Robert Muní Lofra
@rmunil.bsky.social
PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc.bsky.social John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Reposted by Robert Muní Lofra
Women may experience a three-fold reduction in mortality risk from coronary heart diseases, when following recommended exercise guidelines, compared to men, according to a study in Nature Cardiovascular Research. go.nature.com/47t8eZq #medsky 🧪
October 27, 2025 at 10:35 PM
Women may experience a three-fold reduction in mortality risk from coronary heart diseases, when following recommended exercise guidelines, compared to men, according to a study in Nature Cardiovascular Research. go.nature.com/47t8eZq #medsky 🧪
Reposted by Robert Muní Lofra
Did you see the highlights of our first day at #WMS2025? We had an incredible demonstration from the Austrian national Powerchair Football team and welcomed 1,500 delegates to the Austria Center Vienna for our 30th anniversary Congress. Watch here: youtu.be/sjqxyXVD0NY?...
WMS 2025 - highlights from the opening day
YouTube video by World Muscle Society
youtu.be
October 9, 2025 at 6:14 AM
Did you see the highlights of our first day at #WMS2025? We had an incredible demonstration from the Austrian national Powerchair Football team and welcomed 1,500 delegates to the Austria Center Vienna for our 30th anniversary Congress. Watch here: youtu.be/sjqxyXVD0NY?...
Reposted by Robert Muní Lofra
Wednesday 8th October was our #WMS2025 Congress plenary day, but the science didn't start until after the celebrations. To mark our 30th anniversary Congress. There was cake, and we shared a very special video to commemorate the occasion. Here are our highlights from the day.
youtu.be/viPpisDyY9Y
youtu.be/viPpisDyY9Y
WMS 2025 - highlights from Wednesday 8th October
Wednesday 8th October was the first of our #WMS2025 Congress plenary days, but the science didn't start until after the celebrations. To mark our 30th anniversary Congress, we heard from the current…
youtu.be
October 9, 2025 at 12:30 PM
Wednesday 8th October was our #WMS2025 Congress plenary day, but the science didn't start until after the celebrations. To mark our 30th anniversary Congress. There was cake, and we shared a very special video to commemorate the occasion. Here are our highlights from the day.
youtu.be/viPpisDyY9Y
youtu.be/viPpisDyY9Y
Reposted by Robert Muní Lofra
📢New projects feature in the #LGMD News Autumn edition. Produced for the community by The Speak Foundation, this is a great resource for members of the LGMD community🙌
See page 14 for an article about new projects at our centre!
📰Sign up here: bit.ly/4pWGsNl
See page 14 for an article about new projects at our centre!
📰Sign up here: bit.ly/4pWGsNl
October 1, 2025 at 8:51 AM
📢New projects feature in the #LGMD News Autumn edition. Produced for the community by The Speak Foundation, this is a great resource for members of the LGMD community🙌
See page 14 for an article about new projects at our centre!
📰Sign up here: bit.ly/4pWGsNl
See page 14 for an article about new projects at our centre!
📰Sign up here: bit.ly/4pWGsNl
Reposted by Robert Muní Lofra
Today at the FSHD Annual Engagement Day experts from NuTH are giving useful talks on pain management, sleep issues and exercise prescription👩⚕️
We're also getting research updates from the lab team on FSHD mechanisms, lab studies and imaging projects👨🔬
#FSHD
We're also getting research updates from the lab team on FSHD mechanisms, lab studies and imaging projects👨🔬
#FSHD
September 25, 2025 at 12:42 PM
Today at the FSHD Annual Engagement Day experts from NuTH are giving useful talks on pain management, sleep issues and exercise prescription👩⚕️
We're also getting research updates from the lab team on FSHD mechanisms, lab studies and imaging projects👨🔬
#FSHD
We're also getting research updates from the lab team on FSHD mechanisms, lab studies and imaging projects👨🔬
#FSHD
Reposted by Robert Muní Lofra
🔬This Spinal Muscular Atrophy Awareness Month, from SMA Europe, we are Connecting the Dots! Research in SMA is vital.
