You can follow @dredf.bsky.social's instructions, which provide template language and step-by-step screenshots for how to submit comments.

Keep making your voices heard. Keep showing what democracy looks like!💪🇺🇲

DOE is currently trying to rescind parts of Section 504 that require recipients of federal funding to ensure new construction and any alterations are fully accessible as well as requirements for transition plans to eliminate access barriers in existing facilities.

Coverage of Senator Cassidy's question to HHS Secretary Kennedy to kick off the hearing covered by @thesicktimes.bsky.social: thesicktimes.org/2025/05/14/s...

I also illustrated the less-than-straight path to finally getting my hEDS diagnosis at 29. This diagnostic delay is all too common for people with EDS. Full talk: www.ehlers-danlos.com/resource/dia...

@ehlersdanlos.bsky.social

Age at Dx: 29
Age I remember someone first telling me I was hypermobile: 12
# Specialties Seen: 16+
# Specialists Seen: 22+
# Drs who suggested I might have EDS/be on hypermobility spectrum but didn’t diagnose &/or told me I didn’t have hEDS: 3
Time between 1st mention of EDS to diagnosis: 1.5 yrs

Thank you to all the healthcare workers who continue to keep us safe by masking😷❤️

ReadiMasks have been a game changer for me because my EDS & cervical instability can't handle the straps of other N95s. If you're interested in trying ReadiMask, Alliant Biotech gave me a reusable sharable link: EMILY251Z4VFO

@ehlersdanlos.bsky.social

🥹🥰💪

Grateful to be part of @lccampaign.bsky.social and the incredible broader LC community—those who were able to make it to the hearing and those who advocate in other ways, including focusing on their health.

I invite my broader patient advocacy community and beyond to follow along this month as I and many other zebras share more about EDS!

If you have questions you'd like me to address during this awareness month, feel free to DM🦓 end/x

@ehlersdanlos.bsky.social

Bonding over similarities in symptoms and experiences is one path to common understanding across patient communities. However, having the same experiences isn't necessary to have compassion, support one another, or act in solidarity! 3/x

While @daniellewis.bsky.social is the half of our couple with Long COVID, there is significant overlap in comorbidities between Long COVID and Ehlers Danlos Syndrome (EDS), including MCAS, POTS, and more—as well as research showing that hypermobility may be a risk factor for Long COVID. 2/x

Was able to thank @pattymurray.bsky.social in person after the hearing. Equally grateful to Senator Collins for this bipartisan space to highlight the importance of biomedical research and of ensuring sufficient funding for it!

@lccampaign.bsky.social