#occipitalneuralgia
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badgerdraws.bsky.social
Drawn back in 2023 when we were still in the midst of finding adequate pain management. Nerve pain is so hard to explain when I've never felt it before and when the other person hasn't either.

#traditionalart #art #chronicillness #chronicpain #occipitalneuralgia #neuralgia
Person with a skull. Thick thorns pierce out of their neck and the right side of their face. A person reaches for a medicine bottle. Yellow-green pseudo bones burst out of their skin.
February 1, 2026 at 9:20 PM
mosscaller.bsky.social
Update on my migraine..

It turns out that I'm suffering from: "Occipital Neuralgia"

#occipitalneuralgia #tbi #traumaticbraininjury #disabled
#venting #ventingspace #chronicallyill #spoonie #seizure #seizures
( ID: Close-up of a person with wet hair partially covering their intense eyes. Their eyes look crazed, as tears well up in the corners. They have their hands up, half concealing the lower half of their face. )
January 21, 2026 at 2:59 PM
mickeybiz.bsky.social
This one quickly became a favorite from this series. I got to be more quiet and subtle but still focus in on where those nerve clusters are (illuminated area) and almost echo the simplicity of a medical illustration in pose.

For #BlueSkyArtShow #Stunday #sciart #occipitalneuralgia
mickeybiz.bsky.social Mickey’s in Cognitive Decline @mickeybiz.bsky.social · May 29
Occipital Neuralgia

Sono Una Fotografia
On body, chronic illness, sensation, and identity

#photography #eastcoastkin #chronicillness #selfportrait #neuralgia #ArtofSelfPortraiture #SciArt
Close up photograph of Mickey’s face and shoulders. They are looking to one side with their eyes open. Photo is blended with a photograph of the sky, with a cluster of clouds and light coming through around the base of their neck and across their ear and jaw up to the temples. This is the region where Mickey experiences pain from episodes of occipital neuralgia due to chronic illness.
January 18, 2026 at 11:20 PM
saltymudder.bsky.social
These barometric pressure swings have to STOP #postconcussion #trigeminalneuralgia #occipitalneuralgia #CRPS
December 18, 2025 at 2:54 AM
arxivlens.bsky.social
Head and Neck Trauma as a Precursor for Occipital Neuralgia: Understanding the Temporal Relationship.
Austen, William G et al.
Paper
Details
#OccipitalNeuralgia #HeadAndNeckInjury #NeurosurgeryResearch
December 16, 2025 at 9:01 AM
tchrgrrrl.bsky.social
Stupid MS.

Recurring pain today like a dagger into the base of my skull--right side, below my left ear. Upward stabbing motion. Every time this happens, it saps a little more life out of me. It's even tender to the touch like a bad surface bruise. #occipitalneuralgia #needmorespoons
December 9, 2025 at 2:19 AM
thezebraalliance.bsky.social
For real 💨😭🤪

#RareDiseases:
#HemiplegicMigraine
Migraine With Brainstem Aura
#AbdominalMigraine
#OcularMigraine (founder of TZA gets these)
#VestibularMigraine
#ThunderclapHeadaches
#OccipitalNeuralgia (founder of TZA gets these)
And there's more.

#headaches #migraines #chronicillness #chronicpain
"My body is a machine that turns thin air into a migraine"
October 7, 2025 at 4:41 PM
highnessophelia.bsky.social
went back to my old pinned tweet because I've lost count of how many days in a row I've had this headache.. it's definitely more than 10 but less than 30.

#occipitalneuralgia is a miserable condition.
highnessophelia.bsky.social 𝙾𝚙𝚑𝚎𝚕𝚒𝚊 @highnessophelia.bsky.social · Dec 7
ⓘ this user has a headache
October 2, 2025 at 12:39 AM
neckwiseslc.bsky.social
What is causing my occipital neuralgia? | occipital neuralgia relief | Neckwise

Free consultation – www. Neckwise.com

Neck wise locations in Salt Lake City, Fort Myers, Tampa, and Land O Lakes

#OccipitalNeuralgia #HeadPain##UpperCervicalChiropractor
September 24, 2025 at 12:58 AM
vjallison1974.bsky.social
My new headache specialist rocks! Many thanks to Dr. F at the pain clinic at the Victoria General Hospital in Halifax NS for his help with nerve blocks and more! I can touch my scalp without pain for the first time in EONS!! WHOOP!!! #occipitalneuralgia #nerveblocks #novascotia #canadianauthor
September 10, 2025 at 1:31 PM
amyamynluv.bsky.social
I'm so fucking sick to death of my bilateral #OccipitalNeuralgia! I used to get injections every 3 months that would take the pain away for a while, never the full 3 months, but they stopped working more than a few days so I quit getting them. So now I have no treatment for it & I hate this shit.
August 25, 2025 at 7:11 PM
mimmothteaparty.bsky.social
OI
OrthostaticIntolerance
LongSomething
CCI
LongLyme
postviralillness
PENE
pem
painsomnia
ANSdysfunction
FND
headachetreatment
headache
occipitalneuralgia
NeuroConditions
takeastandforpots
MillionsMissing
LongCovidResearch
JohnVsJonVsME
LongCovidSOS
MedEd
syncope
NeuroCognitiveDysfunction
August 10, 2025 at 3:26 AM
todd-m-stein.bsky.social
Day 37 post-op update:
I'm in the early weeks of recovering from multiple #NeckPain, #Migraine & #Headache #NervePain head surgeries on 6/25/25, at @osuwexmed.bsky.social. I'm working hard to reclaim my life.
#ChronicPain #LifelnPain #ChronicPainChangesEverything
(see pics for full update text)
(Screenshot 1/3 of my update post as shared on another social media platform.) “I still haven't slept since Monday night (I woke up Tuesday morning and have been awake since then - insane mix of chronic fatigue & insomnia) but for some crazy unknown reason I got a burst of energy and the solar system must've been in rare perfect alignment this afternoon because I actually got some things done in the house and even went outside and checked some things off my years long lists - and then I showered. Yes, I showered, after all that — and I am proud of that seemingly simple act. You see, simply showering can be a serious challenge when you live in chronic pain. I really don't think the vast majority of people who may see this post on any of my social media accounts will ever completely understand what a major accomplishment today has been - or what a major hell l've been trapped in for over a decade. (Of course, I'm kind…” (Screenshot 2/3 of my update post as shared on another social media platform.) “…of "paying for it now" - but it was so worth it!) I'm in the early weeks of recovering from multiple #NeckPain, #Migraine and #Headache #NervePain head surgeries on June 25, 2025, at The Ohio State University Wexner Medical Center. I'm working hard on reclaiming my life. #Pain #ChronicPain #LifelnPain #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #UntreatedPainIsTorturePerTheUN #99PrescriptionsButAPainPillAintO ne #OccipitalNeuralgia #Fibromyalgia #DiabeticNeuropathy #TMJD #Tinnitus #ChronicFatigue #HiatalHernia #IBS #Chroniclllness #SpinalArthritis #Osteoarthritis #Hyperhidrosis #HeartDisease #Type2Diabetes #Depression” (Screenshot 3/3 of my update post as shared on another social media platform.) “…#LegallyDisabledWithoutDisabilityBenefits #ButYouDontLookSick #InvisiblellIness #YourChroniclIlnessIsNotYourFault —TMS.” (Meme with printed credit to “@RAREVISIBILITY” - meme’s text is below) “your chronic illness is not your fault” “You didn't choose to be sick & you didn't cause your sickness” “It does not define you, you are more than your illness” “It is completely beyond your control, you are doing everything you can” “your illness is not a punishment and you don't deserve it” “you are doing your best even on your worst days” “It does not make you weak or a failure”
