Princess in the Tower
@apainprincess.bsky.social
Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Pinned
“If opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.” ~ Carmen Ambrosia
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
“When you live with #chronicillness—all the thoughts, emotions, un-screamed screams…fear…worry rattle around inside you… Not feeling heard is a painful experience…the irony is when we get stuck in these—it can make it almost more difficult to connect.” https://buff.ly/3NTkIAu
January 21, 2026 at 1:55 AM
“When you live with #chronicillness—all the thoughts, emotions, un-screamed screams…fear…worry rattle around inside you… Not feeling heard is a painful experience…the irony is when we get stuck in these—it can make it almost more difficult to connect.” https://buff.ly/3NTkIAu
“If you think something is wrong but people are dismissing you, keep pushing… You know your body more than anyone else, including people with medical degrees. If you know that something is wrong… keep pushing.” https://buff.ly/3tGPDce @kmitchellauthor #chronicillness #spoonie
January 20, 2026 at 5:23 PM
“If you think something is wrong but people are dismissing you, keep pushing… You know your body more than anyone else, including people with medical degrees. If you know that something is wrong… keep pushing.” https://buff.ly/3tGPDce @kmitchellauthor #chronicillness #spoonie
“So many people don’t know that this is my life. Weekly doctor visits and tests, being stuck with a needle so much my arms are black a blue… No matter what, just gotta smile through it… I’m happy just to finally have my diagnosis.” https://buff.ly/3GGd4VT #chronicillness #chronictruths
January 20, 2026 at 1:23 AM
“So many people don’t know that this is my life. Weekly doctor visits and tests, being stuck with a needle so much my arms are black a blue… No matter what, just gotta smile through it… I’m happy just to finally have my diagnosis.” https://buff.ly/3GGd4VT #chronicillness #chronictruths
“We never know what someone else is going through just by looking at them. And we certainly have no idea what patients are going through. ‘Sick’ doesn’t have a look… Many of us are stronger than you’ll ever understand.” https://t.co/oiznhmki4f @CarrieKellenberger.bsky #invisibleillness #disability
January 19, 2026 at 5:23 PM
“We never know what someone else is going through just by looking at them. And we certainly have no idea what patients are going through. ‘Sick’ doesn’t have a look… Many of us are stronger than you’ll ever understand.” https://t.co/oiznhmki4f @CarrieKellenberger.bsky #invisibleillness #disability
“If you run out of ‘spoons’ you can’t do anything else that day, and if you go beyond your limits, you may pay the price for days or weeks… When people with #ChronicIllness push themselves too hard—it can trigger a #FlareUp—symptoms become [far] worse.” https://buff.ly/480AEZn
January 19, 2026 at 2:23 AM
“If you run out of ‘spoons’ you can’t do anything else that day, and if you go beyond your limits, you may pay the price for days or weeks… When people with #ChronicIllness push themselves too hard—it can trigger a #FlareUp—symptoms become [far] worse.” https://buff.ly/480AEZn
“Living with #ChronicPain can be pretty soul-destroying because it affects every aspect of life…but it doesn’t erase the possibility of fulfilment… A sustainable life with pain is built—not found—with care, patience+practical structure.” https://buff.ly/osbJuV4 @DespitePainBlog
January 18, 2026 at 6:23 PM
“Living with #ChronicPain can be pretty soul-destroying because it affects every aspect of life…but it doesn’t erase the possibility of fulfilment… A sustainable life with pain is built—not found—with care, patience+practical structure.” https://buff.ly/osbJuV4 @DespitePainBlog
“Before I became ill, I was very busy… Then it all changed. My world completely stopped… For the last 3 years, I have spent most of my days in my house, resting, chasing doctors and insurance… researching my diagnoses and…crashing.” https://buff.ly/47nqt0i #pwME #LongCovid
January 18, 2026 at 1:23 AM
“Before I became ill, I was very busy… Then it all changed. My world completely stopped… For the last 3 years, I have spent most of my days in my house, resting, chasing doctors and insurance… researching my diagnoses and…crashing.” https://buff.ly/47nqt0i #pwME #LongCovid
“Sometimes I have to read paragraphs or sentences over again. Very #BrainFog… A main tip for cognitive #fatigue is pacing yourself and that is no different for reading. Reading in shorter bursts is better. 10-20 minute sections.” https://buff.ly/TXTNZrW @ChronicallyNikki
January 17, 2026 at 1:23 PM
“Sometimes I have to read paragraphs or sentences over again. Very #BrainFog… A main tip for cognitive #fatigue is pacing yourself and that is no different for reading. Reading in shorter bursts is better. 10-20 minute sections.” https://buff.ly/TXTNZrW @ChronicallyNikki
“Look for beauty. No matter how awful it is, there is still beauty…your cat purring, a sunset, time spent with those you love. No matter how bleak you feel, remember there is still beauty… You are so much stronger than you think.” https://themighty.com/topic/fibromyalgia/fibromyalgia-flare-reminders
January 17, 2026 at 1:23 AM
“Look for beauty. No matter how awful it is, there is still beauty…your cat purring, a sunset, time spent with those you love. No matter how bleak you feel, remember there is still beauty… You are so much stronger than you think.” https://themighty.com/topic/fibromyalgia/fibromyalgia-flare-reminders
“Fatigue is an intangible presence that suddenly jumps out of the shadows, bleeding every ounce of energy I still possess. It's a crushing, soul-sucking exhaustion that leaves me feeling as if I'm failing at life.” https://buff.ly/3PRF39P @serenebutterfly #ChronicIllness #Fatigue #HechoDePolvo #FND
January 16, 2026 at 5:23 PM
“Fatigue is an intangible presence that suddenly jumps out of the shadows, bleeding every ounce of energy I still possess. It's a crushing, soul-sucking exhaustion that leaves me feeling as if I'm failing at life.” https://buff.ly/3PRF39P @serenebutterfly #ChronicIllness #Fatigue #HechoDePolvo #FND
Reposted by Princess in the Tower
Most people have no idea, unless I say something, which is risky in certain circumstances.
