Curious Orca 🐌
@curiousorca.bsky.social
Disabled ex-clinician
People > Profits
Bedbound rabblerouser
Citizen scientist
Poodle parent
Making art keeps me sane-ish
#LongCovid #PwME
#MyalgicEncephalomyelitis #hEDS #POTS #neuroqueer #auDHD #decolonizer #Vermonter
People > Profits
Bedbound rabblerouser
Citizen scientist
Poodle parent
Making art keeps me sane-ish
#LongCovid #PwME
#MyalgicEncephalomyelitis #hEDS #POTS #neuroqueer #auDHD #decolonizer #Vermonter
Reposted by Curious Orca 🐌
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
May 9, 2025 at 7:56 PM
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
Reposted by Curious Orca 🐌
This project is incredible.
Please go look at the works of these severely unwell artists.
These are the voices so rarely heard.
And so rarely have the platform to share their stories.
Phenomenal effort for them to put this together.
#ME #MEArt #Disability #Art #Poetry #Photography
Please go look at the works of these severely unwell artists.
These are the voices so rarely heard.
And so rarely have the platform to share their stories.
Phenomenal effort for them to put this together.
#ME #MEArt #Disability #Art #Poetry #Photography
Today it’s time to launch a big project I’ve had the privilege of working on: A Quiet Storm—an online art gallery showcasing the artwork of people living with severe ME/CFS. 1/7
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
a quiet storm - an online gallery
An online art gallery showcasing the artwork of people living with severe ME/CFS
www.aquietstorm.me
April 12, 2025 at 10:40 AM
This project is incredible.
Please go look at the works of these severely unwell artists.
These are the voices so rarely heard.
And so rarely have the platform to share their stories.
Phenomenal effort for them to put this together.
#ME #MEArt #Disability #Art #Poetry #Photography
Please go look at the works of these severely unwell artists.
These are the voices so rarely heard.
And so rarely have the platform to share their stories.
Phenomenal effort for them to put this together.
#ME #MEArt #Disability #Art #Poetry #Photography
Reposted by Curious Orca 🐌
Today it’s time to launch a big project I’ve had the privilege of working on: A Quiet Storm—an online art gallery showcasing the artwork of people living with severe ME/CFS. 1/7
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
a quiet storm - an online gallery
An online art gallery showcasing the artwork of people living with severe ME/CFS
www.aquietstorm.me
April 11, 2025 at 3:19 PM
Today it’s time to launch a big project I’ve had the privilege of working on: A Quiet Storm—an online art gallery showcasing the artwork of people living with severe ME/CFS. 1/7
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
www.aquietstorm.me
#MECFS #pwME #OnlineArtGallery #AQuietStorm
Reposted by Curious Orca 🐌
I can't believe that the endgame of a highly contagious airborne pathogen that led to millions of deaths is a bipartisan effort to ban masks.
March 28, 2025 at 2:13 AM
I can't believe that the endgame of a highly contagious airborne pathogen that led to millions of deaths is a bipartisan effort to ban masks.
Reposted by Curious Orca 🐌
The only difference between a temp abled person & a disabled one is luck & time
Their good health isn’t due to “trying harder” or moral superiority. It’s luck
Health can be taken away at any moment, and if you live long enough you will almost certainly experience disability
Be kind. Be inclusive.
Their good health isn’t due to “trying harder” or moral superiority. It’s luck
Health can be taken away at any moment, and if you live long enough you will almost certainly experience disability
Be kind. Be inclusive.
March 12, 2025 at 4:37 AM
The only difference between a temp abled person & a disabled one is luck & time
Their good health isn’t due to “trying harder” or moral superiority. It’s luck
Health can be taken away at any moment, and if you live long enough you will almost certainly experience disability
Be kind. Be inclusive.
Their good health isn’t due to “trying harder” or moral superiority. It’s luck
Health can be taken away at any moment, and if you live long enough you will almost certainly experience disability
Be kind. Be inclusive.
Reposted by Curious Orca 🐌
I wish chronically ill people could do a “freaky Friday” switch with our non disabled peers.
If they could feel what it’s like to exist in our bodies, they might be more compassionate.
Alternatively, I would like to know what it’s like to exist in a body free from pain. A body that feels safe.
If they could feel what it’s like to exist in our bodies, they might be more compassionate.
Alternatively, I would like to know what it’s like to exist in a body free from pain. A body that feels safe.
