Helen
@helenld.bsky.social
Jeweller 💍 Scientific Illustrator 👩🏼🎨 Graphic Designer 👩💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶
first wave #LongCovid 🌊
Team member @longcovidsos 🛟
first wave #LongCovid 🌊
Team member @longcovidsos 🛟
Pinned
Reposted by Helen
We never had to capitulate to Covid.
If we had taken collective steps to protect one another, we would have been able to drastically reduce transmission.
I will never understand why so many people were willing to subject themselves to repeat infections when there was (and is) another path
If we had taken collective steps to protect one another, we would have been able to drastically reduce transmission.
I will never understand why so many people were willing to subject themselves to repeat infections when there was (and is) another path
“we’re all gonna get it” is every bit as defeatist and doomerist as “we can’t do anything about climate change”. why do so many who are so fervent about protecting the environment refuse to acknowledge this? is our collective health not equally important?
“Well everyone else was doing it too” is never a worthy excuse. Just because practically no one masks or keeps up with the alarming science on COVID doesn’t exempt everyone from responsibility.
#MaskUp and protect yourself and others. In the future, you’ll be glad you did.
#MaskUp and protect yourself and others. In the future, you’ll be glad you did.
November 12, 2025 at 11:05 PM
We never had to capitulate to Covid.
If we had taken collective steps to protect one another, we would have been able to drastically reduce transmission.
I will never understand why so many people were willing to subject themselves to repeat infections when there was (and is) another path
If we had taken collective steps to protect one another, we would have been able to drastically reduce transmission.
I will never understand why so many people were willing to subject themselves to repeat infections when there was (and is) another path
Reposted by Helen
Thanks to our amazing volunteer @helenld.bsky.social for speaking up about just how awful #LongCovid *still* is for so many of us.
November 13, 2025 at 2:53 PM
Thanks to our amazing volunteer @helenld.bsky.social for speaking up about just how awful #LongCovid *still* is for so many of us.
Reposted by Helen
KPBS News: 'Obesity drug seen as effective for long COVID, gets clinical trial'
“The Scripps trial is unique because it’s the first long COVID clinical trial that enables patients to participate remotely,” said John Redd, CEO of SILC
www.kpbs.org/news/science...
“The Scripps trial is unique because it’s the first long COVID clinical trial that enables patients to participate remotely,” said John Redd, CEO of SILC
www.kpbs.org/news/science...
Obesity drug seen as effective for long COVID, gets clinical trial
COVID-19 symptoms that don’t go away affect hundreds of millions worldwide. Scripps Research is recruiting people with long COVID to test a weight-loss medication that shows promise in treating the il...
www.kpbs.org
November 8, 2025 at 3:42 PM
KPBS News: 'Obesity drug seen as effective for long COVID, gets clinical trial'
“The Scripps trial is unique because it’s the first long COVID clinical trial that enables patients to participate remotely,” said John Redd, CEO of SILC
www.kpbs.org/news/science...
“The Scripps trial is unique because it’s the first long COVID clinical trial that enables patients to participate remotely,” said John Redd, CEO of SILC
www.kpbs.org/news/science...
Reposted by Helen
I've never really understood the logic of "targeted vaccination".
Of course, money is a huge issue and we seek to get the most out of every £ spent.
Of course COVID and flu waves would be far worse without it.
But, what doesn't sit well for me is the following...
Of course, money is a huge issue and we seek to get the most out of every £ spent.
Of course COVID and flu waves would be far worse without it.
But, what doesn't sit well for me is the following...
November 6, 2025 at 12:46 PM
I've never really understood the logic of "targeted vaccination".
Of course, money is a huge issue and we seek to get the most out of every £ spent.
Of course COVID and flu waves would be far worse without it.
But, what doesn't sit well for me is the following...
Of course, money is a huge issue and we seek to get the most out of every £ spent.
Of course COVID and flu waves would be far worse without it.
But, what doesn't sit well for me is the following...
Reposted by Helen
We are proud to share a deeply meaningful publication: the final paper co-authored by our late co-founder, Ondine Sherwood.
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
November 6, 2025 at 1:01 PM
We are proud to share a deeply meaningful publication: the final paper co-authored by our late co-founder, Ondine Sherwood.
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
Reposted by Helen
As clinics close and treatment is getting harder to find, help us to support the thousands living with the condition. Don’t let them be left behind.
Share this post or support us today
🔗 tinyurl.com/535u79va
Share this post or support us today
🔗 tinyurl.com/535u79va
Long Covid SOS Campaigns Manager | Localgiving
tinyurl.com
October 30, 2025 at 5:51 PM
As clinics close and treatment is getting harder to find, help us to support the thousands living with the condition. Don’t let them be left behind.