July 31, 2025 at 5:35 AM
todd-m-stein.bsky.social
3/3: #NeckPain #Headache
#OccipitalNeuralgia #Migraine #NerveSurgery #MigraineAndHeadacheSurgery #MigraineRelief #OccipitalNerveDecompressionSurgery #DrJeffreyEJanis @osuwexmed.bsky.social
#JunelsMigraineAndHeadacheAwarenessMonth #MigraineAwarenessMonth #MigraineAndHeadacheAwareness #ChronicPain
June 30, 2025 at 8:34 PM
amyamynluv.bsky.social
I have a #migraine getting worse fast, a bilateral #OccipitalNeuralgia headache, and a tension headache at the same time. Gotta get off my phone, I have the extra dim setting turned on as dim as it goes and it still feels like I'm looking into the light of a thousand suns. 😭😭
#ChronicMigraine
June 30, 2025 at 6:13 AM
todd-m-stein.bsky.social
#NeckPain #Headache
#OccipitalNeuralgia #Migraine #NerveSurgery #MigraineAndHeadacheSurgery #MigraineRelief #OccipitalNerveDecompressionSurgery #DrJeffreyEJanis @osuwexmed.bsky.social
#JunelsMigraineAndHeadacheAwarenessMonth #MigraineAwarenessMonth #MigraineAndHeadacheAwareness #ChronicPain #Relief
Are You Aware? Memory loss, difficulty speaking or finding words (aphasia) and sensitivity to touch (allodynia) can occur during a migraine attack. -Migraine.com #MHAM #MigraineMatters Photo of me in front of part of a large wall banner at OSUWMC University Hospital. “University Hospital is improving health in Ohio and across the world.” “CHRONIC MIGRAINE: MORE THAN JUST A HEADACHE “Head pain is the most well-known - and most reported chronic migraine symptom (97.8%). But that's just the beginning: “HEAD PAIN 97.8% “SENSITIVITY TO LIGHT 91.5% “COGNITIVE SYMPTOMS 86.1% “SENSITIVITY TO SOUND 83.8% “FATIGUE 79.9% “NAUSEA/ VOMITING 76.6% “NECK PAIN 72.9% “SENSITIVITY TO SMELL 67.3% “MOOD CHANGES 64.9% “DIZZINESS 58.1% “VISUAL CHANGES 49.5% “WEAKNESS 45.4% “NUMBNESS / TINGLING 35.8% “DIARRHEA / CONSTIPATION 33.3% “VERTIGO 30.4% “FOOD CRAVINGS 26.8% “PUFFY EYELID 22.8% “OTHER 16.1%”
June 27, 2025 at 8:00 PM
todd-m-stein.bsky.social
(Continued)
GoFundMe screenshot 5 of update: “osteoarthritis, spinal arthritis, bilateral hand & feet diabetic neuropathy, IBS, hiatal hernia, PTSD, heart disease, type two diabetes, acid reflux, allergies, hyperhidrosis, etc., will not be resolved by the head nerve surgery (lol)...BUT, I truly believe/hope if I can "just get some migraine and headache pain relief," | should be able to lead a much better quality of life and be more human, again!) Surgeon was able to operate on bilateral greater occipital nerves to decompress. Bilateral third occipital nerves eliminated. Right temple nerve to decompress or eliminate (at this moment, I can't remember, but I will find out). Padded occipital nerves with fat transplant from another area of my head (I have no shortness of which the doctor could select from - smh/lol). Changed on the fly planned vertical incision on back of head to horizontal bc of the thickness of my head material (read: I'm embarrassingly fat from” GoFundMe screenshot 6 of update: “immobility & inactivity brought on by over a decade of excruciating to debilitating chronic migraine and headache pain). Anticipated six week "recovery" but won't know the final results/outcome for three months minimum. Past appointments this trip, I'm scheduled for return-to-Ohio follow-ups in August and September, so far. This journey has been long and very difficult. Broadlawns Pain & Core Physical Therapy (DsM metro, IA) and The Ohio State University Wexner Medical Center are the ONLY places I have found any form of real pain relief and hope in ~20 years of chronic pain & illness - and l've been to a lot of places in lowa plus