Viele Ärzte sind in Sachen ME/CFS uninformiert und diagnostizieren Patienten eine psychische Erkrankung – mit fatalen Folgen. In der dreiteiligen Doku „Roberta deckt auf: Geheime Volkskrankheit ME/CFS...

With greater understanding of the complex pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome, researchers aim to target treatments.

Nach Corona kam der Crash – Erfahrungsbericht ME/CFS: Eine von ME Betroffene erzählt aus ihrem Alltag mit Schmerz, Erschöpfung, Mutlosigkeit

Viele Patienten mit Long-COVID leiden unter ME/CFS, einer Erkrankung mit schwerer Erschöpfung (Fatigue). Wie Ärzte Symptome erkennen können und wo es Hilfe gibt.

Berlin: (hib/PK) Der Gesundheitsausschuss hat sich in einem Fachgespräch mit 'postviralen Erkrankungen wie Long-Covid und ME/CFS' befasst. Dabei forderten die Sachverständigen am Mittwoch...

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Objective Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious chronic and complex multi-system disease characterised by symptoms such as post-exertional malaise, fatigue, cognitive impairment and pain. Diagnosis is based on international consensus criteria, and no curative treatment is available. In the USA, its prevalence is estimated at 0.42% among adults, with women affected three times as often as men. Prevalence is expected to increase due to the COVID-19 pandemic. In addition to its severe symptoms, ME/CFS has a substantial economic impact. This scoping review aimed to systematically examine the global health, social and economic burden of ME/CFS. Methods We conducted a systematic literature search following the Preferred Reporting Items for Systematic Reviews and Meta-Analysis extension for Scoping Reviews (PRISMA-ScR) guidelines in six databases and supplemented it with a citation search. We assessed study quality using a modified version of the Mixed Methods Appraisal Tool. Results We included 20 studies that assessed costs (n = 16), disability-adjusted life years (DALYs) (n = 3), employment rates (n = 1), and school attendance (n = 1) as indicators of disease burden. Reported costs per patient ranged from USD 2,916 to USD 119,611, with indirect costs accounting for the largest proportion. DALYs reported for the USA ranged from 0.714 million in 2016 to 5.77 million in 2022. Conclusion ME/CFS imposes a substantial health, social and economic burden of disease. Discrepancies in estimates are probably due to differences in study samples, methodologies, cost components, and healthcare systems. Because ME/CFS is assumed to be underdiagnosed, its true burden may be even higher.

Die Expertin Carmen Scheibenbogen über Ursachen von ME/CFS, die mangelnde Versorgungslage in Deutschland und Hoffnung auf Medikamente.

ME/CFS ist eine schwere neuroimmunologische Erkrankung, an der in Deutschland ca. 650.000 Menschen leiden. Die Deutsche Gesellschaft für ME/CFS setzt sich für mehr Forschung, öffentliche Anerkennung u...

YouTube video by Fatigatio e. V.

Eigentlich nicht, sagt Kolumnistin Margarete Stokowski. Und: irgendwie doch. Eine muss sich ja auskennen.

ME/CFS Research Foundation is a non-profit organization dedicated to advancing research and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome.