Chronicallyillgoddess
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spooniegoddess.bsky.social
Chronicallyillgoddess
@spooniegoddess.bsky.social
😷Just a chronically ill, disabled, neurodivergent warrior and mom tired of the collective mindset.

🛡️Battling #longcovid since February 2020.

🩸Blood clot survivor

🎗️Mecfs, pots, mcas, autoimmune and the list goes on.
Reposted by Chronicallyillgoddess
After abandoning every mitigation and infecting kids repeatedly, our media wants to know: why do so many children have Long COVID?

My latest looks at the newest research, the comforting lies that just won't die, and how we got here:

www.thegauntlet.news/p/long-covid...
Long COVID is Now the Number One Chronic Illness in Children
Repeatedly mass infecting kids with COVID is not a public health strategy. It's a fast pass to declining population health
www.thegauntlet.news
June 16, 2025 at 2:20 AM
Reposted by Chronicallyillgoddess
When you become chronically ill, your world shrinks.

You can’t do a lot of the things you used to. People disappear. It can be an isolating existence.

That said, you learn to slow down, simplify your life & reject rampant consumerism.

These skills will be invaluable when facing what’s to come
May 10, 2025 at 4:57 AM
📣 🚨 Our Clean Air for Healthy Equitable Schools bill passed the IL House’s Education Policy Committee! Moving forward, our bill number will be HB429. It may be called for a vote on the House floor TODAY or tomorrow! Pls tag your *state* rep and ask them to co-sponsor/vote YES!
April 11, 2025 at 11:55 AM
I don’t know who needs to hear this but if you’re letting your kid catch covid over & over, they can still get things like measles—even if they’re vaccinated. Why? Because vaccines aren’t as effective in immunocompromised people. And what does covid do really well? It makes people immunocompromised
April 7, 2025 at 3:37 PM
Just got an email this morning that I’m losing my neuro ophthalmologist. She’s leaving to pursue other things. 😭 I loved this doctor so much! She’s helped me in so many ways. I already lost my amazing primary care doctor last year (still haven’t replaced them), and now this.
March 25, 2025 at 2:19 PM
Reposted by Chronicallyillgoddess
COVID, flu, measles, and all airborne viruses can seriously harm anyone, not just people who are immunocompromised. EVERYONE has a medical reason to wear a mask at any time and in any place.
March 21, 2025 at 10:17 PM
Ppl are so mad at RFK Jr. But let's stop pretending that ppl actually care about the science. Bc if they did, they would still be in masks right now & demanding/pushing for clean air in our schools, healthcare, etc. Ppl only care about the science that doesn't cause them inconvenience of any kind.
March 21, 2025 at 6:46 PM
Soooo where’s those masks they said were required at their event? So unserious 🙄😒
"I don’t believe in healthcare, labor, and human rights because I’m a Marxist. I believe it because I was a waitress."

LEFTISTS: THIS IS THE MESSAGE! @aoc.bsky.social 🔥
AOC: Fox News and the right-wing would have you believe that these American values are something out of The Communist Manifesto. But let me tell you Fox News, I don’t believe in healthcare, labor, and human rights because I’m a Marxist.. I believe it because I was a waitress.
March 21, 2025 at 3:31 PM
Reposted by Chronicallyillgoddess
📣 CALL TO ACTION FOR ILLINOISANS 📣

The Clean Air for Healthy Equitable Schools bill (SB2193) is now in the Appropriations-Education committee. Please email/call your state senator to voice your support/ask them to co-sponsor the bill. See the script below.

Not from IL??? Then pls repost. Thanks!
March 20, 2025 at 12:09 AM
Reposted by Chronicallyillgoddess
It is understandable that you
feel unwell,
for you live in sickening times:
the state of the world
will nauseate you,
the fear for the future
will exhaust you,
the spreading viruses
will infect you,
in these sickening times
what would be worrisome
is if you felt fine.
March 18, 2025 at 4:02 PM
Reposted by Chronicallyillgoddess
Fascists want us divided, uninformed and sick. A sick, apathetic population won’t put up much of a fight.

Protect your health. Read local independent journalists. Support libraries, community fridges & food banks. Give to mutual aid. Wear a mask.

