Brain Tumor Social Media Chat
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btsmchat.bsky.social
Brain Tumor Social Media Chat
@btsmchat.bsky.social
The official braintumor community chat organizer handle. Follow us for updates on dates, topics, etc. Grab our #BTSM starter pack!
NEXT chat: June 8, 7 pm ET.
Repeating Q4: #BTSM
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
June 8, 2025 at 11:55 PM
Q4: #BTSM
In a world that constantly changes: what keeps you motivated to stay engaged in advocacy, even when progress oftentimes feels slow? What advice would you give to others just starting on this advocacy journey?
June 8, 2025 at 11:48 PM
Repeating Q3: #BTSM
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
June 8, 2025 at 11:39 PM
Q3: #BTSM
What ideas or approaches do you think could help address these gaps, and how can we, as a community, work together to drive change? What partnerships with other organizations do you suggest for a stronger and more effective impact?
June 8, 2025 at 11:34 PM
If you are here tonight to just listen, please post “#BTSM” so we know you’re in the audience. 👋
June 8, 2025 at 11:31 PM
Repeating Q2: #BTSM
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
June 8, 2025 at 11:26 PM
Q2: #BTSM
In what area(s) do you see the greatest need for advocacy in the #braintumor community today? In what area do you believe we can make the most meaningful impact?
June 8, 2025 at 11:21 PM
Repeating Q1: #BTSM
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy?
June 8, 2025 at 11:16 PM
Q1: #BTSM
What type(s) of patient advocacy have you personally been involved with, and how has your focus evolved over time? Please share with our community what inspires and drives your interest in this space. For non advocates: how have you personally been helped by someone’s advocacy efforts?
June 8, 2025 at 11:07 PM
Tonight’s #BTSM theme is:
Brain Tumor Advocacy. Where passion meets progress.
June 8, 2025 at 11:03 PM
Calling all advocates! Don’t forget today’s #braintumor Advocacy #BTSM #skychat is tonight at 4pm PT / 7pm ET.

We hope to see you there!
June 8, 2025 at 4:04 PM
Who will be joining us this Sunday for our second #BTSM #SkyChat ? #oncosky #oncsky #medsky #AYACSM #cansky
🔹 Sunday, 6/08,
🔹 4 pm PT; 7pm ET
🔹Topic: Brain Tumor Advocacy: Where passion meets progress.
June 6, 2025 at 9:47 PM
We're getting closer to our June 8th #BTSM chat where we'll discuss #braintumor Advocacy. We hope you can join us on Sunday at our new time, one hour earlier, at 4 PM Pacific / 7 PM Eastern! #oncosky #oncsky #medsky #AYACSM #cansky
June 4, 2025 at 7:47 PM
We're so excited for our June 8, 2025 #BTSM #skychat on #braintumor Advocacy that we've moved our start time ONE HOUR EARLIER to better accommodate schedules. We'll start at 4 PM Pacific / 7 PM Eastern instead of 5pm/8pm. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky
June 2, 2025 at 2:15 PM
It's a big weekend with #ASCO25 taking place, but we're still getting ready for our June 8, 2025 #BTSM #skychat, and reflecting on 12 years of chats our theme will be #braintumor Advocacy. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky
May 30, 2025 at 9:51 PM
#BTSM is celebrating 12 years of chats TODAY! 🥳🎉
The inaugural chat took place on May 19th, 2013. Thank you, Charlie Blotter and @thelizarmy.bsky.social for getting this movement started.
We have helped + interacted with hundreds of individuals over the years. (Graphic by @stuartselby.bsky.social)
May 19, 2025 at 5:55 PM
Half of the @btsmchat.bsky.social organizer team (@sabine-nj.bsky.social and @shawncarey42.bsky.social) participate at @braintumor.org’s 2025 #Head2Hill advocacy event in DC this week. Find any one of us if you’d like to learn more about #BTSM.
May 4, 2025 at 11:50 PM
Q4: #BTSM
What challenges around information seeking and sharing do you see in the future? What can groups like this #BTSM chat and others do to better support the brain tumor community this year?
March 30, 2025 at 11:49 PM
Q3 for all: #BTSM

a) Can you share your best resource/book/website/etc. with the #braintumor community for any specific question, topic or issue you have encountered?

b) What do you most like about this source?
March 30, 2025 at 11:34 PM
Q2 for clinicians and scientists:: #BTSM

How do you stay current with all of the information and new studies in the field?
March 30, 2025 at 11:21 PM
Q2 for patients and care partners:: #BTSM
a) Where do you turn to for reputable information and resources when it comes to your brain tumor diagnosis and treatment?
b) What makes a resource valuable to you?
c) What steps do you take to verify that the resource is trustworthy?
March 30, 2025 at 11:20 PM
Q1 for clinicians and scientists:: #BTSM
What kind of resources do you typically share with patients? How does it change based on where they are in their care journey?
March 30, 2025 at 11:10 PM
Q1 for patients and care partners: #BTSM
What information are you generally interested in when it comes to your/your loved one’s care (such as treatment options, managing side effects, support groups, survivorship tips, etc.)?
March 30, 2025 at 11:09 PM
Tonight’s #BTSM theme is:
Getting resourceful: How resources can help the brain tumor community to be better equipped, informed and empowered.
March 30, 2025 at 11:03 PM
⚠️ The first ever #BTSM #skychat will take place on March 30, 2025, 4 pm PT / 7 pm ET.
We sincerely hope the #bsky #braintumor community will continue to contribute to the more than a decade-long history of #btsm chats.
#oncsky #ayacsm #academicsky #medsky #cansky #neurooncology #neurosurgery
March 6, 2025 at 2:45 AM