Princess in the Tower
@apainprincess.bsky.social
Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
“#ChronicPain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicIllness
November 24, 2025 at 1:23 AM
“#ChronicPain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicIllness
“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like #MyalgicEncephalomyelitis (ME), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF #DisabilitySky #pwME
November 20, 2025 at 1:23 PM
“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like #MyalgicEncephalomyelitis (ME), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF #DisabilitySky #pwME
“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1
November 17, 2025 at 1:23 PM
“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1
“Have you ever been stuck in bed for a few days from a really bad infection or surgery? You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months then years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie
November 11, 2025 at 2:23 PM
“Have you ever been stuck in bed for a few days from a really bad infection or surgery? You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months then years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie
“A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety Through the Prism of #ChronicIllness https://buff.ly/7tDtXVZ @serenebutterfly.bsky.social #FND
November 10, 2025 at 1:23 AM
“A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety Through the Prism of #ChronicIllness https://buff.ly/7tDtXVZ @serenebutterfly.bsky.social #FND
“Don’t tell your friend that you know how it feels to be living in #ChronicPain. Suffering from the flu, a broken leg, or dealing with a bad back don’t compare to what [they’re] going through. In fact, your friend might be feeling like she has all three.” https://buff.ly/xYLu5qd #NERVEmber
November 9, 2025 at 1:23 AM
“Don’t tell your friend that you know how it feels to be living in #ChronicPain. Suffering from the flu, a broken leg, or dealing with a bad back don’t compare to what [they’re] going through. In fact, your friend might be feeling like she has all three.” https://buff.ly/xYLu5qd #NERVEmber
“When people allow you to know about their pain and talk about it, take your shoes off. It’s a holy place. Be humble, be kind when someone shows you vulnerability.” - Amani Albair
#ChronicIllness #Quotes to Inspire, Motivate, Grieve, Hope & Laugh by @AChVoice.bsky.social https://buff.ly/fp7dYT0
#ChronicIllness #Quotes to Inspire, Motivate, Grieve, Hope & Laugh by @AChVoice.bsky.social https://buff.ly/fp7dYT0
November 8, 2025 at 12:23 AM
“When people allow you to know about their pain and talk about it, take your shoes off. It’s a holy place. Be humble, be kind when someone shows you vulnerability.” - Amani Albair
#ChronicIllness #Quotes to Inspire, Motivate, Grieve, Hope & Laugh by @AChVoice.bsky.social https://buff.ly/fp7dYT0
#ChronicIllness #Quotes to Inspire, Motivate, Grieve, Hope & Laugh by @AChVoice.bsky.social https://buff.ly/fp7dYT0
“Chronic pain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicPain #FreezingFire
November 5, 2025 at 2:23 PM
“Chronic pain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicPain #FreezingFire
“Don’t let anyone, even the doctor tell you what you feel. You know what you feel.” 10 Things I Wish I Had Known About #CRPS/RSD When I Was First Diagnosed https://buff.ly/6cOGvHa https://buff.ly/2yBH30C #NERVEmber #CRPSAwarenessMonth #ChronicPain
November 1, 2025 at 12:23 AM
“Don’t let anyone, even the doctor tell you what you feel. You know what you feel.” 10 Things I Wish I Had Known About #CRPS/RSD When I Was First Diagnosed https://buff.ly/6cOGvHa https://buff.ly/2yBH30C #NERVEmber #CRPSAwarenessMonth #ChronicPain
“I don’t know what it’s like not to be in pain, to have a refreshing, unbroken #sleep… to do things without causing pain.” 12 People Describe What It's Like to Live With #ChronicPain https://themighty.com/topic/chronic-pain/what-chronic-pain-feels-like-2 #disabilitysky #chronicillness
October 30, 2025 at 2:23 AM
“I don’t know what it’s like not to be in pain, to have a refreshing, unbroken #sleep… to do things without causing pain.” 12 People Describe What It's Like to Live With #ChronicPain https://themighty.com/topic/chronic-pain/what-chronic-pain-feels-like-2 #disabilitysky #chronicillness
