colerosebud.bsky.social
@colerosebud.bsky.social
Reader, gardener, cancer patient.
Reposted
The secretary of health and human services finished Autism Awareness Month as he began it: spreading conspiracy theories, misinformation and lies about autism, vaccines, basic medical theories and more. Maybe that's enough awareness for now. Let's talk Medicaid. From @msnbc.com
Opinion | RFK Jr.‘s ignorance about autism is bad enough. Republicans’ Medicaid cuts are worse.
Proposed reductions will have terrible consequences for autistic people and their families.
www.msnbc.com
May 6, 2025 at 3:35 PM
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The next time you hear RFK Jr talk about how he wants to “make America healthy” and end the chronic illness epidemic … remember that he just chose to cut the entire NIOSH department.

A group of people whose sole purpose is to help prevent sickness, death and disability.
May 4, 2025 at 3:30 AM
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if you're in the mood to read a strong affirmation about the worth of disabled lives in the face of a eugenicist administration.... so was i, so i wrote one: buttondown.com/theswordandt...
Disability, Eugenics, and the Value of Human Life
The eugenicists Your worth is not tied to what you can do. Your worth is not tied to your health. Your worth is not tied to all the things you can do...
buttondown.com
April 21, 2025 at 4:38 PM
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My son is autistic, has Down syndrome, and qualifies for SSI. Our financial planning in the wake of my wife's own disability and unemployment counted on those funds as he turned 18. I do not think we will get them for years. (We will be ok, but less so!).
March 25, 2025 at 1:56 PM
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Medicaid and Medicare are not the same things and I’m begging you to learn the difference and use the right one.
February 25, 2025 at 4:41 PM
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You don’t need to have photos of people doing the seig heil and you don’t need to show Musk’s face when you write about the coup. My feed is often suffused with both and they start to overwhelm the words of opposition accompanying them.
February 22, 2025 at 5:44 PM
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Most people have never heard of cholangiocarcinoma, yet it’s the 2nd most common liver cancer. Awareness isn’t just important—it’s life-changing. Knowledge leads to early detection, research, and hope. Let’s make CCA known. #WorldCCADay 🌍
February 20, 2025 at 1:02 PM
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"We need to see people resisting more" is at odds with keeping resistance fighters safe from the government identification who are looking for excuses to escalate.

To a point, you have to believe A LOT of Americans are Doing The Work without insisting on endangering themselves to satisfy you.
February 18, 2025 at 2:56 PM
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New initiatives are restoring farmlands to peatlands while creating markets for the native grasses, reeds and sedges they support. ow.ly/nkKK50UWHc8
February 10, 2025 at 4:20 PM
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Here’s a great guide on how to photograph owls carefully and in a way that doesn’t stress or harm them. Our human fascination with owls can unfortunately make us a danger to them.

#EthicalPhotography #birds #SuperbOwl
February 9, 2025 at 5:56 PM
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Reminder: #RFKJr is not a medically trained professional. His opinions about how to treat depression, ADHD, substance use disorder, prevent infections in children, manage miscarriage/abortion or any other health issue should be roundly dismissed. He does not know what he is talking about.
January 30, 2025 at 6:17 PM
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I think I'm going to have to log off of the internet for a bit before the news cycle breaks my brain entirely. Hundreds of millennia of human evolution have not provided us the cognitive tools required to process this level of administrative chaos.
January 29, 2025 at 7:23 PM
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Given that there’s a pause on FDA comms right now, it may be useful for Americans to sign up for Canadian recalls, since many products are sold in both countries. Eg fellow celiacs, this may clue you into products to watch out for on the US side too: recalls-rappels.canada.ca/en/subscribe
January 25, 2025 at 9:17 PM
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The price of eggs in the US is spiking, mostly due to #H5N1 bird flu. Solving the problem requires urgent, important communications from the CDC & FDA* and rapid development of research by the NIH**

* Currently paused by Executive Order
** Grant reviews now all canceled
www.kcur.org/news/2025-01...
Egg prices are soaring again. Here’s why and what to expect
Bird flu has killed millions of hens in recent weeks, shrinking the supply of eggs and hiking up prices at grocery stores.
www.kcur.org
January 23, 2025 at 5:18 PM
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📄 Free access to the full study: rdcu.be/d6VYU

New from my team: In a study of over 2 million people, we comprehensively mapped the benefits and risks of GLP-1 (e.g. Ozempic and similar weight loss drugs) across 175 health conditions.

Please share and download before it goes back behind paywall.
Mapping the effectiveness and risks of GLP-1 receptor agonists
Nature Medicine - An atlas of the associations between the use of GLP-1 receptor agonists (GLP-1RAs) and 175 health outcomes reports the effectiveness and risks of GLP-1RAs compared with other...
rdcu.be
January 22, 2025 at 7:22 PM
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What if there’s a public health emergency? Or a drug recall? We won’t hear from agencies we pay for, which Congress created to protect the public, because the Trump White House needs time to conduct a political purge.
The Trump admin has instructed federal health agencies — including the FDA, CDC, and NIH — to pause all external communications, such as health advisories, weekly scientific reports, updates to websites and social media posts. www.washingtonpost.com/health/2025/...
Trump officials pause health agencies’ communications, citing review
The agencies are charged with making decisions that touch the lives of every American and are the source of crucial information to health-care providers.
www.washingtonpost.com
January 22, 2025 at 7:52 PM
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Everyone excusing Elon Musk’s behavior due to his alleged autism should be chased into the sea with pitchforks

it’s both profoundly insulting to autistic people and also obviously not true
January 20, 2025 at 10:35 PM
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1. Two very important points in this article. First, regardless of whether H5N1 mutates to allow for efficient human - human transmission, the extremely high prevalence of the virus in poultry and dairy cattle is having significant economic impact.

www.ctvnews.ca/world/articl...
America is in the middle of an egg shortage
www.ctvnews.ca
January 15, 2025 at 12:58 PM
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Rest is a radical act of self-love in a world that glorifies stress
January 15, 2025 at 10:20 PM
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Presuming competence does not mean all nonspeakers are secretly geniuses. It means we treat everyone as human—specifically people who really do have intellectual disabilities, & who really do need extensive support. From Julia Bascom's Dangerous Assumptions:

thinkingautismguide.com/2019/06/dang...
January 9, 2025 at 11:35 PM
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Calling people who use sign language “wild gesticulators” is like calling people who use verbal languages “incessant grunters” or written language “sedentary scribblers.” Everything they say is demonstrably nonsense meant to appeal to and engender hate in those without logic or awareness.
January 12, 2025 at 3:01 PM
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Look--

It's too much. We're not built to absorb/process genocides, climate destruction & our institutions betraying us, all while we still have to cook dinner & do laundry in the midst of multiple concurrent & future pandemics.

It's okay if you can't. Do the best you can with what you've got, k?
January 10, 2025 at 3:23 PM
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And also if you're not masking and would consider doing it just part-time—hospitals, pharmacies, public transportation and grocery stories are good places to mask, as people taking Covid seriously have to generally be there as well.
If you’re still masking & taking Covid precautions - thank you.

If you stopped - it’s not too late to start again. There are people who will help you.

If you’re covid cautious & dealing with an infection - it’s not your fault. The system is failing us.

By making the effort you protected others.
December 18, 2024 at 5:28 AM
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Another reminder:

Respiratory infections spread mainly through the air. That’s why they affect the lungs.

Masks, worn correctly and consistently, reduce the spread of respiratory infections.

Respirators work better than masks.

Washing hands isn’t wrong, but it won’t stop airborne transmission.
December 10, 2024 at 9:56 AM