Did you ever wonder how research can have a real impact on the lives of people who live with SMA? Only together, WeAreOne
#SMAAwareness #ConnectingTheDots #SpinalMuscularAtrophy
Did you ever wonder how research can have a real impact on the lives of people who live with SMA? Only together, WeAreOne
#SMAAwareness #ConnectingTheDots #SpinalMuscularAtrophy
August 1, 2025 at 9:05 AM
🔬This Spinal Muscular Atrophy Awareness Month, from SMA Europe, we are Connecting the Dots! Research in SMA is vital.
Did you ever wonder how research can have a real impact on the lives of people who live with SMA? Only together, WeAreOne
#SMAAwareness #ConnectingTheDots #SpinalMuscularAtrophy
Did you ever wonder how research can have a real impact on the lives of people who live with SMA? Only together, WeAreOne
#SMAAwareness #ConnectingTheDots #SpinalMuscularAtrophy
Reposted by Robert Muní Lofra
Disabled people want to live a full life. Instead, we’re forced to scrap over our right to food and a wash | Frances Ryan
Disabled people want to live a full life. Instead, we’re forced to scrap over our right to food and a wash | Frances Ryan
Britain’s political and media class advocate policies that leave disabled people hungry and dirty. Why are we expected to settle for this, asks Guardian columnist Frances Ryan
www.theguardian.com
July 15, 2025 at 5:43 AM
Disabled people want to live a full life. Instead, we’re forced to scrap over our right to food and a wash | Frances Ryan
Check out our latest publication @jwmdrc.bsky.social
pubmed.ncbi.nlm.nih.gov/40582339/
Very proud of the work done by the team to improve the understanding of the care needs of our patients.
Next steps … how do we get our patients to be more active?
pubmed.ncbi.nlm.nih.gov/40582339/
Very proud of the work done by the team to improve the understanding of the care needs of our patients.
Next steps … how do we get our patients to be more active?
Levels of exercise exposure among people living with neuromuscular disorders: lessons learned from real-world data - PubMed
There is growing evidence on safety and efficacy of exercise in neuromuscular diseases. We sought to establish the levels of exercise exposure for people living with NMD and its association with mobil...
pubmed.ncbi.nlm.nih.gov
July 8, 2025 at 9:05 PM
Check out our latest publication @jwmdrc.bsky.social
pubmed.ncbi.nlm.nih.gov/40582339/
Very proud of the work done by the team to improve the understanding of the care needs of our patients.
Next steps … how do we get our patients to be more active?
pubmed.ncbi.nlm.nih.gov/40582339/
Very proud of the work done by the team to improve the understanding of the care needs of our patients.
Next steps … how do we get our patients to be more active?
Reposted by Robert Muní Lofra
🍊 Today is World FSHD Day!
📅 Held on June 20th to raise public awareness of #FSHD
🧬 Our Patient Registry helps advance research and development of treatments, therapies, and care for all those diagnosed with FSHD in the UK.
💻 Visit our newly revamped website to learn more: fshd-registry.org.uk
📅 Held on June 20th to raise public awareness of #FSHD
🧬 Our Patient Registry helps advance research and development of treatments, therapies, and care for all those diagnosed with FSHD in the UK.
💻 Visit our newly revamped website to learn more: fshd-registry.org.uk
June 20, 2025 at 12:55 PM
🍊 Today is World FSHD Day!
📅 Held on June 20th to raise public awareness of #FSHD
🧬 Our Patient Registry helps advance research and development of treatments, therapies, and care for all those diagnosed with FSHD in the UK.
💻 Visit our newly revamped website to learn more: fshd-registry.org.uk
📅 Held on June 20th to raise public awareness of #FSHD
🧬 Our Patient Registry helps advance research and development of treatments, therapies, and care for all those diagnosed with FSHD in the UK.
💻 Visit our newly revamped website to learn more: fshd-registry.org.uk
Reposted by Robert Muní Lofra
Now for our big news... I'm delighted to announce that the UK FSHD Patient Registry has now 🌟 RELAUNCHED 🌟 onto our new bespoke registry platform, with improved questionnaires and features!
Visit our website to learn more and sign up today!
👀 www.fshd-registry.org.uk 👀
#FSHD #WorldFSHDday
Visit our website to learn more and sign up today!
👀 www.fshd-registry.org.uk 👀
#FSHD #WorldFSHDday
June 20, 2025 at 1:01 PM
Now for our big news... I'm delighted to announce that the UK FSHD Patient Registry has now 🌟 RELAUNCHED 🌟 onto our new bespoke registry platform, with improved questionnaires and features!
