Emma
@inneiennyfas.bsky.social
Here for the science and because of the still ongoing pandemic. She/her.
Demonstrates under #CallForPublicHealthAction.
#MECFS #LongCOVID #MaskUp #DoNoHarm
Demonstrates under #CallForPublicHealthAction.
#MECFS #LongCOVID #MaskUp #DoNoHarm
Some days are just filled with sadness and hopelessness. The old, healthy me seems like another person; like someone made up; like a dream I had. It's like I've been sick for an eternity or only a week -- like time has been redefined. Still waiting for my life to resume. I make no other plans.
November 10, 2025 at 2:54 PM
Some days are just filled with sadness and hopelessness. The old, healthy me seems like another person; like someone made up; like a dream I had. It's like I've been sick for an eternity or only a week -- like time has been redefined. Still waiting for my life to resume. I make no other plans.
Reposted by Emma
Here's just one of the reasons we keep demonstrating for clean air, evidence-based infection control and public education on COVID-19 👇
The science grows clearer by the day — we just need to act on it.
#CovidIsntOver
📢 #CallForPublicHealthAction
www.ajpmfocus.org/article/S277...
The science grows clearer by the day — we just need to act on it.
#CovidIsntOver
📢 #CallForPublicHealthAction
www.ajpmfocus.org/article/S277...
COVID-19 is “Airborne AIDS”: provocative oversimplification, emerging science, or something in between?
COVID-19 caused by SARS-CoV-2 is often compared to other pandemics for its societal
and global health impact, with some commentators drawing parallels to HIV/AIDS due
to the immune dysfunction caused ...
www.ajpmfocus.org
October 18, 2025 at 9:41 AM
Here's just one of the reasons we keep demonstrating for clean air, evidence-based infection control and public education on COVID-19 👇
The science grows clearer by the day — we just need to act on it.
#CovidIsntOver
📢 #CallForPublicHealthAction
www.ajpmfocus.org/article/S277...
The science grows clearer by the day — we just need to act on it.
#CovidIsntOver
📢 #CallForPublicHealthAction
www.ajpmfocus.org/article/S277...
Reposted by Emma
Well, it doesn't have to be like this. This is a choice we're making by not cleaning the indoor air or informing the public about the need for infection control.
Moreover, these numbers also mean a new, year-round baseline of chronic illness.
This is not sustainable!
#CallForPublicHealthAction
Moreover, these numbers also mean a new, year-round baseline of chronic illness.
This is not sustainable!
#CallForPublicHealthAction
Yale researchers analyzed data from 158 million US workers and found that even after the pandemic, COVID-19 continues to raise work absences by 13% and labor force exits by 13%.
The virus has created a new year-round baseline similar to flu season.
jamanetwork.com/journals/jam...
The virus has created a new year-round baseline similar to flu season.
jamanetwork.com/journals/jam...
Enduring Outcomes of COVID-19 Work Absences on the US Labor Market
This cohort study examines the extent to which COVID-19 continues to generate work absences and decrease labor force participation beyond the pandemic period in the US.
jamanetwork.com
October 11, 2025 at 1:22 PM
Well, it doesn't have to be like this. This is a choice we're making by not cleaning the indoor air or informing the public about the need for infection control.
Moreover, these numbers also mean a new, year-round baseline of chronic illness.
This is not sustainable!
#CallForPublicHealthAction
Moreover, these numbers also mean a new, year-round baseline of chronic illness.
This is not sustainable!
#CallForPublicHealthAction
Reposted by Emma
📢 #CallForPublicHealthAction
I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
#CovidIsNotOver
#MaskUp
#CovidCautious
I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
#CovidIsNotOver
#MaskUp
#CovidCautious
October 10, 2025 at 7:10 PM
📢 #CallForPublicHealthAction
I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
#CovidIsNotOver
#MaskUp
#CovidCautious
I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
#CovidIsNotOver
#MaskUp
#CovidCautious
Has anyone else with ME or LC tried Mestinon and experienced an odd creaking sensation and sounds in the throat or esophagus when swallowing — and the sensation that food or drink wants to come back up?
October 10, 2025 at 1:49 PM
Has anyone else with ME or LC tried Mestinon and experienced an odd creaking sensation and sounds in the throat or esophagus when swallowing — and the sensation that food or drink wants to come back up?
