Cholangiocarcinoma Foundation
@cholangiocarcinoma.bsky.social
The Cholangiocarcinoma Foundation is a global 501(c)(3) non-profit organization and our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.
💚 Upcoming Webinar: A Guide to Immunotherapy
Join us Nov 13 @ 4:00 p.m. (EDT) with Jenna O’Rourke, MSN, FNP-BC from Beth Israel Deaconess Medical Center to learn about immunotherapy, side effects, and how doctors decide if it’s right for someone with cholangiocarcinoma. https://curecca.link/nov13
Join us Nov 13 @ 4:00 p.m. (EDT) with Jenna O’Rourke, MSN, FNP-BC from Beth Israel Deaconess Medical Center to learn about immunotherapy, side effects, and how doctors decide if it’s right for someone with cholangiocarcinoma. https://curecca.link/nov13
November 10, 2025 at 7:30 PM
💚 Upcoming Webinar: A Guide to Immunotherapy
Join us Nov 13 @ 4:00 p.m. (EDT) with Jenna O’Rourke, MSN, FNP-BC from Beth Israel Deaconess Medical Center to learn about immunotherapy, side effects, and how doctors decide if it’s right for someone with cholangiocarcinoma. https://curecca.link/nov13
Join us Nov 13 @ 4:00 p.m. (EDT) with Jenna O’Rourke, MSN, FNP-BC from Beth Israel Deaconess Medical Center to learn about immunotherapy, side effects, and how doctors decide if it’s right for someone with cholangiocarcinoma. https://curecca.link/nov13
Looking for a gentle, gut-friendly meal during treatment? 🎃 Try pumpkin oatmeal! It’s packed with easy-to-tolerate fiber, vitamins, and minerals—low in fat and FODMAPs to help ease GI symptoms. 💚
Get more evidence-based nutrition tips with free Ina®: https://adchol.savorhealth.com/portal/
Get more evidence-based nutrition tips with free Ina®: https://adchol.savorhealth.com/portal/
November 4, 2025 at 7:03 PM
Looking for a gentle, gut-friendly meal during treatment? 🎃 Try pumpkin oatmeal! It’s packed with easy-to-tolerate fiber, vitamins, and minerals—low in fat and FODMAPs to help ease GI symptoms. 💚
Get more evidence-based nutrition tips with free Ina®: https://adchol.savorhealth.com/portal/
Get more evidence-based nutrition tips with free Ina®: https://adchol.savorhealth.com/portal/
💚 This November, join our support groups to find connection, comfort, and understanding for anyone affected by cholangiocarcinoma.
✨ Register for any group here: curecca.link/supportgroups
✨ Register for any group here: curecca.link/supportgroups
November 3, 2025 at 8:02 PM
💚 This November, join our support groups to find connection, comfort, and understanding for anyone affected by cholangiocarcinoma.
✨ Register for any group here: curecca.link/supportgroups
✨ Register for any group here: curecca.link/supportgroups
🏃♂️💚 We’re grateful to Anton Semelroth Jr. for running the Marine Corps Marathon in honor of his grandpa, Dick, raising $3,490 for the Cholangiocarcinoma Foundation. Thank you, Anton, for your generosity and dedication! https://give.cholangiocarcinoma.org/fundraiser/6489752
November 1, 2025 at 6:30 PM
🏃♂️💚 We’re grateful to Anton Semelroth Jr. for running the Marine Corps Marathon in honor of his grandpa, Dick, raising $3,490 for the Cholangiocarcinoma Foundation. Thank you, Anton, for your generosity and dedication! https://give.cholangiocarcinoma.org/fundraiser/6489752
🕸️ 🎃 Wishing you a Happy Halloween! We’re batty about this community! 🦇
October 31, 2025 at 2:31 PM
🕸️ 🎃 Wishing you a Happy Halloween! We’re batty about this community! 🦇
📱 Sign up for free expert grief support — delivered via text.
Help Texts provides personalized tips, resources, and gentle guidance to support you as you grieve. Getting support is as easy as getting a text.
👉 Sign up today at helptexts.com/CCFgrief.
Help Texts provides personalized tips, resources, and gentle guidance to support you as you grieve. Getting support is as easy as getting a text.
👉 Sign up today at helptexts.com/CCFgrief.
October 28, 2025 at 5:01 PM
📱 Sign up for free expert grief support — delivered via text.
Help Texts provides personalized tips, resources, and gentle guidance to support you as you grieve. Getting support is as easy as getting a text.
👉 Sign up today at helptexts.com/CCFgrief.
Help Texts provides personalized tips, resources, and gentle guidance to support you as you grieve. Getting support is as easy as getting a text.
👉 Sign up today at helptexts.com/CCFgrief.
Join the CCF Webinar Weaponizing White Blood Cells to Fight Cholangiocarcinoma with Dr. Gregory Lesinski (Emory University) on Oct 30, 4 PM EDT. Learn about CAR T cells, tumor-infiltrating lymphocytes, and emerging immunotherapy research. Sponsored by the Bloom Family.
🔗 curecca.link/oct30.
🔗 curecca.link/oct30.
October 28, 2025 at 12:30 AM
Join the CCF Webinar Weaponizing White Blood Cells to Fight Cholangiocarcinoma with Dr. Gregory Lesinski (Emory University) on Oct 30, 4 PM EDT. Learn about CAR T cells, tumor-infiltrating lymphocytes, and emerging immunotherapy research. Sponsored by the Bloom Family.
🔗 curecca.link/oct30.
🔗 curecca.link/oct30.
💚 Honoring Jim’s memory, Susan Camberis hosted her first annual “Smoke Out Cholangiocarcinoma” at Mission BBQ. Friends and family came together to celebrate his life, enjoy his favorite food, and raise $1,525 to support others impacted by cholangiocarcinoma. 💚 Thank you!
October 27, 2025 at 7:30 PM
💚 Honoring Jim’s memory, Susan Camberis hosted her first annual “Smoke Out Cholangiocarcinoma” at Mission BBQ. Friends and family came together to celebrate his life, enjoy his favorite food, and raise $1,525 to support others impacted by cholangiocarcinoma. 💚 Thank you!
✨ CARE Events are happening across the country! ✨
📍 New England Get-Together
🗓️ Oct. 28 | 💻 Virtual
📍 Houston Memorial Park Meet Up
🗓️ Nov. 8 | 🤝 In-person
📍 Washington, DC/Baltimore Inaugural CARE Event
🗓️ Nov. 15 | 💚 In-person
Register at curecca.link/25careevents.
📍 New England Get-Together
🗓️ Oct. 28 | 💻 Virtual
📍 Houston Memorial Park Meet Up
🗓️ Nov. 8 | 🤝 In-person
📍 Washington, DC/Baltimore Inaugural CARE Event
🗓️ Nov. 15 | 💚 In-person
Register at curecca.link/25careevents.
October 25, 2025 at 7:30 PM
✨ CARE Events are happening across the country! ✨
📍 New England Get-Together
🗓️ Oct. 28 | 💻 Virtual
📍 Houston Memorial Park Meet Up
🗓️ Nov. 8 | 🤝 In-person
📍 Washington, DC/Baltimore Inaugural CARE Event
🗓️ Nov. 15 | 💚 In-person
Register at curecca.link/25careevents.
📍 New England Get-Together
🗓️ Oct. 28 | 💻 Virtual
📍 Houston Memorial Park Meet Up
🗓️ Nov. 8 | 🤝 In-person
📍 Washington, DC/Baltimore Inaugural CARE Event
🗓️ Nov. 15 | 💚 In-person
Register at curecca.link/25careevents.
“My mentor has been such a blessing to me. Always there at just the right times.” CholangioConnect connects patients, caregivers, and bereaved mentors with someone who understands their journey.
🔗 Request a mentor today: curecca.link/cc.
🔗 Request a mentor today: curecca.link/cc.
October 24, 2025 at 6:02 PM
“My mentor has been such a blessing to me. Always there at just the right times.” CholangioConnect connects patients, caregivers, and bereaved mentors with someone who understands their journey.
🔗 Request a mentor today: curecca.link/cc.
🔗 Request a mentor today: curecca.link/cc.
Meet Dorian and Jade from The Woodlands, TX, two legacy caregivers, ministers, and mentors who are lifting others in the cholangiocarcinoma community. Become a mentor and support someone navigating their journey: curecca.link/cc.
October 23, 2025 at 4:31 PM
Meet Dorian and Jade from The Woodlands, TX, two legacy caregivers, ministers, and mentors who are lifting others in the cholangiocarcinoma community. Become a mentor and support someone navigating their journey: curecca.link/cc.
💚 Grief looks different for everyone — and that’s okay. The Grief Care Kit Project offers resources to help children and young adults navigate loss with compassion. Thanks to AstraZeneca, kits are free for families in need. Request one here: https://curecca.link/GriefToolKit.
October 22, 2025 at 7:30 PM
💚 Grief looks different for everyone — and that’s okay. The Grief Care Kit Project offers resources to help children and young adults navigate loss with compassion. Thanks to AstraZeneca, kits are free for families in need. Request one here: https://curecca.link/GriefToolKit.
Join Team CCF's Choose Your Challenge this November by signing up for a local Turkey Trot or organizing one yourself! You can create a fundraising page and receive fundraising support.
Visit https://curecca.link/cyc to get started. The first 5 participants will receive a pair of Turkey Trot socks.
Visit https://curecca.link/cyc to get started. The first 5 participants will receive a pair of Turkey Trot socks.
October 20, 2025 at 11:02 PM
Join Team CCF's Choose Your Challenge this November by signing up for a local Turkey Trot or organizing one yourself! You can create a fundraising page and receive fundraising support.
Visit https://curecca.link/cyc to get started. The first 5 participants will receive a pair of Turkey Trot socks.
Visit https://curecca.link/cyc to get started. The first 5 participants will receive a pair of Turkey Trot socks.
Happy Diwali from the Cholangiocarcinoma Foundation! 🌟
May this season of light inspire hope, brighten every path, and remind us that together, our community shines stronger. 💛🪔💚
#Diwali #LightThePath #CureCCA #strengthincommunity
May this season of light inspire hope, brighten every path, and remind us that together, our community shines stronger. 💛🪔💚
#Diwali #LightThePath #CureCCA #strengthincommunity
October 20, 2025 at 3:02 PM
Happy Diwali from the Cholangiocarcinoma Foundation! 🌟
May this season of light inspire hope, brighten every path, and remind us that together, our community shines stronger. 💛🪔💚
#Diwali #LightThePath #CureCCA #strengthincommunity
May this season of light inspire hope, brighten every path, and remind us that together, our community shines stronger. 💛🪔💚
#Diwali #LightThePath #CureCCA #strengthincommunity
💚 October is Liver Cancer Awareness Month. Cholangiocarcinoma (bile duct cancer) is rare, but awareness saves lives. Learn the risk factors, symptoms, and how the Cholangiocarcinoma Foundation supports patients, advances research, and brings hope worldwide. 🌍 #LiverCancerAwareness #OctoberIs4Livers
October 19, 2025 at 7:01 PM
💚 October is Liver Cancer Awareness Month. Cholangiocarcinoma (bile duct cancer) is rare, but awareness saves lives. Learn the risk factors, symptoms, and how the Cholangiocarcinoma Foundation supports patients, advances research, and brings hope worldwide. 🌍 #LiverCancerAwareness #OctoberIs4Livers
The October CCF Update is here! Join On Your Mark to carry forward Mark’s legacy, sign up for upcoming webinars, and take part in the Turkey Trot with Team CCF! 💚 Don’t miss the Legacy Caregiver Gathering Nov. 6 and stay tuned for Awareness Month updates.
