I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?

I was diagnosed with Celiac disease over 8 years ago. I've managed the gluten-free diet without a lot of problems. My most recent problem is my husband has recently been diagnosed with various food allergies. Some more severe than others. One food that seems to cause the most reaction is potatoes. I love to bake and his potato allergy has thrown a monkey wrench in most of the gluten free flours on the market. I have used oat flour in a few things that already have oats in them but I don't like the texture of things that don't use oats. Almond flour is too gritty for my taste. Is there anyone out there that has a brand they like that doesn't contain potato starch? Both Bob's Red Mill and King Arthur brands have potato starch as well as Pamela's. Krusteaz brand does not but again I'm not crazy about the texture.

The Canadian Digestive Diseases Week conference featured several groundbreaking sessions on celiac disease.

I have been gluten-free fairly consistently for 30+ years since a diagnosis of ibs at group health and a food allergy elimination diet through basttyr university around the same time. My consistency the first decade was good and life changing and symptoms mostly managed with occasional severe flares. Second decade I was more loose and sick more often. Third decade I have been very strict zero gluten, caution at restaurants found myself increasingly sensitive to accidental cross contamination. I had several really bad restaurant poisoning the last few years that made me sick for months. I have treated myself as celiac in more recent years due to the increase in severity of symptoms etc. Because of my ibs and some really severe episodes I started getting sygmoidoscopoes and colonoscopy very young. I looked through all my medical records and only once did a Dr do a celiac blood test- an IGA- but I was already gluten free and not told to eat gluten prior. Anyway my current gastroenterologist at kaiser recommended I do an upper in addition to a lower scope this time with assorted biopsies throughout. I agreed. I have been having strange malabsorption issues- low b12, low d etc and also long unexplained bleeding/ diarrhea issues. So here's the struggle. She wants me to do a 4-6week gluten challenge prior. It has never seemed worth it to me because I get so sick and it seems as time goes on I get sicker when exposed. It seems to be gluten and not wheat because once I accidentally bought a gluten-free flour that had wheat in it and when I realized it later I also knew I had NO reaction. Where if I accidentally get cross contamination or take a bite of bread that was ordered gluten-free (happened last week where I thought I was safe) I am immediately sick- and progressive sicker over days, weeks , months depending how bad the reaction is. So it just never felt worth it before. This time though I said yes. I am less than a week in. I am experiencing gastric disress, cannot stop belching and farting and feel like I will puke often, increase in my asthma, nausea, diarrhea, exhausted, already suffer chronic pain and now it is exacerbated, Headaches, difficulty sleeping and severe night sweats- like drenching my sheets(new not menopausal- already did that amd came on with the gluten testing, joint pain, ear pressure, mouth pain, itchiness... I mean I am miserable and questioning how I can do this until my may 5th procedure??!!. I am in a gluten-free group where I shared a bit and they all jumped on me and my Dr that this is insane, barbaric, I should fire my Dr etc. which caused me doubt. When I looked on this site and read it seems important to do. So my question is are there strategies to feel the best you can, sleep, work and do this for a month?? Are there ways to do it more safely, less uncomfortable? Have you found anything helpful that won't interfere with the tests they need to do. To be clear I am pretty certain it's necessary to do rn due to the fact that they are already doing the procedures for other things (cancer screening etc) but I just want to know if you guys have tips to be less miserable. Anyway hoping to find some connection/ support etc.

Hello, I'm looking for some help/input on my daughter. She turned 3 in November and was diagnosed with Celiac Disease one year ago, just following her 24 month checkup. Last week she went in for her one year follow-up lab test and we were completely shocked when her Gliadin (Deamidated) AB (IgA) level came back at 148.3 U/mL. For reference, her initial lab was at 46, and her 3 months off gluten level was 25.3. She has been 100% gluten free since 12/26/23, and her first lab test was showing improvement. We have hardly altered her diet in the last year, and everything she ingests is labelled gluten free. After the most recent lab test, we checked her body wash and found that it may contain gluten, but it was the same body wash she used a year ago as well when she was improving. Her medicine is gluten-free, her toothpaste is gluten-free. My wife and I have been so careful to keep her away from gluten, and yet here we are at a complete loss as to how she has continued to be exposed. Any help or advice would be extremely appreciated!