Reposted by Emma
📣 #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣6️⃣
While governments, for capitalist reasons, fantasize that ME/CFS care is "comprehensively secured," the reality for ME/CFS sufferers is completely different.
Support us with Reskeet! 🤍
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣6️⃣
While governments, for capitalist reasons, fantasize that ME/CFS care is "comprehensively secured," the reality for ME/CFS sufferers is completely different.
Support us with Reskeet! 🤍
October 9, 2025 at 12:30 PM
📣 #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣6️⃣
While governments, for capitalist reasons, fantasize that ME/CFS care is "comprehensively secured," the reality for ME/CFS sufferers is completely different.
Support us with Reskeet! 🤍
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣6️⃣
While governments, for capitalist reasons, fantasize that ME/CFS care is "comprehensively secured," the reality for ME/CFS sufferers is completely different.
Support us with Reskeet! 🤍
Reposted by Emma
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
“Study challenges notion that Covid is ‘mild’ for children.”
You mean, just like EVERY OTHER STUDY on Covid in children?
This shouldn’t be framed as a surprise, or even news, but as established fact. The real question is why we’re still not trying to stop it.
www.independent.co.uk/news/health/...
You mean, just like EVERY OTHER STUDY on Covid in children?
This shouldn’t be framed as a surprise, or even news, but as established fact. The real question is why we’re still not trying to stop it.
www.independent.co.uk/news/health/...
Study challenges notion that Covid is ‘mild’ for children
More than 6 million American children suffer from long Covid which can lead to life-threatening complications
www.independent.co.uk
October 6, 2025 at 11:20 AM
“Study challenges notion that Covid is ‘mild’ for children.”
You mean, just like EVERY OTHER STUDY on Covid in children?
This shouldn’t be framed as a surprise, or even news, but as established fact. The real question is why we’re still not trying to stop it.
www.independent.co.uk/news/health/...
You mean, just like EVERY OTHER STUDY on Covid in children?
This shouldn’t be framed as a surprise, or even news, but as established fact. The real question is why we’re still not trying to stop it.
www.independent.co.uk/news/health/...
This week's must-read 👇
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
When Will the Lion Concern Himself
Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days
www.thegauntlet.news
October 6, 2025 at 9:43 AM
This week's must-read 👇
A presentation that lays out some of the harms associated with the BPS model and the psychologisation of ME, Long COVID, etc., and why criticism of it cannot be reduced to "patients just don't want to be associated with psychological illness".
1) This lecture by Prof dr Vivienne Matthies-Boon is a good introduction to the problems with the biopsychosocial (BPS) model and the harms it has caused in the ME/CFS community.
September 28, 2025 at 4:15 PM
A presentation that lays out some of the harms associated with the BPS model and the psychologisation of ME, Long COVID, etc., and why criticism of it cannot be reduced to "patients just don't want to be associated with psychological illness".
Reposted by Emma
📢 #CallForPublicHealthAction
Acknowledging healthy indoor air as a human right is a huge step in the right direction! 🙏 Above this, we just need a few other things 😉👇
Acknowledging healthy indoor air as a human right is a huge step in the right direction! 🙏 Above this, we just need a few other things 😉👇
September 27, 2025 at 5:23 PM
📢 #CallForPublicHealthAction
Acknowledging healthy indoor air as a human right is a huge step in the right direction! 🙏 Above this, we just need a few other things 😉👇
Acknowledging healthy indoor air as a human right is a huge step in the right direction! 🙏 Above this, we just need a few other things 😉👇
#VioletAffleck speaking at the UN meeting "Healthy Indoor Air: A Global Call to Action", saying all the things that need to be said. The knowledge, passion, brains and determination of this young woman are amazing. She should be put in charge of public health everywhere.
#CallForPublicHealthAction
#CallForPublicHealthAction
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
September 24, 2025 at 8:17 AM
#VioletAffleck speaking at the UN meeting "Healthy Indoor Air: A Global Call to Action", saying all the things that need to be said. The knowledge, passion, brains and determination of this young woman are amazing. She should be put in charge of public health everywhere.
#CallForPublicHealthAction
#CallForPublicHealthAction
This! 👇
#CallForPublicHealthAction
#CallForPublicHealthAction
In times when profit outweighs humanity and politics protects power over people, it’s time to stand up - for science, for health, for those left behind, and for the future of us all.
