Princess in the Tower
@apainprincess.bsky.social
Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Pinned
“If opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.” ~ Carmen Ambrosia
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
“Chronic pain is very different because It. Never. Ends. We never get a chance to be in our body in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like #NERVEmber
November 26, 2025 at 1:23 AM
“Chronic pain is very different because It. Never. Ends. We never get a chance to be in our body in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like #NERVEmber
“We don’t see how someone is on their worst days; we only see them on a day when they’re well enough to leave the house. You don’t know what it took for someone to get up and get out that day, so don’t judge.” https://whatapain.co.uk/things-to-remember-about-invisible-disabilities/ #disabilitysky
November 25, 2025 at 1:23 PM
“We don’t see how someone is on their worst days; we only see them on a day when they’re well enough to leave the house. You don’t know what it took for someone to get up and get out that day, so don’t judge.” https://whatapain.co.uk/things-to-remember-about-invisible-disabilities/ #disabilitysky
“Those with #chronicillness may need to cancel events last minute. This does not mean they are lazy or trying to avoid activities. Once #fatigue kicks in—the body ‘hits a wall’ & can’t go further—no matter what.” https://themighty.com/topic/chronic-illness/doctor-with-chronic-illness-things-to-know/
November 24, 2025 at 2:23 PM
“Those with #chronicillness may need to cancel events last minute. This does not mean they are lazy or trying to avoid activities. Once #fatigue kicks in—the body ‘hits a wall’ & can’t go further—no matter what.” https://themighty.com/topic/chronic-illness/doctor-with-chronic-illness-things-to-know/
“#ChronicPain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicIllness
November 24, 2025 at 1:23 AM
“#ChronicPain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicIllness
“Be gentle with yourself… Our bodies are hard enough on us without ourselves being even harder. Be kind, be patient, be gentle. Treat yourself how you would treat another #chronicallyill person.” https://themighty.com/topic/chronic-illness/hacks-tips-cleaning-chronic-illness/ #ChronicPain #Spoonie
November 23, 2025 at 2:23 PM
“Be gentle with yourself… Our bodies are hard enough on us without ourselves being even harder. Be kind, be patient, be gentle. Treat yourself how you would treat another #chronicallyill person.” https://themighty.com/topic/chronic-illness/hacks-tips-cleaning-chronic-illness/ #ChronicPain #Spoonie
“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness
Why Do I Pretend To Be Well?
Why Do I Pretend To Be Well?
cme.sh
November 22, 2025 at 1:23 PM
“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness
“Imagine plugging in a dead cell phone over night. When you awake, you expect it to be at 100%. But when you wake, it’s only at 9% and you have to try and function on that 9 percent. You’re never fully charged.” https://buff.ly/3rRDYWM #chronicillness #severeME #pwME #pwLC
November 21, 2025 at 2:23 PM
“Imagine plugging in a dead cell phone over night. When you awake, you expect it to be at 100%. But when you wake, it’s only at 9% and you have to try and function on that 9 percent. You’re never fully charged.” https://buff.ly/3rRDYWM #chronicillness #severeME #pwME #pwLC
“#BrainFog is another sign that my spoons are low… If I get carried away doing some mental task… I suddenly find myself at a point where I just can’t think… I know I have to rest, in fact I have no choice.” https://www.themecfsholisticcoach.com/2019/06/7-signs-that-youre-running-out-of-spoons.html
November 21, 2025 at 2:23 AM
“#BrainFog is another sign that my spoons are low… If I get carried away doing some mental task… I suddenly find myself at a point where I just can’t think… I know I have to rest, in fact I have no choice.” https://www.themecfsholisticcoach.com/2019/06/7-signs-that-youre-running-out-of-spoons.html
“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like #MyalgicEncephalomyelitis (ME), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF #DisabilitySky #pwME
November 20, 2025 at 1:23 PM
“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like #MyalgicEncephalomyelitis (ME), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF #DisabilitySky #pwME