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Your October CCF Update
Email from Cholangiocarcinoma Foundation October Insights: What's happening at the Cholangiocarcinoma Foundation Hello! My brother Mark was a lifelong athlete who took on the challenge of running his
conta.cc
October 18, 2025 at 3:02 PM
The October CCF Update is here! Join On Your Mark to carry forward Mark’s legacy, sign up for upcoming webinars, and take part in the Turkey Trot with Team CCF! 💚 Don’t miss the Legacy Caregiver Gathering Nov. 6 and stay tuned for Awareness Month updates.
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💻 Join Dr. Lipika Goyal from Stanford for the CCF webinar on Managing Side Effects of FGFR Inhibitors. Learn strategies to improve comfort, monitor side effects, and support treatment outcomes. 🗓 Oct 21, 3:30 PM EDT | Sponsored by Taiho Oncology
October 17, 2025 at 6:30 PM
💻 Join Dr. Lipika Goyal from Stanford for the CCF webinar on Managing Side Effects of FGFR Inhibitors. Learn strategies to improve comfort, monitor side effects, and support treatment outcomes. 🗓 Oct 21, 3:30 PM EDT | Sponsored by Taiho Oncology
Katie & her son Asher honor Bobby’s legacy through Bobby’s Ducks, spreading hope one green duck at a time. 🦆 Join the Oct 18 Memorial Ride & follow their Jeep adventures: https://quackshack.net/shop/ols/products/bobbys-duck.
October 16, 2025 at 7:30 PM
Katie & her son Asher honor Bobby’s legacy through Bobby’s Ducks, spreading hope one green duck at a time. 🦆 Join the Oct 18 Memorial Ride & follow their Jeep adventures: https://quackshack.net/shop/ols/products/bobbys-duck.
Honor your loved one’s legacy through giving. 💚 Create a memorial or In Lieu of Flowers page to celebrate their life and support patients and families affected by cholangiocarcinoma. Start here: https://give.cholangiocarcinoma.org/campaign/cholangiocarcinoma-foundation-memorial-fundraising/c684057
October 15, 2025 at 7:30 PM
Honor your loved one’s legacy through giving. 💚 Create a memorial or In Lieu of Flowers page to celebrate their life and support patients and families affected by cholangiocarcinoma. Start here: https://give.cholangiocarcinoma.org/campaign/cholangiocarcinoma-foundation-memorial-fundraising/c684057
Please join us for our Houston CARE event — a chance for patients, caregivers, family, and community supporters to connect, share, and support in person.
📅 November 8, 2025
🕙 10:00 a.m.
📍 Memorial Park — Golf Clubhouse
📍 1001 E. Memorial Loop Dr., Houston, TX 77007
curecca.link/HoustonCareEvent
📅 November 8, 2025
🕙 10:00 a.m.
📍 Memorial Park — Golf Clubhouse
📍 1001 E. Memorial Loop Dr., Houston, TX 77007
curecca.link/HoustonCareEvent
October 15, 2025 at 2:00 PM
Please join us for our Houston CARE event — a chance for patients, caregivers, family, and community supporters to connect, share, and support in person.
📅 November 8, 2025
🕙 10:00 a.m.
📍 Memorial Park — Golf Clubhouse
📍 1001 E. Memorial Loop Dr., Houston, TX 77007
curecca.link/HoustonCareEvent
📅 November 8, 2025
🕙 10:00 a.m.
