November 1, 2025 at 1:49 PM
Welcome to the wild world of #Dysautonomia. Millions of people have it, like me. It's a malfunction of the autonomic nervous system and can impact nearly every system in your body.
www.disabledginger.com/p/living-lif... Words by @broadwaybabyto.bsky.social 🩵
#DysautonomiaAwarenessMonth #POTS
www.disabledginger.com/p/living-lif... Words by @broadwaybabyto.bsky.social 🩵
#DysautonomiaAwarenessMonth #POTS
Living Life Upside Down - An Intro to POTS/Dysautonomia
I live my life horizontally thanks to a condition called POTS (Postural Orthostatic Tachycardia Syndrome). It's poorly understood, often misdiagnosed and can be devastating to quality of life.
www.disabledginger.com
October 31, 2025 at 4:37 PM
Welcome to the wild world of #Dysautonomia. Millions of people have it, like me. It's a malfunction of the autonomic nervous system and can impact nearly every system in your body.
www.disabledginger.com/p/living-lif... Words by @broadwaybabyto.bsky.social 🩵
#DysautonomiaAwarenessMonth #POTS
www.disabledginger.com/p/living-lif... Words by @broadwaybabyto.bsky.social 🩵
#DysautonomiaAwarenessMonth #POTS
October is Dysautonomia Awareness Month. Learn more about this group of medical conditions caused by problems with the autonomic nervous system. #DysautonomiaAwarenessMonth #Dysautonomia
Understanding Dysautonomia
Dr. Tyler Moran answers what you need to know about Dysautonomia, a group of conditions caused by problems with the autonomic nervous system.
bit.ly
October 19, 2025 at 2:12 PM
October is Dysautonomia Awareness Month. Learn more about this group of medical conditions caused by problems with the autonomic nervous system. #DysautonomiaAwarenessMonth #Dysautonomia
Other comparators I’ve heard recently:
- End stage renal failure
- Stage 4 cancer
(Can’t remember the source for the cancer comparison but the renal one was during @dysautonomia.bsky.social Conference 2025)
#LongCovid #LongVax #DysautonomiaAwarenessMonth🩵
- End stage renal failure
- Stage 4 cancer
(Can’t remember the source for the cancer comparison but the renal one was during @dysautonomia.bsky.social Conference 2025)
#LongCovid #LongVax #DysautonomiaAwarenessMonth🩵
Long Covid is having an enormous impact on society.
This article suggests that 1 in 7 people now have #LongCovid
theconversation.com/long-covid-i...
This article suggests that 1 in 7 people now have #LongCovid
theconversation.com/long-covid-i...
Long COVID is more than fatigue. Our new study suggests its impact is similar to a stroke or Parkinson’s
Long COVID isn’t just a bunch of lingering symptoms. A new study shows it can stop peoole doing what they want to do, and need to do.
theconversation.com
October 19, 2025 at 12:04 PM
Other comparators I’ve heard recently:
- End stage renal failure
- Stage 4 cancer
(Can’t remember the source for the cancer comparison but the renal one was during @dysautonomia.bsky.social Conference 2025)
#LongCovid #LongVax #DysautonomiaAwarenessMonth🩵
- End stage renal failure
- Stage 4 cancer
(Can’t remember the source for the cancer comparison but the renal one was during @dysautonomia.bsky.social Conference 2025)
#LongCovid #LongVax #DysautonomiaAwarenessMonth🩵
Dr. Natraj Ballal is BACK to take your questions in a LIVE Q&A! Join us for a live "Ask the Expert" event featuring Dr. Ballal on October 23 at 6 p.m. Eastern, with a giveaway sponsored by Enact Hydration! Register: https://bit.pulse.ly/ymnzhu2hpl
#DysautonomiaAwarenessMonth
#DysautonomiaAwarenessMonth
October 18, 2025 at 9:20 PM
Dr. Natraj Ballal is BACK to take your questions in a LIVE Q&A! Join us for a live "Ask the Expert" event featuring Dr. Ballal on October 23 at 6 p.m. Eastern, with a giveaway sponsored by Enact Hydration! Register: https://bit.pulse.ly/ymnzhu2hpl
#DysautonomiaAwarenessMonth
#DysautonomiaAwarenessMonth
POTS affects up to 3M Americans. Symptoms include increased heart rate when standing, dizziness, fatigue & brain fog. Learn more: https://dysautonomiasupport.pulse.ly/8qciuyngmt #DysautonomiaAwarenessMonth #POTS #Dysautonomia
October 17, 2025 at 10:28 PM
POTS affects up to 3M Americans. Symptoms include increased heart rate when standing, dizziness, fatigue & brain fog. Learn more: https://dysautonomiasupport.pulse.ly/8qciuyngmt #DysautonomiaAwarenessMonth #POTS #Dysautonomia
Oh, it's #DysautonomiaAwarenessMonth!
