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chimonalisa.bsky.social
@chimonalisa.bsky.social
110 followers 250 following 10 posts
Breath, dreams, silence, invincible calm - I triumph!
Me/cfs seit 2022
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Reposted
unddieregel.bsky.social
Horrormeldungen noch und nöcher
www1.wdr.de/nachrichten/...
Die Universität Köln kürzt „Disability Studies“ - Studierende protestieren
An der Universität Köln soll der Arbeitsbereich „Disability Studies“ gestrichen werden. Die Studierenden wollen protestieren.
www1.wdr.de
December 11, 2025 at 11:45 AM
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chronicillness.bsky.social
post-grammatic-stress on tumblr - If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT. Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand. And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.
December 10, 2025 at 4:38 PM
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chronicillness.bsky.social
'MY'TIREDNESS' (WHICH ISNT TIREDNESS, IT'S FATIGUE) 0 IS NOT A COMPETITION MINE IS A SYMPTOM DUE To AN ILLNESS/DISABILITY. WHICH IAM DOING MY BEST COPE WITH IT'S NOT DUE to A SERIES of LIFE CHOICES I MADE AND COULD CHANGE... There are no winners or prizes here. It's just not a contest. X XXXXX @SPOONIE_VILLAGE
December 10, 2025 at 4:42 PM
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chronicillness.bsky.social
"I must be faking it for attention," thinks the chronically ill woman who keeps getting dismissed - you are not faking it - mybodyistryingtokillme.com
December 10, 2025 at 2:42 PM
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ailbhe.ossifrage.net
This is a great puzzle game
https://cluesbysam.com/
December 10, 2025 at 10:29 AM
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symptomodyssee.bsky.social
Gibt es eigentlich Forschung zum Einfluss von Post von Krankenkassen und Behörden auf die psychische Gesundheit Betroffener,einschliesslich der Subgruppen Armutsbetroffener und chronisch Kranker?

Würde psychische Gesundheit tatsächlich ernst genommen,gäbe es da sicher einiges Verbesserungspotenzial
December 8, 2025 at 1:31 PM
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chronicillness.bsky.social
@coffeespoonie - as a person with a chronic illness i am constantly worried about people using my good days against me
December 8, 2025 at 3:05 PM
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katjadiehl.bsky.social
JEDEN verdammten Tag erkläre ich Menschen, dass behindertenfeindliche Wörter nicht geeignet sind, Menschen herabzuwürdigen.

Und fast jedes Mal wird mit Verweigerung reagiert, einfach mal anders zu formulieren.

Für alle Interessierten ein Einstieg:
www.neuenarrative.de/magazin/wie-...
December 8, 2025 at 10:57 AM
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sanktionsfrei.bsky.social
Was SPD & Union planen ist nichts anderes als ein kalkulierter Verfassungsbruch. Die Verschärfungen sind knallhart und schwächen uns alle. Aber noch ist das Gesetz nicht beschlossen: Am 10.Dez. sollen die Änderungen vom Kabinett abgesegnet werden & anschließend zur Abstimmung in den Bundestag gehen.
pläne von cdu&spd stoppen Der finale Gesetzentwurf zur “Grundsicherung für Arbeitsuchende” liegt vor. Die Verschärfungen sind knallhart. Wir müssen uns dagegen wehren! Schreibt jetzt mit wenigen Klicks euren Abgeordneten - Let‘s go!
December 8, 2025 at 12:00 PM
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tomkindlon.bsky.social
The Unseen Holiday Energy Drainers When Living With Chronic Illnesses @AwarenessforPOTSies Sensory overload Waiting in long lines Preparing meals Traveling to gatherings Sitting for long periods of time Managing invisible symptoms Triggering conversations Reminders of losses and grief Temperature fluctuations
December 7, 2025 at 5:19 PM
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funnysnarkyjoke.bsky.social
johnson_praize - Do you think Christianity is under attack in America? literallyneil replied - Only to the extent that a toddler is "under attack" when you tell them they're not allowed to bite the other kids around them.
December 7, 2025 at 4:01 PM
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chronicillness.bsky.social
@thepotspostman.bsky.social
@thepotspostman - No, my chronic fatigue doesn't make your occasional tiredness any less valid. But your occasional tiredness doesn't magically give you an understanding of the exhaustion I face every day.
December 7, 2025 at 4:32 PM
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angusmain.bsky.social
Ok. I’m going to try this, just to see if it’s possible. A different Scrooge at the window everyday during advent:

George C Scott in A Christmas Carol (1984)

You there boy! What day is this?

