taylorbrownsue.bsky.social
@taylorbrownsue.bsky.social
Reposted by taylorbrownsue.bsky.social
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.
simonspichak.beehiiv.com/p/day-3-of-t...
simonspichak.beehiiv.com/p/day-3-of-t...
November 7, 2025 at 1:31 AM
Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.
simonspichak.beehiiv.com/p/day-3-of-t...
simonspichak.beehiiv.com/p/day-3-of-t...
Reposted by taylorbrownsue.bsky.social
November 6, 2025 at 3:47 AM
Today was the 2nd day of ICAN CME’s Conference, Nothing About Us Without Us, a comprehensive examination of ME ‘s impact with calls for research, quality clinical care, and training providers. videos will be available to cont. this much needed education. See the ICAN CME website.#ICANCME2025
November 6, 2025 at 4:45 AM
Today was the 2nd day of ICAN CME’s Conference, Nothing About Us Without Us, a comprehensive examination of ME ‘s impact with calls for research, quality clinical care, and training providers. videos will be available to cont. this much needed education. See the ICAN CME website.#ICANCME2025
Reposted by taylorbrownsue.bsky.social
Are you a medical provider in need of a concise but helpful CME? Are you a patient wishing your clinicians knew more about ME, aka ME/CFS?
We have a CME for you but it is only available until Oct 1st.
Sample language & links:
docs.google.com/document/d/1...
#MedEd #CME #MECFS #NEISvoid
We have a CME for you but it is only available until Oct 1st.
Sample language & links:
docs.google.com/document/d/1...
#MedEd #CME #MECFS #NEISvoid
September 18, 2025 at 8:43 PM
Are you a medical provider in need of a concise but helpful CME? Are you a patient wishing your clinicians knew more about ME, aka ME/CFS?
We have a CME for you but it is only available until Oct 1st.
Sample language & links:
docs.google.com/document/d/1...
#MedEd #CME #MECFS #NEISvoid
We have a CME for you but it is only available until Oct 1st.
Sample language & links:
docs.google.com/document/d/1...
#MedEd #CME #MECFS #NEISvoid
Reposted by taylorbrownsue.bsky.social
@solveme.bsky.social + Bateman Horne Center co-hosted the Severe ME/CFS Webinar Series to support patients & caregivers.
Part 3: Medical Panel
A candid discussion on provider challenges, systemic gaps & care strategies.
Watch: bit.ly/46pjuaj
#SevereMEAwareness #MECFS
Part 3: Medical Panel
A candid discussion on provider challenges, systemic gaps & care strategies.
Watch: bit.ly/46pjuaj
#SevereMEAwareness #MECFS
August 19, 2025 at 5:55 PM
@solveme.bsky.social + Bateman Horne Center co-hosted the Severe ME/CFS Webinar Series to support patients & caregivers.
Part 3: Medical Panel
A candid discussion on provider challenges, systemic gaps & care strategies.
Watch: bit.ly/46pjuaj
#SevereMEAwareness #MECFS
Part 3: Medical Panel
A candid discussion on provider challenges, systemic gaps & care strategies.
Watch: bit.ly/46pjuaj
#SevereMEAwareness #MECFS
Reposted by taylorbrownsue.bsky.social
Kseniia Petrova, a Russian scientist at Harvard Medical School, was detained at Logan Airport after returning from France and sent to an ICE detention in Louisiana, The Insider reports.
A big critic of Putin and the war in Ukraine, she may now be deported to Russia.
A big critic of Putin and the war in Ukraine, she may now be deported to Russia.
March 27, 2025 at 8:53 PM
Kseniia Petrova, a Russian scientist at Harvard Medical School, was detained at Logan Airport after returning from France and sent to an ICE detention in Louisiana, The Insider reports.
A big critic of Putin and the war in Ukraine, she may now be deported to Russia.
A big critic of Putin and the war in Ukraine, she may now be deported to Russia.
Reposted by taylorbrownsue.bsky.social
To the outstanding civil servants at NIH who are waiting to find out if they are one of the 1200 individuals to be laid off this weekend, we stand by you and know that you worked hard to help the country innovate, find cures, and save lives. This sucks. #MedSky www.rdworldonline.com/nih-layoffs-...
