Chimere L. Sweeney
@chimsween20.bsky.social
I am a Black disabled woman with Long Covid. Activist, writer, speaker, panelist, and fake lecturer (lol). Owner of the Black Long Covid Experience and curator or The Blackest Side of Long Covid via Substack. Holla at me.
info@blacklongcovidexperience.com
info@blacklongcovidexperience.com
Yay! Thank you, @yalejackson.bsky.social,
for featuring me as a Global Health Expert! It means so much to have your support dur this important conversation. Shout out to student, Merit Oyenkwere, for a lovely interview. Go on + soar, Girllll! Proud of you.
vimeo.com/showcase/118...
for featuring me as a Global Health Expert! It means so much to have your support dur this important conversation. Shout out to student, Merit Oyenkwere, for a lovely interview. Go on + soar, Girllll! Proud of you.
vimeo.com/showcase/118...
Global Health Scholars Interviews on Vimeo
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vimeo.com
September 29, 2025 at 10:34 PM
Yay! Thank you, @yalejackson.bsky.social,
for featuring me as a Global Health Expert! It means so much to have your support dur this important conversation. Shout out to student, Merit Oyenkwere, for a lovely interview. Go on + soar, Girllll! Proud of you.
vimeo.com/showcase/118...
for featuring me as a Global Health Expert! It means so much to have your support dur this important conversation. Shout out to student, Merit Oyenkwere, for a lovely interview. Go on + soar, Girllll! Proud of you.
vimeo.com/showcase/118...
"Meetings like these usually aren’t effective. They include mostly white people in power who wish to meet with Black people who have complained about their observations or experiences with racism by calling them out (and in)."
theblackestsidelc.substack.com/p/episode-11...
theblackestsidelc.substack.com/p/episode-11...
Episode 11: Racial Diversity Needs No Meetings
I recently declined a meeting with Patient-Led Research Collaborative (PLRC) to discuss my "concerns" on racial diversity in Long Covid and MECFS organizations. Here's why.
theblackestsidelc.substack.com
September 29, 2025 at 10:26 PM
"Meetings like these usually aren’t effective. They include mostly white people in power who wish to meet with Black people who have complained about their observations or experiences with racism by calling them out (and in)."
theblackestsidelc.substack.com/p/episode-11...
theblackestsidelc.substack.com/p/episode-11...
People have some nerve trying to send messages to me about concerns I make clear every single day. Also, racial diversity never requires a meeting. You either want racial diversity in #LongCovid advocacy and research or you don't.
IACCI sent #LongCovid based Patient-Led Research Collaborative to request a meeting with me to discuss racial equity and my "concerns" about their organizations.
Watch my podcast and/or read its written companion now:
open.substack.com/pub/theblack...
Watch my podcast and/or read its written companion now:
open.substack.com/pub/theblack...
Episode 11: Racial Diversity Needs No Meetings
I recently declined a meeting with Patient-Led Research Collaborative (PLRC) to discuss my "concerns" on racial diversity in Long Covid and MECFS organizations. Here's why.
open.substack.com
September 29, 2025 at 10:24 PM
People have some nerve trying to send messages to me about concerns I make clear every single day. Also, racial diversity never requires a meeting. You either want racial diversity in #LongCovid advocacy and research or you don't.
IACCI sent #LongCovid based Patient-Led Research Collaborative to request a meeting with me to discuss racial equity and my "concerns" about their organizations.
Watch my podcast and/or read its written companion now:
open.substack.com/pub/theblack...
Watch my podcast and/or read its written companion now:
open.substack.com/pub/theblack...
Episode 11: Racial Diversity Needs No Meetings
I recently declined a meeting with Patient-Led Research Collaborative (PLRC) to discuss my "concerns" on racial diversity in Long Covid and MECFS organizations. Here's why.
open.substack.com
September 29, 2025 at 10:22 PM
IACCI sent #LongCovid based Patient-Led Research Collaborative to request a meeting with me to discuss racial equity and my "concerns" about their organizations.