Share this post or support us today
🔗 tinyurl.com/535u79va
Share this post or support us today
🔗 tinyurl.com/535u79va
Reposted by Helen
Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.
October 30, 2025 at 5:51 PM
Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.
Reposted by Helen
Recently we asked our #community to share their experiences of living with #LongCovid. What they told us was powerful, urgent and impossible to ignore.
October 30, 2025 at 5:51 PM
Recently we asked our #community to share their experiences of living with #LongCovid. What they told us was powerful, urgent and impossible to ignore.
Reposted by Helen
Protecting others protects us all
With #Covid currently circulating there are steps we can take to prevent ongoing transmission
🏠 Stay at home
😷 Mask up
🧪 Test for Covid
🗣️ Tell others
With #Covid currently circulating there are steps we can take to prevent ongoing transmission
🏠 Stay at home
😷 Mask up
🧪 Test for Covid
🗣️ Tell others
October 27, 2025 at 11:47 AM
Protecting others protects us all
With #Covid currently circulating there are steps we can take to prevent ongoing transmission
🏠 Stay at home
😷 Mask up
🧪 Test for Covid
🗣️ Tell others
With #Covid currently circulating there are steps we can take to prevent ongoing transmission
🏠 Stay at home
😷 Mask up
🧪 Test for Covid
🗣️ Tell others
Reposted by Helen
Press & Journal UK: “Westhill mum of long Covid girl invites SNP health chief to see suffering for himself”
‘Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better’
www.pressandjournal.co.uk/fp/politics/...
‘Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better’
www.pressandjournal.co.uk/fp/politics/...
Westhill mum of long Covid girl invites SNP health chief to see suffering for himself
Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better.
www.pressandjournal.co.uk
October 5, 2025 at 2:46 PM
Press & Journal UK: “Westhill mum of long Covid girl invites SNP health chief to see suffering for himself”
‘Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better’
www.pressandjournal.co.uk/fp/politics/...
‘Helen Goss says her daughter Anna, 12, is one of the “forgotten children” who deserve better’
www.pressandjournal.co.uk/fp/politics/...
Reposted by Helen
Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air.
stevebheadteacher.wordpress.com/2025/09/30/d...
stevebheadteacher.wordpress.com/2025/09/30/d...
Dear Bridget Phillipson, Please Can We Talk About Health?
Dear Bridget Phillipson, Please can we talk about health? It’s autumn 2025. We’re one month into the school year, in England. Two of my children are ill, again.With Covid, again.It̵…
stevebheadteacher.wordpress.com
October 3, 2025 at 6:28 AM
Brilliant article by a teacher highlighting the current dire situation for teachers and kids every winter when it comes to infection risk and spread. We continue to fight for our kids to have the right to breathe clean air.
stevebheadteacher.wordpress.com/2025/09/30/d...
stevebheadteacher.wordpress.com/2025/09/30/d...
Reposted by Helen
Croakey: 'Closure of long COVID clinic leaves patients without tailored support and care'
'For patients, long COVID means disrupted futures, stigma and disbelief. For carers, it means shouldering invisible burdens in a system not built for us.'
www.croakey.org/closure-of-l...
'For patients, long COVID means disrupted futures, stigma and disbelief. For carers, it means shouldering invisible burdens in a system not built for us.'
www.croakey.org/closure-of-l...
Closure of long COVID clinic leaves patients without tailored support and care
Introduction by Croakey: At the end of September, St Vincent's Long COVID Service in Sydney closed, leaving many patients without
www.croakey.org
October 3, 2025 at 4:55 PM
Croakey: 'Closure of long COVID clinic leaves patients without tailored support and care'
'For patients, long COVID means disrupted futures, stigma and disbelief. For carers, it means shouldering invisible burdens in a system not built for us.'
www.croakey.org/closure-of-l...
'For patients, long COVID means disrupted futures, stigma and disbelief. For carers, it means shouldering invisible burdens in a system not built for us.'
www.croakey.org/closure-of-l...
Reposted by Helen
PsyPost: 'This is the devastating, long-term reality for hundreds of thousands after COVID'
www.psypost.org/this-is-the-...
www.psypost.org/this-is-the-...
This is the devastating, long-term reality for hundreds of thousands after COVID
New research demonstrates that long COVID can be a severely disabling condition. A recent study found individuals with lasting symptoms report worse daily function than 98% of the general population, ...
www.psypost.org
October 3, 2025 at 4:56 PM
PsyPost: 'This is the devastating, long-term reality for hundreds of thousands after COVID'
www.psypost.org/this-is-the-...
www.psypost.org/this-is-the-...
