I'm just Kate 🤷‍♀️
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imjustkate.bsky.social
I'm just Kate 🤷‍♀️
@imjustkate.bsky.social
180 followers 86 following 130 posts
☆ Recently entered the world of chronic illness & disability with #ME/CFS.
☆ Personal & professional coach.
☆ Writer.
☆ Observer & listener.
☆ Lover of the magic of the universe, space & nature.
☆ Eternal optimistic realist.
☆ We're all connected 💜🕉
Posts Replies Media Videos
imjustkate.bsky.social
💯🇺🇦
georgemonbiot.bsky.social George Monbiot @georgemonbiot.bsky.social · Mar 1
Zelenskyy knows what it is to fight for something bigger than yourself. Trump does not.
March 1, 2025 at 11:09 AM
imjustkate.bsky.social
Feeling the hope & light on this March day. ✌️💜

#me/cfs #pwME #poem #writer #hope
There are times when you're alone And all you can think about is the life You're not living. The life you once had, and dreamed of having. The future stolen and the grief of here and now. Somewhere, in an alternate dimension You're laughing and living your best life. Meanwhile here, and now, you're most definitely Not. But, somewhere, through the fog and the haze, You begin to see tiny cracks of light. Light that creates dancing silhouettes of joy. The sound of birdsong echoes through the Chasm of darkness. Distant whispers of the world around you, Living and breathing. The faint beating heart of life Begins to fill your veins With love. With hope. A new beginning, a rebirth, A new dawn on the horizon Comes into focus. There is light. There is life. You breathe it in. The cold, fresh energy Fills your lungs, And you feel it spread to every Little part of you. Bit by bit, this life Envelops your soul. Your eyes, wide with wonder Search for answers. But your heart already knows. This life, this light, this joy, It's yours. It was yours all along. You just misplaced it For a while, Whilst you battled for survival. But it was there all along And always will be
March 1, 2025 at 11:09 AM
imjustkate.bsky.social
Tiny Toby took my spot again... #ME/CFS #pwME
Tiny Toby looking almighty as he sits atop a black pillow, whilst Kate tries to scavenge a slither of the pillow at the bottom right side.
January 13, 2025 at 12:35 PM
imjustkate.bsky.social
January 3, 2025 at 3:21 PM
imjustkate.bsky.social
A dear friend of mine helped me see things from another perspective. I was hurt, resentful & feeling abandoned, as people continued with their lives & mine stood still. We discussed the Let Them theory, but I realised the role I played in it all too. I was unfair to put it all on them.
#MECFS #pwME
Poem on a purple water colour background reads Let Them (Kate's Version) Let them love you, like they always have Let them help you, when things are bad Let them see you, however you are Let them hold you, when you bare your scars Let them know you, the one ‘you’ you hide Let them join you, on this crazy ride Let them be them, without condition Let them shield you, from life's attrition Let them be there, through thick and through thin Let them be real, and safe in their skin Let them be them, and let you be you Let the truth be, and love will shine through 2.1.25 I'm Just Kate 🤷‍♀️
January 2, 2025 at 6:32 PM
imjustkate.bsky.social
Happy new year people, here's to a mild & gentle 2025 💜✨️
Tiny Toby is looking sleepily at the camera, as he hugs the duvet with his left front paw
January 1, 2025 at 7:25 AM
imjustkate.bsky.social
Toby isn't impressed that I accidentally woke him from a power nap... 😏🤭 I know how you feel pal #TinyToby #ME/CFS #pwME
Tiny Toby is sat looking unimpressed & his fur is all scruffled from being asleep. Tiny Toby is sat looking unimpressed & his fur is all scruffled from being asleep.
December 18, 2024 at 10:10 AM
imjustkate.bsky.social
This is horrific! Yet again 😪
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Dec 1
The Canary: An NZ Patient with Severe ME/CFS

Reporting on the situation of Rhiannon, a 34 year old woman in Wellington, New Zealand, who had been discharged from hospital to a rest home for elderly people with completely different needs
www.thecanary.co/long-read/20...

