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johnvsjonvsme.bsky.social
@JohnVsJonVsME
@johnvsjonvsme.bsky.social
1.2K followers 160 following 300 posts
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light
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johnvsjonvsme.bsky.social
@JohnVsJonVsME @johnvsjonvsme.bsky.social · May 13
It’s gonna be M.E. … all day, every day this May. Get ready for a few activities during this M.E. Awareness Month--to educate about #GreatestMEdicalScandal, call on the Jo(h)ns (& others) to help, & celebrate one year of #JohnVsJonVsME! Follow us on X, IG, & BSky to join the fun.
A MEme of John Oliver on the left and Jon Stewart on the right just behind him looking at the audience, wearing party hats behind a large cake with candles and balloons above them. The top left corner says "It's Gonna be M.E.!" and the hashtags #JohnVsJonVsME and #GreatestMEdicalScandal are in the bottom right corner. MEme c/o @phillyphile215.bsky.social
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Gracias again for this important essay @lauralew105.bsky.social ❤️
Have you written about the history of IACC, specifically ME? (@georgemonbiot.bsky.social calls it #GreatestMEdicalScandal of 21st century).
At @johnvsjonvsme.bsky.social we're trying to get more media to cover it-
www.johnvsjon.com
JohnVsJonVsME
The race to see who will cover "the greatest medical scandal of the 21st century" -George Monbiot Check out our latest op-ed in The Sick Times about how & why we started #JohnVsJonVsME People with Mya...
www.johnvsjon.com
October 8, 2025 at 8:11 PM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Gracias for your voice & clarity, querido @georgemonbiot.bsky.social. Any thoughts on why it’s so hard to get more people to care about #GreatestMEdicalScandal? At @johnvsjonvsme.bsky.social we’ve been trying to get @weeklyshowpodcast.bsky.social @lastweektonight.com to cover it.
www.johnvsjon.com
October 8, 2025 at 6:37 PM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Still dreaming of #GreatestMEdicalScandal & Wessely malfeasance coverage
#JohnVsJonVsME @johnvsjonvsme.bsky.social
I’ve kept deteriorating through this pandemic & am doing less advocacy work, but please see
www.johnvsjon.com
@ryankenacts.bsky.social @lastweektonight.com @markruffalo.bsky.social
October 8, 2025 at 6:35 PM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Still dreaming Jon Stewart will look into Wessely’s malfeasance @weeklyshowpodcast.bsky.social. The @georgemonbiot.bsky.social thread on #GreatestMEdicalScandal this is responding to is excellent. #JohnVsJonVsME @johnvsjonvsme.bsky.social
www.johnvsjon.com
October 8, 2025 at 6:30 PM
Reposted by @JohnVsJonVsME
johnvsjonvsme.bsky.social
Name them in the comments below and tag them and their institutions if they’re on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!

We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.
August 13, 2025 at 7:46 PM
Reposted by @JohnVsJonVsME
johnvsjonvsme.bsky.social
In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?
Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."
August 13, 2025 at 7:45 PM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
I also propose @ahandvanish.bsky.social and other members of @patientled.bsky.social to discuss #LongCovid and #ME research with Jon Stewart on @weeklyshowpodcast.bsky.social
August 14, 2025 at 12:21 AM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Other specialists proposed as guests by #pwME #pwLC on IG (which I second!): Gez Medinger, @binitakane.bsky.social @decodemestudy.bsky.social @longcovidkids.bsky.social @rthm.bsky.social
August 14, 2025 at 12:27 AM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Other journalists I recommend are @thesicktimes.org founders
@betsyladyzhets.bsky.social @mileswgriffis.bsky.social
❤️
August 14, 2025 at 12:22 AM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
. @openmedf.bsky.social & its centers around the world are leaders in #ME and #LongCovid research & global collaboration. @janetdafoe.bsky.social can speak both about the research & #SevereME caretaking experience (and how many folks around the world have zero support from their healthcare systems).
August 14, 2025 at 12:23 AM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
I also second and strongly encourage inviting David Tuller and @georgemonbiot.bsky.social to discuss #GreatestMEdicalScandal
August 14, 2025 at 12:25 AM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Seconding also that @meactnet.bsky.social
and their Scientific & Medical Outreach director
@exceedhergrasp1.bsky.social would be great guests to discuss #LongCovid #ME #GreatestMEdicalScandal (including what the current political situation in the U.S. has meant for IACI advocacy and progress)
August 14, 2025 at 12:26 AM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
Seconding all of these proposals enthusiastically! #GreatestMEdicalScandal
August 13, 2025 at 8:39 PM
Reposted by @JohnVsJonVsME
phillyphile215.bsky.social
#pwME #pwLC #NEISVoid tell us what you think 👇
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · Aug 13
In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?
Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."
August 13, 2025 at 8:09 PM
johnvsjonvsme.bsky.social
In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?
Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."
August 13, 2025 at 7:45 PM
Reposted by @JohnVsJonVsME
katieklocksin.bsky.social
Alt text for first tweet: screen shot of Bridget O’Shea’s last tweet, from handle @Bridget_OShea, at 8:29 a.m. on 7/13/25, the day before she died:

