 2025 at 7:31 PM
🧵 (long!) justice4me.uk update: sent to donors yesterday: "Having taken legal advice, thanks to your donations, we have instructed our lawyers to proceed with a letter before claim to the Department of Health and Social Care (DHSC). This does not mean there will be a claim (an application to
1/10
1/10
Reposted by Katie As
And there lies the root of it. The attraction of Reform, telling people bigger problems like COVID and climate change don’t exist. They do and it will just further sink us.
September 27, 2025 at 6:42 AM
And there lies the root of it. The attraction of Reform, telling people bigger problems like COVID and climate change don’t exist. They do and it will just further sink us.
Reposted by Katie As
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
September 23, 2025 at 9:53 PM
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Reposted by Katie As
Maddened by such callous regard to family life but otherwise never better. #Justice4ME You?
Justice4me.uk
Justice4me.uk
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
Justice4me.uk
September 19, 2025 at 8:45 AM
Maddened by such callous regard to family life but otherwise never better. #Justice4ME You?
Justice4me.uk
Justice4me.uk
Reposted by Katie As
Our article examining the extent to which people with #hypermobility are at risk of Long COVID was just published in BMJ Public Health, an open access journal. bmjpublichealth.bmj.com/content/3/2/...
Variant connective tissue as a risk factor for long COVID: a case-control study of data from a retrospective online survey of adults in the USA and UK
Introduction This study explored the extent to which two measures of joint hypermobility, a marker of variant connective tissue, predict the development of long COVID after COVID-19 infection, and whe...
bmjpublichealth.bmj.com
September 19, 2025 at 11:52 AM
Our article examining the extent to which people with #hypermobility are at risk of Long COVID was just published in BMJ Public Health, an open access journal. bmjpublichealth.bmj.com/content/3/2/...
Reposted by Katie As
🙏Thank you to Chronic Living Therapy for writing this important open letter to BACP about their article about gaslighting that included controversial:
👉 mind-body therapies
👉 trauma based theory
👉 neuroplasticity
LCA have co-signed
📃👇
chroniclivingtherapy.com/open-letter-...
👉 mind-body therapies
👉 trauma based theory
👉 neuroplasticity
LCA have co-signed
📃👇
chroniclivingtherapy.com/open-letter-...
Open Letter to BACP magazine, Therapy Today - Chronic Living Therapy
A recent article in the magazine for members of the British Association of Counselling & Psychotherapy (BACP) has highlighted again the need for research, factual investigation and informed debate abo...
chroniclivingtherapy.com
September 16, 2025 at 2:15 PM
🙏Thank you to Chronic Living Therapy for writing this important open letter to BACP about their article about gaslighting that included controversial:
👉 mind-body therapies
👉 trauma based theory
👉 neuroplasticity
LCA have co-signed
📃👇
chroniclivingtherapy.com/open-letter-...
👉 mind-body therapies
👉 trauma based theory
👉 neuroplasticity
LCA have co-signed
📃👇
chroniclivingtherapy.com/open-letter-...
www.thecanary.co/global/world...
Wow, Doreen Lawrence is still fighting for justice. May this time be successful. @thecanaryuk.bsky.social
Wow, Doreen Lawrence is still fighting for justice. May this time be successful. @thecanaryuk.bsky.social
College of Policing opens new investigation into Stephen Lawrence murder, as his mother issues plea for witnesses
Stephen Lawrence's mother, Doreen, pleads for witnesses to her son's murder to finally bring justice for her family
www.thecanary.co
September 12, 2025 at 1:35 PM
www.thecanary.co/global/world...
Wow, Doreen Lawrence is still fighting for justice. May this time be successful. @thecanaryuk.bsky.social
Wow, Doreen Lawrence is still fighting for justice. May this time be successful. @thecanaryuk.bsky.social
Reposted by Katie As
BBC article today featuring @jeremy-jeffs.bsky.social story and exhibition about chronic illness’ especially #pwME.
Shame about the “Chronic Fatigue” headline (could it even be a policy to do this every time?), but otherwise very good 👍
www.bbc.co.uk/news/article...
Shame about the “Chronic Fatigue” headline (could it even be a policy to do this every time?), but otherwise very good 👍
www.bbc.co.uk/news/article...
Cumbrian farmer's chronic fatigue captured in photos
Andrew Jackson lives with ME and continues to work on his farm near Penrith.
www.bbc.co.uk
September 12, 2025 at 7:55 AM
BBC article today featuring @jeremy-jeffs.bsky.social story and exhibition about chronic illness’ especially #pwME.
Shame about the “Chronic Fatigue” headline (could it even be a policy to do this every time?), but otherwise very good 👍
www.bbc.co.uk/news/article...
Shame about the “Chronic Fatigue” headline (could it even be a policy to do this every time?), but otherwise very good 👍
www.bbc.co.uk/news/article...
Reposted by Katie As
🚨NEW REPORT🚨
Huge increase in UK sickness absence.
The Health & Wellbeing Report 2025 found we now have record levels of sickness. Now 9.4 days per employee.
What happened in 2020?
A 35 page long report: guess what it doesn't mention as an ongoing cause of employee sickness?
Huge increase in UK sickness absence.
The Health & Wellbeing Report 2025 found we now have record levels of sickness. Now 9.4 days per employee.
What happened in 2020?
A 35 page long report: guess what it doesn't mention as an ongoing cause of employee sickness?
September 11, 2025 at 3:53 PM
🚨NEW REPORT🚨
Huge increase in UK sickness absence.
The Health & Wellbeing Report 2025 found we now have record levels of sickness. Now 9.4 days per employee.
What happened in 2020?
A 35 page long report: guess what it doesn't mention as an ongoing cause of employee sickness?
Huge increase in UK sickness absence.
The Health & Wellbeing Report 2025 found we now have record levels of sickness. Now 9.4 days per employee.
What happened in 2020?
A 35 page long report: guess what it doesn't mention as an ongoing cause of employee sickness?