Dr.rer.pol. Sabine Schwab
@sabine-nj.bsky.social
10+ yrs. Brain Cancer Patient, Advisor & Advocate. #BTSM #skychat Organizer & Moderator. Rock Climber, Dual Citizen 🇺🇸🇩🇪, 11yo Mom, Chocolate Addict.
Honored to have had the opportunity to kick off the @the_abta.bsky.social National Conference this year. It was a huge success and great intro to the conference weekend.
💻 can’t make it to Chicago? Online participation is free! #btsm #abta2025nationalconference #braintumor
💻 can’t make it to Chicago? Online participation is free! #btsm #abta2025nationalconference #braintumor
September 13, 2025 at 2:54 PM
Honored to have had the opportunity to kick off the @the_abta.bsky.social National Conference this year. It was a huge success and great intro to the conference weekend.
💻 can’t make it to Chicago? Online participation is free! #btsm #abta2025nationalconference #braintumor
💻 can’t make it to Chicago? Online participation is free! #btsm #abta2025nationalconference #braintumor
Will I see you there? #btsm
Let’s connect here or through the conference app and let’s make sure we’ll find some time to meet up.
Also, join the Campfire Connections networking session at 4pm on Friday. Hosted by yours truly. 🩶
Let’s connect here or through the conference app and let’s make sure we’ll find some time to meet up.
Also, join the Campfire Connections networking session at 4pm on Friday. Hosted by yours truly. 🩶
"You can feel it here."
At the ABTA 2025 National Conference, stories are shared, connections are made and hope comes alive.
Sept 12–14 | Chicago & Online
In-person registration ends August 29!
Join us: bit.ly/ABTA2025NC
At the ABTA 2025 National Conference, stories are shared, connections are made and hope comes alive.
Sept 12–14 | Chicago & Online
In-person registration ends August 29!
Join us: bit.ly/ABTA2025NC
September 9, 2025 at 5:02 PM
Will I see you there? #btsm
Let’s connect here or through the conference app and let’s make sure we’ll find some time to meet up.
Also, join the Campfire Connections networking session at 4pm on Friday. Hosted by yours truly. 🩶
Let’s connect here or through the conference app and let’s make sure we’ll find some time to meet up.
Also, join the Campfire Connections networking session at 4pm on Friday. Hosted by yours truly. 🩶
Today is #GlioblastomaAwarenessDay.In 2021, the WHO updated CNS tumor classifications which led to me being a #glioblastoma patient.I am doing fairly well but many of my friends are not.Please consider making a donation to fuel research, it is much needed. give.abta.org/give/474321/... #btsm
Meet Hope Head On - Microsite/Landing
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give.abta.org
July 16, 2025 at 7:43 PM
Today is #GlioblastomaAwarenessDay.In 2021, the WHO updated CNS tumor classifications which led to me being a #glioblastoma patient.I am doing fairly well but many of my friends are not.Please consider making a donation to fuel research, it is much needed. give.abta.org/give/474321/... #btsm
Reposted by Dr.rer.pol. Sabine Schwab
PSA:
There is a no cancer that is the “good” kind. Mind you there are levels to cancer. Some less aggressive, etc. There is however, no “good” kind. #Cansky
There is a no cancer that is the “good” kind. Mind you there are levels to cancer. Some less aggressive, etc. There is however, no “good” kind. #Cansky
July 6, 2025 at 2:17 AM
PSA:
There is a no cancer that is the “good” kind. Mind you there are levels to cancer. Some less aggressive, etc. There is however, no “good” kind. #Cansky
There is a no cancer that is the “good” kind. Mind you there are levels to cancer. Some less aggressive, etc. There is however, no “good” kind. #Cansky
Surround yourself with people who speak up for you, lift you up, share their knowledge, and help you grow. #sabine365
July 2, 2025 at 1:23 AM
Surround yourself with people who speak up for you, lift you up, share their knowledge, and help you grow. #sabine365
This! Great article on #patientadvocacy by Christine van Raesfeld
« Our expertise isn’t theoretical—it’s personal, hard-earned, and often traumatic. We’ve survived what others research. »
open.substack.com/pub/christin... #btsm
« Our expertise isn’t theoretical—it’s personal, hard-earned, and often traumatic. We’ve survived what others research. »
open.substack.com/pub/christin... #btsm
Expertise Without a Paycheck
When Appreciation Doesn’t Pay the Bills
open.substack.com
June 23, 2025 at 1:03 PM
This! Great article on #patientadvocacy by Christine van Raesfeld
« Our expertise isn’t theoretical—it’s personal, hard-earned, and often traumatic. We’ve survived what others research. »
open.substack.com/pub/christin... #btsm
« Our expertise isn’t theoretical—it’s personal, hard-earned, and often traumatic. We’ve survived what others research. »
open.substack.com/pub/christin... #btsm
Chronic allergic sinusitis / rhinitis anyone? How do you manage your symptoms?