March 6, 2025 at 2:28 AM
I wish chronically ill people could do a “freaky Friday” switch with our non disabled peers.
If they could feel what it’s like to exist in our bodies, they might be more compassionate.
Alternatively, I would like to know what it’s like to exist in a body free from pain. A body that feels safe.
If they could feel what it’s like to exist in our bodies, they might be more compassionate.
Alternatively, I would like to know what it’s like to exist in a body free from pain. A body that feels safe.
Reposted by Curious Orca 🐌
Reposted by Curious Orca 🐌
Reposted by Curious Orca 🐌
The people who rise to lead now will be the leaders.
And the people who do not never will.
And the people who do not never will.
February 4, 2025 at 10:48 PM
The people who rise to lead now will be the leaders.
And the people who do not never will.
And the people who do not never will.
Reposted by Curious Orca 🐌
TOMORROW: We’re rallying at the Treasury building with @moveon.org to stop Elon Musk’s hostile takeover and tell this unelected billionaire to get his hands off our money. We hope you can join us if you’re in the D.C. area.
We Choose to Fight: Nobody Elected Elon! · MoveOn
**Rally at the Treasury building to stop Elon Musk’s billionaire takeover.** Nobody elected Elon! We need everyone to fight this hostile takeover at every level—that includes Democrats in Congress, wh...
www.mobilize.us
February 3, 2025 at 8:48 PM
TOMORROW: We’re rallying at the Treasury building with @moveon.org to stop Elon Musk’s hostile takeover and tell this unelected billionaire to get his hands off our money. We hope you can join us if you’re in the D.C. area.
Reposted by Curious Orca 🐌
February 3, 2025 at 3:32 PM
Reposted by Curious Orca 🐌
A time for ‘a look inward’, if ever there was one…👇
Thanks Canada, for a reminder that needs to be said, out loud!
Introspection. Defined. ✨
Thanks Canada, for a reminder that needs to be said, out loud!
Introspection. Defined. ✨
February 3, 2025 at 9:54 AM
A time for ‘a look inward’, if ever there was one…👇
Thanks Canada, for a reminder that needs to be said, out loud!
Introspection. Defined. ✨
Thanks Canada, for a reminder that needs to be said, out loud!
Introspection. Defined. ✨
Reposted by Curious Orca 🐌
This is Groundhog Day
February 2, 2025 at 3:33 PM
This is Groundhog Day
Wow, how different the past 20 months of my life could have been had this interview of Dr Alba Asola by Dr Zeest Khan been available.
A must listen for anyone with a bunch of bizarre symptoms being told they’re “fine” by medical providers. Actually, you may have #dysautonomia.
#longcovid #pots
A must listen for anyone with a bunch of bizarre symptoms being told they’re “fine” by medical providers. Actually, you may have #dysautonomia.
#longcovid #pots
#35: The Autonomic Nervous System in Long COVID, with Dr Alba Azola, MD
Podcast Episode · Long Covid, MD · 12/11/2024 · 57m
podcasts.apple.com
December 12, 2024 at 4:15 PM
Wow, how different the past 20 months of my life could have been had this interview of Dr Alba Asola by Dr Zeest Khan been available.
A must listen for anyone with a bunch of bizarre symptoms being told they’re “fine” by medical providers. Actually, you may have #dysautonomia.
#longcovid #pots
A must listen for anyone with a bunch of bizarre symptoms being told they’re “fine” by medical providers. Actually, you may have #dysautonomia.
#longcovid #pots
Reposted by Curious Orca 🐌
If aliens came down to earth and asked for my opinion on who should rule the earth, I'm going with librarians and Dolly Parton.
November 28, 2024 at 2:37 AM
If aliens came down to earth and asked for my opinion on who should rule the earth, I'm going with librarians and Dolly Parton.
Reposted by Curious Orca 🐌
Lesson 1: Do not obey in advance.
Thread of lessons from my book #OnTyranny. Written in 2016.
Thread of lessons from my book #OnTyranny. Written in 2016.
November 23, 2024 at 1:43 PM
Lesson 1: Do not obey in advance.
Thread of lessons from my book #OnTyranny. Written in 2016.
Thread of lessons from my book #OnTyranny. Written in 2016.
Thank you!
I was a voracious physical book ready until I developed Long Covid and now I can’t process them.
Audiobooks have saved me.
Lots of people need adaptive reading assistance for a variety of reasons.
