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yvokk.bsky.social
YvoK (she/her)
@yvokk.bsky.social
96 followers 90 following 60 posts
Writer of Non-Fiction and Poetry 🖋️📚 Activist for Justice 💙 Chronic Illness (Long Covid ME/CFS) 😷 Cats 🐈🐈‍⬛ LGBTQIA+ 🏳️‍🌈🏳️‍⚧️
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yvokk.bsky.social
Me, the one time a week after I socialize.
July 20, 2025 at 4:55 PM
yvokk.bsky.social
We've known about ME for decades.
#MEAwarenessMonth
abrokenbattery.bsky.social Adam @abrokenbattery.bsky.social · May 2
#MEAwarenessMonth – Day 2
1986, Dr Ramsay published the first definition of ME. He described a unique form of fatigability, that must be present for a diagnosis. He warned against relapses from overexertion, rejected psychological theories and pointed to biomedical causes.
May 2, 2025 at 1:01 PM
yvokk.bsky.social
😷=🩷
broadwaybabyto.bsky.social Kelly @broadwaybabyto.bsky.social · May 2
Covid has taught us so much about airborne disease spread (and how to prevent it).

We need to put that knowledge to work to slow the spread of COVID, measles & other pathogens.

Clean air, ventilation and well fitted respirators provide extra layers.

Want to learn more about choosing a mask?
We’re Witnessing the Fall of Public Health… and Your Best Tool is a Mask
Measles in Texas, bird flu in Louisiana, tuberculosis in Kansas and Covid everywhere. Public health has been dying a slow death for years, we can’t count on it anymore. What can we count on? A mask!
www.disabledginger.com
May 2, 2025 at 12:57 PM
Reposted by YvoK (she/her)
pollyrowena.bsky.social
The telegraph has been decrying the death of the (white) male writer for years. Meanwhile, as I rearranged the new-in nature hardbacks on wed night I realised I had 4 displays shelves all by men - 90% white men - mostly on birds. All interesting books, but (!). It was partly a fluke of timing.
jonathancoe.bsky.social Jonathan Coe @jonathancoe.bsky.social · May 2
A characteristically strange take from today’s Telegraph. Not sure the state of the nation novel can be said to have died a death when Andrew O’Hagan’s Caledonian Road is selling by the truckload.
May 2, 2025 at 11:01 AM
Reposted by YvoK (she/her)
carlzimmer.com
Nature reports that the National Science Foundation has stopped awarding new grants and allotting funds to existing ones. All of them. @colincarlson.bsky.social says that unless the freeze is lifted, it “is going to destroy people's labs.” 2/10
www.nature.com/articles/d41...
Exclusive: NSF stops awarding new grants and funding existing ones
US science funder also plans to screen grant applications for compliance with ‘agency priorities’.
www.nature.com
May 1, 2025 at 11:50 PM
Reposted by YvoK (she/her)
exceedhergrasp1.bsky.social
Worth sharing with alt text. Brian Eno's response to the Quaker arrests.
Brian Eno 2h. On the Arrest of Young People at a Quaker Meeting House Last night, six young people were arrested by police during a peaceful gathering at a Quaker Meeting House. They had assembled to talk, reflect, and organise around two issues of overwhelming moral gravity: the climate emergency, and the continuing destruction in Gaza. That the police chose to forcibly enter a Quaker space-a site known throughout history for its deep commitment to peace and nonviolence—is both alarming and telling. These young people were not disrupting the peace. They were enacting it. We live in a time where the greatest threats to our future go unchallenged by those in power, while those who speak out are increasingly met with suspicion, hostility, and force. When the state begins to treat moral concern as criminal intent, we should all be paying close attention. The people arrested last night were not extremists. They were citizens who care-young people who see the interconnected crises of climate collapse and human suffering and refuse to turn away. They gathered not in violent defiance, but in peaceful conscience. I stand with them. I believe their voices are not only valid, but vital. If the institutions meant to protect us cannot bear to hear these voices, then it is not the protesters who are disrupting order—it is the silence of those who look away. - Brian Eno
March 29, 2025 at 7:40 PM
Reposted by YvoK (she/her)
sundermannaj.bsky.social
Imagine telling researchers on the frontlines of cancer, infection, or rare disease that their work is now considered ‘entitlement’ 🤷🏼‍♂️

These aren’t handouts - they’re investments in health, innovation, and lives

This chart should alarm every single one of us 📉
ddiamond.bsky.social Dan Diamond @ddiamond.bsky.social · Mar 28
See this chart for one stark example: NIH funding has dramatically slowed down.

Grant awards are down *$3 billion* so far, compared to same time period last year

I asked the White House to explain.