Visit our website to learn more and sign up today!
👀 www.fshd-registry.org.uk 👀
#FSHD #WorldFSHDday
Visit our website to learn more and sign up today!
👀 www.fshd-registry.org.uk 👀
#FSHD #WorldFSHDday
Reposted by Robert Muní Lofra
Join Oxford Paediatrics study on Nemaline Myopathy. See more about the trial at:
www.musculardystrophyuk.org/research/cur...
www.musculardystrophyuk.org/research/cur...
June 18, 2025 at 3:32 PM
Join Oxford Paediatrics study on Nemaline Myopathy. See more about the trial at:
www.musculardystrophyuk.org/research/cur...
www.musculardystrophyuk.org/research/cur...
Reposted by Robert Muní Lofra
'The NHS wouldn’t tell a surgeon to stop an operation halfway through.
'A pharmacist wouldn’t hand out 40% of a course of antibiotics.
'So why is it OK for patients to be denied a full course of rehabilitation?'
@sarahazzard.bsky.social in the Guardian: www.theguardian.com/society/2025...
'A pharmacist wouldn’t hand out 40% of a course of antibiotics.
'So why is it OK for patients to be denied a full course of rehabilitation?'
@sarahazzard.bsky.social in the Guardian: www.theguardian.com/society/2025...
A fine balance of hope and reality in stroke recovery | Letters
Letters: Dr Jessica Beavan on the challenges of providing effective treatment and support to patients, and Sara Hazzard on the stark impact of inadequate physiotherapy services. Plus letters from Sall...
www.theguardian.com
May 21, 2025 at 8:00 AM
'The NHS wouldn’t tell a surgeon to stop an operation halfway through.
'A pharmacist wouldn’t hand out 40% of a course of antibiotics.
'So why is it OK for patients to be denied a full course of rehabilitation?'
@sarahazzard.bsky.social in the Guardian: www.theguardian.com/society/2025...
'A pharmacist wouldn’t hand out 40% of a course of antibiotics.
'So why is it OK for patients to be denied a full course of rehabilitation?'
@sarahazzard.bsky.social in the Guardian: www.theguardian.com/society/2025...
Reposted by Robert Muní Lofra
Reposted by Robert Muní Lofra
The Highly Specialised Service for rare neuromuscular disorders in Newcastle is organising an info day for people living with #LGMD, in person or remotely.
This will be a mixture of talks from experts in research, clinical care, and interactive workshops.
bit.ly/3RBg8YU
This will be a mixture of talks from experts in research, clinical care, and interactive workshops.
bit.ly/3RBg8YU
April 4, 2025 at 1:24 PM
The Highly Specialised Service for rare neuromuscular disorders in Newcastle is organising an info day for people living with #LGMD, in person or remotely.
This will be a mixture of talks from experts in research, clinical care, and interactive workshops.
bit.ly/3RBg8YU
This will be a mixture of talks from experts in research, clinical care, and interactive workshops.
bit.ly/3RBg8YU
Very proud to share our last publication to help improving understanding of the assessment of disease progression in SMA @jwmdrc.bsky.social @mdukcharity.bsky.social @curesma.bsky.social
www.nmd-journal.com/action/showP...
www.nmd-journal.com/action/showP...
www.nmd-journal.com
March 23, 2025 at 5:35 PM
Very proud to share our last publication to help improving understanding of the assessment of disease progression in SMA @jwmdrc.bsky.social @mdukcharity.bsky.social @curesma.bsky.social
www.nmd-journal.com/action/showP...
www.nmd-journal.com/action/showP...