NIH layoffs threaten US's edge in science and health innovation
With weekly government layoffs, one announcement deserves far more attention than it’s receiving: staffing cuts at the NIH.
www.rdworldonline.com
March 28, 2025 at 11:21 PM
To the outstanding civil servants at NIH who are waiting to find out if they are one of the 1200 individuals to be laid off this weekend, we stand by you and know that you worked hard to help the country innovate, find cures, and save lives. This sucks. #MedSky www.rdworldonline.com/nih-layoffs-...
Reposted by taylorbrownsue.bsky.social
10 - 16th March was Brain Awareness Week, a "global campaign to foster public enthusiasm and support for brain science". Many #ME/CFS symptoms – such as problems with concentration, memory and vision – suggest abnormalities in the brain and nervous system, and a great deal of the research we fund
March 29, 2025 at 1:24 AM
10 - 16th March was Brain Awareness Week, a "global campaign to foster public enthusiasm and support for brain science". Many #ME/CFS symptoms – such as problems with concentration, memory and vision – suggest abnormalities in the brain and nervous system, and a great deal of the research we fund
Reposted by taylorbrownsue.bsky.social
Extraordinary story that illustrates the depth of RFK Jr.'s perfidy in assuring congress he is an antivaxxer no longer.
Peter Marks headed perhaps the outstanding success of the first Trump administration—Operation Warp Speed—developing a highly successful COVID vaccine in record time.
Peter Marks headed perhaps the outstanding success of the first Trump administration—Operation Warp Speed—developing a highly successful COVID vaccine in record time.
Exclusive | FDA’s Top Vaccine Official Forced Out
In his resignation letter, Dr. Peter Marks cited ‘misinformation and lies’ from Health and Human Services Secretary RFK Jr.
www.wsj.com
March 29, 2025 at 1:53 AM
Extraordinary story that illustrates the depth of RFK Jr.'s perfidy in assuring congress he is an antivaxxer no longer.
Peter Marks headed perhaps the outstanding success of the first Trump administration—Operation Warp Speed—developing a highly successful COVID vaccine in record time.
Peter Marks headed perhaps the outstanding success of the first Trump administration—Operation Warp Speed—developing a highly successful COVID vaccine in record time.
Reposted by taylorbrownsue.bsky.social
The crowds that AOC & Bernie Sanders are getting are MASSIVE.
Here’s the current scenes in Denver. Thousands.
#FightOligarchy
(🎥: Bastian Brauns)
Here’s the current scenes in Denver. Thousands.
#FightOligarchy
(🎥: Bastian Brauns)
March 21, 2025 at 11:15 PM
The crowds that AOC & Bernie Sanders are getting are MASSIVE.
Here’s the current scenes in Denver. Thousands.
#FightOligarchy
(🎥: Bastian Brauns)
Here’s the current scenes in Denver. Thousands.
#FightOligarchy
(🎥: Bastian Brauns)
Reposted by taylorbrownsue.bsky.social
🚨NEW: Donald Trump has revoked Vice President Harris’s security clearance in an unprecedented move of political retribution.
REPOST if you stand with Kamala Harris against Trump!
REPOST if you stand with Kamala Harris against Trump!
March 22, 2025 at 2:56 AM
🚨NEW: Donald Trump has revoked Vice President Harris’s security clearance in an unprecedented move of political retribution.
REPOST if you stand with Kamala Harris against Trump!
REPOST if you stand with Kamala Harris against Trump!
Reposted by taylorbrownsue.bsky.social
When this admin says they'll do something in support of human health, there is no precedent to believe them.
“The Trump administration has canceled funding for an ongoing 30-year, nationwide study tracking patients with prediabetes and diabetes, researchers said, at a time when top officials have emphasized their determination to curb the incidence of such chronic conditions.”
NIH cancels funding for landmark diabetes study at a time of focus on chronic disease
The Trump administration has canceled funding for an ongoing 30-year, nationwide study tracking patients with prediabetes and diabetes, researchers said.
www.statnews.com
March 18, 2025 at 1:16 AM
When this admin says they'll do something in support of human health, there is no precedent to believe them.
Reposted by taylorbrownsue.bsky.social
“A New York Times review of the flight data showed that none of the planes in question landed in El Salvador before the judge’s order and that one of them did not even leave American soil until after the judge’s written order was posted online.”
www.nytimes.com/2025/03/17/u...
www.nytimes.com/2025/03/17/u...
