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erubie.bsky.social
@erubie.bsky.social
40 followers 110 following 52 posts
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Reposted
phillyphile215.bsky.social
Reminder: comments due TODAY. More info and templates here: dredf.org/action-alert... This is a tangible way to fight this administration’s attacks on the disability community.
June 16, 2025 at 7:06 PM
erubie.bsky.social
Want to keep the energy going from this weekend? Take this tangible action!

Submit comments by Monday, June 16, at 11:59 pm ET to oppose DOE's attack on Section 504 and accessibility in the built environment.

dredf.org/action-alert...
Tell the Department of Energy to Stop Attacking Civil Rights and Section 504 - DREDF
Disability Rights Education & Defense Fund
dredf.org
June 16, 2025 at 3:30 AM
erubie.bsky.social
Grateful to Sen Bill Cassidy for keeping the pressure on during Wed's HELP hearing on FY26 HHS budget!

Those in Louisiana: please take a min to thank him for his work to make Long COVID the very first topic of the hearing!

Call: 202-224-5824
Message: cassidy.senate.gov/contact/get-in-touch
Get In Touch | U.S. Senator Bill Cassidy
"*" indicates required fields Your Name Prefix*– Select –Mr.Mrs.Ms.Mr. and Mrs.Dr.First Name* Middle Last Name* Suffix Your Contact Information Untitled Check Here If You Have a Foreign Address Addres...
cassidy.senate.gov
May 16, 2025 at 11:36 PM
Reposted
togetherwemask.bsky.social
TX anti-mask bill SB 2595 got pushed thru to a committee overnight bc the session is close to ending & they bend the rules. 🚨 Leave a public comment‼️ comments.house.texas.gov/home
TX Mask Bills Toolkit:
sordid-accordion-7ef.notion.site/TX-H-B-No-30...
@ancirabecky.bsky.social
May 14, 2025 at 4:19 AM
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meactnet.bsky.social
Sending our best to Ben HsuBorger, Terri Wilder #MEAction MN state lead, & other #MECFS #LongCovid advocates heading to Minnesota state capitol tomorrow.
House budget is proposing eliminating ALL appropriations for Long COVID grants & health dept staffing!

SOS moment for #MillionsMissing in MN.
Ben HsuBorger (white man with short dark hair & beard wearing an N95 mask and glasses and dark shirt) sits on a train with window behind him.
May 7, 2025 at 1:40 AM
Reposted
thesicktimes.org
Minnesota House legislators have proposed budget cuts that could end Long COVID research, communications, and grants in Minnesota, which has been a leader in state-level public health responses to the crisis. bit.ly/43lOjKM
Collage graphic showing a group of ME advocates at an awareness demonstration, the Minnesota state capitol building, a portrait of house speaker Lisa Demuth, and a vial of blood, overlaid with boxes in pastel blue, green, purple, and pink. The text reads, “Minnesota House budget proposes eliminating state Long COVID program. Cuts could end Long COVID research, communications, and grants in Minnesota, which has been a leader in state-level public health responses to the crisis. By Betsy Ladyzhets. The Sick Times.” “If you cut this funding, you won’t make the problem disappear. You’ll see us more — in ERs, in homeless shelters, and on suicide prevention lines. You’ll lose the expertise of those who know what works — and what doesn’t.” - Ben HsuBorger, #MEAction advocacy director in testimony to the state legislature
May 7, 2025 at 4:53 PM
erubie.bsky.social
EDS Awareness Month Day 4: Flare day. Cancel plans I had been looking forward to for weeks day. Rest day.

@ehlersdanlos.bsky.social
May 5, 2025 at 2:28 AM
Reposted
jews4maskrights.bsky.social
Reminder: There's still time to get the anti-mask policy out of the New York state budget. Call your state senator first thing Monday. bit.ly/no-mask-ban
May 5, 2025 at 12:50 AM
erubie.bsky.social
EDS Awareness Month Day 3: In 2023, @ehlersdanlos.bsky.social invited me to share my diagnostic journey with reps from @fda.gov. Part of that talk included my own baseball-style diagnosis stats.
May 4, 2025 at 3:57 AM
erubie.bsky.social
EDS Awareness Month Day 2: Boarded my flight home from DC (more about my trip to come). My ReadiMask caught the eye of a woman wearing a surgical. She asked me about it & shared that she works in a hospital & many provided masks don't fit her. I gave her a ReadiMask & thanked her for still masking❤️💪
Emily is on an airplane wearing a neck brace and a bright yellow ReadiMask stick-on mask with a SIP valve installed on it. She's smiling beneath the mask and wearing a gray t-shirt.
May 2, 2025 at 4:42 PM
Reposted
broadwaybabyto.bsky.social
Don’t underestimate the impact of choosing to wear a mask (ideally an N95)

You’re telling disabled & marginalized people they’re not expendable.