“The reasons you don’t see the flares…vomiting…desperation…are many. It’s taken years… please don’t undermine that by assuming I’m fine because I’ve learnt how to hide the worst from you.” https://themighty.com/topic/complex-regional-pain-syndrome/complex-regional-pain-syndrome-facebook-posts/ #CRPS
October 28, 2025 at 1:23 AM
“The reasons you don’t see the flares…vomiting…desperation…are many. It’s taken years… please don’t undermine that by assuming I’m fine because I’ve learnt how to hide the worst from you.” https://themighty.com/topic/complex-regional-pain-syndrome/complex-regional-pain-syndrome-facebook-posts/ #CRPS
“When you’re #chronicallyill pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion…often tremendous suffering… We don’t know what it’s like to wake up pain free, bursting with energy… We don’t know comfort.” https://buff.ly/2vdkdhu @broadwaybabyto.bsky.social
October 26, 2025 at 2:23 AM
“When you’re #chronicallyill pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion…often tremendous suffering… We don’t know what it’s like to wake up pain free, bursting with energy… We don’t know comfort.” https://buff.ly/2vdkdhu @broadwaybabyto.bsky.social
“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like ME (#MyalgicEncephalomyelitis), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF
October 24, 2025 at 1:23 PM
“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like ME (#MyalgicEncephalomyelitis), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF
“I used to believe that with hard work you could achieve anything. Learning this wasn’t true was soul destroying… Speak to anyone with a #chronicillness who is unable to work, I guarantee you they would give anything to be well again and be able to work.” https://cme.sh/chronic-carE
October 21, 2025 at 1:23 PM
“I used to believe that with hard work you could achieve anything. Learning this wasn’t true was soul destroying… Speak to anyone with a #chronicillness who is unable to work, I guarantee you they would give anything to be well again and be able to work.” https://cme.sh/chronic-carE
“Because people in #ChronicPain have to be good at ignoring their own pain, their maximum sneaks up on them and on you… The wall of pain will hit hard.” https://www.elephantjournal.com/2013/04/23-tips-for-supporting-a-partner-with-chronic-pain-pete-beisner/ #InvisibleIllness
October 14, 2025 at 2:23 PM
“Because people in #ChronicPain have to be good at ignoring their own pain, their maximum sneaks up on them and on you… The wall of pain will hit hard.” https://www.elephantjournal.com/2013/04/23-tips-for-supporting-a-partner-with-chronic-pain-pete-beisner/ #InvisibleIllness
“Have you ever been stuck in bed for a few days from a really bad infection or surgery? Think back… You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months or years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie
October 12, 2025 at 5:23 PM
“Have you ever been stuck in bed for a few days from a really bad infection or surgery? Think back… You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months or years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie
“I hear you suggesting that I’m not trying hard enough to manage my #chronicillness… that I’ve not done enough research… that I’m not doing everything in my power… when that’s all I’m doing… I wasn’t looking for advice… I was looking for kindness/support.” https://buff.ly/5BYBH5n #chronicillness
October 8, 2025 at 12:23 AM
“I hear you suggesting that I’m not trying hard enough to manage my #chronicillness… that I’ve not done enough research… that I’m not doing everything in my power… when that’s all I’m doing… I wasn’t looking for advice… I was looking for kindness/support.” https://buff.ly/5BYBH5n #chronicillness
“However difficult life may seem, there is always something you can do and succeed at. It matters that you don’t just give up.” ~ Stephen Hawking Why It Matters https://spoonieauthorsnetwork.com/2018/03/22/why-it-matters via @spoonieauthnet.bsky.social #ChronicIllness #Disabilities #ChronicPain
October 7, 2025 at 12:23 AM
“However difficult life may seem, there is always something you can do and succeed at. It matters that you don’t just give up.” ~ Stephen Hawking Why It Matters https://spoonieauthorsnetwork.com/2018/03/22/why-it-matters via @spoonieauthnet.bsky.social #ChronicIllness #Disabilities #ChronicPain
“People say, ‘Wait until you’re my age.’ They should be saying, ‘I’m sorry you already feel like you’re my age.’ I’m 21 and my nerve endings are gone… I’m so sick of people telling me I’m too young to be ill.” https://buff.ly/Os5L1xz #ChronicPain #ChronicIllness #Disabilities