I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
July 22, 2025 at 12:22 AM
Reposted by @JohnVsJonVsME
katieklocksin.bsky.social
… “Indeed, no one should have the responsibility to know so intimately this daily, hourly, physical torture. The weight of it all is too much to bear.”
July 22, 2025 at 12:10 AM
Reposted by @JohnVsJonVsME
katieklocksin.bsky.social
From the link above, “the very idea that the NIH, NHS, and numerous health agencies worldwide have largely succeeded in burying such a longstanding humanitarian and societal catastrophe is something I don’t think I’ll ever comprehend….”
July 22, 2025 at 12:10 AM
Reposted by @JohnVsJonVsME
katieklocksin.bsky.social
Here’s Bridget in her own words on the #GreatestMEdicalScandal. How many more kind and brilliant souls do we have to lose before this gets the compassion, help, NEWS COVERAGE, and treatment patients deserve?
#JohnVsJonVsME
2/

bridgetoshea.com/blog/buried-...
Buried Alive by Government “Experts” — Bridget O'Shea
At first, I’d been on a plane, in a window seat, grounded and waiting to deboard. I thought this for a long time. Now, though, the scene takes me to the backseat of a car – my parent’s car – on the hi...
bridgetoshea.com
July 21, 2025 at 11:56 PM
Reposted by @JohnVsJonVsME
katieklocksin.bsky.social
The #GreatestMEdicalScandal has taken another person who should have been in the prime of their brilliant life. She spent so much of her last years howling for better understanding & treatment of this neglected disease. 1/
#JohnVsJonVsME

www.dignitymemorial.com/obituaries/c...
July 21, 2025 at 11:55 PM
Reposted by @JohnVsJonVsME
johnvsjonvsme.bsky.social
We’re sending out a #DisabilitySOS to @naomiaklein.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
Alt. Text: A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Naomi Klein for this” in red text. On left side, an image of Naomi Klein as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 27, 2025 at 9:23 PM
Reposted by @JohnVsJonVsME
phillyphile215.bsky.social
@ghostpanther.bsky.social #GreatestMEdicalScandal is right up your alley—coverups by the powers that be, preventing effective treatments/cures, and even a villainous knight! @emilyesfraser.bsky.social does a fantastic job of highlighting some of its worst parts! Please help us fight this stigma! 🙏
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · May 27
We’re sending out a #DisabilitySOS to @ghostpanther.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
Alt. Text: A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Adam McKay for this” in red text. On left side, an image of Adam McKay as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 28, 2025 at 4:04 PM
Reposted by @JohnVsJonVsME
diatoma.bsky.social
I’d love for @vidyakrishnan.bsky.social to look into #GreatestMEdicalScandal bc she’s an amazing health journalist & bc there’s especially limited support for #pwME in South Asia, perhaps Asia in general. @nlizaki.bsky.social can attest to the lack of care in Pakistan 💔.
www.johnvsjon.com
May 28, 2025 at 9:39 PM
Reposted by @JohnVsJonVsME
phillyphile215.bsky.social
Join our fight @jennyhagel.bsky.social! 🙏
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · May 28
We’re sending out a #DisabilitySOS to @jennyhagel.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Jenny Hagel for this” in red text. On left side, an image of Jenny Hagel as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 29, 2025 at 3:33 AM
Reposted by @JohnVsJonVsME
phillyphile215.bsky.social
Check out JohnVsJon.com @ronnychieng.bsky.social and help us fight the stigma of #GreatestMEdicalScandal!
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · May 28
We’re sending out a #DisabilitySOS to @ronnychieng.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Ronny Chieng for this” in red text. On left side, an image of Ronny Chieng as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 29, 2025 at 3:34 AM