“This is not a researcher entitlement program,” said an official, defending their new approach.
March 28, 2025 at 1:27 PM
Reposted by YvoK (she/her)
rainesford.bsky.social
"The real mortality figure is probably unknowable, not least because so many families have been killed at once, leaving no one to account for some babies or toddlers ever having existed."
March 27, 2025 at 8:07 PM
Reposted by YvoK (she/her)
mayatcontreras.bsky.social
I said this on the other site, but I think the media needs to stop using the word “arrested” if a person hasn’t committed any crimes, hasn’t been read Miranda rights, hasn’t been formally charged with anything and their family and lawyer doesn’t know where they are. It’s kidnapping. It’s abduction.
mayatcontreras › ice 19h I think the media needs to stop saying the word "arrested" especially when a person has not been formally accused of any crimes and the person's lawyer cannot locate them. People are being *kidnapped* by the federal government, kidnapped. abo NEWS abcnews * 22h A Tufts University PhD student on a visa was arrested by immigration authorities outside of Boston on Tuesday night, according to the school and the student's lawyer.
March 27, 2025 at 1:56 PM
yvokk.bsky.social
The moonlight of my heart, Luna, turned 2 this week.
The biggest blessing in my chronic-illness life 🩷✨🐈
Four panels show the growth and changes of Luna, a calico cat. In the top left panel, the white cat mom with her kittens on the birthday is shown. The top right panel shows Luna at a few weeks old, looking straight at the camera. To the left of her, two of her white-colored siblings are asleep. The bottom left panel shows Luna at four months old, lying on a grey sheet, on the first day she moved in with me. The bottom right corner shows Luna being relaxed and sleeping on her back, belly showing, on a blue and green blanket. The photo is only a few weeks old and shows her as a fully-grown calico cat.
March 27, 2025 at 1:58 PM
yvokk.bsky.social
Care...is our right. Today and always
#LongCovidAwareness
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · Mar 15
💌 Some wise souls have joined us for #LongCovidAwarenessDay! Agreeing we urgently need funding for:

⭐ biomarkers
⭐ pathophysiology
⭐ treatments

@ashleydaltonmp.bsky.social
@england.nhs.uk
@nihr.bsky.social

#LongCovidAwareness
Digital graphic with a dark blue background and magenta text stating "What would de Beauvoir say?" followed by a call for Long Covid funding. The image includes a portrait of Simone de Beauvoir in a magenta and blue circular frame. Hashtags in magenta, such as "#LongCovidAwareness" and "#FundLongCovid", lead to a website advocacy link at the bottom. A small raised hand emoji is in the top right corner.
March 15, 2025 at 6:00 PM
Reposted by YvoK (she/her)
longcovidadvoc.com
💌 Some wise souls have joined us for #LongCovidAwarenessDay
Agreeing we urgently need funding for:

⭐ biomarkers
⭐ pathophysiology
⭐ treatments

@ashleydaltonmp.bsky.social
@england.nhs.uk
@nihr.bsky.social

#Postcards4LC
Digital graphic with a deep blue background, featuring an image of Spock in a round frame edged with purple and light blue. Text in bright purple reads "What would Spock say?" The main text advocates for Long Covid research funding, listed above hashtags #LongCovidAwareness, #VoiceOfReason, #Postcards4LC, and #FundLongCovid. A hand icon is in the upper right corner.
March 15, 2025 at 10:30 AM
Reposted by YvoK (she/her)
gayfabfourfan.bsky.social
“Imagine that this disease comes from a common virus – one so common you might catch it at the supermarket, at school, or on the bus. Imagine that recent studies have shown that this virus – the one that’s everywhere you go – can linger in your body for more than a year after infection.“
juliadoubleday.bsky.social Julia Doubleday @juliadoubleday.bsky.social · Mar 15
It’s Long COVID Awareness Day, and I want to thank @zeteo.com for inviting me to write about it!

Politicians & media can’t keep pushing endless COVID reinfections as an acceptable condition of our “new normal”- while failing to communicate the risks.

zeteo.com/p/denying-th...
Denying the Seriousness of Long COVID Is Dangerous for Me – and You
What is Long COVID? Are there treatments? A guide to the illness that affects millions, but is hardly talked about.
zeteo.com
March 15, 2025 at 4:56 PM
yvokk.bsky.social
It's Long Covid Awareness Day.