Reposted by Helen
2/2:
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe
Long Covid SOS Charity | Recognition Research Rehabilitation
Long Covid SOS is the voice of the thousands of Long Covid sufferers in the UK. We are throwing a lifeline to all those who are living with the debilitating impact of Covid-19: Long Covid
longcovidsos.org
October 3, 2025 at 4:55 PM
2/2:
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe
🛟 wear the best mask you can
🛟 stay home and isolate if ill
🛟 test if you have symptoms
🛟 ventilate or meet outside
Visit our website to learn more, sign up for our newsletter, & donate so we can continue our vital work: longcovidsos.org
Please share & stay safe
Reposted by Helen
Covid infections are climbing again. the only way to prevent #LongCovid is to avoid catching Covid.
There is no cure for Long Covid and repeated infections can make LC worse. Protect yourself & others by reducing your risk of infection. 1/2
Longcovidsos.org
There is no cure for Long Covid and repeated infections can make LC worse. Protect yourself & others by reducing your risk of infection. 1/2
Longcovidsos.org
October 3, 2025 at 4:55 PM
Covid infections are climbing again. the only way to prevent #LongCovid is to avoid catching Covid.
There is no cure for Long Covid and repeated infections can make LC worse. Protect yourself & others by reducing your risk of infection. 1/2
Longcovidsos.org
There is no cure for Long Covid and repeated infections can make LC worse. Protect yourself & others by reducing your risk of infection. 1/2
Longcovidsos.org
Reposted by Helen
@drjoepajak.bsky.social October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
October 3, 2025 at 1:14 PM
@drjoepajak.bsky.social October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
Reposted by Helen
October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
October 1, 2025 at 11:49 AM
October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
Reposted by Helen
Can I get a ❤️ and a repost for my cancer journey podcast? The Butterfly Pavilion Podcast, "Finding light in darkness" along my stage IV #cancer journey co-hosted with my amazing daughter.
open.spotify.com/show/5YPniI4...
open.spotify.com/show/5YPniI4...
September 30, 2025 at 2:04 PM
Can I get a ❤️ and a repost for my cancer journey podcast? The Butterfly Pavilion Podcast, "Finding light in darkness" along my stage IV #cancer journey co-hosted with my amazing daughter.
open.spotify.com/show/5YPniI4...
open.spotify.com/show/5YPniI4...
Reposted by Helen
The arc of the moral universe is long, but it bends towards justice. Except it doesn’t bend on its own—it bends because we pull it in the direction of justice. What keeps me hopeful during times like these is being surrounded by people who are doing just that.
September 29, 2025 at 7:00 PM
The arc of the moral universe is long, but it bends towards justice. Except it doesn’t bend on its own—it bends because we pull it in the direction of justice. What keeps me hopeful during times like these is being surrounded by people who are doing just that.
Reposted by Helen
🔬Interesting new brainstem and cerebellum study in Long COVID - new imaging findings
A new brain imaging study of Long COVID patients reveals major damage in key parts of the brain responsible for movement, balance, and automatic body functions like heart rate and sleep
Let’s break it down🧵
A new brain imaging study of Long COVID patients reveals major damage in key parts of the brain responsible for movement, balance, and automatic body functions like heart rate and sleep
Let’s break it down🧵
September 29, 2025 at 7:37 AM
Reposted by Helen
The organizers of the UN event for healthy indoor air used a canary on all their materials and gave everyone canary pins.
Why? Canaries detect dangerous substances in the air of coal mines. We all need to be like canaries and warn about the dangers of unhealthy indoor air due to COVID and climate.
Why? Canaries detect dangerous substances in the air of coal mines. We all need to be like canaries and warn about the dangers of unhealthy indoor air due to COVID and climate.
September 25, 2025 at 11:04 PM
The organizers of the UN event for healthy indoor air used a canary on all their materials and gave everyone canary pins.
Why? Canaries detect dangerous substances in the air of coal mines. We all need to be like canaries and warn about the dangers of unhealthy indoor air due to COVID and climate.
Why? Canaries detect dangerous substances in the air of coal mines. We all need to be like canaries and warn about the dangers of unhealthy indoor air due to COVID and climate.
Reposted by Helen
We're at a turning point. Since losing Co-Founder Ondine Sherwood in March ‘25, we need your help to continue our vital work. We’ve launched a funding appeal to hire our first paid team member to keep fighting for those with #LongCovid. Can you help secure our future?
Donate today: shorturl.at/J5aan
Donate today: shorturl.at/J5aan
September 25, 2025 at 3:32 PM
We're at a turning point. Since losing Co-Founder Ondine Sherwood in March ‘25, we need your help to continue our vital work. We’ve launched a funding appeal to hire our first paid team member to keep fighting for those with #LongCovid. Can you help secure our future?
Donate today: shorturl.at/J5aan
Donate today: shorturl.at/J5aan
Reposted by Helen
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
September 23, 2025 at 9:53 PM
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!