Im not being heard by my previous doctor I had for 25 years. I switched in May of this year.I was half told of my celiac disease in 1994 and to stay away from wheat and Ill be just fine.Im not.Was on tramadel from I think 2006 til 2023.In 2007 still gluten-free had blood test and showed other food allergies. I have been avoiding and reading labels so I don't get sick.Im 54 years old, my right eye feels as if pressure ( seeing eye specialist) saw dermatologist and had skin graph was told ulcers but since I was disregarded of my celiac disease and it was previous doctor who sent me to dermatologist, its now " undetermined ".I pushed for the first and second ANA panel and negative. I had my 5th colonoscopy July 9 this year and colon looks great, BECAUSE IM gluten-free for 31 YEARS.Waiting on biopsy.My only celiac proof on medical was 2014 that i physically have, i don't have original. How do I get my new doctor to understand the severity of pain Im dealing with, daily flare ups.Exhausted and allergic to everything. Menopause has intensified, i feel but then again I had my 3rd covid in March 2023 and I can't bounce back.Pain down left leg always in the bathroom when I barely eat.Its affecting my life and frustrated with doctors not knowing.To be far my new doctor is having me see two specialist but how do I get him to understand its my false negative celiac disease????

Hello Members, I m looking for suggestions about gluten free seafood options in Ohio near springdale area as i will visit that place in 2 weeks. I m seafood lover but same time allergic to gluten.