Watch my podcast and/or read its written companion now:
open.substack.com/pub/theblack...
Watch my podcast and/or read its written companion now:
open.substack.com/pub/theblack...
Cosplay on Some #Coldplay
As a disabled woman, sometimes I have to pull my strength from places that are foreign (or fake) like in music.
In our community, we hate each other for sharing these moments of joy.
I want more than despair. Hate me if you must. #disability #LongCovid #mecfs #substack
As a disabled woman, sometimes I have to pull my strength from places that are foreign (or fake) like in music.
In our community, we hate each other for sharing these moments of joy.
I want more than despair. Hate me if you must. #disability #LongCovid #mecfs #substack
"...#ChrisMartin’s voice played in my head....His voice is raw with flavors I could never name. I just know it when I hear or feel it. It soothes, shakes, + surrenders. Chris’ voice has literally baptized me in the middle of vacuuming or cleaning."
theblackestsidelc.substack.com/p/cosplay-on...
theblackestsidelc.substack.com/p/cosplay-on...
Cosplay on Some Coldplay
I scour through hardship to find radical moments of meaning and joy. On Sunday, Chris Martin and Coldplay was the treasure I found.
theblackestsidelc.substack.com
August 27, 2025 at 4:30 AM
Cosplay on Some #Coldplay
As a disabled woman, sometimes I have to pull my strength from places that are foreign (or fake) like in music.
In our community, we hate each other for sharing these moments of joy.
I want more than despair. Hate me if you must. #disability #LongCovid #mecfs #substack
As a disabled woman, sometimes I have to pull my strength from places that are foreign (or fake) like in music.
In our community, we hate each other for sharing these moments of joy.
I want more than despair. Hate me if you must. #disability #LongCovid #mecfs #substack
"...#ChrisMartin’s voice played in my head....His voice is raw with flavors I could never name. I just know it when I hear or feel it. It soothes, shakes, + surrenders. Chris’ voice has literally baptized me in the middle of vacuuming or cleaning."
theblackestsidelc.substack.com/p/cosplay-on...
theblackestsidelc.substack.com/p/cosplay-on...
Cosplay on Some Coldplay
I scour through hardship to find radical moments of meaning and joy. On Sunday, Chris Martin and Coldplay was the treasure I found.
theblackestsidelc.substack.com
August 27, 2025 at 4:25 AM
"...#ChrisMartin’s voice played in my head....His voice is raw with flavors I could never name. I just know it when I hear or feel it. It soothes, shakes, + surrenders. Chris’ voice has literally baptized me in the middle of vacuuming or cleaning."
theblackestsidelc.substack.com/p/cosplay-on...
theblackestsidelc.substack.com/p/cosplay-on...
Also, will Social Security still be responsible for declaring FL students as "severely disabled?" Or did #Florida schools take that over, too?
www.cfpublic.org/education/20...
www.cfpublic.org/education/20...
August 25, 2025 at 9:08 PM
Also, will Social Security still be responsible for declaring FL students as "severely disabled?" Or did #Florida schools take that over, too?
www.cfpublic.org/education/20...
www.cfpublic.org/education/20...
Folks who think the #disabled don't pay taxes or want to work: what better way to keep disabled ppl from advancing in education and/or the workforce than by limiting their ability to receive a certificate from high school?
Next up: we will need a HS diploma to vote. #disability🤐
Next up: we will need a HS diploma to vote. #disability🤐
August 25, 2025 at 9:06 PM
Folks who think the #disabled don't pay taxes or want to work: what better way to keep disabled ppl from advancing in education and/or the workforce than by limiting their ability to receive a certificate from high school?
Next up: we will need a HS diploma to vote. #disability🤐
Next up: we will need a HS diploma to vote. #disability🤐
Banning books. Schools determining which students are severely disabled so they can determine who can get certificate of completions from high school.