#MEcfs #CFS #PwME
A hospital in New Zealand discharged a young severe ME/CFS patient to a care home for pensioners
A hospital in New Zealand forced a young severe ME/CFS patient into an 'aged care facility' - and it only made her health much worse.
www.thecanary.co
December 1, 2024 at 11:19 PM
imjustkate.bsky.social
This is so important. So grateful to those who were involved 🙏💜
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Dec 1
2/
“(Contd) Here nine people reveal the devastating difficulties the condition brings – including their struggles to be believed by medics, to get a diagnosis, to access support, & simply to keep going."

Portraits & interviews
wellcomecollection.org/stories/livi...

#MEcfs #CFS #PwME
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
December 1, 2024 at 6:08 PM
imjustkate.bsky.social
I'm just grateful to have made it through this year tbh. Became moderate-severe & lost almost everything but finally gained a diagnosis at least 🤷‍♀️
jesshoneybadger.bsky.social Jess Badger @jesshoneybadger.bsky.social · Nov 30
Team achievment is not on my list of things to worry about either.

Here’s to mediocrity 2025!
There will be a lot of posts soon from people sharing how much they achieved in 2024. But, in case someone needs to hear this... It's okay if the only thing you did this year was just get through it. THE VIRAL WITTY
December 1, 2024 at 11:58 AM
imjustkate.bsky.social
Over 20 years it took for me to get a diagnosis this year. By which time I'd become moderate-severe. No job, low quality of life, lost friends, lost confidence. It's crushing.

#pwME #me/cfs #mecfs
lifeatthewindow.bsky.social lifeatthewindow.bsky.social @lifeatthewindow.bsky.social · Dec 1
For too many of us the M.E. diagnosis comes when we’ve seriously deteriorated. Maybe years after onset and repeated unrecognised PEM.

Despite seeing GPs and specialists, we’re told nothing is wrong and spend years having our bodies damaged, for some permanently.

This has to stop.
#pwME #MECFS
December 1, 2024 at 11:51 AM
imjustkate.bsky.social
#TinyToby is so snugglesome today 🥰

@toby-dog-and-bri.bsky.social is my other half, who also likes sharing pics of our fine young chap 🤩
November 30, 2024 at 1:55 PM
imjustkate.bsky.social
It's been 'one of them' weeks 🙃 So, what better way to start the weekend than with Saturday morning snugs with #TinyToby 🥰🥰
Tiny Toby snugged under a yellow duvet, hos two front paws poking over the top. He leans into me, with my tartan pyjama'd arm around him. His little teefs can be seen as he smiles.
November 30, 2024 at 11:00 AM
imjustkate.bsky.social
Feeling sorry for myself again today. My WiFi is down & my phone signal is pants, so get fleeting moments of access to the world outside these walls. Scary how much I've come to rely on WiFi & technology to keep me sane! Please send memes or funnies for when I get signal!! #pwME #me/cfs
November 28, 2024 at 8:13 PM
Reposted by I'm just Kate 🤷‍♀️
francesryan.bsky.social
“As someone who relies on the state for my survival, I have a healthy distrust of giving it any more power over my life than it already has. Though some people want the right to die, many of us are still fighting for the right to exist.”

Must read by Liz Carr: www.theguardian.com/commentisfre...
MPs may trust doctors to manage assisted dying. Disabled people like me cannot | Liz Carr
Two friends recently woke up in hospital to find ‘Do not resuscitate’ orders on their notes. We’re all too aware that some lives aren’t valued as much as others, says the actor and disability rights a...
www.theguardian.com
November 28, 2024 at 6:35 PM
imjustkate.bsky.social
Oh, how I relate 💜 love this by @brianbilston.bsky.social
brianbilston.bsky.social Brian Bilston @brianbilston.bsky.social · Nov 28
Today’s poem is called ‘Lines Written While Waiting for a Train at a Provincial Railway Station’.
Lines Written While Waiting for a Train at a Provincial Railway Station   If I could have my time over, I would do it all differently and not treat each precious moment with such disregard and flippancy.   I would use my time effectively, I would think ahead and plan. I would reserve my stores of energy, and take charge when I can.   But it’s too late in the journey for regret, too late to repent – because there’s not a plug socket in sight, and my battery’s on one per ce
November 28, 2024 at 12:48 PM
imjustkate.bsky.social
Feeling sorry for myself today. Was offered the opportunity to do what I love, coaching a young person. But made me realise, I'm not ready (not well enough) to & scared I never will be. Hate not having control of my life & lost so much confidence 😢💔
Toby dog giving me side eye...
#pwME #me/cfs
Tiny Toby giving me the side eye, looking sulky.
November 27, 2024 at 10:24 AM
imjustkate.bsky.social
#vss365 #delay #poem #pwME #me/cfs