Strong inclusive communities will save lives
March 18, 2025 at 5:35 AM
Reposted by Chronicallyillgoddess
TODAY IS LONG COVID AWARENESS DAY!

On #LongCOVIDAwarenessDay, help raise #awareness by sharing facts about #LongCOVID! #FactsMatter

15 Facts | 15 Hours | #FiveYearsLater

See the thread below for individual facts to post! Share them all, tag a friend. #longcovidawareness2025
March 15, 2025 at 1:55 PM
Reposted by Chronicallyillgoddess
Today marks the five year anniversary of Covid being declared a pandemic. Some things I want people to remember:

The threat is not gone. People are still dying and becoming disabled every single day

COVID is airborne. It’s always been airborne.

🧵
March 12, 2025 at 5:12 AM
Reposted by Chronicallyillgoddess
When someone becomes disabled or chronically ill, people will twist themselves into knots finding a way to blame them. They need to find fault so they don’t have to face the randomness of life.

The truth is, anyone can become disabled at any time.

Good health is not a guarantee.
March 11, 2025 at 4:40 AM
Meanwhile we have schools like my children’s that have the nerve to spotlight their 20+ absences during an IEP meeting & ask if there’s anything they could do to help. Yeah, advocate for masks and clean air in your school. But all we get are response’s like, “yeah, viruses can be tricky. I’m sorry”
As kids get sicker, media ignores scientific papers pointing to immune damage after COVID. Instead, parents are urged to “watch out” for unusual waves of RSV, flu, pneumonia, & more, while masks, clean air and the pandemic are pointedly never mentioned.

www.thegauntlet.news/p/kids-keep-...
Kids keep getting sicker as evidence for COVID immune damage builds
As the press pushes "immunity debt" past the breaking point of believability, are parents ready to wake up to the illness crisis?
www.thegauntlet.news
March 9, 2025 at 1:11 AM
It’s 2025 and people are still mad at anti vaxxers while refusing to mask—actively creating more immunocompromised people and making vaccines less effective. You can’t be pro science while ignoring how repeated infections fuel long term vulnerability.
March 3, 2025 at 6:06 PM
Yesterday morning on my way to drop my kids off at school, I see a train on the train tracks up ahead. As I’m getting ready to pass under the bridge, I see an oil tanker pass by w/ spray paint on it that read ‘Are you paying attention yet??’ It definitely got my heart palpitations going & triggered.
February 28, 2025 at 3:39 PM
Reposted by Chronicallyillgoddess
It’s hard to explain the hope I had at the beginning of the pandemic. I was scared, but I also thought we were going to become a more inclusive society. We would care more about chronic illness.

Having that hope ripped away and replaced with eugenics & fascism has been incredibly painful.
February 25, 2025 at 4:50 AM
I am 38. Covid aged me by 30 years. No, that’s not an exaggeration. And yes it took 4 infections in 5 years to reach this point. My partner jokingly makes fun of me and my old lady ways 💀
I keep seeing folks posting about things hitting different after 25, 30, 35 & my loves, that’s not getting older it’s COVID. You should be running around taking life for granted at these ages. COVID did that to you, not aging, COVID & your governments are stealing your youth.
February 19, 2025 at 4:26 PM
Long covid is making adjustments you never wanted to make—like cutting your hair because you can’t take care of it anymore.
February 13, 2025 at 11:43 PM
Reposted by Chronicallyillgoddess
When you’re chronically ill, your baseline is everything. Managing it can be a full time job.

Non disabled people can’t understand how hard we work to ration energy, avoid infections & minimize setbacks.

Even when you do everything “right”, progress can be wiped out in an instant 🧵
February 12, 2025 at 3:31 AM
Reposted by Chronicallyillgoddess
📣 Hey Illinois! We’re back in business! Our Clean Air for Healthy Equitable Schools bill (HB1923; SB2193) has been refiled by Senator Adriane Johnson & Leader Camille Lilly. Please check out our fact sheet! Ask your state reps & senators to co-sponsor. Follow us & repost! 🎉
February 8, 2025 at 2:41 AM
Reposted by Chronicallyillgoddess
If
in this moment
there are too many disasters
for you
to keep track of them all,
remember, what matters
in this moment
for you
is to not lose track
of your sense of empathy.
January 30, 2025 at 6:06 PM