I have Inappropriate Sinus Tachycardia AND Postural Orthostatic Tachycardia Syndrome (IST and POTS). It sucks!
I have Inappropriate Sinus Tachycardia AND Postural Orthostatic Tachycardia Syndrome (IST and POTS). It sucks!
October 16, 2025 at 10:38 PM
Oh, it's #DysautonomiaAwarenessMonth!
I have Inappropriate Sinus Tachycardia AND Postural Orthostatic Tachycardia Syndrome (IST and POTS). It sucks!
I have Inappropriate Sinus Tachycardia AND Postural Orthostatic Tachycardia Syndrome (IST and POTS). It sucks!
MSA is a rare degenerative neurological disease causing autonomic dysfunction (0.6/100k people). 75% have orthostatic hypotension. Treatment = symptom management. #DysautonomiaAwarenessMonth
https://dysautonomiasupport.pulse.ly/dd5zx8glt5
https://dysautonomiasupport.pulse.ly/dd5zx8glt5
October 14, 2025 at 8:47 PM
MSA is a rare degenerative neurological disease causing autonomic dysfunction (0.6/100k people). 75% have orthostatic hypotension. Treatment = symptom management. #DysautonomiaAwarenessMonth
https://dysautonomiasupport.pulse.ly/dd5zx8glt5
https://dysautonomiasupport.pulse.ly/dd5zx8glt5
The world is so beautiful! This is Baker Lake, in Nunavut, Canada. Heart it and share some love for people with #Dysautonomia, an autonomic nervous system disorder, which disrupts heart rate and much more. Turquoise is the awareness color for #DysautonomiaAwarenessMonth 🩵
October 13, 2025 at 8:52 PM
The world is so beautiful! This is Baker Lake, in Nunavut, Canada. Heart it and share some love for people with #Dysautonomia, an autonomic nervous system disorder, which disrupts heart rate and much more. Turquoise is the awareness color for #DysautonomiaAwarenessMonth 🩵
Showering was a mistake. I mostly have my POTS symptoms well managed but one bad night of sleep and a shower and now I feel incapacitated. 😖
Showers shouldn’t be the enemy. #POTS #Dysautonomiaawarenessmonth
Showers shouldn’t be the enemy. #POTS #Dysautonomiaawarenessmonth
October 12, 2025 at 4:49 PM
Showering was a mistake. I mostly have my POTS symptoms well managed but one bad night of sleep and a shower and now I feel incapacitated. 😖
Showers shouldn’t be the enemy. #POTS #Dysautonomiaawarenessmonth
Showers shouldn’t be the enemy. #POTS #Dysautonomiaawarenessmonth
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system.
A new study from @ki.se shows that #POTS is very common in people with long COVID.
The headline is misleading. POTS is way more than a "heart rhythm disorder."
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
A new study from @ki.se shows that #POTS is very common in people with long COVID.
The headline is misleading. POTS is way more than a "heart rhythm disorder."
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
POTS common in patients with long COVID
A new study from Karolinska Institutet shows that an heart rhythm disorder, POTS, is particularly common in people with long COVID. The majority of those affected are middle-aged women. The study has ...
news.ki.se
October 11, 2025 at 5:53 PM
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system.
A new study from @ki.se shows that #POTS is very common in people with long COVID.
The headline is misleading. POTS is way more than a "heart rhythm disorder."
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
A new study from @ki.se shows that #POTS is very common in people with long COVID.
The headline is misleading. POTS is way more than a "heart rhythm disorder."