Timeline of Trump’s Deportation Flights, From Alien Enemies Act to Judge’s Order
A New York Times review of flight data showed that at the time of a federal judge’s order, two flights were in the air, and one had not yet taken off.
www.nytimes.com
March 18, 2025 at 1:42 AM
“A New York Times review of the flight data showed that none of the planes in question landed in El Salvador before the judge’s order and that one of them did not even leave American soil until after the judge’s written order was posted online.”
www.nytimes.com/2025/03/17/u...
www.nytimes.com/2025/03/17/u...
Reposted by taylorbrownsue.bsky.social
🚨NEW: Senator Adam Schiff respond to Trump’s threats to prosecute him: “The members of the Jan 6 Committee are all proud of our work. Your threats will not intimidate us. Or silence us.”
REPOST if you stand with @schiff.senate.gov against Donald Trump!
REPOST if you stand with @schiff.senate.gov against Donald Trump!
March 18, 2025 at 3:01 AM
🚨NEW: Senator Adam Schiff respond to Trump’s threats to prosecute him: “The members of the Jan 6 Committee are all proud of our work. Your threats will not intimidate us. Or silence us.”
REPOST if you stand with @schiff.senate.gov against Donald Trump!
REPOST if you stand with @schiff.senate.gov against Donald Trump!
Reposted by taylorbrownsue.bsky.social
“If, during the Cold War, the government funded universities as a way of strengthening America, Mr. Trump’s second administration treats them as a threat to be dismantled.” We must resist this deadly attack on the very foundations of free thought and open inquiry.
www.nytimes.com/2025/03/16/o...
www.nytimes.com/2025/03/16/o...
Opinion | The View Inside Trump’s Assault on Universities
The Trump administration’s attacks on universities will lead to the permanent diminishment of vital American institutions.
www.nytimes.com
March 18, 2025 at 5:39 AM
“If, during the Cold War, the government funded universities as a way of strengthening America, Mr. Trump’s second administration treats them as a threat to be dismantled.” We must resist this deadly attack on the very foundations of free thought and open inquiry.
www.nytimes.com/2025/03/16/o...
www.nytimes.com/2025/03/16/o...
Reposted by taylorbrownsue.bsky.social
Sharing 2 new actions by the Independent Advisory Group on the Cochrane review on exercise & #ME/CFS:
Comment submitted on the Cochrane review: hbprojecttalk.wordpress.com/2025/03/13/i...
Submission to the Cochrane Library Editorial Board: hbprojecttalk.wordpress.com/2025/03/13/i...
...
Comment submitted on the Cochrane review: hbprojecttalk.wordpress.com/2025/03/13/i...
Submission to the Cochrane Library Editorial Board: hbprojecttalk.wordpress.com/2025/03/13/i...
...
Independent Advisory Group: Comment on the Cochrane exercise review
Today, the Independent Advisory Group (IAG) submitted the comment below on the Cochrane exercise and CFS review to The Cochrane Library. If/when it is published, we will add the link to this post. …
hbprojecttalk.wordpress.com
March 13, 2025 at 2:01 AM
Reposted by taylorbrownsue.bsky.social
Donald Trump has now golfed 6 of the 7 weekends he has been President - and he’s spent $18.2 million in taxpayer dollars at his own resort doing so.
It’s all a big grift, and we’re the suckers that are on the hook for it.
It’s all a big grift, and we’re the suckers that are on the hook for it.
March 9, 2025 at 8:18 PM
Donald Trump has now golfed 6 of the 7 weekends he has been President - and he’s spent $18.2 million in taxpayer dollars at his own resort doing so.
It’s all a big grift, and we’re the suckers that are on the hook for it.
It’s all a big grift, and we’re the suckers that are on the hook for it.
Reposted by taylorbrownsue.bsky.social
🚶♀️ Pacing Upright Activity 🚶♂️
Living with #MECFS and #LongCOVID requires making hard choices—including time spent upright.
🔹 Break tasks into chunks
🔹 Use seated/recumbent options
🔹 Mobility aids help
🔹 Listen to your body
📥 Learn more: loom.ly/0Or2G20
@OpenMedF
Living with #MECFS and #LongCOVID requires making hard choices—including time spent upright.
🔹 Break tasks into chunks
🔹 Use seated/recumbent options
🔹 Mobility aids help
🔹 Listen to your body
📥 Learn more: loom.ly/0Or2G20
@OpenMedF
March 7, 2025 at 6:39 PM
🚶♀️ Pacing Upright Activity 🚶♂️
Living with #MECFS and #LongCOVID requires making hard choices—including time spent upright.