“You’re tired of fighting #chronicillness. You’re tired of explaining why you don’t have energy to do the things you used to… You’re tired of explaining your condition… You’re tired of hearing opinions about how you can get better.” https://themighty.com/topic/chronic-pain/living-with-chronic-pain/
November 18, 2025 at 1:23 PM
“You’re tired of fighting #chronicillness. You’re tired of explaining why you don’t have energy to do the things you used to… You’re tired of explaining your condition… You’re tired of hearing opinions about how you can get better.” https://themighty.com/topic/chronic-pain/living-with-chronic-pain/
“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1
November 17, 2025 at 1:23 PM
“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1
“I miss feeling productive. I miss feeling spontaneous… I miss not being #exhausted constantly. I miss feeling like I had a future… I’m trying hard to find my identity again. I have lost so much…after I worked so hard to become who I was.” https://buff.ly/NLCkcPz #ChronicIllness #DisabilitySky
November 17, 2025 at 1:23 AM
“I miss feeling productive. I miss feeling spontaneous… I miss not being #exhausted constantly. I miss feeling like I had a future… I’m trying hard to find my identity again. I have lost so much…after I worked so hard to become who I was.” https://buff.ly/NLCkcPz #ChronicIllness #DisabilitySky
“If you know someone with #chronicillness, I urge you to reassure them when they cancel plans—that you know it is not their fault… Guilt is our constant companion. We are trying our best, and we only want you to see and appreciate that.” https://cme.sh/self-worth #ChronicPain #Disability
November 16, 2025 at 1:23 AM
“If you know someone with #chronicillness, I urge you to reassure them when they cancel plans—that you know it is not their fault… Guilt is our constant companion. We are trying our best, and we only want you to see and appreciate that.” https://cme.sh/self-worth #ChronicPain #Disability
“There’s no shame in using whatever tools help you function… Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up…& if all else fails? Give yourself the grace to rest.” https://vikkyleaney.substack.com/p/my-top-5-pain-management-tools-as/
November 15, 2025 at 1:23 PM
“There’s no shame in using whatever tools help you function… Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up…& if all else fails? Give yourself the grace to rest.” https://vikkyleaney.substack.com/p/my-top-5-pain-management-tools-as/
“#Brainfog turns your brain into a pile of mush… As an academic, I struggle with this one a lot because it becomes nearly impossible to write, or to write as beautifully as I used to. It also ruins my ability to remember.” https://themighty.com/topic/fibromyalgia/fibromyalgia-depression-being-boring
November 15, 2025 at 1:55 AM
“#Brainfog turns your brain into a pile of mush… As an academic, I struggle with this one a lot because it becomes nearly impossible to write, or to write as beautifully as I used to. It also ruins my ability to remember.” https://themighty.com/topic/fibromyalgia/fibromyalgia-depression-being-boring
“I spend everyday in excruciating pain. I’m sensitive to light+noise, simple tasks are hard… My short term memory’s bad… #CRPS is a horrid disease… Don’t allow someone to minimize your journey… every warrior is a warrior.” https://rsds.org/dont-allow-someone-else-to-minimize-your-journey/ #NERVEmber
November 14, 2025 at 7:23 PM
“I spend everyday in excruciating pain. I’m sensitive to light+noise, simple tasks are hard… My short term memory’s bad… #CRPS is a horrid disease… Don’t allow someone to minimize your journey… every warrior is a warrior.” https://rsds.org/dont-allow-someone-else-to-minimize-your-journey/ #NERVEmber
“The unpredictability: You might carefully venture out, attempt something normal, only to be ambushed by #pain's sudden intensification. Each time this happens, the disappointment cuts deep, and the narrow path of what's possible seems to shrink further.” https://buff.ly/ANglZ0Q @remotetherapy.space
The Silent Battle: Living in the Shadow of Chronic Pain
The Silent Battle: Living in the Shadow of Chronic Pain
chrishutchinsjoss.substack.com
November 14, 2025 at 2:23 PM