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
Explaining dysautonomia can be a challenge! So we've made it easier!
The next time you're trying to tell someone what dysautonomia means, use our Dysautonomia Handout. Download it here: https://dysautonomiasupport.pulse.ly/lqnfzyvaj2
#dysautonomia #chronicillnesssupport #DysautonomiaAwarenessMonth
The next time you're trying to tell someone what dysautonomia means, use our Dysautonomia Handout. Download it here: https://dysautonomiasupport.pulse.ly/lqnfzyvaj2
#dysautonomia #chronicillnesssupport #DysautonomiaAwarenessMonth
October 9, 2025 at 5:59 PM
Explaining dysautonomia can be a challenge! So we've made it easier!
The next time you're trying to tell someone what dysautonomia means, use our Dysautonomia Handout. Download it here: https://dysautonomiasupport.pulse.ly/lqnfzyvaj2
#dysautonomia #chronicillnesssupport #DysautonomiaAwarenessMonth
The next time you're trying to tell someone what dysautonomia means, use our Dysautonomia Handout. Download it here: https://dysautonomiasupport.pulse.ly/lqnfzyvaj2
#dysautonomia #chronicillnesssupport #DysautonomiaAwarenessMonth
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system. A new study from @ki.se shows that #POTS, a heart rhythm disorder, is very common in people with long COVID.
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
POTS common in patients with long COVID
A new study from Karolinska Institutet shows that an heart rhythm disorder, POTS, is particularly common in people with long COVID. The majority of those affected are middle-aged women. The study has ...
news.ki.se
October 6, 2025 at 8:56 PM
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system. A new study from @ki.se shows that #POTS, a heart rhythm disorder, is very common in people with long COVID.
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
news.ki.se/pots-common-...
#DysautonomiaAwarenessMonth
From ME Research UK:
Throughout October, we will mark #DysautonomiaAwarenessMonth. #Dysautonomia refers to conditions affecting the autonomic nervous system, such as #PoTS and vasovagal syncope. Dysautonomia can impact quality of life. People with #MECFS often report symptoms. tinyurl.com/3f5sxbza
Throughout October, we will mark #DysautonomiaAwarenessMonth. #Dysautonomia refers to conditions affecting the autonomic nervous system, such as #PoTS and vasovagal syncope. Dysautonomia can impact quality of life. People with #MECFS often report symptoms. tinyurl.com/3f5sxbza
October 5, 2025 at 4:14 PM
From ME Research UK:
Throughout October, we will mark #DysautonomiaAwarenessMonth. #Dysautonomia refers to conditions affecting the autonomic nervous system, such as #PoTS and vasovagal syncope. Dysautonomia can impact quality of life. People with #MECFS often report symptoms. tinyurl.com/3f5sxbza
Throughout October, we will mark #DysautonomiaAwarenessMonth. #Dysautonomia refers to conditions affecting the autonomic nervous system, such as #PoTS and vasovagal syncope. Dysautonomia can impact quality of life. People with #MECFS often report symptoms. tinyurl.com/3f5sxbza
Life with central nervous system disorders
🔵 People who are heat intolerant
🔴 People who are cold intolerant
People who can only tolerate a very specific range of temperatures, like a delicate orchid (in between)
Credit Unknown
#DysautonomiaAwarenessMonth
#DysautonomiaAwareness
#MySeveralWorlds
🔵 People who are heat intolerant
🔴 People who are cold intolerant
People who can only tolerate a very specific range of temperatures, like a delicate orchid (in between)
Credit Unknown
#DysautonomiaAwarenessMonth
#DysautonomiaAwareness
#MySeveralWorlds
October 5, 2025 at 4:01 AM
Life with central nervous system disorders
🔵 People who are heat intolerant
🔴 People who are cold intolerant
People who can only tolerate a very specific range of temperatures, like a delicate orchid (in between)
Credit Unknown
#DysautonomiaAwarenessMonth
#DysautonomiaAwareness
#MySeveralWorlds
🔵 People who are heat intolerant
🔴 People who are cold intolerant
People who can only tolerate a very specific range of temperatures, like a delicate orchid (in between)
Credit Unknown
#DysautonomiaAwarenessMonth
#DysautonomiaAwareness
#MySeveralWorlds
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system. This branch of the nervous system regulates things we don’t consciously control, like heart rate. I have #POTS from long COVID. When I stand up, all the blood in my body falls with gravity. 🫠
#DysautonomiaAwarenessMonth
#DysautonomiaAwarenessMonth
Neuroscience News: 'Long COVID Linked to Surge in POTS Cases'
'Now, researchers at Karolinska Institutet show that POTS occurs in almost a third of patients with severe long COVID.'
neurosciencenews.com/long-covid-p...