Virtual Demonstration
📢 #CallForPublicHealthAction
#CovidIsNotOver
#CleanAir
#LongCovid
#MEcfs
Virtual Demonstration
📢 #CallForPublicHealthAction
#CovidIsNotOver
#CleanAir
#LongCovid
#MEcfs
September 15, 2025 at 8:33 PM
This! 👇
#CallForPublicHealthAction
#CallForPublicHealthAction
Reposted by Emma
📣 #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣3️⃣
It is time for #PAIS and #ME/CFS to be discussed in the social sciences as well.
www.blaetter.de/ausgabe/2025...
Support us with Reskeet!
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣3️⃣
It is time for #PAIS and #ME/CFS to be discussed in the social sciences as well.
www.blaetter.de/ausgabe/2025...
Support us with Reskeet!
September 15, 2025 at 6:35 PM
📣 #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣3️⃣
It is time for #PAIS and #ME/CFS to be discussed in the social sciences as well.
www.blaetter.de/ausgabe/2025...
Support us with Reskeet!
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 4️⃣3️⃣
It is time for #PAIS and #ME/CFS to be discussed in the social sciences as well.
www.blaetter.de/ausgabe/2025...
Support us with Reskeet!
📢 #CallForPublicHealthAction
I'm also demonstrating for the right to clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for LC & ME. Because #CovidIsNotOver and #CovidIsAirborne.
I'm also demonstrating for the right to clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for LC & ME. Because #CovidIsNotOver and #CovidIsAirborne.
📢 #CallForPublicHealthAction
I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
#CovidIsNotOver
#MaskUp
#CovidCautious
I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS
#CovidIsNotOver
#MaskUp
#CovidCautious
September 1, 2025 at 7:11 PM
📢 #CallForPublicHealthAction
I'm also demonstrating for the right to clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for LC & ME. Because #CovidIsNotOver and #CovidIsAirborne.
I'm also demonstrating for the right to clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for LC & ME. Because #CovidIsNotOver and #CovidIsAirborne.
Actual public health messaging 👏🙏
It's always been this easy — most authorities just choose not to do it.
#MaskUp #COVIDIsntOver
It's always been this easy — most authorities just choose not to do it.
#MaskUp #COVIDIsntOver
Traveling soon? Stay protected during the COVID-19 surge by wearing a high-quality mask in crowded or indoor spaces like an N95, KN95 or KF94. Learn more: www.cdph.ca.gov/Programs/CID...
August 30, 2025 at 9:20 AM
Actual public health messaging 👏🙏
It's always been this easy — most authorities just choose not to do it.
#MaskUp #COVIDIsntOver
It's always been this easy — most authorities just choose not to do it.
#MaskUp #COVIDIsntOver
Reposted by Emma
I really wish the Swedish press would understand how platforming or referring to Martin Kulldorff is something that only right wing nuts do in US. Yes, he's Swedish. He's also currently sitting in US government platforming RFK Jr's antivax agenda.
August 23, 2025 at 8:56 AM
I really wish the Swedish press would understand how platforming or referring to Martin Kulldorff is something that only right wing nuts do in US. Yes, he's Swedish. He's also currently sitting in US government platforming RFK Jr's antivax agenda.
With all the interesting studies from the past week, it's like we're so close to a *big* breakthrough in ME and LC research. Another example, new from
@drmaureenhanson.bsky.social: news.cornell.edu/stories/2025...
Let's continue pushing and we will get there! 🙌
#CallForPublicHealthAction
@drmaureenhanson.bsky.social: news.cornell.edu/stories/2025...
Let's continue pushing and we will get there! 🙌
#CallForPublicHealthAction
August 12, 2025 at 9:36 AM
With all the interesting studies from the past week, it's like we're so close to a *big* breakthrough in ME and LC research. Another example, new from
@drmaureenhanson.bsky.social: news.cornell.edu/stories/2025...
Let's continue pushing and we will get there! 🙌
#CallForPublicHealthAction
@drmaureenhanson.bsky.social: news.cornell.edu/stories/2025...