You’re telling government you don’t believe that COVID is over.

You’re fighting for social justice & against ableism.

You’re protecting your health.
May 2, 2025 at 4:29 AM
erubie.bsky.social
EDS/HSD Awareness Month Day 1: Starting things off by resharing a picture from yesterday, when I had the opportunity to represent @lccampaign.bsky.social & join LC advocates in attending Senator Collins & @murray.senate.gov's bipartisan appropriations hearing on biomedical research. 1/x
A selfie of seven Long COVID advocates sitting in a row in a U.S. Senate hearing room. They are all wearing masks and Long COVID teal shirts.
May 1, 2025 at 5:54 AM
erubie.bsky.social
Meaningful morning with fellow #LongCovid advocates at Sen Collins & @pattymurray.bsky.social's bipartisan biomedical research hearing. Heartening to hear Senate Approps GOP & @senateapprops.bsky.social's questions & bipartisan support for biomedical research.

@lccampaign.bsky.social
A selfie of seven Long COVID advocates sitting in a row in a U.S. Senate hearing room. They are all wearing masks and Long COVID teal shirts.
April 30, 2025 at 10:57 PM
Reposted
jews4maskrights.bsky.social
⚠️ URGENT ACTION 4/29:
The budget is NOT final. We need MASSIVE opposition while there's still time.
➡️ Call your reps to get anti-mask language OUT before a vote.
➡️ Ask 3 friends to call too!
Full toolkit + contacts: bit.ly/no-mask-ban
Use the new script below ⬇️
⚠️URGENT CALL TO ACTION 4/29⚠️ STOP ANTI-MASK NY LAW We need MASSIVE opposition to the proposed budget language while we can still fight it: CALL your state senator first. See bit.ly/no-mask-ban for full list of contacts. ASK 3 friends to call to amplify our impact. “Hi my name is [Name], and I’m calling as a constituent to urge [official] to oppose any policy that penalizes masking in the budget or beyond, including Hochul’s latest update. This law will be largely used against BIPOC, undocumented, and disabled New Yorkers. In a moment of rising authoritarianism, Dems must not allow policies that attack our civil liberties.” Tell us what they say: bit.ly/mask-ban-debrief
April 29, 2025 at 7:04 PM
erubie.bsky.social
For anyone in the DC area, join @lccampaign.bsky.social tomorrow (Apr 30) at Senator Collins & @murray.senate.gov's bipartisan medical research hearing at 10:30 am! Let us know if you plan to join—we have LC teal tshirts👕

www.appropriations.senate.gov/hearings/bio...
April 29, 2025 at 7:06 PM
Reposted
jews4maskrights.bsky.social
🚨 Hochul announced a budget deal that criminalizes masks — but IT’S NOT FINAL. Even she admits there are still details to work out.

She’s hoping we’ll give up. We’re not going to. This is putting vulnerable New Yorkers at risk.

KEEP CALLING.

#NoNYMaskBan
Screenshot of a tweet from Jack Arpey @jack_arpey reading: Gov. Hochul in the Red Room announcing a “general agreement” on the state budget, says some “final details” are still to be worked out. Above a photograph of Gov. Hochul.
April 29, 2025 at 1:51 AM
Reposted
covidadvocacyny.bsky.social
It is not okay such a controversial policy such as criminalizing masks is being done behind closed doors in the state budget. This policy should be done through legislation where the public has more of an opportunity to weigh in.