“The unpredictability: You might carefully venture out, attempt something normal, only to be ambushed by #pain's sudden intensification. Each time this happens, the disappointment cuts deep, and the narrow path of what's possible seems to shrink further.” https://buff.ly/ANglZ0Q @remotetherapy.space
The Silent Battle: Living in the Shadow of Chronic Pain
The Silent Battle: Living in the Shadow of Chronic Pain
chrishutchinsjoss.substack.com
January 8, 2026 at 1:39 AM
Most people have no idea, unless I say something, which is risky in certain circumstances.
Reposted by Princess in the Tower
"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com
🔗
www.achronicvoice.com/2018/05/13/y...
#ChronicPain
🔗
www.achronicvoice.com/2018/05/13/y...
#ChronicPain
You Don't Have to be Strong, Just a Little Stronger Than Before
Sometimes telling ourselves to be brave invokes fear. Here's why you don't have to be strong, just a little stronger than before.
www.achronicvoice.com
January 9, 2026 at 9:31 PM
"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com
🔗
www.achronicvoice.com/2018/05/13/y...
#ChronicPain
🔗
www.achronicvoice.com/2018/05/13/y...
#ChronicPain
Reposted by Princess in the Tower
January 4, 2026 at 7:22 PM
Reposted by Princess in the Tower
“Many who live w severe & painful conditions can only manage 1 ‘big’ activity a day, especially if it involves leaving the house. If that day has a #medical visit..everything pivots on that single activity”: buff.ly/4qB9LeN
by @apainprincess.bsky.social
#ChronicPain #ChronicIllness #disability
by @apainprincess.bsky.social
#ChronicPain #ChronicIllness #disability
But You Look Good: Living with Disbelief of Invisible Illness and Pain
Each time we are told that we 'look good' or 'look well' by people who have little concept of even the lengths we have gone to just to connect with them at all, it carries with it
buff.ly
December 16, 2025 at 2:30 AM
“Many who live w severe & painful conditions can only manage 1 ‘big’ activity a day, especially if it involves leaving the house. If that day has a #medical visit..everything pivots on that single activity”: buff.ly/4qB9LeN
by @apainprincess.bsky.social
#ChronicPain #ChronicIllness #disability
by @apainprincess.bsky.social
#ChronicPain #ChronicIllness #disability
“Not believing someone’s experience is one of the worst things we can face as a response… Someone may look “normal”… even “healthy” on the outside, while nearly hanging on as they cope with excruciating #pain and feel incredibly poorly.” https://buff.ly/jGxabN4 #chronicillness
January 16, 2026 at 2:23 AM
“Not believing someone’s experience is one of the worst things we can face as a response… Someone may look “normal”… even “healthy” on the outside, while nearly hanging on as they cope with excruciating #pain and feel incredibly poorly.” https://buff.ly/jGxabN4 #chronicillness
“Listen. Create a safe environment for them to be heard without dismissive statements like “be positive”… It’s OK to admit that you don’t know what to say. When in doubt: “I don’t know what to say… but I’m sorry you’re struggling,” will work just fine.” https://buff.ly/41vUBXz
January 14, 2026 at 1:23 AM
“Listen. Create a safe environment for them to be heard without dismissive statements like “be positive”… It’s OK to admit that you don’t know what to say. When in doubt: “I don’t know what to say… but I’m sorry you’re struggling,” will work just fine.” https://buff.ly/41vUBXz
“I’ve not dusted my home in months, just our living room would take me a couple of days! Plus if I do that then I wouldn’t be able to do much else the rest of the day but things like—eating, showering—all still need to be done.” https://www.bloomingmindfulness.co.uk/frustrated-with-fatigue/ #fatigue
January 13, 2026 at 1:23 PM
“I’ve not dusted my home in months, just our living room would take me a couple of days! Plus if I do that then I wouldn’t be able to do much else the rest of the day but things like—eating, showering—all still need to be done.” https://www.bloomingmindfulness.co.uk/frustrated-with-fatigue/ #fatigue
“A drop in temperature causes my pain level to soar through the roof… If I go outside in the cold for even a few minutes it causes my pain to creep up and stay that way.” 19 Ways #ChronicIllness Affects Daily Life https://cme.sh/life-living #ChronicPain #ChronicSky
January 13, 2026 at 1:23 AM