Reposted by Robert Muní Lofra
There are many things that make Newcastle great... and the Toon Army were absolutely incredible yesterday! 🖤🤍🖤🤍
Huge well done to all @newcastleunited.com - Carabao Cup Winners 2025 ⚽️🏆
Huge well done to all @newcastleunited.com - Carabao Cup Winners 2025 ⚽️🏆
March 17, 2025 at 12:12 PM
There are many things that make Newcastle great... and the Toon Army were absolutely incredible yesterday! 🖤🤍🖤🤍
Huge well done to all @newcastleunited.com - Carabao Cup Winners 2025 ⚽️🏆
Huge well done to all @newcastleunited.com - Carabao Cup Winners 2025 ⚽️🏆
Reposted by Robert Muní Lofra
Reposted by Robert Muní Lofra
March 16, 2025 at 12:56 PM
Reposted by Robert Muní Lofra
Becca Leary, Senior Project Manager for the PaLaDIn project gives an overview for the overall objectives at the General Assembly in Rome today
March 3, 2025 at 10:15 AM
Becca Leary, Senior Project Manager for the PaLaDIn project gives an overview for the overall objectives at the General Assembly in Rome today
Reposted by Robert Muní Lofra
The curators' meeting was also a fantastic opportunity for our newest team members, Data Coordinators Lucy and Aleks, to learn more about the network and meet the rest of the TGDOC family. They presented registry posters, made lots of valuable connections and represented our team brilliantly! 👏🧬
February 12, 2025 at 3:38 PM
The curators' meeting was also a fantastic opportunity for our newest team members, Data Coordinators Lucy and Aleks, to learn more about the network and meet the rest of the TGDOC family. They presented registry posters, made lots of valuable connections and represented our team brilliantly! 👏🧬
Reposted by Robert Muní Lofra
We have a new social media account on BlueSky alongside our previous accounts, so please follow us for updates on the translational research we do that brings diagnosis, care and therapy to people living with neuromuscular diseases! 🙌
February 7, 2025 at 9:40 AM
We have a new social media account on BlueSky alongside our previous accounts, so please follow us for updates on the translational research we do that brings diagnosis, care and therapy to people living with neuromuscular diseases! 🙌
Reposted by Robert Muní Lofra
We are celebrating a publication describing the efficacy of a new MRI sequence call sodium MRI to detect early damage in skeletal muscle of individuals after an exercise.
This is a collaboration between MRI centre & JWMDRC funded by Jain Foundation through the COS study. 🙌
bit.ly/4gviylW
This is a collaboration between MRI centre & JWMDRC funded by Jain Foundation through the COS study. 🙌
bit.ly/4gviylW
Rapid Quantitative Assessment of Muscle Sodium Dynamics After Exercise Using 23Na‐MRI in Dysferlinopathy and Healthy Controls
You have to enable JavaScript in your browser's settings in order to use the eReader.
bit.ly
February 7, 2025 at 10:50 AM
We are celebrating a publication describing the efficacy of a new MRI sequence call sodium MRI to detect early damage in skeletal muscle of individuals after an exercise.
This is a collaboration between MRI centre & JWMDRC funded by Jain Foundation through the COS study. 🙌
bit.ly/4gviylW
This is a collaboration between MRI centre & JWMDRC funded by Jain Foundation through the COS study. 🙌
bit.ly/4gviylW
Reposted by Robert Muní Lofra
Children in UK suffering ‘irreversible harm’ due to physiotherapy delays - The Guardian highlights the stark reality for children and their families who are facing unacceptable long waiting lists for treatment.
#RightToRehab
#RightToRehab
Children in UK suffering ‘irreversible harm’ due to physiotherapy delays
Teenagers face lifelong trauma from untreated chronic pain while children as young as four waiting 18 months, say physiotherapists
www.theguardian.com
January 31, 2025 at 9:45 AM
Children in UK suffering ‘irreversible harm’ due to physiotherapy delays - The Guardian highlights the stark reality for children and their families who are facing unacceptable long waiting lists for treatment.
#RightToRehab
#RightToRehab
Reposted by Robert Muní Lofra
'Sadly, long wait lists and limited access to physiotherapy, due to staffing shortages and shortages of suitable rehab spaces are causing irreversible harm.'
94% of paediatric physiotherapists are concerned about their patients accessing the rehab treatment they need.
#RightToRehab
94% of paediatric physiotherapists are concerned about their patients accessing the rehab treatment they need.
#RightToRehab
Paediatric physios warn long waits causing 'irreversible harm' to children
A survey has revealed that 94 per cent of paediatric physiotherapists are concerned about their patients accessing the rehab treatment they need.
www.csp.org.uk
January 31, 2025 at 6:14 PM
'Sadly, long wait lists and limited access to physiotherapy, due to staffing shortages and shortages of suitable rehab spaces are causing irreversible harm.'
94% of paediatric physiotherapists are concerned about their patients accessing the rehab treatment they need.
#RightToRehab
94% of paediatric physiotherapists are concerned about their patients accessing the rehab treatment they need.
#RightToRehab