Florida just keeps getting better with them, eh?
Florida just keeps getting better with them, eh?
August 25, 2025 at 9:01 PM
Banning books. Schools determining which students are severely disabled so they can determine who can get certificate of completions from high school.
Florida just keeps getting better with them, eh?
Florida just keeps getting better with them, eh?
If ppl don't think that #Florida won't one day ban #disabled people from voting in the state, they are delusional. Classism + caste systems take roundabout ways to attack marginalized people every day.
Banning certificates of completion in high school for severely disabled folks is a start.
Banning certificates of completion in high school for severely disabled folks is a start.
August 25, 2025 at 8:59 PM
So lately, I've been praying that @rbreich.bsky.social lives forever. This man is so sensible, brilliant, and on time. Who needs church when Reich is preaching every single day? Sheesh.
August 25, 2025 at 8:55 PM
So lately, I've been praying that @rbreich.bsky.social lives forever. This man is so sensible, brilliant, and on time. Who needs church when Reich is preaching every single day? Sheesh.
Be sure to catch my upcoming post: The #LongCovid Movement: Trendy and Trumpy on #Substack.
The Blackest Side of Long Covid
theblackestsidelc.substack.com
The Blackest Side of Long Covid
theblackestsidelc.substack.com
August 25, 2025 at 8:52 PM
Be sure to catch my upcoming post: The #LongCovid Movement: Trendy and Trumpy on #Substack.
The Blackest Side of Long Covid
theblackestsidelc.substack.com
The Blackest Side of Long Covid
theblackestsidelc.substack.com
@keystonesymposia.bsky.social helped planned a Long Covid meeting that was not focused on diversity or racial equality in research.
August 25, 2025 at 8:40 PM
@keystonesymposia.bsky.social helped planned a Long Covid meeting that was not focused on diversity or racial equality in research.
"...now we're all suffering together." Hmph. As a Black disabled woman, I laugh at those who don't think we can build community in unconventional ways. Fuck the nation. For us.
When was them not us? Or am I missing something?
This is exactly to the letter what we were warning everyone about and now we’re all suffering together. So what now?
We go out in the streets and get shot? For what?? The love of this great nation?
This is exactly to the letter what we were warning everyone about and now we’re all suffering together. So what now?
We go out in the streets and get shot? For what?? The love of this great nation?
My God today! Thank you! We spent the first few months of the year, sipping tea, pointing at "them" aka Hispanic Americans. Now, the "them" is US. Now, whatcha got?
We can't waste time with this petty shit.
We can't waste time with this petty shit.
August 23, 2025 at 8:09 PM
"...now we're all suffering together." Hmph. As a Black disabled woman, I laugh at those who don't think we can build community in unconventional ways. Fuck the nation. For us.
As a former #DC native, this week has made me pretty queasy. I grew up in the city when crack pipes were hanging in the hallways more than people were and toddlers were being scolded with hot water in the projects. You ain't seen crime in DC like I did.
August 22, 2025 at 9:45 PM
As a former #DC native, this week has made me pretty queasy. I grew up in the city when crack pipes were hanging in the hallways more than people were and toddlers were being scolded with hot water in the projects. You ain't seen crime in DC like I did.
Where are the DEMS again? They seem oddly silent this week. And if anyone wants to know the real problem, now we know.
Trump: I’m deploying the military to us cities
Media: he’s fighting crime!
Democrats: did you look at your electric bill?
Media: he’s fighting crime!
Democrats: did you look at your electric bill?
August 22, 2025 at 9:43 PM
Where are the DEMS again? They seem oddly silent this week. And if anyone wants to know the real problem, now we know.
My God today! Thank you! We spent the first few months of the year, sipping tea, pointing at "them" aka Hispanic Americans. Now, the "them" is US. Now, whatcha got?
We can't waste time with this petty shit.
We can't waste time with this petty shit.
2025 and your grown ass is still looking at whole states and saying "you get what you vote for."