Celiac.com 08/04/2025 - Celiac disease is widely recognized as an autoimmune condition that primarily affects the small intestine and impairs nutrient absorption due to gluten exposure. Most people associate it with gastrointestinal symptoms like bloating, diarrhea, weight loss, and iron deficiency. However, celiac disease can impact other systems in the body as well, presenting a wide array of symptoms that may not seem related to digestion at all. One such rare and lesser-known complication is uveitis, a form of eye inflammation that can lead to serious vision problems if left untreated. A recently documented case involving an 11-year-old girl from Pakistan sheds new light on this unusual connection between celiac disease and eye health, raising awareness about how gluten sensitivity can have unexpected and irreversible consequences. A Case That Changed the Lens: Uveitis in a Child with No Gut Symptoms In this unusual case, an 11-year-old girl experienced a gradual, painless loss of vision in both eyes over four months. Strikingly, she had no typical symptoms of celiac disease—no diarrhea, abdominal pain, or visible signs of malnutrition. Her initial eye examination revealed signs of inflammation, including anterior chamber cells and more severe problems like vitritis, vasculitis, choroiditis, and optic disc atrophy. Despite intensive treatment with corticosteroids—both oral and topical—the inflammation worsened. Eventually, further testing and a comprehensive workup pointed to a surprising diagnosis: celiac disease. This rare association between celiac disease and bilateral posterior uveitis may not be intuitive, but it is a crucial finding that expands our understanding of how autoimmune diseases like celiac can impact more than just the gut. Understanding the Link: How Celiac Disease May Cause Eye Inflammation While the exact biological mechanism is still not fully understood, researchers suspect that in people with celiac disease, gluten exposure causes an overactive immune response. One theory is that gluten proteins increase gut permeability, allowing harmful substances to leak into the bloodstream. These substances may then trigger immune cells that mistakenly attack healthy tissues elsewhere in the body, including the eyes. In celiac patients, the immune system often produces specific antibodies, such as anti-endomysial and anti-transglutaminase antibodies. These markers, which are used for diagnosis, may also play a role in broader autoimmune reactions affecting other organs. While rare, this pathway may explain how uveitis develops in people with untreated or undiagnosed celiac disease. What the Evidence Shows: A Pattern Emerges Though rare, the connection between celiac disease and uveitis is supported by several similar cases reported in medical literature. Most of these involve female children or young adults, which aligns with the general trend that autoimmune conditions tend to be more common in females. Interestingly, many of these patients had no classic gastrointestinal complaints at the time of their uveitis diagnosis. In several cases, uveitis was the first and only clue that led to the discovery of celiac disease. A key takeaway from these cases is that corticosteroids—normally effective for managing uveitis—were not helpful on their own. The inflammation typically persisted or returned until a strict gluten-free diet was implemented. Once gluten was eliminated from the diet, uveitis symptoms improved dramatically or even disappeared completely. This pattern strongly suggests that gluten exposure was a driving factor in the immune response that caused the eye inflammation. Hidden Danger: Why Celiac Disease Without GI Symptoms Can Be So Risky Many people, including healthcare professionals, assume that celiac disease must involve noticeable digestive issues. However, research shows that up to half of all individuals with celiac disease present with non-gastrointestinal symptoms—or none at all. These extraintestinal manifestations can include neurological issues, skin rashes, reproductive problems, and in rare cases, eye inflammation like uveitis. Because of this misconception, many people with celiac disease remain undiagnosed until serious complications arise. In the reported case, failure to recognize the root cause led to irreversible vision loss. This highlights the importance of considering celiac disease in patients with unexplained autoimmune symptoms, even if their gut appears to be functioning normally. Diagnostic Clues and Red Flags The key to identifying uveitis caused by celiac disease lies in looking beyond the obvious. If a patient presents with uveitis and does not respond to standard steroid treatment, it’s essential to explore less common causes. Blood tests for celiac disease—including anti-tissue transglutaminase and anti-endomysial antibodies—are relatively easy to perform and could reveal a hidden diagnosis. In children especially, growth delays, fatigue, anemia, and even subtle behavioral changes might point toward celiac disease, even without digestive issues. A Gluten-Free Diet as a Lifesaving Treatment In nearly all documented cases of uveitis linked to celiac disease, a strict gluten-free diet led to noticeable improvement. While corticosteroids helped manage symptoms temporarily, they failed to provide lasting relief until gluten was removed from the diet. This supports the idea that continued exposure to gluten may be the root cause of the immune response, and eliminating it is key to halting disease progression. In some patients, adherence to a gluten-free diet not only resolved eye inflammation but also prevented future episodes. This underscores the importance of dietary compliance in managing celiac disease—not just for intestinal healing, but for preventing autoimmune damage in other organs. Implications for the Celiac and Gluten-Sensitive Community This case report and others like it emphasize a vital message for people living with celiac disease or gluten sensitivity: symptoms can go far beyond the digestive tract. It’s crucial for patients, parents, and clinicians to be aware of unusual presentations like eye inflammation, especially when the cause is unclear and symptoms do not improve with conventional treatments. Early diagnosis and dietary management could make the difference between recovery and permanent damage. For families managing celiac disease in children, this means watching for subtle signs and advocating for comprehensive testing when autoimmune symptoms appear. Conclusion: Seeing the Bigger Picture The case of posterior uveitis as a manifestation of celiac disease in a child without gastrointestinal symptoms is a powerful reminder that celiac disease is a systemic autoimmune disorder—not just a digestive issue. While rare, the connection between eye inflammation and gluten sensitivity should not be overlooked, especially in patients who are unresponsive to typical treatments. This insight can help prevent devastating complications like permanent vision loss and calls for greater awareness in both clinical practice and patient education. For anyone managing celiac disease or unexplained autoimmune symptoms, it reinforces a simple but vital truth: what you eat can affect every part of your body—including your eyes. Read more at: cureus.com Watch the video version of this article:

More info is here! https://www.wcnc.com/article/news/nation-world/cheez-it-gluten-free-crackers/507-44efbad0-99c0-4b2a-b771-a14285d8441a

I have recently started a gluten free diet (waiting for confirmation via endoscope biopsies) I had started to reduce after the biopsy and then had a McDonald’s which confirmed to me my suspicions so decided to go full gluten whilst on holiday as i wanted to enjoy myself, since being back i have noticed that i have got increasingly more anxious due to feeling sick when i had accidentally eaten some on holiday. And not im reading labels worrying if everything doesnt state is gluten free but the ingredients look like they check out may still have gluten in. Im panicking myself making myself feel worse and seem to be at a bit of a loss, i dont know anyone else with coeliac disease and am finding it all quite overwhelming. any advice is greatly appreciated:)

A video from Kate Glick:

So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few. I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t have corn based gluten free products