📍 Memorial Park — Golf Clubhouse
📍 1001 E. Memorial Loop Dr., Houston, TX 77007
curecca.link/HoustonCareEvent
💚 Thank you, Kenton & Preston! In memory of their grandpa, Dr. James K. Welling, they hosted their 5th annual Apple Cider Stand — raising $1,154 this year and $8,606 total! 🍎 Their “go green” theme symbolized hope and progress toward a cure for bile duct cancer. 💚
October 14, 2025 at 5:30 PM
💚 Thank you, Kenton & Preston! In memory of their grandpa, Dr. James K. Welling, they hosted their 5th annual Apple Cider Stand — raising $1,154 this year and $8,606 total! 🍎 Their “go green” theme symbolized hope and progress toward a cure for bile duct cancer. 💚
💚 Save the Date! The 2025 Houston Cholangiocarcinoma Symposium will be held Dec. 12 at the Houston Methodist Research Institute. Join experts, patients & advocates for a full day of learning, connection, and collaboration. More info coming soon!
🔗: curecca.link/houstonsymposium
🔗: curecca.link/houstonsymposium
October 8, 2025 at 7:30 PM
💚 Save the Date! The 2025 Houston Cholangiocarcinoma Symposium will be held Dec. 12 at the Houston Methodist Research Institute. Join experts, patients & advocates for a full day of learning, connection, and collaboration. More info coming soon!
🔗: curecca.link/houstonsymposium
🔗: curecca.link/houstonsymposium
🎖️ CCF Webinar: Understanding Your Options After an Adverse VA Decision 🎖️
Join Katrina Eagle, Esq., to demystify the VA claims & appeals process and learn how to navigate denied disability claims.
📅 Oct 9 | 🕓 4 PM EDT | 💻 curecca.link/Oct9
Join Katrina Eagle, Esq., to demystify the VA claims & appeals process and learn how to navigate denied disability claims.
📅 Oct 9 | 🕓 4 PM EDT | 💻 curecca.link/Oct9
October 7, 2025 at 5:02 PM
🎖️ CCF Webinar: Understanding Your Options After an Adverse VA Decision 🎖️
Join Katrina Eagle, Esq., to demystify the VA claims & appeals process and learn how to navigate denied disability claims.
📅 Oct 9 | 🕓 4 PM EDT | 💻 curecca.link/Oct9
Join Katrina Eagle, Esq., to demystify the VA claims & appeals process and learn how to navigate denied disability claims.
📅 Oct 9 | 🕓 4 PM EDT | 💻 curecca.link/Oct9
💚 Join us for the first Legacy Caregiver Virtual Gathering 💚 A space for the CCA community to honor loved ones and reflect on how love continues. 📅 Nov 6 | 🕖 7–8 PM EST | 💻 Virtual. All are welcome. 👉 Register: curecca.link/LegacyCaregivers
October 6, 2025 at 4:30 PM
💚 Join us for the first Legacy Caregiver Virtual Gathering 💚 A space for the CCA community to honor loved ones and reflect on how love continues. 📅 Nov 6 | 🕖 7–8 PM EST | 💻 Virtual. All are welcome. 👉 Register: curecca.link/LegacyCaregivers
💬 “I hope to continue being a mentor to many others for as long as I can.” – Lori Smith
At the Cholangiocarcinoma Foundation, mentors like Lori walk alongside patients and caregivers, offering guidance, comfort, and hope.
👉 Request or become a mentor here: curecca.link/cc.
At the Cholangiocarcinoma Foundation, mentors like Lori walk alongside patients and caregivers, offering guidance, comfort, and hope.
👉 Request or become a mentor here: curecca.link/cc.
October 3, 2025 at 8:30 PM
💬 “I hope to continue being a mentor to many others for as long as I can.” – Lori Smith
At the Cholangiocarcinoma Foundation, mentors like Lori walk alongside patients and caregivers, offering guidance, comfort, and hope.
👉 Request or become a mentor here: curecca.link/cc.
At the Cholangiocarcinoma Foundation, mentors like Lori walk alongside patients and caregivers, offering guidance, comfort, and hope.
👉 Request or become a mentor here: curecca.link/cc.