And have the nerve to call other people "stupid."
And have the nerve to call other people "stupid."
August 22, 2025 at 9:41 PM
My God today! Thank you! We spent the first few months of the year, sipping tea, pointing at "them" aka Hispanic Americans. Now, the "them" is US. Now, whatcha got?
We can't waste time with this petty shit.
We can't waste time with this petty shit.
Look, I put my sweat, tears, and toes in my platform. And it's FREE AF! FREE! FREE! Not fake FREE!
I have Covid brain so I can't promise you that there won't be grammatical + typographical errors (as a former English and Language Arts educator, this shit is sad).
theblackestsidelc.substack.com
I have Covid brain so I can't promise you that there won't be grammatical + typographical errors (as a former English and Language Arts educator, this shit is sad).
theblackestsidelc.substack.com
The Blackest Side of Long Covid | Chimére L. Sweeney | Substack
The Blackest Side of Long Covid is a series of personal stories of love, tragedy, life, and advocay tips. Curated by Chimére L. Sweeney, a Black disabled activist and writer, with over five years of L...
theblackestsidelc.substack.com
August 21, 2025 at 11:02 PM
Look, I put my sweat, tears, and toes in my platform. And it's FREE AF! FREE! FREE! Not fake FREE!
I have Covid brain so I can't promise you that there won't be grammatical + typographical errors (as a former English and Language Arts educator, this shit is sad).
theblackestsidelc.substack.com
I have Covid brain so I can't promise you that there won't be grammatical + typographical errors (as a former English and Language Arts educator, this shit is sad).
theblackestsidelc.substack.com
The recent Keystone Symposium on #LongCovid gave me a bit to rant about. I will be writing on my Substack soon.
Here are my observational thoughts here:
www.instagram.com/reel/DNQ89QX...
Here are my observational thoughts here:
www.instagram.com/reel/DNQ89QX...
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August 18, 2025 at 9:54 PM
The recent Keystone Symposium on #LongCovid gave me a bit to rant about. I will be writing on my Substack soon.
Here are my observational thoughts here:
www.instagram.com/reel/DNQ89QX...
Here are my observational thoughts here:
www.instagram.com/reel/DNQ89QX...
I got my 30 PAID subscriptions on #Substack! I'm so thankful.
The Blackest Side of Long Covid is FREE until December 31, 2025. I decided to stop the money grab so #disabled folks can use their $6 to pay for medication, ride-sharing, or copays
theblackestsidelc.substack.com
The Blackest Side of Long Covid is FREE until December 31, 2025. I decided to stop the money grab so #disabled folks can use their $6 to pay for medication, ride-sharing, or copays
theblackestsidelc.substack.com
The Blackest Side of Long Covid | Chimére L. Sweeney | Substack
The Blackest Side of Long Covid is a series of personal stories of love, tragedy, life, and advocay tips. Curated by Chimére L. Sweeney, a Black disabled activist and writer, with over five years of L...
theblackestsidelc.substack.com
August 18, 2025 at 9:53 PM
I got my 30 PAID subscriptions on #Substack! I'm so thankful.
The Blackest Side of Long Covid is FREE until December 31, 2025. I decided to stop the money grab so #disabled folks can use their $6 to pay for medication, ride-sharing, or copays
theblackestsidelc.substack.com
The Blackest Side of Long Covid is FREE until December 31, 2025. I decided to stop the money grab so #disabled folks can use their $6 to pay for medication, ride-sharing, or copays
theblackestsidelc.substack.com
FREE SUBSTACK SUBSCRIPTIONS:
EEK! These are my actual teeth! Like no lie...
I have #LongCovid and this is what this condition has done to my teeth. Read it at The Blackest Side of Long Covid below! #Substack
theblackestsidelc.substack.com/p/cavities-w...
EEK! These are my actual teeth! Like no lie...