I'm three years in. How about y'all?
thesicktimes.org The Sick Times @thesicktimes.org · Mar 15
March 15, 2025 marks the third annual observance of International Long COVID Awareness Day. Hundreds of millions of people all around the world have been suffering long-term impacts of their SARS-CoV-2 infections. The time to act is now! bit.ly/41u4aVI
A disease awareness ribbon in the colors teal and gray sits on top of a watercolor map of the world. White text on a teal ombre background reads, “The Sick Times. Our community came together to start International Long COVID Awareness Day in 2023. Here’s how you can get involved this year. By Angela.” White text on a teal ombre background reads, "International Long COVID Awareness is about sparking conversations around the globe and connecting people, which will hopefully lead to actions and make a tangible difference in the lives of those who are impacted by this horrific virus. - Angela, Founder of International Long Covid Awareness. The Sick Times."
March 15, 2025 at 5:57 PM
yvokk.bsky.social
It's #LongCovidAwarenessDay2025
5 years of a global pandemic, 3 years of #LongCovid #mecfs and a bunch of other diagnoses for me.💙
It's a different life and I feel like I woke up in a parallel universe.
Thanks Berlin Buyers Club for the signs! 🖤🤍💙
#5YearsLongCovid
#HalfADecadeOfNeglect
There are two pictures. The picture on top is black and white with a white woman with dark short hair lying in bed. On the bottom colorful photo is the same white woman with slightly longer hair wearing a blue headband and a bright red jacket. She smiles into the camera while standing next to a young girl whose face is hidden behind a heart. They are standing in front of a lake with mountains in the distance that are partly hidden behind clouds. Image description: A protest graphic for Long Covid Awareness Day 2025 made by Berlin Buyers Club. The text Still Sick Still Ignored Still Fighting Long Covid Awareness Day 2025 is in white and pink text on a black background. There is a smiley face in red with letter x for eyes and a zigzag style mouth suggesting the emoji is sick and tired. The small text Berlin Buyers Club is in the top left hand corner.
March 15, 2025 at 5:55 PM
yvokk.bsky.social
Cognitive dysfunction is BRUTAL 😶‍🌫️😢
March 14, 2025 at 1:47 PM
Reposted by YvoK (she/her)
nlizaki.bsky.social
The momen c0v p@ndemic broke out, I was telling my friends how MAYBE we'll have more cases of ME and finally a cure. 1/n

#LongCov #sarscov2 #LongCovid #MyalgicEncephalomyelitis #PostViralSyndromes #EBV #HHV6 #Coxie #MyalgicE #TimeForUnrest #MillionsMissing
March 14, 2025 at 12:55 PM
yvokk.bsky.social
5 years with Long Covid... (3 for me personally) 😷

#LongCovidAwareness #5YearsLongCovid
thesicktimes.org The Sick Times @thesicktimes.org · Mar 10
Over the coming weeks and months, first-wavers around the world will observe five years with Long COVID. Many already have. Read more from @mileswgriffis.bsky.social: bit.ly/4ictDdi
Photo of a banner reading, “LONG COVID KILLS,” in front of the Lincoln Memorial. The text reads, “The Sick Times. Half a decade of Long COVID. By Miles W. Griffis.” The following slides feature quotes from the story at The Sick Times. Black text with a turquoise highlight on a white background reads, "I am inspired by the bravery of people with Long COVID who have shared their stories and led the way in the face of so much willful indifference and cruelty. We will face these new challenges fueled by the courage and knowledge we have gained over the past five years. - Miles W. Griffis"
March 14, 2025 at 1:44 PM
Reposted by YvoK (she/her)
libro.fm
Hi, just a reminder that when you use Libro.fm for your audiobooks, you support independent bookshops vs. large corporations that drive them out of business.

We also pay taxes. And so do indie bookshops.
February 27, 2025 at 12:07 AM
Reposted by YvoK (she/her)
longcovidadvoc.com
👩‍💻Need some help with #LongCovidAwarenessDay?

We've got you covered with a social media pack!

Includes everything you'll need:
👉 Posts
👉 Tags & hashtags
👉 Graphics
👉 Alt text
👉 Music suggestions for 📸
Social media pack for Long Covid Awareness
Long Covid Awareness, March 2025 Postcards: longcovidadvoc.shopMore Info: longcovidadvoc.com Social media pack Handy hints This is the social media pack for Long Covid Awareness Month, March 2025:…
buff.ly
March 11, 2025 at 10:40 AM
Reposted by YvoK (she/her)
doctorstardis.bsky.social
We can upload 3 minute videos now.

YOU KNOW THE RULE
March 10, 2025 at 7:52 PM
Reposted by YvoK (she/her)
esqueer.net
I need y'all to sit with this headline and understand what is being done to our community. They're trying to criminalize our very existence.

This is a campaign of eradication.

www.nbcnews.com/nbc-out/rcna...
"A screenshot of an NBC News article headline. The headline reads: 'Texas bill would make identifying as transgender a felony punishable by jail.' Below the headline, a subtext states: 'The bill, while unlikely to pass, highlights the increasing extremism of legislation targeting trans people, especially in Texas, in recent years.' The NBC News logo is visible at the top, along with a navigation bar that includes a 'WATCH' button and a user profile icon."
March 10, 2025 at 7:32 PM
Reposted by YvoK (she/her)
fischblog.bsky.social
If you think this is something that only concerns the global south, you may want to pick up a good book.

Actually practically any book older than about 80 years will do.
wimgmeijer.bsky.social Wim Meijer @wimgmeijer.bsky.social · Mar 11
People have no idea how scary this is. XDR-TB is virtually untreatable.

Even if you don’t care about others should you support combating infectious disease elsewhere.

Pathogens know no borders nor care about your beliefs.

🧪🦠

www.theguardian.com/society/2025...
USAid cuts could create untreatable TB bug ‘resistant to everything we have’
Projects to detect, treat and research new ways to fight TB among those disrupted by sudden funding freeze
www.theguardian.com
March 11, 2025 at 12:37 PM
yvokk.bsky.social
At least the pandemic is over (cough *sarcasm* cough) and we're "back to normal" 🤦🏻

#LongCovid #ChronicIllness #disability
February 27, 2025 at 1:04 PM