It’s 1st December
George C Scott as Scrooge in A Christmas Carol, shouting out of his window
December 1, 2025 at 4:05 PM
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apainprincess.bsky.social
“People don’t understand the amount of energy that goes into preparing to leave the house… You have to calculate your every move to ensure you don’t overdo it. Even still, you could have an awful flare-up.” https://buff.ly/2JEis0g #ChronicIllness #DisabilitySky
December 6, 2025 at 2:23 PM
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lucyksy.bsky.social
December 6, 2025 at 5:11 PM
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chronicillness.bsky.social
@theinvisible81 - When one 'beats' Illness we applaud their strength When one dies from Illness we mourn their death When one has #Chroniclllness, we blame their lack of willpower to make themselves better. Their loss is never mourned, their their daily fight never applauded
December 6, 2025 at 2:50 PM
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chronicillness.bsky.social
@ashleysimpo - Normalize not asking people how they're doing unless you can actually hold space for how they'r doing. Because the "I'm fine" "that's good" combo ain' t serving us anymore.
December 6, 2025 at 2:54 PM
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chronicillness.bsky.social
“Why are u still single?”
Bro, I never leave the house.
December 6, 2025 at 4:06 PM
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chronicillness.bsky.social
@giftofcalm •Someone 'checking in on you' Being believed Someone noticing when you get tired Getting out of bed and showered Comfy clothes that don't need ironing Someone checking accessibility before booking Someone picking up your prescription •When out in a group, walking at your pace People listening v's telling you what to do I saw *this* and thought of you' Cards and thoughtful little gifts in the post Non-physical compliments Meeting people going through similar things Small things that are big things when you live with chronic illness -
December 5, 2025 at 2:42 PM
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chronicillness.bsky.social
"Being young and sick is sorta like being elderly, we lack the reflection on all the great times and great things we did long ago. Instead, we watch our peers make the memories and strides they'll look back on fondly, bitterly observing and praying for our chance. Our time." Unknown
December 4, 2025 at 4:25 PM
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chronicillness.bsky.social
'I'M NOT SURE IF IT'S A FLARE OR THE FLU THE FOOD I ATE A NEW ALLERGY AN ACTUAL INJURY THE WEATHER CHANGE OO MИCH COFFEE NOT ENOUGH COFFEE MEDICATION SIDE EFFECTS I SLEPT WEIRD THIS IS JUST MY BODY NOW
December 4, 2025 at 2:58 PM
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violetta.bsky.social
#Petition ✍️

Bessere Erforschung von ME/CFS durch ein strukturiertes Förderprogramm vom 17.07.2025

Mitzeichnungsfrist
15.01.2026

#MEcfs

#ePetition

#Bundestag

...
December 4, 2025 at 11:46 AM
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chronicillness.bsky.social
a plant and then it says 'it's okay if all you did (today crossed out) this year was survive.' - pic of plant with petals fallen off
December 3, 2025 at 12:39 PM
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ennopark.de
Heute ist der internationale Tag der Menschen mit Behinderung. Wusstet ihr nicht? Keine Sorge, habe ich als Betroffener auch nur durch Zufall gerade mitbekommen...
December 3, 2025 at 12:42 PM
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derlampenputzer.bsky.social
der fakt dass in amerikanischen serien (vermutlich repräsentativerweise) figuren mit dem auto rumfahren gehen um den kopf freizukriegen statt wie es gut und richtig ist ziellos herumzuflanieren ist ein affront gegen gottes schöpfung für den dieses land am tag des jüngsten gerichts noch büßen wird
December 2, 2025 at 4:09 PM