To claim audiobooks don’t count is ableist AF.
I was a voracious physical book ready until I developed Long Covid and now I can’t process them.
Audiobooks have saved me.
Lots of people need adaptive reading assistance for a variety of reasons.
To claim audiobooks don’t count is ableist AF.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
Audiobooks count as reading.
November 22, 2024 at 9:38 PM
Thank you!
I was a voracious physical book ready until I developed Long Covid and now I can’t process them.
Audiobooks have saved me.
Lots of people need adaptive reading assistance for a variety of reasons.
To claim audiobooks don’t count is ableist AF.
I was a voracious physical book ready until I developed Long Covid and now I can’t process them.
Audiobooks have saved me.
Lots of people need adaptive reading assistance for a variety of reasons.
To claim audiobooks don’t count is ableist AF.
Reposted by Curious Orca 🐌
#LongCovid is a multi-system disease affecting basically all organs and body systems. This is shown by thousands of publications and was already described by patient-researchers and advocates in the early pandemic. It can affect different people differently
November 22, 2024 at 5:50 PM
#LongCovid is a multi-system disease affecting basically all organs and body systems. This is shown by thousands of publications and was already described by patient-researchers and advocates in the early pandemic. It can affect different people differently
Reposted by Curious Orca 🐌
The "bluesky is an echo chamber" think pieces that keep popping up really tickle me because they show how certain people genuinely believe social media should be for debating and arguing and not talking about the things that make you happy and sharing art with the world.
November 22, 2024 at 12:57 PM
The "bluesky is an echo chamber" think pieces that keep popping up really tickle me because they show how certain people genuinely believe social media should be for debating and arguing and not talking about the things that make you happy and sharing art with the world.
November 21, 2024 at 9:15 PM
Reposted by Curious Orca 🐌
Hi, I’m God.
Billionaires shouldn’t exist.
Thanks,
God
Billionaires shouldn’t exist.
Thanks,
God
November 21, 2024 at 1:14 AM
Hi, I’m God.
Billionaires shouldn’t exist.
Thanks,
God
Billionaires shouldn’t exist.
Thanks,
God
Ok #chronicillness friends, what cozy, low-demand shows do you recommend for distraction?
Lately I’m liking the kind that have a story arc that wraps up each episode, but I def enjoy a good binge if it’s a compelling season-long thread.
#disability #LongCovid #mecfs #myalgicencephalomyelitis
Lately I’m liking the kind that have a story arc that wraps up each episode, but I def enjoy a good binge if it’s a compelling season-long thread.
#disability #LongCovid #mecfs #myalgicencephalomyelitis
November 20, 2024 at 7:05 PM
Ok #chronicillness friends, what cozy, low-demand shows do you recommend for distraction?
Lately I’m liking the kind that have a story arc that wraps up each episode, but I def enjoy a good binge if it’s a compelling season-long thread.
#disability #LongCovid #mecfs #myalgicencephalomyelitis
Lately I’m liking the kind that have a story arc that wraps up each episode, but I def enjoy a good binge if it’s a compelling season-long thread.
#disability #LongCovid #mecfs #myalgicencephalomyelitis
I’m curious, do you let yourself start a new project before finishing a previous one?
I’m def team Start A New One, but I know I’m chasing dopamine. I’ve decided that’s ok?
#craft #crafting #knitting #embroidery #sashiko #adhd #audhd #art #watercolor #bookbinding #mixedmediaart #crochet
I’m def team Start A New One, but I know I’m chasing dopamine. I’ve decided that’s ok?
#craft #crafting #knitting #embroidery #sashiko #adhd #audhd #art #watercolor #bookbinding #mixedmediaart #crochet
November 20, 2024 at 6:32 PM
I’m curious, do you let yourself start a new project before finishing a previous one?
I’m def team Start A New One, but I know I’m chasing dopamine. I’ve decided that’s ok?
#craft #crafting #knitting #embroidery #sashiko #adhd #audhd #art #watercolor #bookbinding #mixedmediaart #crochet
I’m def team Start A New One, but I know I’m chasing dopamine. I’ve decided that’s ok?
#craft #crafting #knitting #embroidery #sashiko #adhd #audhd #art #watercolor #bookbinding #mixedmediaart #crochet
@southmainbookco.bsky.social yay you’re here! 🎉
November 20, 2024 at 5:28 PM
@southmainbookco.bsky.social yay you’re here! 🎉