I have #LongCovid and this is what this condition has done to my teeth. Read it at The Blackest Side of Long Covid below! #Substack
theblackestsidelc.substack.com/p/cavities-w...
Rotting Teeth and Wallets
The only things I like wrapped around me are my husband's arms and a comfy teacher sweater. Today, I got nothing but a frightening photo of my tooth and a $4,000 dental bill.
theblackestsidelc.substack.com
August 18, 2025 at 9:47 PM
FREE SUBSTACK SUBSCRIPTIONS:
EEK! These are my actual teeth! Like no lie...
I have #LongCovid and this is what this condition has done to my teeth. Read it at The Blackest Side of Long Covid below! #Substack
theblackestsidelc.substack.com/p/cavities-w...
EEK! These are my actual teeth! Like no lie...
I have #LongCovid and this is what this condition has done to my teeth. Read it at The Blackest Side of Long Covid below! #Substack
theblackestsidelc.substack.com/p/cavities-w...
Look, the man is handsome as all hell but he worries me. He's looking for a moment. He didn't catch one when he was being a Centrist; now this? #GavinNewsome
#GavinNewsome still disappoints me a bit: he was the same guy they begged to run when Biden couldn't. He declined though in 2023, he was doing this weird campaigning thing and asking for $$$.
And I still get nightmares about him gushing to #CharlieKirk, "My son loves you." 🤐🤐🤐
And I still get nightmares about him gushing to #CharlieKirk, "My son loves you." 🤐🤐🤐
August 18, 2025 at 9:45 PM
Look, the man is handsome as all hell but he worries me. He's looking for a moment. He didn't catch one when he was being a Centrist; now this? #GavinNewsome
#GavinNewsome still disappoints me a bit: he was the same guy they begged to run when Biden couldn't. He declined though in 2023, he was doing this weird campaigning thing and asking for $$$.
And I still get nightmares about him gushing to #CharlieKirk, "My son loves you." 🤐🤐🤐
And I still get nightmares about him gushing to #CharlieKirk, "My son loves you." 🤐🤐🤐
August 18, 2025 at 9:42 PM
#GavinNewsome still disappoints me a bit: he was the same guy they begged to run when Biden couldn't. He declined though in 2023, he was doing this weird campaigning thing and asking for $$$.
And I still get nightmares about him gushing to #CharlieKirk, "My son loves you." 🤐🤐🤐
And I still get nightmares about him gushing to #CharlieKirk, "My son loves you." 🤐🤐🤐
I want one of these platforms to answer the question: do you hire Black people? And why don't you feature Black commentators? @meidastouch.com @ivehaditpodcast.bsky.social @briantylercohen.bsky.social
I watch these platforms often but growing very concerned that these channels talk about racism and marginalization but don't hire any Black ppl to speak to these issues. This looks so out of touch to me. @meidastouch.com and @ivehaditpodcast.bsky.social. It makes me feel weird.
Am I tripping? I notice that independent media like @meidastouch.com, @ivehaditpodcast.bsky.social, + others who are popular on Youtube don't hire or feature Black commentators.
August 7, 2025 at 8:29 PM
I want one of these platforms to answer the question: do you hire Black people? And why don't you feature Black commentators? @meidastouch.com @ivehaditpodcast.bsky.social @briantylercohen.bsky.social
I watch these platforms often but growing very concerned that these channels talk about racism and marginalization but don't hire any Black ppl to speak to these issues. This looks so out of touch to me. @meidastouch.com and @ivehaditpodcast.bsky.social. It makes me feel weird.
Am I tripping? I notice that independent media like @meidastouch.com, @ivehaditpodcast.bsky.social, + others who are popular on Youtube don't hire or feature Black commentators.
August 7, 2025 at 8:28 PM
I watch these platforms often but growing very concerned that these channels talk about racism and marginalization but don't hire any Black ppl to speak to these issues. This looks so out of touch to me. @meidastouch.com and @ivehaditpodcast.bsky.social. It makes me feel weird.