Brain Tumor Social Media Chat
@btsmchat.bsky.social
The official braintumor community chat organizer handle. Follow us for updates on dates, topics, etc. Grab our #BTSM starter pack!
NEXT chat: June 8, 7 pm ET.
NEXT chat: June 8, 7 pm ET.
If you’d like to be added to our Bluesky starter pack, at bsky.app/starter-pack..., please let us know. #BTSM
#BTSM Starter Pack
Join the conversation
bsky.app
June 9, 2025 at 12:03 AM
If you’d like to be added to our Bluesky starter pack, at bsky.app/starter-pack..., please let us know. #BTSM
Looking for more?
Join Brain Tumor Support Conversations—a virtual support group w @lisaoleary524.bsky.social, @adammarc.bsky.social, and @Shawncarey42.bsky.social on Sun, July 20th, 2025. Patients, care partners, any brain tumor type/stage of treatment can join! Register: buff.ly/kzWSZEx #BTSM
Join Brain Tumor Support Conversations—a virtual support group w @lisaoleary524.bsky.social, @adammarc.bsky.social, and @Shawncarey42.bsky.social on Sun, July 20th, 2025. Patients, care partners, any brain tumor type/stage of treatment can join! Register: buff.ly/kzWSZEx #BTSM
Brain Tumor Support Conversations - National Brain Tumor Society
The Brain Tumor Support Conversations are an online support group run by the brain tumor community for the brain tumor community. This group is attended and run by patients and care partners who have…
braintumor.org
June 9, 2025 at 12:02 AM
Looking for more?
Join Brain Tumor Support Conversations—a virtual support group w @lisaoleary524.bsky.social, @adammarc.bsky.social, and @Shawncarey42.bsky.social on Sun, July 20th, 2025. Patients, care partners, any brain tumor type/stage of treatment can join! Register: buff.ly/kzWSZEx #BTSM
Join Brain Tumor Support Conversations—a virtual support group w @lisaoleary524.bsky.social, @adammarc.bsky.social, and @Shawncarey42.bsky.social on Sun, July 20th, 2025. Patients, care partners, any brain tumor type/stage of treatment can join! Register: buff.ly/kzWSZEx #BTSM
Tonight’s #BTSM chat topics were created by @sabine-nj.bsky.social and @stuartselby.bsky.social. They were reviewed by @mcintose.bsky.social and @shawncarey42.bsky.social
June 9, 2025 at 12:01 AM
Tonight’s #BTSM chat topics were created by @sabine-nj.bsky.social and @stuartselby.bsky.social. They were reviewed by @mcintose.bsky.social and @shawncarey42.bsky.social
Repeating Q4: #BTSM
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
June 8, 2025 at 11:55 PM
Repeating Q4: #BTSM
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
Q4: #BTSM
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
June 8, 2025 at 11:48 PM
Q4: #BTSM
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
Repeating Q3: #BTSM
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
June 8, 2025 at 11:39 PM
Repeating Q3: #BTSM
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
Q3: #BTSM
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
June 8, 2025 at 11:34 PM
Q3: #BTSM
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
If you are here tonight to just listen, please post “#BTSM” so we know you’re in the audience. 👋
June 8, 2025 at 11:31 PM
If you are here tonight to just listen, please post “#BTSM” so we know you’re in the audience. 👋
Repeating Q2: #BTSM
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
June 8, 2025 at 11:26 PM
Repeating Q2: #BTSM
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
Q2: #BTSM
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
June 8, 2025 at 11:21 PM
Q2: #BTSM
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
Repeating Q1: #BTSM
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy?
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy?
June 8, 2025 at 11:16 PM
Repeating Q1: #BTSM
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy?
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy?
Q1: #BTSM
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy efforts?
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy efforts?
June 8, 2025 at 11:07 PM
Q1: #BTSM
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy efforts?
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy efforts?
Watch this orange #BTSM bubble for today’s questions, labeled Q1, Q2, Q3 and Q4. Label your answers with A1, A2, A3 and A4 to make conversation easier to follow! Coming up soon: our first question, wait a moment for Q1.
June 8, 2025 at 11:06 PM
Watch this orange #BTSM bubble for today’s questions, labeled Q1, Q2, Q3 and Q4. Label your answers with A1, A2, A3 and A4 to make conversation easier to follow! Coming up soon: our first question, wait a moment for Q1.
Let’s start with introductions!
🔸What’s your name?
🔸Where are you based?
🔸Who are you?
🔸Why are you here?
Please indicate what phase of your brain tumor journey you are currently in (eg. newly diagnosed, watch & wait, clinical trial, etc.)
Post “#BTSM” if you’re only here to listen. Welcome all!
🔸What’s your name?
🔸Where are you based?
🔸Who are you?
🔸Why are you here?
Please indicate what phase of your brain tumor journey you are currently in (eg. newly diagnosed, watch & wait, clinical trial, etc.)
Post “#BTSM” if you’re only here to listen. Welcome all!
June 8, 2025 at 11:05 PM
Let’s start with introductions!
🔸What’s your name?
🔸Where are you based?
🔸Who are you?
🔸Why are you here?
Please indicate what phase of your brain tumor journey you are currently in (eg. newly diagnosed, watch & wait, clinical trial, etc.)
Post “#BTSM” if you’re only here to listen. Welcome all!
🔸What’s your name?
🔸Where are you based?
🔸Who are you?
🔸Why are you here?
Please indicate what phase of your brain tumor journey you are currently in (eg. newly diagnosed, watch & wait, clinical trial, etc.)
Post “#BTSM” if you’re only here to listen. Welcome all!
Note: We assume all opinions expressed here are your own personal opinions and not those of an employer (unless specified).
Dissenting/opposing views are perfectly acceptable. Personal attacks, vulgar language and negative posts directed at an individual are not tolerated. #BTSM
Dissenting/opposing views are perfectly acceptable. Personal attacks, vulgar language and negative posts directed at an individual are not tolerated. #BTSM
June 8, 2025 at 11:04 PM
Note: We assume all opinions expressed here are your own personal opinions and not those of an employer (unless specified).
Dissenting/opposing views are perfectly acceptable. Personal attacks, vulgar language and negative posts directed at an individual are not tolerated. #BTSM
Dissenting/opposing views are perfectly acceptable. Personal attacks, vulgar language and negative posts directed at an individual are not tolerated. #BTSM
Running this orange #BTSM chat bubble tonight are @stuartselby.bsky.social and @shawncarey42.bsky.social
June 8, 2025 at 11:02 PM
Running this orange #BTSM chat bubble tonight are @stuartselby.bsky.social and @shawncarey42.bsky.social
Hello and welcome to our second Brain Tumor Social Media (#BTSM) live chat on Bluesky! 👋 We’re glad you’re here with us!
June 8, 2025 at 11:01 PM
Hello and welcome to our second Brain Tumor Social Media (#BTSM) live chat on Bluesky! 👋 We’re glad you’re here with us!
June 8, 2025 at 10:01 PM
Calling all advocates! Don’t forget today’s #braintumor Advocacy #BTSM #skychat is tonight at 4pm PT / 7pm ET.
We hope to see you there!
We hope to see you there!
June 8, 2025 at 4:04 PM
Calling all advocates! Don’t forget today’s #braintumor Advocacy #BTSM #skychat is tonight at 4pm PT / 7pm ET.
We hope to see you there!
We hope to see you there!