a month at The Mayo” GoFundMe screenshot 7 of update: “Clinic in Rochester, MN. I will try to catch up on my personal replies to posts and messages on all platforms today - I'm almost caught up now. (Reminder, it appears I am not receiving messages from donors through GoFundMe so please, if you have a comment, concern or question, contact me through an alternative option like Facebook, Bluesky, X, email or cellphone text/voice. Thanks!) Thanks for your support. It means a lot to me and my family. Respectfully, with gratitude & love, Todd M. Stein” GoFundMe screenshot 8 of update: “#NeckPain, #Headache, #OccipitalNeuralgia & #Migraine #NerveSurgery #MigraineAndHeadacheSurgery #MigraineRelief #TempleNerveSurgery #OccipitalNerveDecompressionSurgery by #DrJeffreyEJanis #DrJeffreyJanis #DrJanis at #TheOhioStateUniversity #WexnerMedicalCenter #JunelsMigraineAndHeadacheAwarenes sMonth #MigraineAwarenessMonth #MigraineAndHeadacheAwareness #ChronicPain #ChronicPainRelief -30-“
June 27, 2025 at 7:53 PM
todd-m-stein.bsky.social
4/4: The entire process has been incredible in so many ways & Dr. Janis @osuwexmed.bsky.social has been & is nothing but AMAZING. I promise more updates soon but now I need to get off my phone & try to sleep. Thanks for your support
#NeckPain, #Headache, #OccipitalNeuralgia & #Migraine #NerveSurgery
June 26, 2025 at 4:38 PM
chimsween20.bsky.social
So my #occipitalneuralgia is on her best bullshit. I have had a migraine at the back of my head. My neck feels like a bat swung through it. #LongCovid PMS brings her all the way out, Y'all. My chiro said my neck was so swollen that he had to spend extra time on it. UGH!
June 26, 2025 at 12:36 AM
erinzarro.bsky.social
Have had terrible nerve pain headaches for the past two days. Want this to end now please and thanks
#occipitalneuralgia #chronicpain
a cartoon smiley face with a sad look on its face .
ALT: a cartoon smiley face with a sad look on its face .
media.tenor.com
June 23, 2025 at 12:58 AM
bexthebookishotter.bsky.social
Let's see if #prednisone helps with my #headache that has gone away and I have had for a week. This heat is not helping matters. #spoonie #migraine #occipitalneuralgia #neckpain #fibromyalgia #WTF #neurologicaldisorders #disorders #chronicpain #chronicillness #chronicallyill
June 21, 2025 at 6:34 PM
bexthebookishotter.bsky.social
Called #neurology to see if I could get a #rescuemed for this FUCKING #MIGRAINE that is not going away.Talked to someone and they are going to give me a 5 day for #prednisone. Lets hope this fucking med helps this fucking migraine go the fuck away. #occipitalneuralgia #chronicpain #chronicallyill
June 20, 2025 at 8:08 PM
bexthebookishotter.bsky.social
#FML I have a really bad #headache again. Ice and heat are not cutting it. I can't move my neck. #occipitalneuralgia #migraine #pain #chronicpain #chronicillness #chronicallyill #spoonie #fibromyalgia #inflammatoryarthritis #headpain #neckpain #musclespasm #brainfog #inflammation #arthritis
June 19, 2025 at 10:24 PM
bexthebookishotter.bsky.social
You know that feeling you get when a #headache / #migraine finally breaks? I find that feeling better than sex/an orgasm. I spent another day rotating ice packs and using my awesome heating pad.
#spoonie #chronicheadahe #pain #chronicpain #chronicillness #fibromyalgia #Occipitalneuralgia #neurology
June 19, 2025 at 6:56 AM
crickethk.bsky.social
Struggling with sharp pain in the back of your head or neck? Learn about occipital neuralgia, cervicogenic headaches, and treatment options.
#BackOfHeadPain #NeckPainRelief #OccipitalNeuralgia #CervicogenicHeadache
🔗 redbuttepain.com/back-of-head...
Back of Head and Neck Pain: Causes and Relief Options - Red Butte Pain Solutions
Back of head and neck pain? Discover how Red Butte Pain Solutions treats occipital neuralgia and cervicogenic headaches.
redbuttepain.com
June 18, 2025 at 7:43 PM