October 4, 2025 at 2:23 PM
“People say, ‘Wait until you’re my age.’ They should be saying, ‘I’m sorry you already feel like you’re my age.’ I’m 21 and my nerve endings are gone… I’m so sick of people telling me I’m too young to be ill.” https://buff.ly/Os5L1xz #ChronicPain #ChronicIllness #Disabilities
“Success is not measured by what you accomplish but by the opposition you have encountered, and the courage with which you have maintaned the struggle against overwhelming odds.” ~ Orison Swett Marden
#Disability #ChronicPain #ChronicIllness
#Disability #ChronicPain #ChronicIllness
September 24, 2025 at 2:55 AM
“Success is not measured by what you accomplish but by the opposition you have encountered, and the courage with which you have maintaned the struggle against overwhelming odds.” ~ Orison Swett Marden
#Disability #ChronicPain #ChronicIllness
#Disability #ChronicPain #ChronicIllness
Ways #ChronicPain Changes You:
*It affects every aspect of your life
*It limits your ability to work
*It can affect your confidence
*It can change relationships
*It makes you fearful
*It requires a superhuman power of pain tolerance
via #MySeveralWorlds @carriekellenberger ♥️ #PAM2025
*It affects every aspect of your life
*It limits your ability to work
*It can affect your confidence
*It can change relationships
*It makes you fearful
*It requires a superhuman power of pain tolerance
via #MySeveralWorlds @carriekellenberger ♥️ #PAM2025
September 14, 2025 at 4:23 PM
Ways #ChronicPain Changes You:
*It affects every aspect of your life
*It limits your ability to work
*It can affect your confidence
*It can change relationships
*It makes you fearful
*It requires a superhuman power of pain tolerance
via #MySeveralWorlds @carriekellenberger ♥️ #PAM2025
*It affects every aspect of your life
*It limits your ability to work
*It can affect your confidence
*It can change relationships
*It makes you fearful
*It requires a superhuman power of pain tolerance
via #MySeveralWorlds @carriekellenberger ♥️ #PAM2025
“Never assume a #ChronicPain patient is not experiencing pain when they say that they’re fine… Recall a time you were in pain, multiply the intensity and try to imagine that pain’s 24/7—without any relief in sight.” https://buff.ly/lvzu9pt #PainAwarenessMonth #PAM2025 #Disability
September 12, 2025 at 12:23 PM
“Never assume a #ChronicPain patient is not experiencing pain when they say that they’re fine… Recall a time you were in pain, multiply the intensity and try to imagine that pain’s 24/7—without any relief in sight.” https://buff.ly/lvzu9pt #PainAwarenessMonth #PAM2025 #Disability
“If you're struggling, you deserve to make #selfcare a priority… Quiet the voice telling you to do more and be more, and today, whatever you do, let it be enough… Be gentle with yourself. Acknowledge that you're doing the best you can to cope and survive.” #chronicpain #chronicillness #spoonie
September 11, 2025 at 1:23 AM
“If you're struggling, you deserve to make #selfcare a priority… Quiet the voice telling you to do more and be more, and today, whatever you do, let it be enough… Be gentle with yourself. Acknowledge that you're doing the best you can to cope and survive.” #chronicpain #chronicillness #spoonie
“Being home all day is not a dream lifestyle… I doubt they’d say, “I wish I could be home all day with #pain that no medicine can relieve” or “I wish I could be home all day with such debilitating #fatigue, I can’t concentrate on anything.” https://buff.ly/grrBQNi #Disability #PainAwarenessMonth
September 6, 2025 at 1:55 AM
“Being home all day is not a dream lifestyle… I doubt they’d say, “I wish I could be home all day with #pain that no medicine can relieve” or “I wish I could be home all day with such debilitating #fatigue, I can’t concentrate on anything.” https://buff.ly/grrBQNi #Disability #PainAwarenessMonth
“When you’re #chronicallyill pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion…often tremendous suffering… We don’t know what it’s like to wake up pain free, bursting with energy… We don’t know comfort.” https://buff.ly/2vdkdhu @broadwaybabyto.bsky.social
August 9, 2025 at 4:23 PM
“When you’re #chronicallyill pain becomes your constant partner. It’s always there. Our “baseline” is exhaustion, depletion…often tremendous suffering… We don’t know what it’s like to wake up pain free, bursting with energy… We don’t know comfort.” https://buff.ly/2vdkdhu @broadwaybabyto.bsky.social