🔹 Break tasks into chunks
🔹 Use seated/recumbent options
🔹 Mobility aids help
🔹 Listen to your body
📥 Learn more: loom.ly/0Or2G20
@OpenMedF
Living with #MECFS and #LongCOVID requires making hard choices—including time spent upright.
🔹 Break tasks into chunks
🔹 Use seated/recumbent options
🔹 Mobility aids help
🔹 Listen to your body
📥 Learn more: loom.ly/0Or2G20
@OpenMedF
This cause is close to my heart - please sign: sign.moveon.org/petitions/to...
To President Zelenskyy, From Embarrassed Americans
Please help the voices of the American people reach President Zelenskyy, the people of Ukraine, the US Government, and the world.
sign.moveon.org
March 1, 2025 at 4:00 PM
This cause is close to my heart - please sign: sign.moveon.org/petitions/to...
Reposted by taylorbrownsue.bsky.social
I wish I could share each one individually but ME and PEM would not allow that unfortunately. But the desire is there. I know you get it. Please check out the full video and know we are working on an album meanwhile!
We are so honored so many joined in and shared what this community means to them!
We are so honored so many joined in and shared what this community means to them!
February 14, 2025 at 9:45 PM
I wish I could share each one individually but ME and PEM would not allow that unfortunately. But the desire is there. I know you get it. Please check out the full video and know we are working on an album meanwhile!
We are so honored so many joined in and shared what this community means to them!
We are so honored so many joined in and shared what this community means to them!
Reposted by taylorbrownsue.bsky.social
“Bonus Fact: The only way to prevent Long COVID is to avoid getting COVID.”
(5/5)
(5/5)
February 15, 2025 at 1:01 AM
“Bonus Fact: The only way to prevent Long COVID is to avoid getting COVID.”
(5/5)
(5/5)
Reposted by taylorbrownsue.bsky.social
Q: How does ME/CFS differ from Long COVID?
A: They overlap, but not all Long COVID patients develop ME/CFS. Research shows 1 in 22 meet ME/CFS criteria. Long COVID has 30+ symptoms, while ME/CFS is a more severe subset. More research is needed! 💙 #MECFS #LongCOVID @openmedf.bsky.social
A: They overlap, but not all Long COVID patients develop ME/CFS. Research shows 1 in 22 meet ME/CFS criteria. Long COVID has 30+ symptoms, while ME/CFS is a more severe subset. More research is needed! 💙 #MECFS #LongCOVID @openmedf.bsky.social
February 14, 2025 at 9:05 PM
Q: How does ME/CFS differ from Long COVID?
A: They overlap, but not all Long COVID patients develop ME/CFS. Research shows 1 in 22 meet ME/CFS criteria. Long COVID has 30+ symptoms, while ME/CFS is a more severe subset. More research is needed! 💙 #MECFS #LongCOVID @openmedf.bsky.social
A: They overlap, but not all Long COVID patients develop ME/CFS. Research shows 1 in 22 meet ME/CFS criteria. Long COVID has 30+ symptoms, while ME/CFS is a more severe subset. More research is needed! 💙 #MECFS #LongCOVID @openmedf.bsky.social
Reposted by taylorbrownsue.bsky.social
For Monday February 17:
February 15, 2025 at 12:05 PM
For Monday February 17:
Reposted by taylorbrownsue.bsky.social
What this long and detailed NYT piece calmly calls an “extraordinary flexing of power by a private individual” is in fact a blatantly unconstitutional usurpation of Congress’s Article I powers and delegation of the President’s Article II duties.
www.nytimes.com/2025/02/03/u...
www.nytimes.com/2025/02/03/u...
Elon Musk’s Blitz Shakes U.S. Government as He Sweeps Through Agencies
The billionaire is creating major upheaval as his team sweeps through agencies, in what has been an extraordinary flexing of power by a private individual.
www.nytimes.com
February 4, 2025 at 1:05 PM
What this long and detailed NYT piece calmly calls an “extraordinary flexing of power by a private individual” is in fact a blatantly unconstitutional usurpation of Congress’s Article I powers and delegation of the President’s Article II duties.
www.nytimes.com/2025/02/03/u...
www.nytimes.com/2025/02/03/u...