June 21, 2025 at 5:21 AM
Chronic allergic sinusitis / rhinitis anyone? How do you manage your symptoms?
The things we do on a Thursday night. Being a panelist for @Ourbrainbankforgbm.bsky.social (OBB), sharing my thoughts on patient power, hope, science, and politics .
This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm
This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm
June 7, 2025 at 4:55 PM
The things we do on a Thursday night. Being a panelist for @Ourbrainbankforgbm.bsky.social (OBB), sharing my thoughts on patient power, hope, science, and politics .
This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm
This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm
Reposted by Dr.rer.pol. Sabine Schwab
@ourbrainbankforgbm.bsky.social @preopticarea.bsky.social @roelverhaak.bsky.social @sabine-nj.bsky.social @samiracle04.bsky.social @sarahfunes.bsky.social @scurrier.bsky.social @shawncarey42.bsky.social @stales.bsky.social @stuartselby.bsky.social @subatomicdoc.bsky.social @tambre.bsky.social
June 6, 2025 at 9:47 PM
I have been informed by @mskcancercenter.bsky.social that they likely won’t be covered by my health insurance past July 1st, 2025.
This is extremely saddening to hear because looking for and then trusting in a new health care team is not as easy as it sounds. #btsm
This is extremely saddening to hear because looking for and then trusting in a new health care team is not as easy as it sounds. #btsm
June 4, 2025 at 3:27 AM
I have been informed by @mskcancercenter.bsky.social that they likely won’t be covered by my health insurance past July 1st, 2025.
This is extremely saddening to hear because looking for and then trusting in a new health care team is not as easy as it sounds. #btsm
This is extremely saddening to hear because looking for and then trusting in a new health care team is not as easy as it sounds. #btsm
Reposted by Dr.rer.pol. Sabine Schwab
We're so excited for our June 8, 2025 #BTSM #skychat on #braintumor Advocacy that we've moved our start time ONE HOUR EARLIER to better accommodate schedules. We'll start at 4 PM Pacific / 7 PM Eastern instead of 5pm/8pm. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky
June 2, 2025 at 2:15 PM
On this #NationalCancerSurvivorDay I’m doing the things I love to do: spreading awareness, networking, and connecting with others affected by (brain) cancer. If you/your loved one is facing a #Glioblastoma diagnosis, check out: @ourbrainbankforgbm.bsky.social #btsm
June 1, 2025 at 7:55 PM
On this #NationalCancerSurvivorDay I’m doing the things I love to do: spreading awareness, networking, and connecting with others affected by (brain) cancer. If you/your loved one is facing a #Glioblastoma diagnosis, check out: @ourbrainbankforgbm.bsky.social #btsm
Day 3 started out with a panel titled “Empowering Voices: Becoming a Research Patient Advocate”
Bri, my #braintumor buddy with whom I’m featured on @theabta.bsky.social media kits, was one of the panelists and rocked it! #btsm
Bri, my #braintumor buddy with whom I’m featured on @theabta.bsky.social media kits, was one of the panelists and rocked it! #btsm
June 1, 2025 at 5:39 PM
Day 3 started out with a panel titled “Empowering Voices: Becoming a Research Patient Advocate”
Bri, my #braintumor buddy with whom I’m featured on @theabta.bsky.social media kits, was one of the panelists and rocked it! #btsm
Bri, my #braintumor buddy with whom I’m featured on @theabta.bsky.social media kits, was one of the panelists and rocked it! #btsm
Reposted by Dr.rer.pol. Sabine Schwab
Join us in Brooklyn on June 5
#glioblastoma #GBM #AllInMyHead #BTAM #STSM
secure.givelively.org/event/ourbra...
#glioblastoma #GBM #AllInMyHead #BTAM #STSM
secure.givelively.org/event/ourbra...
May 23, 2025 at 7:36 PM
Join us in Brooklyn on June 5
#glioblastoma #GBM #AllInMyHead #BTAM #STSM
secure.givelively.org/event/ourbra...
#glioblastoma #GBM #AllInMyHead #BTAM #STSM
secure.givelively.org/event/ourbra...