“The unpredictability: You might carefully venture out, attempt something normal, only to be ambushed by #pain's sudden intensification. Each time this happens, the disappointment cuts deep, and the narrow path of what's possible seems to shrink further.” https://buff.ly/ANglZ0Q @remotetherapy.space
“It’s hard to describe what it’s like to spend your life in #ChronicPain —Every time I have a moment where I’m just absolutely desperate because I’m in so much pain—I remind myself I’ve been here before and made it through.” https://themighty.com/topic/chronic-pain/chronic-pain-reminds-me-of-ghosts/
November 13, 2025 at 1:23 PM
“It’s hard to describe what it’s like to spend your life in #ChronicPain —Every time I have a moment where I’m just absolutely desperate because I’m in so much pain—I remind myself I’ve been here before and made it through.” https://themighty.com/topic/chronic-pain/chronic-pain-reminds-me-of-ghosts/
“I may have a few months [or] weeks, where I’m physically able to reach ‘new normals’ of increased function… despite incredible #pain… Then you barely heard from me for a few weeks and it seemed I fell off the face of the planet. Truth is…I did.” https://cme.sh/IA7u67 #NERVEmber #CRPSAwarenessMonth
November 12, 2025 at 1:23 PM
“I may have a few months [or] weeks, where I’m physically able to reach ‘new normals’ of increased function… despite incredible #pain… Then you barely heard from me for a few weeks and it seemed I fell off the face of the planet. Truth is…I did.” https://cme.sh/IA7u67 #NERVEmber #CRPSAwarenessMonth
“The other unfortunate side effect of being #paingry is that is leads to #painsomnia… Many of us have nights like this and don’t say a word… It is 3 a.m, I’m awake and I’m in pain…the absurd thing is I am exhausted. I want to sleep.” https://buff.ly/3NjgxLI #ChronicPain
November 12, 2025 at 1:23 AM
“The other unfortunate side effect of being #paingry is that is leads to #painsomnia… Many of us have nights like this and don’t say a word… It is 3 a.m, I’m awake and I’m in pain…the absurd thing is I am exhausted. I want to sleep.” https://buff.ly/3NjgxLI #ChronicPain
“Have you ever been stuck in bed for a few days from a really bad infection or surgery? You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months then years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie
November 11, 2025 at 2:23 PM
“Have you ever been stuck in bed for a few days from a really bad infection or surgery? You could barely get out of bed and simple tasks were exhausting. Now consider feeling that way every day, all day, for months then years.” https://buff.ly/zp4j7pr #severefatigue #chronicpain #spoonie
“It is not about numbing or ignoring your emotions, but rather observing them without judgement… Seeing them as clouds passing on a sunny day, instead of letting them crowd your mind and take your attention.” https://www.bloomingmindfulness.co.uk/mindfully-coping-with-grief #MentalHealthMatters
November 11, 2025 at 1:23 AM
“It is not about numbing or ignoring your emotions, but rather observing them without judgement… Seeing them as clouds passing on a sunny day, instead of letting them crowd your mind and take your attention.” https://www.bloomingmindfulness.co.uk/mindfully-coping-with-grief #MentalHealthMatters
“#CRPS—a fine line exists between pushing past breaking point—between the freedom of mobility & reality that I could send myself into a downward spiral/flare that lasts days/weeks/months.” https://cme.sh/culturE #NERVEmber #CRPSorangeday #CRPS #CRPSAwarenessMonth
November 10, 2025 at 1:23 PM
“#CRPS—a fine line exists between pushing past breaking point—between the freedom of mobility & reality that I could send myself into a downward spiral/flare that lasts days/weeks/months.” https://cme.sh/culturE #NERVEmber #CRPSorangeday #CRPS #CRPSAwarenessMonth
“A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety Through the Prism of #ChronicIllness https://buff.ly/7tDtXVZ @serenebutterfly.bsky.social #FND
November 10, 2025 at 1:23 AM
“A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety Through the Prism of #ChronicIllness https://buff.ly/7tDtXVZ @serenebutterfly.bsky.social #FND
“Chronic pain is very different because It. Never. Ends. We never get a chance to be in our body in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like #NERVEmber
November 9, 2025 at 3:23 PM
“Chronic pain is very different because It. Never. Ends. We never get a chance to be in our body in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like #NERVEmber