Walk down any grocery aisle and you'll see it: the "gluten-free" halo on everything from bread to Oreos. But is that label a medical lifesaver, or the biggest, most expensive marketing scam in modern wellness? It's time to cut through the noise. This is the definitive deep dive into the great gluten debate. For people with Celiac Disease, a gluten-free diet is a non-negotiable medical necessity. But what about the millions of others who've sworn off gluten? We're exploring the murky world of Non-Celiac Gluten Sensitivity (NCGS)—a real condition with real symptoms, but one that's notoriously hard to diagnose. But here’s the twist the wellness industry won't tell you: What if it's not the gluten? We'll present the compelling research suggesting that for many, the real culprit might be other compounds in wheat, like FODMAPs, that are also linked to IBS. We're also exposing the inconvenient truth about the gluten-free diet: its higher cost, lower fiber, and potential nutritional challenges. This episode is your guide to understanding whether going gluten-free is a critical health choice or a costly, unnecessary trend. If you're ready to make an informed decision about your health, subscribe and share this episode with anyone who's ever wondered about going gluten-free. Then, head to the comments and tell us your experience: Have you tried a gluten-free diet? What happened?

Hi, I posted before about my 3 year olds diagnoses. Thank you so much for your helpful responses! We are getting her brother (age 5) and sister (age 1) tested through the ASK program (so it takes awhile). My husband and I are getting tested also. My question is this - if my 1 year old tests positive (I think she will) and I don't (likely), do I need to be as careful as the kids with gluten and cross contamination while breastfeeding? As of now our house is totally gluten free for my 3 year old but I wasn't going to worry about it outside the house for myself if I test neg. For example not pack my own food if we go to someone's house or whatever. Does gluten get into breast milk? I was going to breastfeed till age 2, especially if she has celiac. Until testing my husband and I are eating gluten outside the home and I'm having my 5 year old get school lunch. Since we have to be so careful with my 3yo now I don't think it's that big of a deal for me to go gluten free completely but of course if I can have a beer or eat out with my friends sometimes I'd still like to!

My 10 year old daughter was diagnosed with Celiac 2 weeks ago. We've been on gluten free diet now for 2 weeks. She still experiences abdominal pain at times , and is struggling with fatigue. What is everyone's experience with how long it takes for the body to heal and stabilize after starting the gluten free diet? Thanks for any feedback!