Let's continue pushing and we will get there! 🙌
#CallForPublicHealthAction
Reposted by Emma
🧵For decades, parents of children with #MECFS have faced false accusations of Fabricated or Induced Illness
It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)
It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)
August 11, 2025 at 9:41 AM
🧵For decades, parents of children with #MECFS have faced false accusations of Fabricated or Induced Illness
It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)
It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)
Reposted by Emma
Today is #SevereMEday. It commemorates those most severely affected by #ME/cfs. Who suffer the most from the continuing denial of care and stigmatization.
Today I wish above all for #moresolidarity and less repression of those not affected. Take a look and show solidarity!
#callforpublichealthaction
Today I wish above all for #moresolidarity and less repression of those not affected. Take a look and show solidarity!
#callforpublichealthaction
Health is everything. Please support our #CallForPublicHealthAction -- because the pandemic has shown us just how important these things are 👇
August 8, 2025 at 2:00 PM
Today is #SevereMEday. It commemorates those most severely affected by #ME/cfs. Who suffer the most from the continuing denial of care and stigmatization.
Today I wish above all for #moresolidarity and less repression of those not affected. Take a look and show solidarity!
#callforpublichealthaction
Today I wish above all for #moresolidarity and less repression of those not affected. Take a look and show solidarity!
#callforpublichealthaction
Reposted by Emma
New press release: "Key genetic differences found in people with ME/CFS"
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
August 6, 2025 at 6:20 PM
New press release: "Key genetic differences found in people with ME/CFS"
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Reposted by Emma
📣 #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 3️⃣7️⃣
Viruses can trigger the development of cancer. Therefore, clean the air so no more cloaca to breathe!
Reskeets and quote posts are very welcome! 🤍
www.nature.com/articles/d41...
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 3️⃣7️⃣
Viruses can trigger the development of cancer. Therefore, clean the air so no more cloaca to breathe!
Reskeets and quote posts are very welcome! 🤍
www.nature.com/articles/d41...
August 2, 2025 at 3:39 PM
📣 #callforpublichealthaction
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 3️⃣7️⃣
Viruses can trigger the development of cancer. Therefore, clean the air so no more cloaca to breathe!
Reskeets and quote posts are very welcome! 🤍
www.nature.com/articles/d41...
Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!
week 3️⃣7️⃣
Viruses can trigger the development of cancer. Therefore, clean the air so no more cloaca to breathe!
Reskeets and quote posts are very welcome! 🤍
www.nature.com/articles/d41...
Reposted by Emma
💯 #CallForPublicHealthAction
& ICYMI this by the awesome @juliadoubleday.bsky.social:
"unfortunately, we have a public [...] unaware of the problem, thanks to the tireless efforts of our political leaders [...] who pushed for a 'new normal' of forever COVID"
"...what can we do about it anyway?" 👇
& ICYMI this by the awesome @juliadoubleday.bsky.social:
"unfortunately, we have a public [...] unaware of the problem, thanks to the tireless efforts of our political leaders [...] who pushed for a 'new normal' of forever COVID"
"...what can we do about it anyway?" 👇
August 2, 2025 at 11:05 AM
💯 #CallForPublicHealthAction
& ICYMI this by the awesome @juliadoubleday.bsky.social:
"unfortunately, we have a public [...] unaware of the problem, thanks to the tireless efforts of our political leaders [...] who pushed for a 'new normal' of forever COVID"
"...what can we do about it anyway?" 👇
& ICYMI this by the awesome @juliadoubleday.bsky.social:
"unfortunately, we have a public [...] unaware of the problem, thanks to the tireless efforts of our political leaders [...] who pushed for a 'new normal' of forever COVID"
"...what can we do about it anyway?" 👇
One of the reasons why we need prevention of airborne diseases:
www.nature.com/articles/d41...
#CallForPublicHealthAction
www.nature.com/articles/d41...
#CallForPublicHealthAction
July 31, 2025 at 9:44 AM
One of the reasons why we need prevention of airborne diseases:
www.nature.com/articles/d41...
#CallForPublicHealthAction
www.nature.com/articles/d41...
#CallForPublicHealthAction
Starting to doubt that a treatment or cure will come soon enough for me to witness it, and that's a really sad thought.
July 30, 2025 at 8:45 PM
Starting to doubt that a treatment or cure will come soon enough for me to witness it, and that's a really sad thought.