New Yorkers, budget is not final. Keep calling!
#NoNYMaskBan
April 28, 2025 at 11:21 PM
Reposted
levin.bsky.social
It's not a done deal. The ink is not signed. They want us to stop complaining but its held upon this long for a reason: your calls. Keep calling. The fact we've moved Hochul so far already is a sign to keep going, not a sign to give up.
April 28, 2025 at 11:13 PM
Reposted
msjulieslam.bsky.social
Please reach out to your senators and assembly members and governor to ask them not to have anti-mask legislation. Any mask restrictions will embolden anti-masking. We are tired of getting bullied for wearing a mask! #NoNYMaskBan @covidadvocacyny.bsky.social @jews4maskrights.bsky.social
togetherwemask.bsky.social MaskTogetherAmerica @togetherwemask.bsky.social · Apr 28
Dr. Omer Awan emphasized the essential role masks play in protecting people from deadly infectious diseases and air pollution on @forbes.com bit.ly/ForbesOnMask...
Any forms of restrictions will embolden anti-masking.
Write:
bit.ly/SaveMyRightT...
Annotation:
www.instagram.com/p/DJABypXPGB...
Screenshot of Forbes article: Why Mask Bans In America Could Set A Dangerous Precedent For Public Health, by Omer Awan, Senior Contributor. Dr. Omer Awan is a practicing physician who covers public health. Visual: A Medical Mask. Photo by LIONEL BONAVENTURE/AFP via Getty Images An excerpt in Forbes: “Julie Lam, founder of Mask Together America and mask advocate, says, “Now I am forced to be on medication that’s making me immune compromised, more susceptible to hospitalization from infection, my immunologist warned me. I am out there protesting, wearing a mask, not to make a spectacle but to send a message that we need to rise up and say no to our government defunding public health.” Source: Why Mask Bans In America Could Set A Dangerous Precedent For Public Health, by Omer Awan, Senior Contributor. https://bit.ly/ForbesOnMaskBans2025
April 28, 2025 at 8:43 PM
Reposted
erinbiba.bsky.social
“The new charge would be a class B misdemeanor and apply if someone wears a mask or covers their face with the intent of concealing their identity while committing a class A misdemeanor or felony or immediately fleeing the scene”

They’re, of course, hanging this on Jews (WHO DO NOT WANT THIS)
Gov. Hochul, lawmakers strike deal on new crime of wearing mask while evading arrest
The deal between Hochul and the Legislature’s Democratic majorities clears a major hurdle to a final budget deal.
gothamist.com
April 28, 2025 at 9:39 PM
Reposted
myrabatchelder.bsky.social
Sometimes it’s hard to believe that in the midst of hundreds of people still dying weekly from COVID-19, millions disabled by #LongCOVID, measles spreading, wildfire smoke, & more our Democratic @governor.ny.gov wants to **restrict** masks, an essential public health tool! #NoNYMaskBan
April 25, 2025 at 11:53 PM
erubie.bsky.social
Call tonight and leave a message. Call again tomorrow. Make it clear that we don't want anti-mask policies in the state budget!
covidadvocacyny.bsky.social COVID Advocacy NY @covidadvocacyny.bsky.social · Apr 28
NY State Budget is not final yet.

New Yorkers, keep calling your NY State Senators and Assemblymembers and urge them not to pass any anti-mask policies in the state budget!

#NoNYMaskBan
April 29, 2025 at 1:16 AM
Reposted
myrabatchelder.bsky.social
New Yorkers, keep calling your NY State Senator and Assemblymember and urge them not to include any anti-mask legislation or mask restrictions in the state budget! #NoNYMaskBan
April 28, 2025 at 11:52 PM
Reposted
jews4maskrights.bsky.social
⏰ TIME SENSITIVE: Call today to stop NY's mask ban!

Hochul is STILL trying to ban masks. Lawmakers are exhausted. The budget is almost done.

That's when bad policies slip through. We’ve made huge progress, we must keep the pressure on to win!

Toolkit: bit.ly/no-mask-ban

🧵1/4
Blue background with white text highlighted in red across top: Hochul is STILL trying to ban masks in NY. Smaller white text below reads: Lawmakers are exhausted. The budget is almost done. And that's exactly when bad policies slip through. We’ve made so much progress, but we can only win if we keep the pressure on during crunch time. Below that is a tweet from Benadette Hogan @bern_hogan which reads: Upshot budget isn't done: @GovHochul says she needs more days to tie up loose ends, no overall spending total (she proposed $252B) &She'll slim down $3B checks to NYers, mask ban will be approved in some form & total $ may change anyways thanks to fed $ uncertainty.
April 28, 2025 at 5:08 PM