Celiac.com 06/10/2025 - Celiac disease affects millions worldwide, including some well-known celebrities, athletes, and public figures. Many have spoken openly about their struggles with diagnosis, dietary changes, and how going gluten-free transformed their health. By sharing their diagnoses and experiences, these public figures have helped raise awareness and reduce stigma surrounding the condition. Here are some famous people with celiac disease and their stories: 1. Drew Brees (Former NFL Quarterback) After years of unexplained fatigue and digestive issues, Drew Brees was diagnosed with celiac disease in his early 30s. He credits a strict gluten-free diet for extending his NFL career, improving his energy, and maintaining peak performance. Brees has since advocated for celiac awareness, emphasizing how dietary changes helped him win a Super Bowl with the New Orleans Saints. 2. Zooey Deschanel (Actress & Singer) Zooey Deschanel discovered she had celiac disease after suffering from chronic stomach pain and fatigue. She switched to a gluten-free diet, which she says improved her overall well-being. Deschanel has joked about the challenges of avoiding gluten in Hollywood but remains vocal about the importance of proper diagnosis. 3. Emmy Rossum (Actress & Singer) Emmy Rossum, best known for Shameless, struggled for years before her celiac diagnosis. She experienced severe bloating, brain fog, and exhaustion before cutting out gluten, which she says made a dramatic difference in her health. Rossum often shares gluten-free recipes and tips with fans. 4. Novak Djokovic (Tennis Champion) Though Djokovic has never confirmed celiac disease, he follows a gluten-free diet after discovering a severe wheat intolerance that affected his stamina and breathing. His dietary shift in 2010 coincided with a historic rise in his tennis career, including multiple Grand Slam wins. 5. Sarah Joy Brown (Actress, General Hospital) Diagnosed with celiac disease in her 20s, Sarah Joy Brown struggled with misdiagnosis for years before finding answers. She has spoken about the difficulty of managing gluten-free eating on set but says eliminating gluten resolved her chronic migraines and digestive problems. 6. Elisabeth Hasselbeck (TV Personality & Author) Television personality Elisabeth Hasselbeck, former co-host of The View, was diagnosed with celiac disease after experiencing years of digestive discomfort. She transitioned to a gluten-free lifestyle and authored the cookbook Deliciously G-Free, aiming to make gluten-free eating enjoyable and accessible. One of the most vocal celiac advocates, Hasselbeck was diagnosed after years of suffering from severe symptoms. She has worked to increase awareness about celiac disease and proper labeling laws.  7. Heidi Collins (CNN News Anchor) Former CNN anchor Heidi Collins was diagnosed with celiac disease along with her son. She became an official spokesperson for the National Foundation for Celiac Awareness, using her platform to educate the public about the disease and advocate for those affected. 8. Keith Olbermann (Sports Journalist & Political Commentator) Olbermann was diagnosed with celiac disease after years of digestive distress. He has spoken about the challenges of dining out safely but says going gluten-free drastically improved his health and focus. 9. Jennifer Esposito (Actress & Health Advocate) Actress Jennifer Esposito, known for roles in Blue Bloods and Crash, experienced severe health issues—including fatigue, hair loss, and difficulty walking—before being diagnosed with celiac disease. Her condition was described by her doctor as the worst case they had ever seen. Post-diagnosis, Esposito adopted a strict gluten-free diet, which significantly improved her health. She authored the book Jennifer's Way and opened a gluten-free bakery to support others facing similar challenges. Esposito now educates others on the dangers of misdiagnosis. 10. Russell Crowe (Actor) Though not confirmed as celiac, Crowe follows a gluten-free diet due to a severe intolerance. He has mentioned that cutting out gluten helped with inflammation and energy levels, especially during intense film roles. 11. Chelsea Clinton (Author & Public Health Advocate) Chelsea Clinton was diagnosed with celiac disease in her teens. She manages it through a strict gluten-free diet and has spoken about the importance of accessible gluten-free options in schools and public spaces. 12. Billy Bob Thornton (Actor & Musician) Thornton has mentioned in interviews that he has celiac disease and avoids gluten to manage his symptoms. He jokes about the difficulties of staying gluten-free while traveling but says it’s essential for his health. 13. Susie Essman (Comedian & Curb Your Enthusiasm Star) After years of misdiagnosis, Essman discovered she had celiac disease. She has talked about how going gluten-free improved her digestion and overall health, even joking about it in her stand-up routines. Susie is known for her role on Curb Your Enthusiasm, was diagnosed with celiac disease in 2002. She manages her health by adhering to a strict gluten-free diet and has also eliminated other foods like red meat and dairy to alleviate symptoms. 14. James McAvoy (Actor) McAvoy has discussed his gluten intolerance, which led him to adopt a gluten-free diet. While not confirmed as celiac, he avoids gluten due to severe reactions and says it has helped his energy levels. 15. Victoria Beckham (Fashion Designer & Former Spice Girl) Though primarily gluten-free by choice, Beckham has mentioned sensitivity to gluten and avoids it for digestive comfort. She often shares gluten-free recipes and promotes healthy eating. 16. Rebecca Adlington British Olympic swimmer and BBC Sports presenter Rebecca Adlington revealed her celiac disease diagnosis in 2024. She has since advocated for better access to gluten-free prescriptions in the UK, emphasizing the importance of support for individuals managing the condition. 17. Megan McKenna Reality TV star and singer Megan McKenna was diagnosed with celiac disease and irritable bowel syndrome. She has spoken openly about her health challenges, addressing misconceptions and advocating against body shaming related to her condition. 18. Cedric Benson Former NFL running back Cedric Benson was diagnosed with celiac disease during his rookie season. He managed his condition through a strict gluten-free diet, which allowed him to maintain his professional athletic career. 19. Emily Montague Actress Emily Montague follows a gluten-free diet due to her celiac disease diagnosis. She emphasizes the importance of balanced meals and has shared her dietary practices to inspire others managing similar health conditions. Final Thoughts These celebrities highlight how celiac disease can affect anyone, regardless of fame or profession. Their stories emphasize the importance of proper diagnosis, dietary management, and advocacy for better gluten-free options. Their openness about their diagnoses and management strategies contributes to greater public understanding and support for the celiac community. Whether through public awareness or personal lifestyle changes, they prove that living well with celiac disease is possible.

Hello, I was recently diagnose with Celiac Disease and without realizing, I had every symptom on the list. Now I am moving as fast as I can to a total recovery. I thought I was doing well but I notice my ulcers on my tongue and throat and cough are starting to come back again. Has anyone experience these symptoms? Also, I am incorporating GI Reset powder for a jump start to recovery. Thanks in advance, Blake