'Now, researchers at Karolinska Institutet show that POTS occurs in almost a third of patients with severe long COVID.'
neurosciencenews.com/long-covid-p...
Long COVID Linked to Surge in POTS Cases - Neuroscience News
Researchers have found that postural orthostatic tachycardia syndrome (POTS) occurs in almost a third of patients with severe long COVID, making it far more common than in the general population.
neurosciencenews.com
October 4, 2025 at 3:25 PM
POTS is a form of #dysautonomia — a disorder of the autonomic nervous system. This branch of the nervous system regulates things we don’t consciously control, like heart rate. I have #POTS from long COVID. When I stand up, all the blood in my body falls with gravity. 🫠
#DysautonomiaAwarenessMonth
#DysautonomiaAwarenessMonth
5/ Because when we fight for justice and inclusion, none of us are left behind.
#DysautonomiaAwarenessMonth #InvisibleDisabilityAwareness
#IfNotUs
#DisabilityJustice
#DysautonomiaAwarenessMonth #InvisibleDisabilityAwareness
#IfNotUs
#DisabilityJustice
October 4, 2025 at 1:33 AM
5/ Because when we fight for justice and inclusion, none of us are left behind.
#DysautonomiaAwarenessMonth #InvisibleDisabilityAwareness
#IfNotUs
#DisabilityJustice
#DysautonomiaAwarenessMonth #InvisibleDisabilityAwareness
#IfNotUs
#DisabilityJustice
@drjoepajak.bsky.social October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
#POTS #Dysautonomia #invisibleillness
October 3, 2025 at 1:14 PM
@drjoepajak.bsky.social October is #DysautonomiaAwarenessMonth
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
For many with #LongCovid, dysautonomia means daily struggles with dizziness, palpitations, fatigue & more
We need research, support & compassion
Let’s #MakeNoiseForTurquoise this October
Video description- In this video, we display a smartphone that shows Grace's HiAlert ID Card for Dysautonomia that she is sharing to raise awareness during Dysautonomia Awareness Month.
#HiAlert #IDCard #Dysautonomia #DysautonomiaAwarenessMonth
#HiAlert #IDCard #Dysautonomia #DysautonomiaAwarenessMonth
October 3, 2025 at 6:59 AM
Video description- In this video, we display a smartphone that shows Grace's HiAlert ID Card for Dysautonomia that she is sharing to raise awareness during Dysautonomia Awareness Month.
#HiAlert #IDCard #Dysautonomia #DysautonomiaAwarenessMonth
#HiAlert #IDCard #Dysautonomia #DysautonomiaAwarenessMonth
👉 Me, last night when my HR hit 131 at midnight and I got all hot, sweaty & barfy and had to lie down where I was. I had just told my dad that I had a bit more energy and that means a crash is coming. ☹️
"EXISTING WITH #POTS:
*feeling kinda weird*
Oh boy"
Credit: Unknown
#DysautonomiaAwarenessMonth
"EXISTING WITH #POTS:
*feeling kinda weird*
Oh boy"
Credit: Unknown
#DysautonomiaAwarenessMonth
![👉 Me, last night when my HR hit 131 at midnight again and I got all hot, sweaty and barfy and had to lie down where I was. I had literally just told my dad that I had a bit more energy and that means a crash is coming. ☹️
"EXISTING WITH POTS BE LIKE:
*feeling kinda weird*
Oh boy"
Credit: Unknown [Mr Bean looking at his watch in a field and lying down in the field.]