“A drop in temperature causes my pain level to soar through the roof… If I go outside in the cold for even a few minutes it causes my pain to creep up and stay that way.” 19 Ways #ChronicIllness Affects Daily Life https://cme.sh/life-living #ChronicPain #ChronicSky
“When you’re #chronicallyill pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion…often tremendous suffering… We don’t know what it’s like to wake up pain free, bursting with energy… We don’t know comfort.” https://buff.ly/2vdkdhu @broadwaybabyto.bsky.social
January 12, 2026 at 1:23 PM
“When you’re #chronicallyill pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion…often tremendous suffering… We don’t know what it’s like to wake up pain free, bursting with energy… We don’t know comfort.” https://buff.ly/2vdkdhu @broadwaybabyto.bsky.social
“If you live with #EDS #ChronicPain #autoimmune disease #longCOVID or any illness with flares, crashes or nervous system chaos—traditional goal-setting doesn’t [work]. Many #ChronicallyIll people struggle…because: We’re taught to override our bodies… Rest triggers guilt.” https://buff.ly/x7iqLEC
January 11, 2026 at 2:23 PM
“If you live with #EDS #ChronicPain #autoimmune disease #longCOVID or any illness with flares, crashes or nervous system chaos—traditional goal-setting doesn’t [work]. Many #ChronicallyIll people struggle…because: We’re taught to override our bodies… Rest triggers guilt.” https://buff.ly/x7iqLEC
“If you know someone with #chronicillness, I urge you to reassure them when they cancel plans—that you know it is not their fault… Guilt is our constant companion. We are trying our best, and we only want you to see and appreciate that.” https://cme.sh/self-worth #ChronicPain #Disability
January 11, 2026 at 12:23 AM
“If you know someone with #chronicillness, I urge you to reassure them when they cancel plans—that you know it is not their fault… Guilt is our constant companion. We are trying our best, and we only want you to see and appreciate that.” https://cme.sh/self-worth #ChronicPain #Disability
“You may be feeling [relatively] okay, when suddenly a blitzkrieg of pain invades. You have no control or defense, and have no choice but to wait it out, cowering under the covers waiting for it to pass.” https://www.painnewsnetwork.org/stories/2025/6/19/a-pained-life-stop-torturing-us #ChronicPain
January 10, 2026 at 2:23 PM
“You may be feeling [relatively] okay, when suddenly a blitzkrieg of pain invades. You have no control or defense, and have no choice but to wait it out, cowering under the covers waiting for it to pass.” https://www.painnewsnetwork.org/stories/2025/6/19/a-pained-life-stop-torturing-us #ChronicPain
“I don’t know what it’s like not to be in pain, to have a refreshing, unbroken #sleep… to do things without causing pain.” 12 People Describe What It's Like to Live With #ChronicPain https://themighty.com/topic/chronic-pain/what-chronic-pain-feels-like-2 #disabilitysky #chronicillness
January 10, 2026 at 2:23 AM
“I don’t know what it’s like not to be in pain, to have a refreshing, unbroken #sleep… to do things without causing pain.” 12 People Describe What It's Like to Live With #ChronicPain https://themighty.com/topic/chronic-pain/what-chronic-pain-feels-like-2 #disabilitysky #chronicillness
“ #ChronicIllness is…constant change and adapting to where your illness is—a cycle of never-ending frustration, grief and trying to find ways to still do the things that have to be done… #Fatigue often comes out of nowhere.” https://www.bloomingmindfulness.co.uk/coping-with-another-fatigue-flare/
January 9, 2026 at 2:23 PM
“ #ChronicIllness is…constant change and adapting to where your illness is—a cycle of never-ending frustration, grief and trying to find ways to still do the things that have to be done… #Fatigue often comes out of nowhere.” https://www.bloomingmindfulness.co.uk/coping-with-another-fatigue-flare/
“Photos on Facebook show my life for what it is: inconsistent. Some days I am in my wheelchair and some without a mobility aid… When you do have good days, you take advantage of them.” https://themighty.com/topic/chronic-illness/judged-for-being-sick-facebook-social-media/ #Disability #ChronicPain
January 9, 2026 at 1:23 AM
“Photos on Facebook show my life for what it is: inconsistent. Some days I am in my wheelchair and some without a mobility aid… When you do have good days, you take advantage of them.” https://themighty.com/topic/chronic-illness/judged-for-being-sick-facebook-social-media/ #Disability #ChronicPain