Gracias again for this important essay @lauralew105.bsky.social ❤️
Have you written about the history of IACC, specifically ME? (@georgemonbiot.bsky.social calls it #GreatestMEdicalScandal of 21st century).
At @johnvsjonvsme.bsky.social we're trying to get more media to cover it-
www.johnvsjon.com

Name them in the comments below and tag them and their institutions if they’re on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!

We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.

I also propose @ahandvanish.bsky.social and other members of @patientled.bsky.social to discuss #LongCovid and #ME research with Jon Stewart on @weeklyshowpodcast.bsky.social

Other specialists proposed as guests by #pwME #pwLC on IG (which I second!): Gez Medinger, @binitakane.bsky.social @decodemestudy.bsky.social @longcovidkids.bsky.social @rthm.bsky.social

Other journalists I recommend are @thesicktimes.org founders
@betsyladyzhets.bsky.social @mileswgriffis.bsky.social
❤️

. @openmedf.bsky.social & its centers around the world are leaders in #ME and #LongCovid research & global collaboration. @janetdafoe.bsky.social can speak both about the research & #SevereME caretaking experience (and how many folks around the world have zero support from their healthcare systems).

I also second and strongly encourage inviting David Tuller and @georgemonbiot.bsky.social to discuss #GreatestMEdicalScandal

Seconding also that @meactnet.bsky.social
and their Scientific & Medical Outreach director
@exceedhergrasp1.bsky.social would be great guests to discuss #LongCovid #ME #GreatestMEdicalScandal (including what the current political situation in the U.S. has meant for IACI advocacy and progress)

Seconding all of these proposals enthusiastically! #GreatestMEdicalScandal

Name them in the comments below and tag them and their institutions if they’re on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!

We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.

Alt text for first tweet: screen shot of Bridget O’Shea’s last tweet, from handle @Bridget_OShea, at 8:29 a.m. on 7/13/25, the day before she died:

I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS

… “Indeed, no one should have the responsibility to know so intimately this daily, hourly, physical torture. The weight of it all is too much to bear.”

From the link above, “the very idea that the NIH, NHS, and numerous health agencies worldwide have largely succeeded in burying such a longstanding humanitarian and societal catastrophe is something I don’t think I’ll ever comprehend….”

Here’s Bridget in her own words on the #GreatestMEdicalScandal. How many more kind and brilliant souls do we have to lose before this gets the compassion, help, NEWS COVERAGE, and treatment patients deserve?
#JohnVsJonVsME
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