Meeting up with fellow #braintumor patient advocate and former #BTSM chat organizer/moderator, Jeremi Pivor, at #ASCO25 today was great. But being in the room when he got standing ovations for his #Medscape talk was the cherry on top of another successful day.
June 1, 2025 at 2:06 AM
Meeting up with fellow #braintumor patient advocate and former #BTSM chat organizer/moderator, Jeremi Pivor, at #ASCO25 today was great. But being in the room when he got standing ovations for his #Medscape talk was the cherry on top of another successful day.
Super interesting session on Precision Medicine in Glioma Treatment — Integration of Molecular Profiling to Inform Targeted Therapies.
Voilà the 3 summary slides from all 3 panelists. #btsm
Voilà the 3 summary slides from all 3 panelists. #btsm
May 31, 2025 at 1:33 AM
Super interesting session on Precision Medicine in Glioma Treatment — Integration of Molecular Profiling to Inform Targeted Therapies.
Voilà the 3 summary slides from all 3 panelists. #btsm
Voilà the 3 summary slides from all 3 panelists. #btsm
Reposted by Dr.rer.pol. Sabine Schwab
May 30, 2025 at 7:57 PM
Reposted by Dr.rer.pol. Sabine Schwab
👕 Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supply—like everyone’s emotional bandwidth 💩 #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social
May 24, 2025 at 5:24 PM
👕 Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supply—like everyone’s emotional bandwidth 💩 #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social
Reposted by Dr.rer.pol. Sabine Schwab
Hey #braintumor community! Save the date for our next chat - taking place the weekend after #ASCO25, on June 8, 2025, at 5 pm PT, 6 pm MT, 7 pm CT, 8 pm ET.
We would love to see some researcher/ scientists participate!
#BTSM
We would love to see some researcher/ scientists participate!
#BTSM
May 24, 2025 at 3:52 AM
Hey #braintumor community! Save the date for our next chat - taking place the weekend after #ASCO25, on June 8, 2025, at 5 pm PT, 6 pm MT, 7 pm CT, 8 pm ET.
We would love to see some researcher/ scientists participate!
#BTSM
We would love to see some researcher/ scientists participate!
#BTSM
Honored to be a part of this community. Thanks, @thelizarmy.bsky.social for introducing me to #BTSM in 2014, onboarding me in 2018, and passing on the baton in 2023. @mcintose.bsky.social, @shawncarey42.bsky.social, @stuartselby.bsky.social and I will do our best to keep this movement going.
#BTSM is celebrating 12 years of chats TODAY! 🥳🎉
The inaugural chat took place on May 19th, 2013. Thank you, Charlie Blotter and @thelizarmy.bsky.social for getting this movement started.
We have helped + interacted with hundreds of individuals over the years. (Graphic by @stuartselby.bsky.social)
The inaugural chat took place on May 19th, 2013. Thank you, Charlie Blotter and @thelizarmy.bsky.social for getting this movement started.
We have helped + interacted with hundreds of individuals over the years. (Graphic by @stuartselby.bsky.social)
May 19, 2025 at 5:59 PM
Honored to be a part of this community. Thanks, @thelizarmy.bsky.social for introducing me to #BTSM in 2014, onboarding me in 2018, and passing on the baton in 2023. @mcintose.bsky.social, @shawncarey42.bsky.social, @stuartselby.bsky.social and I will do our best to keep this movement going.
With #ASCO25 around the corner, let's talk about #ascofashion for a sec. What are this year's trends, colors, etc?
Tagging some of those who care:
@fumikochino.bsky.social @michellerothy.bsky.social @jamesfanwu.bsky.social @grocquemd.bsky.social @amandabindc.bsky.social @stephenvliu.bsky.social
Tagging some of those who care:
@fumikochino.bsky.social @michellerothy.bsky.social @jamesfanwu.bsky.social @grocquemd.bsky.social @amandabindc.bsky.social @stephenvliu.bsky.social
May 15, 2025 at 9:02 PM
With #ASCO25 around the corner, let's talk about #ascofashion for a sec. What are this year's trends, colors, etc?
Tagging some of those who care:
@fumikochino.bsky.social @michellerothy.bsky.social @jamesfanwu.bsky.social @grocquemd.bsky.social @amandabindc.bsky.social @stephenvliu.bsky.social
Tagging some of those who care:
@fumikochino.bsky.social @michellerothy.bsky.social @jamesfanwu.bsky.social @grocquemd.bsky.social @amandabindc.bsky.social @stephenvliu.bsky.social