Curious Orca 🐌
@curiousorca.bsky.social
Disabled ex-clinician
People > Profits
Bedbound rabblerouser
Citizen scientist
Poodle parent
Making art keeps me sane-ish
#LongCovid #PwME
#MyalgicEncephalomyelitis #hEDS #POTS #neuroqueer #auDHD #decolonizer #Vermonter
People > Profits
Bedbound rabblerouser
Citizen scientist
Poodle parent
Making art keeps me sane-ish
#LongCovid #PwME
#MyalgicEncephalomyelitis #hEDS #POTS #neuroqueer #auDHD #decolonizer #Vermonter
You’re inspiring me to source some pigment to make it!
July 18, 2025 at 6:20 PM
You’re inspiring me to source some pigment to make it!
Stunning. And the granulation… 💜
July 18, 2025 at 3:31 PM
Stunning. And the granulation… 💜
It’s brutal. I’m so sorry 💜
July 13, 2025 at 10:07 PM
It’s brutal. I’m so sorry 💜
As a clinician myself, I couldn’t agree more.
June 25, 2025 at 10:30 PM
As a clinician myself, I couldn’t agree more.
*one of several phenotypes of each*
June 25, 2025 at 9:46 PM
*one of several phenotypes of each*
ANS dysregulation seems to be a phenotype of both LC and ME (hence so much dysautonomia and POTS seen in these pops), likely brought on by cytokine insult in the brain during acute infection. I am one of these patients.
But gaslighting oneself does not reverse the process!
But gaslighting oneself does not reverse the process!
June 25, 2025 at 9:46 PM
ANS dysregulation seems to be a phenotype of both LC and ME (hence so much dysautonomia and POTS seen in these pops), likely brought on by cytokine insult in the brain during acute infection. I am one of these patients.
But gaslighting oneself does not reverse the process!
But gaslighting oneself does not reverse the process!
Super disappointing that this is being pushed by ME/LC “experts”
June 25, 2025 at 9:39 PM
Super disappointing that this is being pushed by ME/LC “experts”
No evidence for ME.
Did 3 separate programs. All they did is strengthen my internalized ableism.
These programs work for some people with certain conditions, but they do not reverse neuroimmune disease or mitochondrial dysfunction.
They’ll tell you they cure CFS though 😒
Did 3 separate programs. All they did is strengthen my internalized ableism.
These programs work for some people with certain conditions, but they do not reverse neuroimmune disease or mitochondrial dysfunction.
They’ll tell you they cure CFS though 😒
June 25, 2025 at 9:37 PM
No evidence for ME.
Did 3 separate programs. All they did is strengthen my internalized ableism.
These programs work for some people with certain conditions, but they do not reverse neuroimmune disease or mitochondrial dysfunction.
They’ll tell you they cure CFS though 😒
Did 3 separate programs. All they did is strengthen my internalized ableism.
These programs work for some people with certain conditions, but they do not reverse neuroimmune disease or mitochondrial dysfunction.
They’ll tell you they cure CFS though 😒
I’m also now noticing that. Effing skill regression 😤
February 23, 2025 at 2:13 PM
I’m also now noticing that. Effing skill regression 😤
Visible really helped me learn to pace. Highly recommend.
February 21, 2025 at 2:47 AM
Visible really helped me learn to pace. Highly recommend.
I’m so sorry. And also welcome. The Bateman Horne Center does excellent clinical research on LC and ME. They have patient and clinician resources on their site, including treatment guidelines. batemanhornecenter.org/education/me...
ME/CFS Guidebook
The guide gives patients, their support network, and medical providers with practical advice on ways to manage a ME/CFS crash, and the art of preventing them.
batemanhornecenter.org
February 21, 2025 at 2:46 AM
I’m so sorry. And also welcome. The Bateman Horne Center does excellent clinical research on LC and ME. They have patient and clinician resources on their site, including treatment guidelines. batemanhornecenter.org/education/me...
That’s so interesting!
Poodles are the best ❤️
Poodles are the best ❤️
February 18, 2025 at 10:44 PM
That’s so interesting!
Poodles are the best ❤️
Poodles are the best ❤️