October is #DysautonomiaAwarenessMonth #InvisibleDisabilitiesAwarenessMonth
#MySeveralWorlds](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:62wcb64mxz2mvwghbt6drwu5/bafkreigk7cnfaxrlb2wcwf4ehl7amxwgqpqpcwewlrotyzxnlruq22vrue@jpeg)
October 3, 2025 at 4:45 AM
👉 Me, last night when my HR hit 131 at midnight and I got all hot, sweaty & barfy and had to lie down where I was. I had just told my dad that I had a bit more energy and that means a crash is coming. ☹️
"EXISTING WITH #POTS:
*feeling kinda weird*
Oh boy"
Credit: Unknown
#DysautonomiaAwarenessMonth
"EXISTING WITH #POTS:
*feeling kinda weird*
Oh boy"
Credit: Unknown
#DysautonomiaAwarenessMonth
October is #DysautonomiaAwarenessMonth💙
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
chng.it
October 2, 2025 at 8:50 PM
October is #DysautonomiaAwarenessMonth💙
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
October is #dysautonomiaawarenessmonth! 🩵🎗️ There are *so* many different types of #dysautonomia that each cause their own set of symptoms. Dysautonomia can look like all this. BUT on the outside, they look "fine". Please stop saying, "You don't look disabled," to people with #hiddendisabilities.
October 2, 2025 at 3:58 PM
October is #dysautonomiaawarenessmonth! 🩵🎗️ There are *so* many different types of #dysautonomia that each cause their own set of symptoms. Dysautonomia can look like all this. BUT on the outside, they look "fine". Please stop saying, "You don't look disabled," to people with #hiddendisabilities.
October is Dysautonomia Awareness Month 🩵 This condition affects at least 70M people worldwide but remains under-recognized. Learn about disorders of the autonomic nervous system: https://dysautonomiasupport.pulse.ly/4grjfcpqmv #DysautonomiaAwarenessMonth #POTS #LongCovid
What is Dysautonomia?
Dysautonomia [dis-aw-tuh-noh-mee-uh] Also called autonomic dysfunction, is an umbrella term used to describe disorders that affect the autonomic nervous system. ¹ The autonomic nervous system (ANS)…
dysautonomiasupport.pulse.ly
October 2, 2025 at 2:59 PM
October is Dysautonomia Awareness Month 🩵 This condition affects at least 70M people worldwide but remains under-recognized. Learn about disorders of the autonomic nervous system: https://dysautonomiasupport.pulse.ly/4grjfcpqmv #DysautonomiaAwarenessMonth #POTS #LongCovid
The mighty Niagara Falls will roar in 💙turquoise💙 tonight to help us kick off #DysautonomiaAwarenessMonth, from 10:15pm-10:30pm Eastern. View the lighting at www.niagarafallslive.com/niagara_fall...
Be are louder & stronger than the mighty Niagara Falls! #MakeNoiseForTurquoise
Be are louder & stronger than the mighty Niagara Falls! #MakeNoiseForTurquoise
Niagara Falls Webcam | LIVE
We have the best Niagara Falls Live Webcam! Streaming to you live 24/7 from the top of the Hilton Fallsview Hotel in Niagara Falls Canada.
www.niagarafallslive.com
October 1, 2025 at 4:08 PM
The mighty Niagara Falls will roar in 💙turquoise💙 tonight to help us kick off #DysautonomiaAwarenessMonth, from 10:15pm-10:30pm Eastern. View the lighting at www.niagarafallslive.com/niagara_fall...
Be are louder & stronger than the mighty Niagara Falls! #MakeNoiseForTurquoise
Be are louder & stronger than the mighty Niagara Falls! #MakeNoiseForTurquoise
October 1st means the beginning of #DysautonomiaAwarenessMonth ! We are fundraising for @dyssupport.bsky.social through Twitch this year and will be posting information about Dysautonomia through the month. Please like and share to raise awareness!
www.twitch.tv/otomeshimai
www.twitch.tv/otomeshimai
October 1, 2025 at 3:37 PM
October 1st means the beginning of #DysautonomiaAwarenessMonth ! We are fundraising for @dyssupport.bsky.social through Twitch this year and will be posting information about Dysautonomia through the month. Please like and share to raise awareness!
www.twitch.tv/otomeshimai
www.twitch.tv/otomeshimai