Today's offering 🙏💜🤭
Text within a yellow frame, with black scribbles & dots in each corner of the page. The poem reads I almost met you. Again, there was a #delay. My train was too late And by the time I arrived, You'd already left. The late train screeched to a halt And I made my way To the spot where you once stood. We didn't know then, That we were supposed to meet. That our fate was changed, That our paths no longer crossed, Our lives separate. Our love never to become What makes us both whole. The jigsaw piece we're missing, Something feeling off, But never knowing quite what. All because that day, The driver needed the loo. #vss365 #delay I'm just Kate 🤷‍♀️ @imjustkate.bsky.social 26.11.24
November 26, 2024 at 4:08 PM
Reposted by I'm just Kate 🤷‍♀️
thisone0verhere.bsky.social
Public library energy is the best energy. Like here is all the knowledge we could find, it's been meticulously organized and vetted and it will cost you nothing today, welcome to the absolute pinnacle of human civic evolution, feel free to pull up any bean bag chair you like
November 26, 2024 at 1:32 PM
imjustkate.bsky.social
Just heard this poem being read out in my online meditation session with the Oxford Mindfulness Foundation. Really struck me 💜🙏🌎

#poem #me/cfs #remember #joyharjo
November 26, 2024 at 1:38 PM
imjustkate.bsky.social
Hard relate 🤣🫠
November 25, 2024 at 7:20 PM
imjustkate.bsky.social
My poem for today 🫶

I've been pretty poorly today, so this felt good to share. Almost didn't get round to writing it, but did eventually 🙏

#vss365 #see #pwME #ME/CFS
A crumpled paper background with a couple of squiggles across the page. The poem reads I have a chronic illness, One you may not see. Chronic fatigue syndrome, Also called ME. I sometimes feel I'm dying Though I know i won't. They say they understand it, Even though they don't. We are the invisible, We know this is true. No one knows how hard it gets, Only me and you. I spend my days existing, But I'd rather live A life that is worth living, So much left to give. Times, they are a-changing; Mine all stay the same. The same four walls every day, Not sure if I'm still sane. One day I might live again, Carefully, but still - I have hope for The future, Even if I'm ill. #vss365 #see I'm just Kate 🤷‍♀️ @imjustkate.bsky.social
November 25, 2024 at 7:13 PM
imjustkate.bsky.social
So relatable 🙏💜
funkyzebra.bsky.social funkyzebra.bsky.social @funkyzebra.bsky.social · Nov 24
Just felt like creating something that any person with chronic illness can relate to.

#chronicillness #MECFS #Lupus #disability #poem #poetry #AI
November 24, 2024 at 9:52 PM
imjustkate.bsky.social
I've changed my @ handle to @imjustkate.bsky.social & I don't know if it affects my previous posts!! Apologies for any confusion 😬
November 24, 2024 at 9:34 PM
imjustkate.bsky.social
Forgot to post yesterday's #vss365 #poem with the prompt #hop!
A starry night background, the moon top centre above a silhouette of trees at the bottom of the frame. The poem reads A tick without the tock, The hip without the #hop, No rhythm only blues, Rebels without a clue. Is a life without you. A pencil that's broken, A word left unspoken, Regret is for the old, A truth that's left untold. Is a life without you. A day without a night, A win without a fight, A life without a love, A hand without a glove. Is a life without you. I could go on and on, But you've already gone. The words going unheard, This poem is absurd. So is my life without you. #vss365 #hop I'm just Kate 🤷‍♀️ @triquetrakate.bsky.social 23.11.24
November 24, 2024 at 1:26 PM